Bard monofilament polypropylene knitt...
Cynthia

United States

#21 Jul 11, 2009
I really don't know whether I have adhesions - I know I'm prone to them and when after the surgery my doctor said he had rearranged some of my plumbing, i.e. bowels.

I've also searched enough just based upon my OR report to find that particular mesh Bard 0112660 flat sheet Monofilament knitted was sized as 10" x 14" (yes that's correct inched not cm). My OR records and physicians records report that the patch size was 3"x5". Now I wonder - how do they resize the mesh? Is it cut pre-surgery?

I've also done a little seamstressing in my life and know that fabric meshes and net can have a frayed edging when cut. Now I'm thinkig what the heck - is that why I feel this knifing feeling in various places (feeling crosses about 4 inches of area and some of the sensations are more like gouging in 1-2 inch spots) then after a day or so I feel itching and lumps. Not to mention my bowels feel ubstructed causing constipation and I've had urinary problems (going a lot). I did a urodynamics study and it was discovered I only have 1/3 the capacity of my bladder -well- something is squeezing/pinching it off. This has happened after the surgery. Not to mention my abdominal area now hangs like a baggy apron. It really hurt to do abdominal exercises...and I fear it's also risky if something is POKING me.

Thanks for insight.
Steamer

United States

#22 Jul 11, 2009
Cynthia, you may have adhesions. Dr. Jay Redan at Celebration Hospital under the CAPPS program is working with SprayGel or SprayShield, I can't remember which for a study on a new adhesion barrier. This hospital is in Florida. If you Google www.adhesions.org you will find a link about it.
I am sure they can completely evaluate you.
Steamer

United States

#23 Jul 11, 2009
I can't find any good recent post where a Dr. David Grischkan solved anyone's problem. Can you?

Since: Oct 08

Jax-Home of the Jags Baby!

#24 Jul 16, 2009
Cynthia wrote:
Kugel man thanks for your post with No's. I had surgery in 2003 and have had severe to moderate knife cutting, pinching type pain since surgery. The surgeon said it was my imagination.
I finally received the Operating Room report with Monofilament knotted polypropylene 3 x 5 mesh. The surgeons report said Marlex mesh. So does Bard mfr 0112660. That's the reference on my report.
I haven't found anyone to take this serious and extract it. What diagnostics did they use? CAT MRI???? I'm starting my journey to get this removed. Thanks for feedback
Cynthia, You have 2 different sets of numbers. You have to also gather the other one that has numbers combined with letters on it. When you first had the surgery, the surgeon most likely place the sticker from the package he used on the "operative report", get that info. My symptoms were w/o pain. I just couldn't hold food down for 2 years - which I thought was stress. But after exams they saw the true problem was the mesh and I had no choice but to have it removed. I had another surgery 8 months ago for scar revision and hernia removal from the same area they had to cut me open and remove the mesh. Talk to an atty when you get the info from the operative report. Best of luck to you.
Cynthia

United States

#25 Jul 16, 2009
Lisa I have two sets of numbers #0112660 and 431LD201(I think - it's hard to read) I found the 1st number by researching, but I didn't understand what the 2nd number was.

What does it mean? I'm clueless.

I do have an appointment with a Dr. next week - not one of the suggested - we'll see how this goes.

THANKS for any additional information!
Lisa - Duval County wrote:
<quoted text>
Cynthia, You have 2 different sets of numbers. You have to also gather the other one that has numbers combined with letters on it. When you first had the surgery, the surgeon most likely place the sticker from the package he used on the "operative report", get that info. My symptoms were w/o pain. I just couldn't hold food down for 2 years - which I thought was stress. But after exams they saw the true problem was the mesh and I had no choice but to have it removed. I had another surgery 8 months ago for scar revision and hernia removal from the same area they had to cut me open and remove the mesh. Talk to an atty when you get the info from the operative report. Best of luck to you.
R Anthony in CA

El Dorado Hills, CA

#26 Aug 29, 2009
I just had a mesh plug removed from my umbilicus after horrific pain for 42 months. The surgeon also removed mesh patch from R inguinal hernia 11 months ago. Thank God he got all the mesh out! Now we're waiting to see if my nerve pain will abate, and to what extent. The surgeon said it could be anywhere from 20%- 80% improvement. It's also been advised for me to have a triple neurectomy in the R inguinal region, but some MD say that NEVER works. I can't accept I'll have to live in crippling pain for the rest of my life because of two small, 1cm hernias.
There MUST be answers. In an age of face transplants, how can a small hernia ruin a life!?
Best wishes, and good luck to you for a complete recovery.
Steamer

Seattle, WA

#27 Aug 29, 2009
BREAKING NEWS:

DR. BRUCE RAMSHAW TO LEAVE HIS PRACTICE AT THE UNIVERSITY OF MISSOURI. He was known as the Gentle Giant. I believe he is starting private practice in another state. He devoted most all of his practice to hernia repair and is booked through October and accepting no new patients. STAY TUNED

Other surgeons mentioned
Dr. Shirin Towfigh at Cedar Sinai
Dr. Kevin Petersen in Las Vegas
Dr. William Meyers in PA
Dr. Peter S. Billing in Edmonds, WA

So you see, there are still choices
hernia shadow

AOL

#28 Sep 12, 2009
Kugel Man wrote:
Has anyone contracted the mycobacterium abscessus infection from their hernia repair surgery? Please let me know. It almost killed me. Still dealing with the long-term complications to date and get this... the military doesn't want to remove the infected mesh, yet. They are more worried about moving forward with a silent MEB proceeding than taking care of me. Three failed hernia repair surgeries; 1 J&J mesh and 2 CR Bard mesh (1 Kugel Mesh and 1 Marlex Monofilament Knitted Polypropylene Mesh). Complications from all three mesh. Product codes 0010201 and 0112660. I even initiated a congressional review. Hasn't done anything yet but piss off the SG's office. No worries! Just initiated a senatorial review and getting ready to start a mass campaign to take this whole thing to 60 Minutes! Who's interested? Please let me know... Maybe then the FDA will get more involved and take it more seriously.
goggle this: wound infections due to Mycobacterium fortuitum after polypropylene mesh inguinal hernia repair. quit a few listed sites on this topic.
john dauley

Mesquite, TX

#29 Sep 17, 2009
Lisa - Duval County wrote:
This mesh is not YET on the recall list by the FDA but should be! Has anyone else had this implanted and removed because of complications? I just about died from this eroded mesh. The DR. said it failed and no choice left but to have open surgery for removal. We just didn't know how bad it was. 4-mos to recover, 17 days in hosp., feeding tube, etc. I'd like to hear from others with the same type.
Hello My name is john 63 I had a hernia operation in 1995,I complained for 2 years. It was not nearly as bad as many others that I read about but it hurt like hell. It felt like it was tareing my inards...I figure that tissue and muscle grow in around and through it so then it shrinks and pulls everything inside you. Doctors told me it was normal or it was just scar tissue,After so long I just accepted it and lived with diarria and pain. In 1995 I didnt even know what a recall was. I still am not even 85 % back, I have always had problems bending and forget picking up anything to heavy. Now that I read all this about Bard Marlex I think it needs much more research and improvement..
I am one of the lucky ones with less problems than many others....[email protected]
dmaria

Brooklyn, NY

#30 Sep 20, 2009
Hi,my name is Diane and I'm currently 51. I had a hernia repair surgery in 2001 and have regretted that day every day of my life. I'm in pain so much and sometimes it's like sharp knife pains throughout my ab (I guess the pulling) When I sneeze a strong sneeze, it's like someone is ripping my insides out. The pain is unbelievable. I have other complications going on blood clots, possible autoimmune disease, weakened immune system and loss of anything I enjoyed in life.

I wonder how much is a reaction to this netting made of polypropene that's wrapped inside my abdomin. I can't seem to find answers or relief other than ice packs and not stressing myself.

I just think people need to know about these mesh netting complications before they have this type of surgery done. [email protected]
Matt Staton

Mentor, OH

#31 Oct 7, 2009
Are there any people out there who have had mesh removed and experienced relief. I'm looking at getting the surgery and want to make sure it's the best thing to do at this time. Feel free to email me at [email protected] if needed

Thank you.

Matt
Carrie A- WV

AOL

#32 Nov 29, 2009
I also had hernia repair, which was in January of 2005. Mine was an umbilical hernia, which according to the op report was 1cm x 1cm. At the time I had the surgery, my baby was 4 months old. I thought I was going to die!! I had terrible pain for months, which did eventually improve, however I still get excruciating pain at times and if strained at all I have soreness sometimes for days or weeks. I still fell a constatnt pull and have also experienced bowel (constipation) and bladder problems (frequency, never enough when I do go) as some others have also complained of. I am 27 years old, have always been healthy, but continue to have issues after having this surgery. Perhaps it is due to having children, but I think it is this mesh plug that is inside my abdomen. I have researched endlessly and still have not found any recent info regarding a recall of the mesh plugs. I got my OP report and know that it is infact a medium plug. Does anyone have any recent info regarding the plugs or have any similar symptoms. I cannot even do sit-ups or crunches, or at times use the bathroom without consequences of pain (seriously not related to physical inability, it is due to the pulling and pain it causes). I wish I had never had the surgery, but know that I did, what do I do? And if they do recall it, what are they going to do next to fix the problem?? This is what is scaring me, and what if the outcome is worse? Thanks!
Peggy

Animas, NM

#33 Dec 14, 2009
My name is Peggy my e-mail is [email protected]
I had an "incisional umbilical herniorrhaphy with Prolene mes insert" bac in November 2005. The implant information in my medical records state"Bard Mesh Monofiliament Knitted Polypropylene size 2"x4" (5cm x 10cm) Ref 0112650 LOT 43DP014. I have been reading all of your stories and now I am very scared. I am 56 years old and have been having abdominal pain for years. I have a lump in my stomach that feels like a ball and am scared to go to the doctor about it. My eating habits have changed where I can only eat a few bites and I feel stuffed and can't eat anymore. I have a terrible time having BM's and have revertd to laxatives and stool softeners. I nevered realized that it could be the hernia mesh that might be causing me this pain until a co-worker an I talked. I cannot even stand aligned as it feels like something is pushing on my spine (maybe the lump in my stomach)? I have no idea of what kind of a doctor to go see. Can someone please help me? Please e-mail me.
Carrie A- WV

AOL

#34 Dec 14, 2009
Peggy,
I can definately relate to your fears. I have experienced pulling, tightness and pain since day 1. However, the constipation and bladder issues have recently came about within the past few months and seem to be getting worse. I am concerned about adhesions, as I too started researching this after discussing my symptoms with a co-worker who was also a physician assistant. I am a nurse and was oblivious to the recall of any of Bard's mesh products. The only info that I consistantly find about the mesh "plugs" is that they have yet to be recaaled, but are under scrutiny and are being investigated and/or are pending recall. I just want this thing out of me, but am reluctant to have another surgery after 4 years. And of course the complications are enough to scare you to death after hearing what the implant itself can do. If you hear any updated info, please email me at [email protected], as I will also update you on anything new that I may find.
Peggy wrote:
My name is Peggy my e-mail is [email protected]
I had an "incisional umbilical herniorrhaphy with Prolene mes insert" bac in November 2005. The implant information in my medical records state"Bard Mesh Monofiliament Knitted Polypropylene size 2"x4" (5cm x 10cm) Ref 0112650 LOT 43DP014. I have been reading all of your stories and now I am very scared. I am 56 years old and have been having abdominal pain for years. I have a lump in my stomach that feels like a ball and am scared to go to the doctor about it. My eating habits have changed where I can only eat a few bites and I feel stuffed and can't eat anymore. I have a terrible time having BM's and have revertd to laxatives and stool softeners. I nevered realized that it could be the hernia mesh that might be causing me this pain until a co-worker an I talked. I cannot even stand aligned as it feels like something is pushing on my spine (maybe the lump in my stomach)? I have no idea of what kind of a doctor to go see. Can someone please help me? Please e-mail me.
Howie

Centreville, VA

#35 Dec 15, 2009
Great set of Dr.s that Steamer posted.

Include also: Dr. Shirin Towfigh
Dr. Peter S. Billing
Don Nichols

Los Angeles, CA

#36 Dec 23, 2009
I had an inguinal hernia repaired with Marlex mesh in May 0f 2002. I have had numerous complications that have gotten worse over the years. Hydrocele, varicocele, and ridiculous pain. This year it has gotten so bad that i have lost 40 lbs from pain and nausea. I have had 4 nerve blocks and radio frequency ablation 3 times since March 2009. The insurance company (horizon bcbs of NJ) won't pay for any more pain management. I can not eat, sleep or function. The doctor that did the surgery has shredded all documents because it was over 7 years ago. I can not get model #s etc of the patch. HELP!!!
Howie

Centreville, VA

#37 Dec 23, 2009
It doesn't matter that much if you go to one of the top specialists I mentioned.
Cynthia

Dallas, TX

#38 Dec 23, 2009
Howie wrote:
It doesn't matter that much if you go to one of the top specialists I mentioned.
Howie, are all those guys involved in explant studies?
ALS

Houston, TX

#39 Dec 23, 2009
To Howie and all: I am doing much better. Dr. Peter S. Billing is not involved in any explant study. Dr. Peter Billing is somebody that will listen to you.
I had a prolene mesh removed on the left side and another dual layer mesh originally placed by Dr. Goodyear at North Penn. Both meshes contracted and folded up. Dr. Billing used a lightweight UltraPro mesh. Please feel free to ask any questions.(P.S. I had inguinal hernias on both sides)
Matthew_C

Macon, MO

#40 Mar 15, 2010
I don't even know where to begin, who to talk to or even what to do. In March of 2001, at the age of 25, I discovered that I had a left inguinal hernia. My surgeon (then) that performed the surgery told me about a new mesh that would be state of the art, a more efficient healing process and less pain and would never have to worry about this again. The sticker that came from this wonderful mesh that is on my medical records is "Bard Mesh Monofilament Knitted Polypropylene", size 3" x 6".
On February 5th of 2010, I had to have surgery again for my hernia. My surgeon (that I have now) said that it would take about one to two hours, pending on the situation. Almost six hours went by and my surgeon told me after the surgery that I would expect more surgeries to come. Also, he said that the previous mesh failed, he couldn't and wouldn't take it out because he was afraid that it would kill me by removing it. He also said that only did the mesh fail, but anything that touches it adheres to it (tissure, organs, vessels and whatever else). He advised that if someone else was going to perform the surgery on me, that they would need to be told that they not remove it either. During my surgery, my doctor was able to cut away a small piece of the mesh so he can perform a biopsy and study this mesh, now becoming a statistic for a research study.
So, I have this faulty mesh in me now, with more mesh on top of it and I have deal with pain on a daily basis. I have to walk bow-legged because of the pain. If I walk upright, within matter of minutes, I very sore. Actually feels like someone taking their index finger and thumb and pinching the insides of me.
While dealing with this, what do I do, who do I talk to and what is my next move? Someone please email me at [email protected] for ideas, suggestions and even comfort.

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