Pamela Anderson: 'I'M Going to Cure M...

Pamela Anderson: 'I'M Going to Cure My Hepatitis C'

There are 83 comments on the PR-inside.com story from Oct 25, 2007, titled Pamela Anderson: 'I'M Going to Cure My Hepatitis C'. In it, PR-inside.com reports that:

“Every time I get tested my doctors tell me I am getting healthier. I believe I'm going to cure my Hepatitis C.”

Actress PAMELA ANDERSON is adamant she will cure the Hepatitis C virus she contracted from ex-husband TOMMY LEE. via PR-inside.com

Join the discussion below, or Read more at PR-inside.com.

Murdered

AOL

#23 Jan 3, 2008
i understand that there is no cure but let me give you a hypothetical...if there was me and pam anderson and only one liver who will get it? PAM.
no cure? well naomi says there is no trace of her hep c any more but has not revealed her treatment, so that sounds like a cure to me. but i guess GOD gave her a miracle since she is a much better person than you and i.
i'm not trying to be hate filled or nothing but the frustration of it all keeps me in a sarcastic frame of mind. if you really want to see some one riled up talk to my mom and dad about the negligent doc's that gave me contaminated blood at age 16.

“Doot de doot”

Since: Oct 07

doot doot da...!

#24 Jan 3, 2008
Murdered wrote:
i understand that there is no cure but let me give you a hypothetical...if there was me and pam anderson and only one liver who will get it? PAM.
no cure? well naomi says there is no trace of her hep c any more but has not revealed her treatment, so that sounds like a cure to me. but i guess GOD gave her a miracle since she is a much better person than you and i.
i'm not trying to be hate filled or nothing but the frustration of it all keeps me in a sarcastic frame of mind. if you really want to see some one riled up talk to my mom and dad about the negligent doc's that gave me contaminated blood at age 16.
UNOS has a pretty good system in place to get livers to the ones that need them on an equitable basis. I'm not too concerned about a skank like Pam getting an organ I deserve.
Naomi is most likely full of shit. Counts do go up and down but the virus does not spontaneously go away. Not even for country stars who pray a lot.
I'm really sorry to hear you got exposed by contaminated blood. There are a lot of folks in that position because they didn't even have a test for Hep C until fairly late in the game.(I forget the year. Sorry)
Best of luck to you.
Murdered

AOL

#25 Jan 3, 2008
what does UNOS stand for? thanks for the sentimates, wish those GOD playing dr's could bring them selves to do the same.
you seem to be way more up to date on this than me, so if you don't mind me asking you some questions i would appreciate the info.
with all the contaminated blood so carlessly given i wonder why there's not a class action lawsuit? i'll hear of one case here and there but never one at a certian hosp. or red cross
some kind of suplimental help would help a lot of us out with $1500 meds and where i'm at my doc sends my blood to a special lab in california and that costs me 380$ a pop that my insurance will not cover. with all the tests, proceedures and meds my insurance only covers about 80%. but anyway it's a bloody mess.

“Doot de doot”

Since: Oct 07

doot doot da...!

#26 Jan 3, 2008
Murdered wrote:
what does UNOS stand for? thanks for the sentimates, wish those GOD playing dr's could bring them selves to do the same.
you seem to be way more up to date on this than me, so if you don't mind me asking you some questions i would appreciate the info.
with all the contaminated blood so carlessly given i wonder why there's not a class action lawsuit? i'll hear of one case here and there but never one at a certian hosp. or red cross
some kind of suplimental help would help a lot of us out with $1500 meds and where i'm at my doc sends my blood to a special lab in california and that costs me 380$ a pop that my insurance will not cover. with all the tests, proceedures and meds my insurance only covers about 80%. but anyway it's a bloody mess.
UNOS stands for United Network for Organ Sharing. They facilitate the distribution and allocation of donated organs according a set of criteria that seems to me to be fair and rational.
I'm not a lawyer, but i wonder if the reason there's no class action suit is because actual negligence is/was rarely the cause of exposure. You see the virus can lie dormant for many years, so it is often impossible to pinpoint the moment of exposure and the sad fact is that there was no screening tool until (I believe) sometime in the 1990's. Prior to that the docs thought they were doing what they needed to do by screening for Hep A and B.
If you're taking interferon, you should ask your doctor about assistance through the drug maker (Roche, I think. I took it, unsuccessfully, but my memory she's a no so good, so I could be wrong.). The same is true of any of your meds, there are programs available, most of us just don't know how to plug into them. Talk to the financial folks at your health care facility. If your insurance is giving you a hard time, do not be afraid to argue with them. Appeal their denials. Get your doc on your side. Look into SSDI and Medicade. I'm lucky because my wife is a great advocate. If I didn't have her fighting for me, I'd probably be pushing up daisies.
I don't know if any of this helps. Please don't give up. There have been many times I've wanted to, hell a year ago the docs told my wife to arrange hospice care because I was on the way out. Today my MELD score is way lower, my thoughts are clearer, I am stronger and I gotta admit, I look awesome! At least that's my opinion. Please take care.
SFRB

Waianae, HI

#27 Mar 15, 2008
My neice, from nice suburban New Jersey neighborhood, became a heroin addict when young (not sure, maybe 17?) She's now 22 and just recently diagnosed with Hepatitis C. I didn't know much about Hep.C., I thought you 'just take the right medication,' but of course now find out it's complicated. She is not good at taking care of herself. If she had to get on a liver transplant list in the future, I imagine she'd be on the bottom of the list, being a heroin addict. One thing I can see her doing, possibly, is going to a health food store and buying a few things and trying them. I know they're not cures, but can anyone give me a good list, for me to send her? so far, I see Milk Thistle and Vitamin K. I'll probably find out more before I hear back from anyone here, but just thought I'd drop a line. Thanks and God Bless.

“It's not personal Its business”

Since: Jan 08

Fluffya

#28 Mar 15, 2008
SFRB wrote:
My neice, from nice suburban New Jersey neighborhood, became a heroin addict when young (not sure, maybe 17?) She's now 22 and just recently diagnosed with Hepatitis C. I didn't know much about Hep.C., I thought you 'just take the right medication,' but of course now find out it's complicated. She is not good at taking care of herself. If she had to get on a liver transplant list in the future, I imagine she'd be on the bottom of the list, being a heroin addict. One thing I can see her doing, possibly, is going to a health food store and buying a few things and trying them. I know they're not cures, but can anyone give me a good list, for me to send her? so far, I see Milk Thistle and Vitamin K. I'll probably find out more before I hear back from anyone here, but just thought I'd drop a line. Thanks and God Bless.
Interferon and ribovirin used in combination provide a sustained viralogical response (cure ) in about 40-60% of patients, depending on the geno type of the virus, the age of the patient, gender, lenght of time infected, and viral load.

If she is young, recently infected and her liver is in good shape she has an excellent chance of a cure.

I have many friends in my support group who are virus free after Pegintron and ribavirin therapy..

I am unfortunately still infected. I took PEG an Ribo for 48 weeks in 2003-2004 and my liver went from stage 4 to stage 1, althought he virus did not become undetectable.

Last year I was in the Vertex study, I was given The protease inhibitor and peg fro 24 weeks, and the virus did become undetectable, but came back after i went off drug.

Bioth times the medicine kicked my *ss pretty good, but i never missed any work, and I have a physically and menally very demanding job. i had anemia, and diarea, and was week and tired, but i got through it, just toughed it out. I am not young(47)but i wil not ever accept a virus infecting my body , and "just live with it", or ever give up.
It is my liver.
They dont call it a live-r for nothing.

This May i am hoping to get in a new studt- a drug by Debio which is a cyclophilin inhibitor, in combo with PEG and Ribo, for 48-64 weeks. If i get in the study, i know it will be painful and difficult, and I will be grateful for the chance to get rid of the virus no matter the side effects.

Never give in, and never accept slow death.

Fight for your lif. Life is Gods gift and he gave us the will and the knowledge for a reason.

Check out the web site clinicaltrials.gov for info on treatment trials for any with no insurance..
There are many drugs in development, the pharma companys are working hard on treatment for this disease.

Many diffent and novel lines of attack- protease inhibitors, polymerase inhibitors, cyclophilin inhibitors, and others.

Checkit out, get your neice in treatment, and God bless you and good luck.

http://investor.pharmasset.com/releases.cfm

http://clinicaltrials.gov/ct2/results...

“It's not personal Its business”

Since: Jan 08

Fluffya

#29 Mar 15, 2008
This is a norrowed down search

http://clinicaltrials.gov/ct2/results...

“It's not personal Its business”

Since: Jan 08

Fluffya

#30 Mar 15, 2008
Above is for florida, refine search results for your area, and your age group
Renee

Greenville, NH

#31 Mar 15, 2008
I am wondering -WHERE DID TOMMY LEE GET HEP C????-- from sharring drug needles maybe??? what i dont get is that these people have more money than all of us put together and they can't buy a 'NEW TATTOO NEEDLE, GUN OR GET SOME NEW ink?' Seriously, we are giving these people too much credit, they knew what they were doing. Most people know that u shouldn't share needles- and as I said before they HAVE the money to buy new needle kits for tattoo-ing!!!! so give me a break! who knows they could have been heroin addicts too sick to get a new needle, but that still isnt an excuse, unless u have "give me a disease" written on your forehead. I've been in similiar situations.......and I know how to change ink, use clean needles, never share needles, get clean ones, sterilize, etc.

Remember they aren't homeless or broke, they have they money to use clean devices!(sorry if I spelt some words wrong!)

Since: Feb 08

Allentown

#32 Mar 16, 2008
exercise, good eating habits, along with Milk Thistle amd lecithin will contribute greatly to achieving her goal. Good luck.

“It's not personal Its business”

Since: Jan 08

Fluffya

#33 Mar 16, 2008
Renee wrote:
I am wondering -WHERE DID TOMMY LEE GET HEP C????-- from sharring drug needles maybe??? what i dont get is that these people have more money than all of us put together and they can't buy a 'NEW TATTOO NEEDLE, GUN OR GET SOME NEW ink?' Seriously, we are giving these people too much credit, they knew what they were doing. Most people know that u shouldn't share needles- and as I said before they HAVE the money to buy new needle kits for tattoo-ing!!!! so give me a break! who knows they could have been heroin addicts too sick to get a new needle, but that still isnt an excuse, unless u have "give me a disease" written on your forehead. I've been in similiar situations.......and I know how to change ink, use clean needles, never share needles, get clean ones, sterilize, etc.
Remember they aren't homeless or broke, they have they money to use clean devices!(sorry if I spelt some words wrong!)
Many people like me got Hep c from blood transfusions. Every one who got a transfusion before 1992 was potentially exposed, because the virus was not known before this time and there was no way to test for it.

Also, before this time the danger was unrecognised, and so it is just pointless to blame someone for not taking a precaution against an unknown risk.

Do you suppose lots of people just did it on purpose?

Who knows how someone you never met got exposed, it hardly matters anyway does it?

A better point is why dont these stars get treated with the available drugs?

I have met individuals who live with the virus rather than get treated because they are fearful of side effects, or because it is not a sure thing.

Within 5 years many new treatments will be available, and almost everyone will be cured who has insurance.

In the meantime, keep your liver healthy, dont drink or smoke or take any drugs, avoid organic solvents, and other toxins, and take milk thistle.

Get a good jod with health benefits so you will have insurance.

And if you have not already done so, get on peg-interferon and ribavirin- you have an excellent chance of being cleared of the virus.

Dont be put off by others stories of side effects, because the day you are told you need a new liver or are diagnosed with hepatocellular carcinoma, you will wish you had done everything possible while you had the chance.

“It's not personal Its business”

Since: Jan 08

Fluffya

#34 Mar 16, 2008
radical moderate wrote:
exercise, good eating habits, along with Milk Thistle amd lecithin will contribute greatly to achieving her goal. Good luck.
Doing these things may reduce liver inflamation and slow the degeneration of liver tissue, but they will never get rid of the infection.

Once one becomes chronically infected, the only way to become virus free and no longer have a degenerating liver and risk infecting others is to get treated with the current standard of care, Peg and ribo, or wait for one or more of the new treatments to be approved.

But the longer one waits, the more chance of irreversible damage, liver cancer, and infecting someone else.

Why wait?

Get the treatment, and if it works then you are cured, and if it does not THEN wait for another tretment to become available.

Milk thisle and lecithin are stopgaps, and akin to puttin a bandaid on a hemorrage.

They may buy time, but will never solve the problem.

“Doot de doot”

Since: Oct 07

doot doot da...!

#35 Mar 16, 2008
Michael Corleone wrote:
<quoted text>
Doing these things may reduce liver inflamation and slow the degeneration of liver tissue, but they will never get rid of the infection.
Once one becomes chronically infected, the only way to become virus free and no longer have a degenerating liver and risk infecting others is to get treated with the current standard of care, Peg and ribo, or wait for one or more of the new treatments to be approved.
But the longer one waits, the more chance of irreversible damage, liver cancer, and infecting someone else.
Why wait?
Get the treatment, and if it works then you are cured, and if it does not THEN wait for another tretment to become available.
Milk thisle and lecithin are stopgaps, and akin to puttin a bandaid on a hemorrage.
They may buy time, but will never solve the problem.
Are you, by chance, a physician? A pharmaceutical sales rep, perhaps?

“It's not personal Its business”

Since: Jan 08

Fluffya

#36 Mar 16, 2008
Skunk River Joe wrote:
<quoted text>
Are you, by chance, a physician? A pharmaceutical sales rep, perhaps?
No.

Are you perhaps a dufus?

A dope smoking granola by chance?

I am a person who lives in the real world, and does not try to cure in infectious disease with herbs or tictures.

But just to be clear, I do take milk thistle every day(6 tablets) and lecithin, but these are bandaids, and merely lessen the degree of liver inflammation, and will never stimulate the immune system to the degree neccesary to eliminate this virus.

You may do as you wish, but I for one am glad I live in the 21st century and have the benefit of modern medicine.

“Doot de doot”

Since: Oct 07

doot doot da...!

#37 Mar 17, 2008
Michael Corleone wrote:
<quoted text>
No.
Are you perhaps a dufus?
A dope smoking granola by chance?
I am a person who lives in the real world, and does not try to cure in infectious disease with herbs or tictures.
But just to be clear, I do take milk thistle every day(6 tablets) and lecithin, but these are bandaids, and merely lessen the degree of liver inflammation, and will never stimulate the immune system to the degree neccesary to eliminate this virus.
You may do as you wish, but I for one am glad I live in the 21st century and have the benefit of modern medicine.
Not a dufus, most of the time. Do not smoke dope, nor do I particularly care for granola. There are certainly no herbs or tinctures in my daily regimen and I am under the care of world class physicians. No witch doctors or faith healers.
I asked you two legitimate questions, given the kind of pronouncements you made in your posts. They were not meant as an insult or any sort of attack. I found your response to be inexplicably nasty, rude and insulting.

“It's not personal Its business”

Since: Jan 08

Fluffya

#38 Mar 17, 2008
And I do apoligize.

For some reason I thought you were someone else, who another thread was critical of any pharmaceutical intervention.

It seems there are those who believe that any type of supplements or alternative medicines are "good", and any real drugs or treatments are "bad".

No excuse though.

My purpose in posting here was to offer the benefit of my knowledge and experience to any otheres who are suffering throuhg this awful disease, as I am.

Again, I am very sorry.
I was very rude.

In regard to your original question(if you still care), I am just a guy who thought I was healthy until a few years ago when I asked my doctor to examine me as i felt inexplicably tired all the time no matter how much sleep i got. I found out I have this virus, which i knew very little about.

I have since educated myself on every aspect of the disease, and the available treatments.

This has been helped by a strong backround in science and biology, but I have never been involved personally in the medical profession in any way.

I have read some of the previous posts, and see some who may be able to benefit from some of the new drugs currently in development.

Please accept my apology, and via con dios.

“Doot de doot”

Since: Oct 07

doot doot da...!

#39 Mar 17, 2008
Michael Corleone, Thank you. Your apology is most certainly accepted. I wish you the best of luck in your fight with Hep C.
For my part, I would be extremely reluctant to try interferon again, given the side effects that I experienced. But I know that we are each unique and each of us must make our own choices, so I would never discourage anyone from trying the treatment. It does work for some. I am also aware that it is pretty much standard practice to undertake interferon treatment after transplant to give the new liver a better chance of thriving. Scares the hell out of me. But I'll do it. If a new treatment comes along that my docs think I'd be a good candidate for, I'll do that too. After I've done some research of my own.
They stopped my interferon treatment about 30 weeks in because it was quite literally killing me. At that time my MELD score was 18 and most of the doctors thought I would not last a year. Two years later, my MELD score is 9 and I feel pretty good. Maybe even great by comparison. I am still on the transplant waiting list but I am too healthy to be selected. Which is just fine by me.
As far as infecting others, I've been married for over 30 years and my spouse is negative for the virus, as are both of our grown children and our two grandchildren. I am pretty rigorous about hygiene- hand washing, anything that might be exposed to blood and so on.
It's my belief, and I am not a doctor, that we ought to use the discoveries of science and medicine- but not trust blindly. We must also take responsibility for our own well being, by following medical advice, by exercise, proper nutrition, avoiding substances that harm us, by good mental health and by seeking good cheer.
Peace and good luck to you Michael Corleone.
HepSlayer

Federal Way, WA

#40 Mar 17, 2008
It's good to see people on Topix apologize and accept apologies because that rarely happens, or I rarely see it happen here.

I've always viewed the decision to treat a very personal one which should be respected despite ones own feelings and convictions. I've known several to have debilitating sides and unable to continue treatment. I've known people afraid of the sides and not wanting to treat.

As far as new meds in 5 years, well I've been hearing that for 3 years now and each year it's always 5 years.
den from montreal

Montréal, Canada

#41 May 14, 2008
i am so tired . i have hep.c. 15 years now . i am going to start taking milk thistle. my doctor highly reputed for his research on hep c. told me that i am not a candidate for interferon because i have been suicidal since i caught this shit.and that interferon will affect your moods because it goes straight to your liver,. he also told me that milk thistle is not a proven cure but does help keep liver from getting worse.so could someone tell me how to take this ? like how many ? no 1; 15 years before the desease is turned into full hep c. no 2; takes 15 years before you get liver ceroses ..thank you ....i am 57 ...

“Doot de doot”

Since: Oct 07

doot doot da...!

#43 May 14, 2008
den from montreal wrote:
i am so tired . i have hep.c. 15 years now . i am going to start taking milk thistle. my doctor highly reputed for his research on hep c. told me that i am not a candidate for interferon because i have been suicidal since i caught this shit.and that interferon will affect your moods because it goes straight to your liver,. he also told me that milk thistle is not a proven cure but does help keep liver from getting worse.so could someone tell me how to take this ? like how many ? no 1; 15 years before the desease is turned into full hep c. no 2; takes 15 years before you get liver ceroses ..thank you ....i am 57 ...
I can't really answer your questions. As far as the dosage of milk thistle, I would hope that your doctor could give you some guidelines on that. After all, he did recommend it and he is the health care professional. Remember, the milk thistle won't do any good if you don't live a pretty healthy lifestyle. Don't consume alcohol and avoid anything that's toxic to the liver. Every medication that you get needs to be either one that is not metabolized by the liver or at least one with very low toxicity.
I had to wait a year or more before they would give me interferon due to depression, PTSD and bipolar disorder. I started seeing a psychiatrist for medication and a therapist for issues like PTSD and so on. She used a technique called EMDR which uses eye movement, sound or pulses to, in some way, alleviate the PTSD, depression etc. It sounded like a scam to me at first, but I tried it without any belief that it could help. I was wrong. I can't say that I'm a new man, but I've accepted my past and come to grips with the fact that my disease will kill me eventually. After about a year I was doing well enough that everyone agreed that it would probably be safe for me to start interferon.
You might talk to your doctor about getting into therapy, making whatever changes you need to make and getting yourself strong enough to give it a try.
Best of luck to you. I know that you are afraid and feel hopeless, because I've been there. There ain't no magic and no guarantees, some days are pretty damn good and some days are really awful. But it's not over till it's over and I might as well live until I die. Peace.

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