After h pylori eradication

Since: Jul 12

Morley, Australia

#284 Jul 2, 2012
Carly wrote:
I've just finished the Triple Antibiotic therapy and all I have to say is I don't ever want to touch that stuff again!!
Nausea, muscle cramping, stomach feeling like it's going to burst and hurting after everything that I eat.
This is my first day off it and I'm still getting nausea in the morning till about 11am then I seem fine.
Stomach doesn't really hurt with foods only slight bloating with sugar.
Is this normal not to get symptoms after the antibiotics?
I've heard alot of you say that you end up with gastris symptoms
Hey Carly, how are you feeling?
It is completely normal to be getting symptoms after the antibiotics. We all are :( Your symptoms don't sound too bad, are you still getting pain when you eat? Pain when you eat could be an indicator that you may have an ulcer. I would suggest to stay away from any foods that are disagreeing with your body. So maybe stay away from foods with high sugar.
Are you taking anything for the nausea?

Since: Oct 11

Bridgetown, Barbados

#285 Jul 2, 2012
Nazreen wrote:
Hey Everyone.
I'm female, 21 years old and was diagnosed with H. pylori through a blood test along with extremely low Iron, Vitamin D, and B12. I took the 7 day triple treatment and it was the worst week of my life!
****Nausea, shakes, diarrhoea, rash all over my body, loss of appetite, anxiety... i felt as if I was DYING. It has really effected my life and day-to-day activities.
It has been 1 week since completion of the antibiotics and I still feel nauseous and have an extreme loss of appetite. Reading the posts in this forum reassures me that I'm not crazy. I have recently been getting anxiety and thought my side effects were all psychological.
I don't want this to go on for months, I'm planning a 6 month trip abroad to Africa in August and don't want to be dealing with this over there :( I just want to be healthy again. To feel normal.
The symptoms I had before treatment was a little bit of fatigue and nausea when I ate a big meal. NOW i feel like I have every single side effect. I'm wondering if I was better off without the antibiotics!?!
I have been taking Maxolon for the nausea and it gives some short lived relief. Vomitting is an actual fear of mine (Emetophobia), ever since I was little and the nauseous feeling is giving me anxiety. Im scared for my sanity and its only been 2 weeks of suffering!
Yash1144 & Michael- I will ask my doctor about Motilium but I'm scared I will get some of the side effects.
sms08h- You do give me hope, but i think you have had a lot of time to come to terms with this. It is still hard for us who are just starting on the road to months of torture. I will take your advice and look towards treating my body the best I can to help it in the recovery process.
I'm also scared of losing weight as I am 60kilos and 5 foot 7. There is no room for weight loss.
The other thing is, I'm so low on all my vitamins and Iron I'm scared my lack of food intake due to the side effects will really harm my health. I'm booked in for an Iron infusion next Thursday.
I still haven't done my breath test, so for all I know I might still have it!!!
I swear to god, if they say I am positive and need to go on another round of antibiotics I am going to demand to be hospitalised! I can't even imagine going through it again, I would prefer to be in hospital. At least then I would be monitored and given drips and medication for the side effects.
I guess the best thing to do is take one day at a time, do all the tests, EAT (even though it's a struggle) and have faith that it will all get better.
Next time I see the doc i will enquiry about an Endoscopy- I would like the reassurance that I don't have any ulcers or cancer. Just to put my mind at ease.
I hope everyone is feeling better soon. I understand what you are going through and if you need to talk- give me a shout out :) I will keep a close eye on this forum in the coming weeks.
x
May I ask how low is your B12 levels? I hope you get through your battle with h pylori very soon. One warning be careful with what you read on the Internet. Not everyone has a good story to tell and not every good story is a TRUE story. Talk to your family and your doctors and ask their advice before making decisions. Do not look to the Internet for the answer because it may mess you up.

Since: Jul 12

Australia

#286 Jul 3, 2012
Hey KassS- I was never told the exact number, but the doc said it was extremely low. My iron was 8 (should be 30) I have been looking alot on the Internet but also listening to the people around me. Tomorrow I'm going to ask my doc to admit me into hospital because my Iron is too low and I can't wait a week until my infusion. Im not eating at all aswell so I'm feeling very weak and blacking out when I stand up to quickly. Hopefully once im in hospital they can bring all my nutrients up through drips and then test me for h pylori to see if the antibiodics worked. My family is so worried about me and I think going to the hospital will be the best thing to do and in Australia we have a great health care system so i guess I'm lucky. How are you going in your recovery?

Since: May 12

UK

#287 Jul 3, 2012
Sms08h and to all fellow Americans,HAPPY 4th OF JULY ! Happy Independence Day.
Michael S

Australia

#288 Jul 4, 2012
Doctor tried telling me I am category 2 (as in, not critical, thats crit 1) and said the wait is 6-8 weeks.. total rubbish, The hospital has yet to receive the paper work because they are horribly slow at processing (My specialist made sure it was sent) so then they tell me category 2 patients wait between 5-8 MONTHS!

I said screw it, I'm coughing up my ~$1300 or so and getting it done in 2 days.

My biggest fear is being told "You're perfectly fine". Because I'm not.

Motilium was good for a little bit, now I'm back to not being able to eat, extremely early satiety and burping that feels like vomit is coming up.

Motilium gave me about 4-5 mini-spasms in the entirety of the 2 weeks that I've taken it so far. I can feel it just above my belly-button. But no issue, it's probably a side effect of motilium as it stimulates digestion.

I think my second greatest fear is hiatal hernia/weakened LES (Lower esophageal sphincter) because that requires real surgery that isn't even a guarantee...

Since: May 12

UK

#289 Jul 4, 2012
Oh don't worry Michael,you will be alright.after your endoscopy picture will get more clear and then doctor can give you more exact medication.
When are you gonna go for endoscopy ? Friday ?
Michael S

Australia

#290 Jul 4, 2012
This Friday Mornin, 10am 6 Jul 2012

Since: May 12

UK

#291 Jul 4, 2012
All the best for your endoscopy Michael man.

Since: Jul 12

Australia

#292 Jul 4, 2012
Goodluck for tomorrow Michael :) I'm sure they will find the root of the problem and will be able to take steps to getting you back to 100%

I know the feeling of not being able to eat. As for your fear of being told you are "perfectly fine", that happened to me yesterday at the hospital. My blood was tested and got a ECG for my heart and X-rays because I was getting chest discomfort and palpitations. They basically said everything is fine in my heart and blood. They didn't even seem to concentrate on my stomach and digestive system... They basically said "yea the side effects of the antibiodics are pretty nasty, but you have to give your body time to recover"

The best thing that came out of my hospital trip was an anti nausea injection they gave me (used on chemo patients) it gave me relief was 4 hours. But couldn't really enjoy it because of feeling so weak from not eating.
Michael S

Australia

#293 Jul 6, 2012
"Mild inflammation" in the duendom. That is all they found. Good news I guess??

Biopsy results come back in 3 weeks which is annoying.

Only thing about the endoscopy I didn't enjoy was the 2 second sting when they inject the IV in your hand, then when they drain the blood for about a minute, your hand goes all warm and fuzzy and its really awkward.

They eventually wheeled me into the procedure room. Saw my doctor and like 4-5 nurses around.
They put in the sedation stuff in my IV and the walls were bouncing in the first 10 seconds, then I was told to lie on my side and that's all I remember. Didn't even see the endoscope. Closed my eyes for a second and I was out.
I even had a great dream during my time out haha.

Apparently I was out of it for a whole hour in the waiting area in my bed. All in all, it was a great endoscopy experience. No throat spray, no gargling. Just IV and off to sleep I went, like nothing had happened. No sore throat, no pain. Very little gas but no discomfort.

A+ for endoscopy, won't even be the slightest bit nervous if I have one in the future.

I get biopsy results in 3 weeks. Which is another $150 out of pocket ($74 back on medicare though lol) to get em back.

I dunno if I should go travel to Perth, other side of my country, I got a 3 month offer to live and work there for free (no expenses, flights car hire, food.. all free!) yet I don't want to be away from my GI but I might as well take the risk and try to enjoy life.

So yeah. That's my endoscopy experience. As I expected, nothing really came out of it (except ~$1400), the assurance nothing is wrong (Except mild inflammation).

So now what... That's my question.

Since: May 12

UK

#294 Jul 6, 2012
Oh Michael,that's great news.good one.but what did the doctors say about inflammation to the deodenum ? What's the reason for the the inflammation? And why did the doctor feel to take the biospy ?
And what about you not eating ? What did he say ?
Michael S

Australia

#295 Jul 6, 2012
He was in a rush, if anything he clearly felt it was not important enough to stick around.

Spoke to him for a total of 30 seconds while I was awake for about a minute feeling a little sluggish.

All that came out of his mouth was "Only a patch of mild inflammation, I took some biopsies from all around your stomach to make sure the H. pylori is gone and you should give it time to heal".

It was after that a nurse came and told me with a diagram that the inflammation was specifically in the duodenum.

Other than that. No prescriptions, no nothing.
The inflammation was, I'm guessing, from the H. pylori and it's in the process of healing.

Doctor felt the need to take biopsy to ensure he didn't miss anything, and if anything I'm thankful that he took many biopsies.

As for not eating, I didn't get to discuss this. I think he didn't feel it necessary to stick around.

All in all I'm actually quite unhappy I didn't get a few minutes with my doctor to discuss these things. I was too out of touch to think completely straight. I was more or less just over the moon that I was only inflamed and didn't quite think through everything.

My consultation is in 3 weeks with the GI who did my endoscopy.

He should have a detailed report of biopsies and everything. For now, I'll eat as best as I can.
Michael S

Australia

#296 Jul 6, 2012
Also, I've stopped taking nexium/Pariet.

So far, no down side to doing so. I believe my motility is a bit better now. It may have been causing the symptoms of delayed gastric emptying.

If symptoms persist when I see my GI next, I will request a gastric emptying.

Since: May 12

UK

#297 Jul 7, 2012
Hey Michael,how you feeling now ? how's the nausea and apetite ?.also I wonder why your GI didn't give you some medicine on deodenum inflammation.that way you could have fealt better very soon.
And bad that you couldn't talk with your GI after the endoscopy.you went alone or with someone ? maybe the one who accompanied you to endoscopy could have talked with the GI doctor if you were unconscious because as you also agree that nowadays we ourselves have to ask for medicines from doctors.
Michael S

Australia

#298 Jul 8, 2012
There is medicine for Duodenum inflammation??
Not that I know of. I know PPI's will help, but even my GI said a few weeks back that PPI's aren't effective, the are a hit-and-miss treatment.

My appetite is back, now that I am off the Nexium, I actually ate 2 schnitzels and rice today with bread... To me, that is an incredible amount of food in 1 day. However now that I finished my 2nd schnitzel I'm getting the burping sensation and discomfort, but it's no way near as bad. It lasted for about 2-3 minutes and when I burped everything out I was good haha.

I can't believe PPI's were giving me these symptoms. I even rushed to get that gastroscopy because of it!$1400 out of pocket just because of stupid PPI. But at least I know my stomach has no major damage.

Since: May 12

UK

#299 Jul 8, 2012
Good Michael fantastic,I told you nexium and ppis is a digestive killer.remember ?
Good that you can eat now.
Medicine for inflammation well medicines to get rid of all inflammations including deodeum are offcourse avalaible.
you can ask your GI.

Since: May 12

UK

#300 Jul 8, 2012
Also its good to know that you don't have gastritis which normally people have after the eradication of helicobacter pylori or before that.
That's more time consuming to heal actually.
Also can you eat spicy food ? Do you get the burning sensation after you eat spicy food ?
Carly

Australia

#301 Jul 8, 2012
Nazreen90

I seem to be able to digest foods fine,but I have noticed if I indulge too much in sugar or gluten or eat a large meal I bloat alot and have some nausea.

I suppose it's all normal as my biopsy did say I had severe gastritis along with H Pylori.

Since: May 12

UK

#302 Jul 9, 2012
Michael,also its strange that before your endoscopy for 2-3 days you couldn't eat.and the same day after your endoscopy you ate 2 schnitzels and rice with bread.so that concludes that the nausea and the feeling for not eating was phycological.
After endoscopy you came to know there's nothing to worry about and that nothings going in your stomach so that satisfaction made you eat comfortably without a fear to throw.
So 1400$ not wasted....you got satisfaction and more important you came to know the truth what's going on in your stomach.
nathalie

Montréal, Canada

#303 Jul 9, 2012
I started with this problem two years ago i'm beginning to think that this will never go away.
I have had six treatments and they have all worked at the time, but a few months later its back again and each time i get tested i'm positive for the bacteria. Hopefully this will be the last treatment. you are suppose to fell better after your treatment and if you are feeling bad again go back and see your doctor and get re-tested again

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