Topamax Reduces Number Of Monthly Mig...

Topamax Reduces Number Of Monthly Migraine Days In Chronic Migr...

There are 257 comments on the Pharma-lexicon.com story from Apr 30, 2006, titled Topamax Reduces Number Of Monthly Migraine Days In Chronic Migr.... In it, Pharma-lexicon.com reports that:

A study presented today at the annual meeting of the 8th European Headache Federation demonstrated that chronic migraine sufferers treated preventively with TOPAMAX experienced fewer migraine -related days per ...

Join the discussion below, or Read more at Pharma-lexicon.com.

Catherine

India

#21 May 21, 2007
I have been taking Topamax since Jan for chronic migraine with daily associated headaches this year and have been on around 80/100mg per day currently 80 mg I am really struggling with drowsiness and weakness feeling my doctor has altered the dose a couple of times but still struggling, migraines have eased but still getting headaches each day of a mild - medium pain level but my doctor wants me to stick with the topamax as they have good results normally anyone had the same side effects and do they ease? I'm 4 months in and would have though it would have got easier by now and had better improvements pain wise.
June Claire

Ambler, PA

#22 Jun 7, 2007
I have been suffering with migraines for several years yet not until 2 years ago have they affected my life. I have tried Imatrex, Frova and now have been precribed Topamax. After reading the comments I am a bit weary of trying meds, yet I have 3 small children and I need to get my life back. Any and all helpful feedback wanted. Thank you.
SGraham

Spring Hill, KS

#23 Jun 11, 2007
I started taking Topamax 6 weeks ago and I am taking 75mg a day. I have several of the side affects. No weight loss though, sodas occasionally taste funny, the "dopamax" has kicked in, and the tingling drives me nuts, it will let me sleep and sleep, but NOT having the headaches is all worth it. The thing I have to check on now is, is it supposed to make you winded?

Since: Jun 07

Lenexa, KS

#24 Jun 14, 2007
I have been currently taken Topamax for 2weeks now and feel great as far as not having headaches. I have suffered from migraines for 10 years on an almost daily basis. In the past two weeks I have had 1 migraine and it was very mild. The only side effects I am suffering from is that I feel a little "dingy" or "hoplessly dumb". It takes me a minute to catch on to somethings, like having to read a paragragh 2 or 3 times before fully comprehending. I don't feel my conversation is the same and it is only been 2 weeks. BUT I AM HEADACHE FREE!!!! It does take me awhile to get certain words out and I do not think as quick on my feet as before. The other positive thing besides being headache free is that I have lost 10pounds without even realizing it.

“Striving to be better daily”

Since: Jan 07

Zephyrhills, Fl

#25 Jun 14, 2007
The thing to remember is that the longer you are on this medication the more of the side effects will go away. The one that has hung on the longest for me is the weight loss. As far as the dopamax and tingaling and soda taste are all gone a long time ago. I have not had a migraine in a good long while, the only one I had was when I ran out my meds andcould not afford either the veralan or the topamax and it was a week and I got a 3 day migraine but that was from sudden stopping of the medication. I believe.
Kathy

New Port Richey, FL

#26 Jun 18, 2007
My daughter and I both suffer from migraines and have had tremendous relief from Topamax. However, we both experienced breast pain when we took it. I found on the drug's web site that this was a side effect. My doctor was unaware of this side effect which didn't surprise me. Did anyone else experience this? Mine went away eventually but my daughter's still bothers her. I'm wondering if it's because she's on the pill.
Aubrey

San Antonio, TX

#27 Jun 29, 2007
Hi, i just started on Topamax a few days ago 25mg for migraines. how quickly should i expect to see some of these scary side effects? i am looking forward to the weight loss though! i was told by my pharmacist that topamax decreases the effectiveness of the birth control pill, has anyone put this to the test? thanks for any feedback.
Steve

Southfield, MI

#28 Jun 30, 2007
Aubrey, don't be freaked out. Everyone is different. When I started taking Topamax two years ago my experience was that I noticed the bad taste of diet soda right away, and I got tingling in my arms, and sometimes my legs and lips by the time I was at my full dose of 75 mg. The tingling wasn't all the time. The taste issues went away after about three months. Sadly, I never lost weight. Probably too low a dose for me. I don't think I ever had terrible "dopamax" memory problems. Sometimes a spacey sensation that I couldn't quite focus my vision without concentrating.

My issue is that I'm not sure the med really helped me a whole lot. I was already on a beta blocker (Imetrex lately) which was doing the job for weeks at a time, but then I would get a headache that lasted for two or three weeks. So my neurologist added Topamax. Even then, I could go a couple months, and then get the two-week headache attack.

My real concern, like some others, is that when I lie down at night sometimes I have a weird tingling wave across my neck and back...a sort of agitation accompanied by labored breathing. Really, it feels like anxiety. I can't say for sure it's the Topamax. It didn't happen right away. My doc tried to have me go from 75 to 100 mg and it started up again, so I cut back. Now I'm back to 50 and still laboring with these tingling/anxiety feelings. My doc just put me on Lexapro to see if it is really just good old anxiety rather than Topamax side effects. And now I have Lexapro side effects as I try to acclimate to it -- upset stomach and insomnia. Hopefully that ends soon.

Anyone experience these neck/spine tingling/anxiety/jittery wave feelings on Topamax?

Since: Jun 07

Ambler, PA

#29 Jul 3, 2007
I've been on Topamax for 4 weeks now and have stepped up to 100mg. I've noticed many side effects - taste changes, loss of appetite, slight weight loss, confusion, confusion, oh, and confusion..., and forgetfulness - my concern is whether the side effects will subside or will they linger with the duration of the meds - Can anyone offer advice? Thanks.

“Striving to be better daily”

Since: Jan 07

Zephyrhills, Fl

#30 Jul 3, 2007
June Claire wrote:
I've been on Topamax for 4 weeks now and have stepped up to 100mg. I've noticed many side effects - taste changes, loss of appetite, slight weight loss, confusion, confusion, oh, and confusion..., and forgetfulness - my concern is whether the side effects will subside or will they linger with the duration of the meds - Can anyone offer advice? Thanks.
As long as you followed the dosing instructions to go up slowly, I cannot remember how slowly you are supposed to go up. But anyway, yes the side effects do wear off and go away. I have been on 100mg of topamax since October and it has been a life saver!
Christine

United States

#31 Jul 4, 2007
I just started taking topamax 50mg at night, I am so jittery the next day I can hardly stand it. Does this feeling go away? I actually stopped taking the two and am taking only one now until I can talk to my doctor. I'm on vacation and feel awful. My instruction were to take the 50mg for a week and up it to 25mg in the morning and 50mg at night I don't know if I can do it if I feel like I've had nine red bulls all day long. Has anyone else had this feeling and does it go away. thanks for any help. Christine

Since: Jun 07

Ambler, PA

#32 Jul 4, 2007
tamadrummer wrote:
<quoted text>
As long as you followed the dosing instructions to go up slowly, I cannot remember how slowly you are supposed to go up. But anyway, yes the side effects do wear off and go away. I have been on 100mg of topamax since October and it has been a life saver!
Thank you. I tell myself to take one day at a time. It is good to know the side effect will get better. Yet it is very hard when you find your self so out of sorts. I find that I need to explain myself to others so I don't come off as some ditz! I appreciate you taking time to reply. Thanks again. Will let you know how I am in another 4 weeks!
Linda - London UK

Maidenhead, UK

#33 Jul 7, 2007
Hi. Two weeks ago, the Neurologist started me on 25 mgs of Topamax (known as Topiramate here) for migraine. Last month I had 21 migraines and since starting, I've only had one mild one so far. I was suppose to raise my dose by 25 mgs after one week, working up eventually to 100 mgs, but the side effects have made me so sleepy, I decided to remain on 25 mgs for a second week. I finally felt less sleepy so raised it today to 50 mgs and touch wood have been okay. Early days, but after years of misery I think this is really going to help me :)
Liss

United States

#34 Jul 10, 2007
I take topamax for zeisures 200 mgs a day now for six month now and I still have some side effects like the tingling sensation on my lips arms legs and face, specially if I skip a dosage, it also makes me very slepy too slepy it is really hard to wake up, I also lost some way, I think is becouse what gets me thru the day is coffe insted of food, if I do not drink the coffe to wake up from the dopamax I woul not be able to takecare my twoo children.
sylvia

El Cajon, CA

#35 Jul 10, 2007
Joni-Kai wrote:
I have been currently taken Topamax for 2weeks now and feel great as far as not having headaches. I have suffered from migraines for 10 years on an almost daily basis. In the past two weeks I have had 1 migraine and it was very mild. The only side effects I am suffering from is that I feel a little "dingy" or "hoplessly dumb". It takes me a minute to catch on to somethings, like having to read a paragragh 2 or 3 times before fully comprehending. I don't feel my conversation is the same and it is only been 2 weeks. BUT I AM HEADACHE FREE!!!! It does take me awhile to get certain words out and I do not think as quick on my feet as before. The other positive thing besides being headache free is that I have lost 10pounds without even realizing it.
I have been taking topamax now for 5 months (50mg, started at 25mg) and I feel the same I can't get the words out fast enough, at meetings when ask a question I can't think fast enough for the answers as I used to. I don't like it, but is either that or a migraine and a missed day at work because of the migraine :( so I guess I rather have the problem of not be able to remember as quickly as before. Also are you experiencing any leg pain? but good luck! migrains are not fun, I have dealing with them for 20 years.
sylvia

El Cajon, CA

#36 Jul 10, 2007
Kathy wrote:
My daughter and I both suffer from migraines and have had tremendous relief from Topamax. However, we both experienced breast pain when we took it. I found on the drug's web site that this was a side effect. My doctor was unaware of this side effect which didn't surprise me. Did anyone else experience this? Mine went away eventually but my daughter's still bothers her. I'm wondering if it's because she's on the pill.
oh wow, well I wasn't aware of that side effect on their web site, but I will look it up because I have it too and I am not on the pill. I am 51 yrs old and I have been taking the topamax for 5 months now and this is a new side effect for me. I have some of the other side effects but this one I wasn't sure of what it was but for sure now I now. THANK YOU!
Aubrey

San Antonio, TX

#37 Jul 12, 2007
I have been on Topamax for a few weeks now, i am only up to 75mg now, but have not even noticed the mildest of side effects other than maybe some mild forgetfulness. I was almost looking forward to the weight loss, none so far. But I am very worried about the decreased effectiveness of the birth control pill that my pharmacist told me about. I have 2 little ones and not interested in any more. I plan to have my husband get fixed soon, but in the meantime, I did not want to have to worry about another type of birth control on top of everthing else. Has anyone else heard about this? Any feedback is appreciated.

Since: Jun 07

Ambler, PA

#38 Jul 18, 2007
Anyone experience problems with drinking beer, wine, alcohol? Beer is undesirable since it tastes flat. Last night drank it anyway celebrating my son's baseball win with the team. Did't even finish the beer because it just tasted so bad. Felt awful all day today as a migraine ensued. Few weeks ago drank Wine. It tasted okay, yet I woke up during the night violently ill, diarrhea and vomiting (great - huh?)- So now I am afraid to drink alcoholic beverages. Am I alone here? has any one else had this problem?
C Houlding

Vancouver, WA

#40 Jul 25, 2007
There are so many other cures available for treating migraines, apart from Topamax, which is known to have a high side effect profile. If Topamax causes such drastic adverse effects you should consider a more suitable regimen for the prevention of your migraines. In the book Managing Migraines, available from Author House or Amazon etc you can find so many alternative remedies from a medical as well as a non-medical perspective. There is something to suit every individual's pain in this book- we are all unique and require unique treatments. One size or cure does not fit all! Just a word of caution: Should you decide to discontinue the Topamax, then do not do so without your doctor's advice and without tayloring off your dose gradually.
Karen

Liberty Lake, WA

#41 Jul 25, 2007
I have been taking Topamax since March for my migraines. I take 200 mg, and it works quite well for me.

Initially I had some mild side effects - tingling in my feet and hands (which sucked for my golf grip) and some mild word accessing issues (which I've battled by doing crossword puzzles). Those have gone away with time, and also with switching my dose to bedtime. The side effects that have not gone away are altered taste when drinking soda - which is fine - soda is terrible for you anyway, and decreased appetite - with weight loss that has come as a result - but I do find that if I drink juice or eat more frequently I can get enough calories in a day to make sure I am not being malnourished.

The Topamax has helped with my headaches quite a lot. While I do still have some headaches, they are now quite mild and infrequent, and can easily be knocked out by Relpax or Zomig. Before, I was having severe headaches that would last a minimum of three days at a time - usually 15 days a month or more, and nothing I took would touch them. So the Topamax has been extremely helpful to me - it has made a huge difference in my life, and I've been able to be more actively engaged in my life - my children don't have to worry about mom's headaches anymore - to me it is a miracle.

I did notice that someone mentioned being afraid to have alcohol with Topamax - and I thought I'd mention that you are actually not supposed to drink while on Topamax. I think it can intensify the effects of the alcohol.

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