Chronic Daily Headache for 9 years

Chronic Daily Headache for 9 years

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Rochelle

Saint Kilda, Australia

#1 Mar 30, 2009
Hi All,

Thanks for taking the time to help out. I've been suffering from a constant daily headache for almost nine years now. The headache is a constant mild to moderate ache on both sides of the head, forehead and eyes, and base of neck. Every few days it increases in severity (enough to turn to painkillers), occasionally it forces me to rest.

In general I'm a healthy, slim, active 24 year old female. I exercise (run, dance, stretch, weights etc) almost every day and eat a healthy vegetarian diet (could do with some more protein and less sugar I suspect). No smoking, caffeine etc.

I've tried a long list of health practitioners over the years: 2 x GP's, neurologist, psychologist, naturopath, masseuse, optomertrist, Ear Nose Throat specialist, chiropractor, osteopath etc etc.

Painkillers don't seem to work, I've tried a fair few different brands. Thank goodness I can still sleep on most occasions.

The only relief I ever had from the consistent dull ache was after a particularly amazing and deep massage with a new masseuse. The feeling lasting a few minutes and felt great!! I have had many sessions since and although they offer some relief, the headache completely disappears.

Would love to know if anyone has experienced similar symptoms. I'd love some relief. I try my best to stay busy and positive but I do get really down about it.

Thanks!
Rochelle
sally

Napa, CA

#2 Jul 30, 2009
Hi Rochelle,
From the time I was 19 till I was 39, I had a headache every day too.....but I was lucky enough to have some day with part of that day headache free, some days I would have 3 !...Get rid of one, get another...etc.
I think they were sinus headaches, meds worked sometimes, sometimes they didn't....They made something called Sinu Tabs I took like candy, and occasionally the old Emprin Compound over the counter aspirin worked..it had caffeine in it ....

Some days I was incapsitated, but most days I just lived with it....and it really does take a lot of the joy out of living....and going to college, I did ok, cause I was smart enough to get by even having to skip a lot of classes...but my career never really took off, due to the fact I could never count on being able to work 5 days a week....it takes a very understanding boss to let you slide for the 1 to 3 days you are out from a headache.!

My mom and a friend of hers told me that I would outgrow them ....and I did, at age 39, all of a sudden, they stopped. and for the most part, nowdays, if I get a headache ..I take 2 Exedrine...and in 10 minutes the headache is gone !...a miracle !

I turned 59 3 weeks ago, and I remember all to well dealing with daily headaches, you have my understanding sympathy. My dad was a doctor, and he told me there really wasn't anything they could do for me .....at that time....
I really hope that medicine has advanced enough so that you don't have to go through what I did...

Good Luck Rochelle!....and if worst comes to worst, you probably will grow out of it...
Rochelle

Australia

#3 Jul 30, 2009
Hi Sally,

Thanks so much your your response. It actually made me cry a little bit. The pain of 20 years of headaches must have been excruciating. I'm so happy for you that you're feeling better. I can completely understand that they took the joy out of living for you, and I can also empathise with not being able to work a full working week. But the thing that upset me the most was that your dad was a doctor, how frustrating for you both. I really hope I can find a solution too, but it gets difficult to stay motivated when you come up against so many brick walls in treatment plans. But you've inspired me to keep going.

All the best
x
Erin

Toledo, OH

#4 Aug 14, 2009
Hi Rochelle,
I am in a similar situation. I will be 28 next week and have struggled with headaches since I was very little. I have always had migraines but for about three years have been dealing with chronic daily tension type headaches on top of the migraines. It is funny to say but I don't mind the migraines so much because I have medicine that works well but when it comes to the other headaches I have no easy fix.
I have been through many different types of medicine including pain killers, muscle relaxers and antidepressants. All of which made it very difficult to function and do everyday activities and had awful side effects, not to mention nothing worked. I have also been through many different therapies such as physical and massage therapy, acupuncture injections, trigger point injections, nerve block injection and have been to a chiropractor. Once again nothing has worked.
I have them at all times of the day and they range in intensity. Sometimes, my migraine medication works (which I was told it should not) but its really bad to take that medication frequently. I have always played sports and used to teach aerobics and now any type of physical activity will result in a headache.
Its definitely frustrating and I am at a point where I need to take a break from all the medications and Dr. appointments. I have found that my neurologist has not clue what to do with me anymore and his solution is prescribe medication which I cannot handle anymore. I am hoping to find a new doctor in the fall so I am doing my research now to try to find someone with a good reputation.
I am grateful that I have a wonderful support system. My mom and sisters are extremely supportive and understanding as they have chronic health issues as well. Work is difficult and have learned that people on the outside just don't get it nor do they care. I have had people go out of their way to make issues for me because they are ignorant.
I do hope that I will find a solution or grow out of it but who knows how long that will take. We just need to keep pushing on with the hope that one day it will get better.
-E
Larisa

Lake Oswego, OR

#5 Nov 11, 2009
Hi Rochelle, Sally, Erin,

Just want to say my situation mirrors yours and I've tried similar approaches to find relief. Recently a friend, who was having such intense daily headaches/migraines she was on the verge of dropping out of grad school, introduced me to a book by David Buchholz -- Heal your Headaches, the 1-2-3 Program. The book was recommended to her by her neurologist, who was also at his wits end regarding her case.

His book (don't judge it by the cover bc the cover is CHEESY) takes a 3-step approach. 1) get off meds -- bc most cause rebound headaches; 2) eliminate all foods known to trigger headaches for 2+ months; 3) if you are still having headaches, consider preventative medication.

Anyway, she is now headache free (with the exception of a mild headache the day before her period starts).

I read his book and it made tons of sense to me and it inspired me to start looking for help again (I'd essentially given up). I'd definitely recommend taking a look at it and seeing if his approach makes sense to you.

The best to you,
Larisa

Michelle Simkins

Howell, NJ

#6 Nov 22, 2009
Sarah Hill

Phoenix, AZ

#7 May 3, 2011
Have any of you seen a neurologist, and if so, can you recommend one? I'm willing to travel. Here is the list I've found... http://www.healthgrades.com/neurology-directo...
Leeroy

Craigavon, UK

#8 Jan 29, 2012
I have been getting daily headaches now for 2 and a half years they range from tension type to migraine ( I suffered frequent migraine when a teenager) to short duration headaches. I have odd days when I don't get a headache. It not many. It has given me anxiety as I constantly worry I am dying and will never see my kids grow up. Been doctors they don't think it is any thing serious. Any advice to break the chain?
minnie

Mumbai, India

#9 May 4, 2013
I've been having relentless headaches for the last 30 years, the last few years they have increased in intensity and last for months on end. i still manage to do my work ( am a documentary film maker and writer) but at perhaps 50 percent efficiency levels. i have tried all the meds for all kinds of migraines andCDH and sedatives and yoga and meditation and ayurveda....am completely exhausted now. feel its better to die than to live in constant pain like this. can anyone help please ? i live in india, in mumbai
Jim Papenhausen II

Encinitas, CA

#10 Jun 9, 2013
Hi All,
48 year old male.
I too have suffered from daily headaches for over year and a half. Mine is spot specific. It is in the same place every day above and behind my right eye. I have had CAT scans and MRIs, and have been given every medication the neurology department can give. I've been to allergy specialist and I'm currently waiting for an MRA. I also tried acupuncture which worked great for sore back but did not help my headache. And like you the only relief I get from my headache is when I sleep although sometimes it does wake me up. I have stopped taking all medication that the doctors have given me. When it first came on I thought maybe I was dehydrated or hungry but received no relief from eating or drinking. The neurologist suggested that maybe I have an irritated vessel in my brain and I agree. But no one knows what to do about it. It has limited my activity because the pain increases with exercise or aggressive work. The doctors have suggested that maybe it's stress related and have suggested that I take time off of work but I'm self-employed so that's not an option. It seems as if the doctors have just been giving me the runaround at this point and don't know what to do but live with it. Good luck to all of you I hope you find some relief.
Jim
Anonymous

Canton, MI

#11 Sep 7, 2013
Rochelle wrote:
Hi All,
Thanks for taking the time to help out. I've been suffering from a constant daily headache for almost nine years now. The headache is a constant mild to moderate ache on both sides of the head, forehead and eyes, and base of neck. Every few days it increases in severity (enough to turn to painkillers), occasionally it forces me to rest.
In general I'm a healthy, slim, active 24 year old female. I exercise (run, dance, stretch, weights etc) almost every day and eat a healthy vegetarian diet (could do with some more protein and less sugar I suspect). No smoking, caffeine etc.
I've tried a long list of health practitioners over the years: 2 x GP's, neurologist, psychologist, naturopath, masseuse, optomertrist, Ear Nose Throat specialist, chiropractor, osteopath etc etc.
Painkillers don't seem to work, I've tried a fair few different brands. Thank goodness I can still sleep on most occasions.
The only relief I ever had from the consistent dull ache was after a particularly amazing and deep massage with a new masseuse. The feeling lasting a few minutes and felt great!! I have had many sessions since and although they offer some relief, the headache completely disappears.
Would love to know if anyone has experienced similar symptoms. I'd love some relief. I try my best to stay busy and positive but I do get really down about it.
Thanks!
Rochelle
Hi Rochelle,

I'm so sorry to hear about your struggles with migraines.

Would you be willing to get rid of your headaches/migraines and save some $$? get off all your meds ur using for headaches? I can help you do just that!

I, too, have had monthly migraines for years. Then a car accident in 2008 which caused a whiplash and a C3 fracture, left me with headaches every day...from morning to night. I tried everything!! all medications, botox injections and nerve blocks. NOTHING HELPED!

I am now finally headache free and would like to share with you how I did it. This is not another medication, or scam. It's a way for you to take control of your life back.

Private message me on FB (dawnsweet) and we can chat. You will not be disappointed.

Take that first step to a new you!!!I hope to hear from you soon!!
~Dawn
Hermann

Darwin, Australia

#12 Mar 10, 2014
Rochelle wrote:
Hi All,
Thanks for taking the time to help out. I've been suffering from a constant daily headache for almost nine years now. The headache is a constant mild to moderate ache on both sides of the head, forehead and eyes, and base of neck. Every few days it increases in severity (enough to turn to painkillers), occasionally it forces me to rest.
In general I'm a healthy, slim, active 24 year old female. I exercise (run, dance, stretch, weights etc) almost every day and eat a healthy vegetarian diet (could do with some more protein and less sugar I suspect). No smoking, caffeine etc.
I've tried a long list of health practitioners over the years: 2 x GP's, neurologist, psychologist, naturopath, masseuse, optomertrist, Ear Nose Throat specialist, chiropractor, osteopath etc etc.
Painkillers don't seem to work, I've tried a fair few different brands. Thank goodness I can still sleep on most occasions.
The only relief I ever had from the consistent dull ache was after a particularly amazing and deep massage with a new masseuse. The feeling lasting a few minutes and felt great!! I have had many sessions since and although they offer some relief, the headache completely disappears.
Would love to know if anyone has experienced similar symptoms. I'd love some relief. I try my best to stay busy and positive but I do get really down about it.
Thanks!
Rochelle
I also suffered from 24/7 heachache for the last 13 years, only to find out two months ago that I am allergic to the Chlorine in our Tap water. Now I am on bottle water and the headache at night is already gone.

Thanks
Hermann
Hermann

Darwin, Australia

#13 Mar 10, 2014
Headache & Water
Thirteen years ago, the next day after returning from an overseas holiday, I started getting severe headaches, the type of headache, which feels like a tight pressure band around your head, where you have headache all around your head, except on your forehead. The pain was present 24/7 and so severe that I collapsed in the morning after I got out of bed and had problems to walk straight, I sometime unwillingly seem to drift to the left and had to concentrate hard to go where I actually wanted to go. The severity of the headache varied from an 8 to 9 out of 10 to 3 out of ten on a good day and was always the worst in the evenings, nights and mornings. I couldn’t stand any pressure on the side and the back of my head that meant not wearing any type of had, even the slightest touch of a hand on my head would make the headache worst straight away. That meant that I had to try to go asleep lying on my forehead, but of course, not long after I fell asleep my head turned on its side and my headache got that much worth that I wake up after only about one hour sleep and I had to lift my head from the pillow for about fifteen minutes until my headache reduces enough so that I could try to go to sleep again, repeating the technique over the night, every night. In the morning I had to sit on the bed for about three minutes before I could get on my feet, otherwise I would very like lose my balance, if I tried to walk to soon after I get up. The result was that I not only had a headache 24/7 but also felt tiered all the time. Of course every second person you talk to tells you to drink more water, but that didn’t seem to improve my headache at all either. Over the past 13 years, I spent countless hours and thousands of Dollars on Doctors, Dieticians, and Physiotherapists etc. About ten years ago Doctors came to the conclusion that it must be Tension headache and nothing can be done for it. Tension headache tablets seem to help a bit, but the thought of having to take them every day, every 4 hours for the rest of my life frighted me, so I tried to stay away from them. I found an herbal powder called “Reliv”, which seemed to help a bit and anything was better than nothing, but my headache insisted to be present 24/7. About four years ago my wife and I started to travel to Asian countries and I always realised that my headache was less over there than here in Australia, but I never was able to work out why, that was until this year. In January this year we came back from spending three week in Vietnam and as before, when I spend time in Asian Countries my Headache was much better. When we got home, I more or less went to bed straightaway, without eating anything; I only had one or two glasses of water before I went to bed and two more glasses of water during the night. The next morning my headache was back with full strength and that was when I realised why, the only thing I consumed since I got home was water and of course water from the Tap and in the Asian Countries I only had Bottle water. The same day I went and bought bottle water and stayed away from Tap water altogether. I got myself tested and it was confirmed that I am allergic to Chlorine, which we in Australia have in our drinking water. Now about two months on, I am not waking up anymore at night because of headaches, I still have a little bit of a headache during the day, but I can feel it is getting better week by week. The problem is that we have our tap water in nearly everything, like nearly any drink we by, ice cream etc. And when one is allergic to chlorine, like I now, the smallest amount of chlorine will set the headache of again, even one glass of tap water will be noticeable.
Tim

Columbus, OH

#14 Mar 13, 2014
Many of the foods we eat can cause headaches. You should try to eliminate one food you normally eat, for one month at a time, keeping accurate records. You might solve your problem in this simple way.
Good Luck,
Tim
Liv

Grand Rapids, MI

#15 Mar 16, 2014
I'm an 18 almost 19 year old girl, and for the past five years I've also suffered from constant daily headaches. I have never been headache free for five years straight.. The thought is really sad. I missed a year and a half of high school and did online work instead. I've gone to 2 of the countries most famous headache clinics and also Mary free bed. I've tried physical therapy, biofeedback, cranial sacral and myofascial therapy, Botox injections, acupuncture, massage therapy, chiropractors, dozens upon dozen of medications. I've had CT's and MRI's. I was hospitalized in November for a week and there was no help for anything. I have an appt for nerve blockers. My pain is an outward pressure on my head. More severely In the back and left side and forehead. This has caused severe depression and distress for me. I know I'm not the only one going through this and I can only hope headaches, including those in children, become more studied so we can get some relief.
Rochelle

United States

#16 May 14, 2014
My story is identical to yours. That is sooooo crazy, I have had mine for 9 yrs everyday, and tried everything. I even just went to Diamond Headache clinic in Chicago a month ago and stayed for two wks in the hospital, I hope we can find relief. I am desparate at this point. It def. affects your life style.

Kim
Aus

Kew, Australia

#17 Jun 16, 2014
Although I feel bad that you all have this issue.....i am so happy that I am not alone.
I have been getting one sided tension type headaches for about a yr and they have been daily for a while.
I have had cts in the past for migraine and sinus issues and all was ok too.
I have suffered with very bad anxiety for the last 10 yrs and from reading it seems this headaches can be caused by anxiety.... And unfortunately its a vicious circle as the headaches give me anxiety coz I am scared something is really wrong. My doc has done her best to reassure me that the symptoms i have are not anything to worry....just need to treat.
I noticed I started getting this type of headache a few months after having my son....sleepless nights and breastfeeding. I would get like a nerve burning sensation on my scalp. Then proceeded to have that tight band feeling. They have never been painful. more annoying than anything.
I saw my physio last week who gave me a deep massage and taped my shoulder as he noticedit was sloutching down. For the first time in many months i was tension headache free for about 2 days. PURE BLISS! After I took the tape off and started to play on my mobile ph the tension started again. My physio said it def is a posture issue that I need to work on.
I have been prescribed preventative meds but dont want to take them till I give the physio a decent go. I def can feel the prob is in my neck as when he presses some points I feel it thru the tightness in my head. AnotherAnother thing is suggested is that I wear my glasses a lot more to reduce eye strain that could also contribute.
I feel I will get relief with persistence. That 2 days headache free has made me feel more positive.
I wish all of you the best of luck and really hope u find relief soon....and if u do...plz share what helped.
Amar

Delhi, India

#18 Aug 11, 2014
i am suffering from daily chronic headaches for over 19 years and not even a single minute has passed without pain and i have forgotten how a normal person feels. iam trying vipassana meditation(observing the sensations (tightness/pain in the head)with equanimity. gradually the pain starts dissolving). the effect is short lived. i am doing the meditation for several hours a day to see if it will cure me of my headache. it has given me some relief.
Amar

India

#19 Aug 11, 2014
minnie wrote:
I've been having relentless headaches for the last 30 years, the last few years they have increased in intensity and last for months on end. i still manage to do my work ( am a documentary film maker and writer) but at perhaps 50 percent efficiency levels. i have tried all the meds for all kinds of migraines andCDH and sedatives and yoga and meditation and ayurveda....am completely exhausted now. feel its better to die than to live in constant pain like this. can anyone help please ? i live in india, in mumbai
hi Minnie, i can understand your agony,anguish since i am sailing in the same boat. But whenever suicidal thoughts come in i think not only about the people who love me and care for me and who need me but also about those who are in worse condition than me because no matter what state we are in there will always be some people in worse state than us. if they can fight so can we. in order to do this we may have to compromise on some of our dreams and forgo ambitions which is still better than dying.
Trees

Nottingham, UK

#20 Nov 8, 2014
Can anyone help my friend is suffering with chronic headaches 24/7
She has brain malformation and the pressure in her head along with a burning sensation is getting worse. She has seen all who she can on the NHS but they just give her pain killers and tell her to take them. The pain killers are not effective, today she had been on the phone in tears saying she cannot cope or live any longer with the head pressure...I am concerned for her well being as this has gone on for 8 months now.

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