Jani's at the mercy of her mind

Jani's at the mercy of her mind

There are 100 comments on the Chicago Tribune story from Jun 28, 2009, titled Jani's at the mercy of her mind. In it, Chicago Tribune reports that:

It's been a rough week. A few days ago, at UCLA's Resnick Neuropsychiatric Hospital, 6-year-old Jani toppled a food cart and was confined to her room.

Join the discussion below, or Read more at Chicago Tribune.

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Billy Bob

United States

#3 Jun 29, 2009
This is a sad and terrible story. I hope and pray
Jani gets better and will be able to function in life.
She is blessed to have such wonderful parents.
EStewart

Anderson, SC

#9 Jun 29, 2009
I have no doubt whatsoever this is a very sick child. I'm not condemming the parents for having children-most of us have preexisting medical conditions in all our families. Maybe a mental health expert or someone who knows of a long term care facility that would be able to help her and her family will read this article and offer some assistance to them. Makes me thankful my special needs child isn't stricken with mental illness-after reading this article cerebral palsy seems minor in comparison.
thingy

Terre Haute, IN

#10 Jun 29, 2009
She is beautiful, and damaged.
Kudos to her parents, for trying to do all they can, to keep this family intact.
I wish them well.
VoxAngelicus

Indianapolis, IN

#13 Jun 29, 2009
Is it possible that this child has been misdiagnosed and actually has an autism spectrum disorder? The frequent rage reactions, hand-flapping, and precocious intelligence suggest that she might have some form of autism. The article never said whether this girl's doctors considered that diagnosis and ruled it out.
eva

Dolton, IL

#15 Jun 29, 2009
My husband and I were "in the system" some years ago, attempting to get help for our son, whose behavior baffled nearly every mental health professional we found. There is a huge dearth of resources out there...and, meanwhile, much of our society is terribly under-informed about psychological conditions in children. Ninety percent of the people we met (yes, sometimes including our families) observed our son's behavior and chalked it up to ineffective parenting.(Believe me, if there had been someone out there who could have parented our son better, we were ready to hand him over--so great was our frustration and despair.)

Posters, please don't condemn this family for the illness of their child.
heartbreaking

Elk Grove Village, IL

#17 Jun 29, 2009
This is probably the most heartbreaking thing I've ever read. Please Illinois or U.S. government, help this family. Help this poor child. :( God bless them and keep them.
emsmith

Oswego, IL

#18 Jun 29, 2009
Don't lawyers take probono cases just because they are interesting, where are the highly skilled doctors? Where are the support systems? This case to me is the perfect example of how we treat the weakest, it shows a complete lack of moral fiber.

Since: Mar 09

Oakland, CA

#20 Jun 29, 2009
EStewart wrote:
I have no doubt whatsoever this is a very sick child. I'm not condemming the parents for having children-most of us have preexisting medical conditions in all our families. Maybe a mental health expert or someone who knows of a long term care facility that would be able to help her and her family will read this article and offer some assistance to them. Makes me thankful my special needs child isn't stricken with mental illness-after reading this article cerebral palsy seems minor in comparison.
My 24 year old daughter with CP says the same thing!

Since: Mar 09

Oakland, CA

#22 Jun 29, 2009
eva wrote:
My husband and I were "in the system" some years ago, attempting to get help for our son, whose behavior baffled nearly every mental health professional we found. There is a huge dearth of resources out there...and, meanwhile, much of our society is terribly under-informed about psychological conditions in children. Ninety percent of the people we met (yes, sometimes including our families) observed our son's behavior and chalked it up to ineffective parenting.(Believe me, if there had been someone out there who could have parented our son better, we were ready to hand him over--so great was our frustration and despair.)
Posters, please don't condemn this family for the illness of their child.
I hope you were eventually able to get help for your son and find a support group for your selves. I can't imagine how difficult and frustrating it must have been for you. As someone else mentioned having a child with a disability is a challenge but there are all sorts of levels of disabilities.
reader

Jersey City, NJ

#25 Jun 29, 2009
diane wrote:
with their family history of mental illnesses and the parents themselves suffering from depression and other mental issues, I cannot believe they chose to have a child...and after Jani...why would they risk having a second one...Oh, yeah...they must be nuts!
that's like saying people with a family history of diabetes or heart disease or arthritis should not have children. no one knows how their kids will fair. every parent rejoices when they count five fingers and five toes. no one is guaranteed a perfect child. if everyone in the world with a mental illness decided not to have children for fear they'd have a child like jani there would be no intelligent human life on this planet.
reader

Jersey City, NJ

#27 Jun 29, 2009
evac wrote:
<quoted text>
Do you have any concept of how pervasive mental illness and depression are? It's the rare family where it doesn't show up. I'd be shocked and amazed if someone in your family wasn't affected by mental illness - and that's not an accusation, merely a statistical observation.
Many severe illnesses have a genetic component. Is it your suggestion that every family with some illness running in them stop reproducing? That would certainly curb population growth, if nothing else.
What this message board reveals, above all else, is the depth of ignorance and fear that remain in this country about mental illness - either people dismiss it as "imaginary" or "spoiled" behavior, or alternatively fear, shun & ostracize the people who have it. I think a basic education about how the brain works & to what degree it controls us or we control it is in order. No one blames or shuns cancer patients, primarily because we have a clue about how cancer works; we need to be similarly enlightened about the brain.
Thank you for an intelligent post.
reader

Jersey City, NJ

#29 Jun 29, 2009
Martha wrote:
I was so moved by this story and totally impressed with these parents' commitment to their daughter. I felt hopeful that this article would perhaps connect them to some resources beyond what they've been able to find so far.
Reading the cruel and stupid comments that mary anne, Wisconsin and diane chose to write, underscores what these people are up against.
ditto
reader

Jersey City, NJ

#30 Jun 29, 2009
VoxAngelicus wrote:
Is it possible that this child has been misdiagnosed and actually has an autism spectrum disorder? The frequent rage reactions, hand-flapping, and precocious intelligence suggest that she might have some form of autism. The article never said whether this girl's doctors considered that diagnosis and ruled it out.
i wonder if the "other world" friends like "400" are symptoms of schizophrenia exclusively. i wondered about her IQ too... autism as well as schizophrenia perhaps.
reader

Jersey City, NJ

#32 Jun 29, 2009
eva wrote:
My husband and I were "in the system" some years ago, attempting to get help for our son, whose behavior baffled nearly every mental health professional we found. There is a huge dearth of resources out there...and, meanwhile, much of our society is terribly under-informed about psychological conditions in children. Ninety percent of the people we met (yes, sometimes including our families) observed our son's behavior and chalked it up to ineffective parenting.(Believe me, if there had been someone out there who could have parented our son better, we were ready to hand him over--so great was our frustration and despair.)
Posters, please don't condemn this family for the illness of their child.
peace to you and your family. thank goodness for the other ten percent.
Martin

Glenwood, IL

#33 Jun 29, 2009
Bankerdanny wrote:
<quoted text>
Except that diabetes is a treatable disease that only in the most extreme cases is life threatening. Child #1 was the clue that perhaps they couldn't overcome their shared genetic weaknesses. Heck, leave aside the risk that any child of theirs would be at high risk for mental illness, how risky is it for TWO people who are depressed enough to require medication, should choose to raise a child. How risky is it for the CHILD that one or both parents could get worse. Sorry, these people should never have reproduced the first time, and certainly not a 2nd.
This post simply shows that you have no significant understanding of either diabetes OR mental illness.
reader

Jersey City, NJ

#34 Jun 29, 2009
Bankerdanny wrote:
<quoted text>
Except that diabetes is a treatable disease that only in the most extreme cases is life threatening....
You totally missed the point. Not a surprise given your previous posts.
no name

Chicago, IL

#35 Jun 29, 2009
Prayers for this family.
I am sure if the parents were celebrities or had loads of money they would be able to get the help they are asking for - for their daughter. It is unforgivable that there is not a place where this family can place their child to get the constant help she needs w/out just locking her up and forgetting about her. Just because something is rare doesn't mean it doesn't exist.
sharon

La Grange Park, IL

#36 Jun 29, 2009
My heart breaks for this family. With California's budget in the toilet, things will only get worse. I do wonder, though, why they're allowing their minor child to be videotaped?
ninja

Berkeley, CA

#37 Jun 29, 2009
As ill as this young child may be the local school district is responsible for providing her FAPE. (Free Appropriate Public Education) If Jani can't be maintained in her local public school then other options must be considered. There are residential programs and an Individual Education Plan ( IEP) must be developed to meet both her cognitive needs as well as her emotional needs.If the only way this can be done is with one teacher andone teacher assistant then that is what the local public school is required to provide. This isn't the 18th century.
Kate

Berkeley, IL

#38 Jun 29, 2009
emsmith wrote:
Don't lawyers take probono cases just because they are interesting, where are the highly skilled doctors? Where are the support systems? This case to me is the perfect example of how we treat the weakest, it shows a complete lack of moral fiber.
Who are you looking to sue? God? You really think this country needs more lawsuits? You want to sue the doctors to force them to cure her? If the help and support doesn't exist, stamping our feet and demanding isn'tt going to produce it.

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