Acetazolamide (Diamox) Profile

Acetazolamide is a prescription medication belonging to the class of drugs called Carbonic Anhydrase Inhibitors.

[C McMahon]

I have Arnold Chiari Malformation. I have been given this drug to try to reduce the pressure in my head to give me some relief in the severe head pain I experience. What is your knowledge on this subject...

[Lynne]

After the onset of severe headaches in December 2004, my daughter age 16 at the time, was diagnosed with Chiari malformation. She was started on Topomax but did not experience any relief. In October of 2005 she was started on Diamox.Her headaches never go away completely but she has definately experienced some relief with Diamox.

[Hal]

I had headaches for a long time, then started having memory failures. Finally they found the spinal fluid pressure too high. After reducing it and putting me on the Diamox the headaches are gone for the most part, but I am always tired from the sedative side effects. Stopped taking it two days ago and feel so good. But know I have to go back on it or find an alternative. Diagnosis was psuedo-tumor or something similar...whatever that is.

[mbata]

please i need to know the synthesis of acetazolamide

[Aaron]

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[Marilyn]

I have been taking Diamox for 15 years for severe headaches and chiari malformation. I had to continue it even after decompression surgery was unsuccessful at eliminating the headaches. I was then diagnosed with dysautonomia. I suffered for the better part of 12 years with low blood pressure and lightheadedness, exercise intolerance, basically being housebound. I was treated for dysautonomia unsuccessfully.
Recently, due to severe symptoms, I was referred for a second opinion with a cardiokogist. He blames the Diamox as a cause of the dysautonomia.
I lost 12 years of my life because of the effects of this drug and the medical profession not picking up on it. I am now trying to wean off of it and hope it has not permanently done damage. I am having trouble with severe fluid retention and have been off of it for 3 weeks.

[cherry]

i have been on diamox for seven months. im glad i'm off it now, but for the past few days ive been feeling very jittery and my nerves feel very strange. is it normal to feel like this when the medication has stopped?

[andy]

MNEMONIC

ACIDazolamide causes (metabolic) ACIDosis

[Leslie]

How long did it take for you to notice a difference with diamox?

[Angela]

Are you still checking this post because I am interested in speaking with you as I suffer from the same condition and am looking for alternativeds as well.

Hal wrote:

I had headaches for a long time, then started having memory failures. Finally they found the spinal fluid pressure too high. After reducing it and putting me on the Diamox the headaches are gone for the most part, but I am always tired from the sedative side effects. Stopped taking it two days ago and feel so good. But know I have to go back on it or find an alternative. Diagnosis was psuedo-tumor or something similar...whatever that is.

[Janice Naidoo]

I was mis-diagnosed with pressure on the brain and given Diamox which I am trying to wean off. Diamox initiated bleeding from Ulcerative colitis which I had had under total control until I started taking the Diamox. My Blood pressure dropped dangerously low and I now have huge pain in the abdominal area. What is the shortest period to wean off Diamox

[diamox victim]

Marilyn wrote:

I have been taking Diamox for 15 years for severe headaches and chiari malformation. I had to continue it even after decompression surgery was unsuccessful at eliminating the headaches. I was then diagnosed with dysautonomia. I suffered for the better part of 12 years with low blood pressure and lightheadedness, exercise intolerance, basically being housebound. I was treated for dysautonomia unsuccessfully.
Recently, due to severe symptoms, I was referred for a second opinion with a cardiokogist. He blames the Diamox as a cause of the dysautonomia.
I lost 12 years of my life because of the effects of this drug and the medical profession not picking up on it. I am now trying to wean off of it and hope it has not permanently done damage. I am having trouble with severe f
luid retention and have been off of it for 3 weeks.

my daugher was given diamox for intracranial hypertension, now the cerebral spinal fluid hypertension is gone, but she has just developed pots ( as form of dysautonomia). Can you give me the name of your cariologist that links diamox to dysautonomia? Her neurologist says there is no connection but I don't believe this, thanks for your help

my daugher was given diamox for intracranial hypertension, now the cerebral spinal fluid hypertension is gone, but she has just developed pots ( as form of dysautonomia). Can you give me the name of your cariologist that links diamox to dysautonomia? Her neurologist says there is no connection but I don't believe this, thanks for your help

[diamox victim]

my daugher was given diamox for intracranial hypertension, now the cerebral spinal fluid hypertension is gone, but she has just developed pots ( as form of dysautonomia). Can you give me the name of your cariologist that links diamox to dysautonomia? Her neurologist says there is no connection but I don't believe this, thanks for your help

[Stephanie]

I have been taking Diamox for about a week now due to the diagnosis of pseduotumor cerebri and chiari. My headaches are easing off but i feel so weak and tired. I am not myself. ANyone know how to make that go away? Besides stop taking them?

[Laura]

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[Marilyn]

As it turned out, I had to go back on the Diamox because I developed severe headaches that took me 1 1/2 years to eliminate even after returning to my original dose of Diamox within 4 months. I was volume depleted and this was causing the dysautonomia. The Diamox didn't help since it's a diuretic. This developed after a bout with the flu and over a couple of months I developed dizziness and tachycardia and low BP. So, now I am very careful with recognizing signs of depletion and act promptly with increased salt intake, etc. Also, I start everyday drinking 32 oz of fluid in the first hour I am awake so the Diamox doesn't dehydrate me. I don't get as tired from the morning dose this way, as well.
[QUOTE/]
my daugher was given diamox for intracranial hypertension, now the cerebral spinal fluid hypertension is gone, but she has just developed pots ( as form of dysautonomia). Can you give me the name of your cariologist that links diamox to dysautonomia? Her neurologist says there is no connection but I don't believe this, thanks for your help
my daugher was given diamox for intracranial hypertension, now the cerebral spinal fluid hypertension is gone, but she has just developed pots ( as form of dysautonomia). Can you give me the name of your cariologist that links diamox to dysautonomia? Her neurologist says there is no connection but I don't believe this, thanks for your help[/QUOTE]

[Brenda]

Marilyn wrote:

As it turned out, I had to go back on the Diamox because I developed severe headaches that took me 1 1/2 years to eliminate even after returning to my original dose of Diamox within 4 months. I was volume depleted and this was causing the dysautonomia. The Diamox didn't help since it's a diuretic. This developed after a bout with the flu and over a couple of months I developed dizziness and tachycardia and low BP. So, now I am very careful with recognizing signs of depletion and act promptly with increased salt intake, etc. Also, I start everyday drinking 32 oz of fluid in the first hour I am awake so the Diamox doesn't dehydrate me. I don't get as tired from the morning dose this way, as well.
<quoted text>

Marilyn: I was wondering what kind of dosage your dr put you on? I have had headaches for 10.5 years straight every day and they have tried everything so we are trying this now. I am taking one 500MG capsule a day but haven't seen any effects yet and I've been on it for about 5 weeks so I was wondering if you remember how long it took for you to see any results. Any help would be greatly appreciated. Tired of living with headaches!

[Sophia]

I was started on diamox 2 days ago for intercarainial hypertension ive been taking 2 250mg but its being increased to 4 250mg tablets today and eventualy to 3 500mg tablets a day. Im worried that i have only been taking this medication for a very small period of time and already on a small dose seam to be experiencing unpleasant side effects such as pins and needles starting in my fingers and toes and eventually ending up my arms and legs. My blood pressure has dropped. Ive been feeling very very tired and sick. Will these side effects get worse as the dose goes up? Also any usefull information about this drug.? Thanks

[Brenda]

I am only on 1-500 mg a day and for the same reason as you because of headaches. I too have had that tingling, pins and needles feeling in my extremities but didn't know if it was that or if my carpal tunnel was coming back after several years. So far they haven't helped my headaches at all and it's been 5 weeks so I am wondering if the dosage isn't enough or if it's even going to work. I haven't had a drop in blood pressure but I do feel pretty tired. However, we have been having an extremely rainy May in Denver and I just attributed it to that. I would be very interested in visiting with you back and forth about this to see how we do.

Sophia wrote:

I was started on diamox 2 days ago for intercarainial hypertension ive been taking 2 250mg but its being increased to 4 250mg tablets today and eventualy to 3 500mg tablets a day. Im worried that i have only been taking this medication for a very small period of time and already on a small dose seam to be experiencing unpleasant side effects such as pins and needles starting in my fingers and toes and eventually ending up my arms and legs. My blood pressure has dropped. Ive been feeling very very tired and sick. Will these side effects get worse as the dose goes up? Also any usefull information about this drug.? Thanks

[tammy south africa]

iv been on diamox for 3 weeks now n the side effects are horriable i cant stand the tingling in my feet hands n lip ,its so painful that i actualy wake up 3am in da mornin worst of all is i feel drained ,im always tired has no energy but no one around me seems to understand what im complainin bout ....is there any other pill i can take that will bring down the pressure?