Does anyone have "erythroderma" or "erythrodermic eczema"?

Posted in the Eczema Forum

Alison

UK

#1 Apr 30, 2008
I'm 50 years old, and have always had small patches of mild eczema - not bad enough to interfere with my quality of life - until two years ago when my skin became itchy all over. It got worse over several months and I ended up with "erythroderma" - entire skin bright red and hot, except soles and palms. Felt very cold and thirsty all the time. Stayed in bed for about 3 months. Off work for 6 months. Eventually helped by a course of UV treatment, but after three weeks it started relapsing. I am now having weekly maintenance UV but it's not controlling it. Hoping to start methotrexate in June when I see the dermatologist again.

The thing is, I don't understand this condition, and I wondered if anyone could tell me anything about it. My skin can be okay one minute, and within half an hour can come up in extremely itchy blotches. The skin isn't broken, just very red patches. After a few days it starts peeling like dandruff. Clouds of skin flakes everywhere. At this stage it's less itchy. I'd just like to understand the mechanism of it all, and how large areas of unbroken skin, such as my back and chest, can suddenly "decide" to turn bright red and inflamed. Has anyone else had this condition?
kwhelan

Falkirk, UK

#2 Aug 14, 2011
Hi I was wondering how you are coping with this condition? My father was diagnosed with this over six months ago, his life has been completely taken over by this. He has been a healthy man all his life with no visits to the doctor until he turned 60 and he developed small patches of eczema on his legs, which eventually ended up all over his body, sounding exactly as you describe above, he was hospitalised at one point as he got that bad. It is completely controlling his life, he ends up in bed every few weeks and barely leaves the house anymore. He has been prescribed methotrexate and has been taking of six weeks with not much change at all. I would be interested to know how you are coping with this condition as my father is at the end of his tether. Kind regards
Amar

Seremban, Malaysia

#3 Aug 19, 2011
Alison wrote:
I'm 50 years old, and have always had small patches of mild eczema - not bad enough to interfere with my quality of life - until two years ago when my skin became itchy all over. It got worse over several months and I ended up with "erythroderma" - entire skin bright red and hot, except soles and palms. Felt very cold and thirsty all the time. Stayed in bed for about 3 months. Off work for 6 months. Eventually helped by a course of UV treatment, but after three weeks it started relapsing. I am now having weekly maintenance UV but it's not controlling it. Hoping to start methotrexate in June when I see the dermatologist again.
The thing is, I don't understand this condition, and I wondered if anyone could tell me anything about it. My skin can be okay one minute, and within half an hour can come up in extremely itchy blotches. The skin isn't broken, just very red patches. After a few days it starts peeling like dandruff. Clouds of skin flakes everywhere. At this stage it's less itchy. I'd just like to understand the mechanism of it all, and how large areas of unbroken skin, such as my back and chest, can suddenly "decide" to turn bright red and inflamed. Has anyone else had this condition?
@Alison Don't worry,there is an easy way of getting rid of your erythrodermic eczema...http://scrnch.me/iy67 8 :D
Hope you get better!
ravenhead

Macclesfield, UK

#4 Nov 1, 2011
Hi, I have suffered with erythrodermic eczema for the last two years. I scratched my skin until it bled. I was covered from the top of my head to my toes. I tried every lotion and potion on the market including a high dose of hydroxyzine but it was not until i was hospitalized that I found there was a drug called Ciclosporin. Within two weeks my skin was healing. After eight weeks it or had completly gone. Ask your dermatoligist for it. This kind of eczema can destroy your life, at one point I was suicidal. I am now clear of it and so much happier.
Lesley

Buckingham, UK

#5 Feb 9, 2013
ravenhead wrote:
Hi, I have suffered with erythrodermic eczema for the last two years. I scratched my skin until it bled. I was covered from the top of my head to my toes. I tried every lotion and potion on the market including a high dose of hydroxyzine but it was not until i was hospitalized that I found there was a drug called Ciclosporin. Within two weeks my skin was healing. After eight weeks it or had completly gone. Ask your dermatoligist for it. This kind of eczema can destroy your life, at one point I was suicidal. I am now clear of it and so much happier.
did it come back when stopped cysporin
Lesley

Buckingham, UK

#6 Feb 9, 2013
Did eczema come back when stopped cysporin

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