severe eczema...sorry this is sooo lo...

severe eczema...sorry this is sooo long!!

Posted in the Eczema Forum

First Prev
of 3
Next Last
Angie

Cleveland, MS

#1 Jul 23, 2006
So, this is my last resort. I don't know what to do about my eczema. Hopefully someone here has some suggestions. OK...I have always had extremely sensitive skin, allergies to dyes and perfumes. I have always used Dreft detergent or All Free and Clear, and I have always used Dove body wash for sensitive skin. A little over 2 years ago I developed this small rash on my right ankle, sort of over the bone and the top of my ankle. It was no big deal at first, but it wouldn't go away and it itched really bad so I went to see my GP. Well, he had no idea what it was and pretty much used me as a guinea pig for a YEAR before sending me to derm. I mean, he tried everything from antibiotics to anti-fungals, and topical steroids. Nothing worked, and the rash actually got worse, spreading over alot of my body (mostly my legs). So, I went to derm. They gave me a tube of clobetasol and some antibiotics and told me it was eczema. Immediately, I went to my GP, because I was set to deploy in a few days (I am in the military)and I wanted to make sure this was ok. He said yes. I didn't use the anti-biotics, but I used the clobetasol and it went away within a week. Of course, it was scarred since it had been there a year. Well, about a month later, it came back, even worse that before. Not to disgust everyone but it was oozing green and greyish fluid and if I touched it, the skin would wipe right off. So, I saw the doc who told me continue with the clobetasol (after all, my derm gave me 4 tubes to take with me in case it came back). Well, it NEVER went away and has continued to get worse. Now it was on top of my other foot, on like 3 toes on each foot, behind my knees, etc. I have seen my GP many times and have tried oral and topical steroids, anti-biotics, etc with no avail. We swabbed it and it had moderate growth of staph and Acinetobacter calcoaceticus–baumannii complex. I go to derm and he says, "Keep doing what you're doing"!!!!! Well, that made me so angry, I marched into my GP's office and demanded to be seen by a civilian derm. My new derm has been injecting me with 2 different steroids everytime I see him (so far twice, 3 weeks apart and I am set to see him again in a few weeks). It will not go away! So anyway, this is my problem...I recently found out you are only supposed to use clobetasol for 2 rounds and I used it for over 2 YEARS. Could this be why it won't go away? I have already decided that I am done with steroids, being that I have gained 50 lbs over the past 2 years (I also have asthma and must take prednisone for flare-ups, along with an inhaled steroid). Am I right to be angry at these doctors? Or is my case so severe, there's not much they can do? Does anyone have any suggestions?? I have been told alot of different things: one derm told me to not even wash it with soap, and I was thinking "GROSS!" It oozes so much, how can I go without washing it?? I went to get a skin allergy test but my asthma was so bad that day, they just had me take the blood test. My current derm wants me to have the skin test anyway, but now I am scared to do it. He says the blood test doesn't test for as many allergens and it is not as accurate as the skin test. HELP!!
Lorraine

San Diego, CA

#2 Sep 22, 2006
Have you tried essential fatty acids? Especially GLA as in Borage Oil. It worked wonders for my two children. Also, zinc deficiency causes dry eczema, may be worth a try too.

Best of luck. If you go to a health food store, you can buy a product called Florosone which acts similar to cortizone without the damage.

Best of luck to you.
mJa

Sarikei, Malaysia

#3 Jan 11, 2007
Hi
Check out http://eczemafix.blogspot.com/
Has a great home remedy that has worked for me! Regards
Jeanne

Hudson, Canada

#4 Jan 12, 2007
My eczema has been controlled and has almost vanished with a product called BaumEssence that is imported from Switzerland by a Quebec distributor (Cosmitty) where I live (in Canada). It's difficult to find information that's not in French, but basically it has 10 essential oils—Peru Balsam that has a healing action while also being an antimicrobial. And there’s also propolis which is a bee product: http://en.wikipedia.org/wiki/Propolis

My father-in-law had bad eczema on his leg that got infected and almost killed him...I brought him a container a few weeks ago when I saw him and he said it made the itch instantly go away.(Which is a relief because I watched him scratch his ankle until it bled before he tried it). I don't have another update about how it's working for him but I'll be telling him about the salt treatment listed above as well.

I hear it's also great for psoriasis, itchy scalp, burns etc. The people in the health food store encouraged me to try it instead of a much cheaper cream I was going to try, saying that everyone raved about it. It was over 30 dollars CAD but after the debilitating escalating itchiness that has happened during the last 2 winters after developing a cortisone tolerance, I was willing to sell a kidney for a cure....

The other thing that reduced the itch and even helped reverse the eczema were those homeopathic pellets that you dissolve under your tongue 3 times a day. The ones I bought were made by a company called Homeocan, here in Quebec. I notice they have an American division too, so maybe they are a bit more accessible. A local drugstore chain sells them and the eczema pellets are always almost out of stock, so others must find they work well too. I discovered those a couple of months before I found the cream, but right now the cream seems to be polishing of the eczema on its own. Apart from a scar on my back, all the other patches are almost imperceptible.

I'm not one who assumes natural remedies will work or are better than medical ones, but it's significant that you can't use most of the prescriptions on your skin indefinitely and you can always put essential oils on it (or use those salt water treatments).

If I had severe eczema that might be food related, I would try that ADD ADHD diet that eliminates processed food, preservatives, dyes, artificial flavours, and salicylic compounds found in aspirin and many berry fruits (etc). My neighbours boy had a complete turnabout on that diet (I'm mentioning this because his complexion improved too).

Good luck all!
Evelyn

Singapore, Singapore

#5 Jan 14, 2007
Hi...I totally agree about not using medications for an indefinite period. While medications can help fight your bacteria infection, it is best to use natural remedies for prevention and control of your eczema flareups.

I had the most severe breakouts last year and am now on the road to recovery. I share my own experience and story on http://www.eczemaskintreatment.com and hope to help others with my research into the eczema condition.
N a P

Eugene, OR

#6 Jan 20, 2007
I had eczema for 5 years and it was very, very bad. But 2 years ago, when I was in India, my mom wanted me to go to an ayurvedic doctor. I only believed in Western medicine, bu I went anyways. He took a look and gave my this oil, which was all natural and cost 14 rupees or about 30 cents. The oil was so good, within a month my skin was brand new. I dont know if you can find it outside of India but its called CUTIS OIL. It was really good.
gary australia

Australia

#7 Jan 28, 2007
my eczema started when i was 25, i am suffering still, i have used most products on the markets and cream from alot of skin specials with not results. Has any one used the cream called XMA with good results.
TinaG

Bellevue, WA

#9 Feb 9, 2007
To all:
I haven’t tried that XMA cream, but I’ve been using some products recommended by people on the eczemavoice.com forum that have worked miracles for me. My eczema was around my ankles, calves, bend of the arms and eyelids. I scratched my ankles and calves so much I was starting to worry about scarring. And needless to see the eczema on my eyelids was as embarrassing as it was irritating. Anyway, a couple of people from eczema voice talked about their success with Healing Anthropology products. They don’t use any chemicals at all, the stuff so natural you have to keep the creams in the fridge. I started with their calendula salve, which almost immediately stopped the itch. Now I use their body cream (which I layer over the salve), face wash, and face cream and my eczema is gone. My skin feels and looks better than it ever has. I always knew I was sensitive to chemicals when I smelled them (perfumes, glue, paint), but I never thought about the fact that I was putting them on my skin. I hope this can help some of you as well.
Fire Dog

Singapore, Singapore

#10 Feb 14, 2007
Noting Jeanne's comments about Essential Oil, I stumbled on this NC Essential Oil Serum from Western Australia. That morning my skin was all red and blotchy and I was at this counter that sells organic products at Tan Tock Seng Hospital in Singapore. The company's website for international people is www.naturescreations.com.au . The ingredients were sweet almond oil; apricot kernal oil, borage seed oil, hemp seed oil, soya bean oil, calendula oil, rose hip oil, pumpkin seed oil, evening primrose oil, geramium essential oil, ylang ylang essential oil and Vitamin E. It works wonders in a day. All of you should try it. I understand the misery of eczema!!
SalsaBruce

North Attleboro, MA

#12 Feb 20, 2007
i meant repcillin.
Pete

Phoenix, AZ

#13 Feb 22, 2007
there is a woman who found a connection to eczema and detergents at this web site. solveeczema.org
I feel for you, mine is just on my hands and elbows.
caroline uk

Guildford, UK

#14 Mar 15, 2007
see a nutrionlist i did i had eczema all over my body and now its near enough gone.it may just go in time so you have to manage it best you can,a nurse told me it may go for years then something will trigger it again,thats what happend to me.drink lots of water and try eat plenty of fresh fruit and veg...just give it time honest it will help.quit the steroids not good!!!!!!
Rachel

Australia

#15 Mar 20, 2007
Where do you find this product , is there a website? My eczema is very similar to yours and react to all moisturisers. Thanks Rachel
To all:
I haven’t tried that XMA cream, but I’ve been using some products recommended by people on the eczemavoice.com forum that have worked miracles for me. My eczema was around my ankles, calves, bend of the arms and eyelids. I scratched my ankles and calves so much I was starting to worry about scarring. And needless to see the eczema on my eyelids was as embarrassing as it was irritating. Anyway, a couple of people from eczema voice talked about their success with Healing Anthropology products. They don’t use any chemicals at all, the stuff so natural you have to keep the creams in the fridge. I started with their calendula salve, which almost immediately stopped the itch. Now I use their body cream (which I layer over the salve), face wash, and face cream and my eczema is gone. My skin feels and looks better than it ever has. I always knew I was sensitive to chemicals when I smelled them (perfumes, glue, paint), but I never thought about the fact that I was putting them on my skin. I hope this can help some of you as we
preeti mann

Hawthorne, NJ

#16 Apr 1, 2007
My 5 mnth old son has been identified with moderate to severe eczema on his face,ears, behind knees and neck. The itchiness is unbearable because of which he can't sleep peacefully.

To better his condition, I have stopped using soaps/ shampoos and frequently moisturize his skin with natural products like olive oil. I have also used aveeno cream and aquaphor but to no avail.

The itchiness stays and that makes him irritable. He has been prescibed a steroid based cream but I am not convinced using it.

Is there a way to better is current state.
Xcel SO

Houston, TX

#17 Apr 1, 2007
Go to www.xcel-n.com There you will find THE PRODUCT for eczema management
Dr Manjinder Singh Vrach

New Delhi, India

#18 Apr 4, 2007
Dear Friends,

As far as the outcome of latest studies going on against "fight against eczema". It is now widely accepted by all systems of medicine that the "Cycle" of Itching is to be reduced / stopped to cure eczema.

My study is based on naturopathy and I have traveled world wide. Visiting many eczema patients and collecting herbal / natural oils.

May be i can help you with treatment after knowing your complete history

I have treated many people by breaking their Itching cycle.

> For severe people (either adult having both arms and legs effected or a small child below age 3 having whole body effected with eczema).
The cost of one month course (4 bottles of 30ml oil) is of £120 (UK, Pounds)+ £10 (UK, Pounds) for postage.

> For less severe people. Who are effective with eczema only on select parts (like neck, behind knee or on elbows).
The cost of one month course (2 bottles of 30ml oil) is of £60 (UK, Pounds)+ £10 (UK, Pounds) for postage.

The Oils, I prepare are custom made based on your history. All oils are 100% herbal, Contains no steroids or medicine.

We ship world wide from India.

Please visit www.NaturalHealings.in and contact me
James eczema

Semenyih, Malaysia

#20 Aug 28, 2007
I have used Eczecure and Champori....but works well but Eczecure manage to prevent more flare ups..worth a try
Angie

Ireland

#21 Aug 31, 2007
I can completely sympathize with you. I have had eczema all my life, but since the birth of my daughter 1o yrs ago, its has become out of control. I was living in San Francisco and my derm was excellent! He ended up putting me on UVB light therapy and it really helped. Then I moved to Ireland 2 years ago and its been horrible ever since. However, over the last 6 months, I was so bad that I was covered up to 90% of my body and was mutilating myself because of the horrible itching. The one treatment I have been on the last 6 weeks is an immune suppressant called Imuran, initially it was 100mg per day but the outbreaks were still happening. I have been on 150mg for the past 10 days and it has been like a complete relief, I have slowly been able to start functioning again, although I was in tears as I have to be on predisone for another 4 weeks (and the weight gain doesn't help with self esteem). I do know that you can only be on the immune suppressants for 6 months, but I have to tell you the hope of reganing my life back is worth it. Also, for me stress is a HUGE trigger to my ups, but I have been told that cutting dairy will help as well....though it take 6 weeks to see results. I am also using a cream called Elocun. It really works and doesn't sting too bad. Hope this helps you a bit!
Matt in the UK

UK

#22 Sep 4, 2007
I agree with Caroline, steroids aren't the answer. Honey worked for me. It was that simple (for me at least). I use honey, sunflower oil (using it for cooking/frying), cod liver oil, evening primrose oil, St. John's Wort and Echinacea - and something in this combination is working.
12 months ago my skin was in a very bad way and it was infected. Antiobiotics (Cefalexin and Flucloxacillin) would fight it a bit but soon as the course finished it would be back again. It was some strain of MRSA I've no doubt about that. Antibiotics didn't kill it but honey did. I think it was the infection causing the eczema as much as anything else, and as soon as it had gone my skin started clearing up - fairly quickly.
I did hear a TV broadcast about 12 months ago describing one MRSA strain that matched what I had. It was making one leg swell every day and causing lumps at various parts of the body, arms and neck mainly.
Those are gone and for me it was honey not antibiotics that helped, and in my case at least I had no chance with my eczema until I had killed the infection.
I agree with the person I read who said in many cases it's caused my toxins inside our bodies or stomachs, and it may be that the honey helped me with as well.
I hope this can help someone else who might be suffering as I did (though I know eczema is different for everyone)
helping (neither Flucloxacillin or
Matt in the UK

UK

#23 Sep 4, 2007
The sunflower oil also helps a lot. I noticed within days a big difference to my dry skin when I started using it.

If you have enlarged glands (lymph glands)- in my case they were permanently enlarged behind my left ear and the back of my neck to the left (as well as the other lumps that came up for a few days)- then you have an infection caused by your eczema and in my case at least you'll not be able to manage the eczema until the infection is gone.

Try honey :) It definitely worked for me and I still take it every day.

Tell me when this thread is updated:

Subscribe Now Add to my Tracker
First Prev
of 3
Next Last

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Eczema Discussions

Title Updated Last By Comments
eczema on eyelids (Feb '06) Dec 10 CatherineReid 175
Adult Eczema Rubbing Alcohol Cure (Feb '17) Dec 2 Lauralee 6
i have extremely severe eczema EVERYWHERE (Dec '06) Nov 29 AdrianaRodriguez 195
My eczema was cured- A story from a 14 year old... (Jun '06) Nov 15 Tambra 267
Try gelmicin for any excema acne conditions it ... Nov 13 Sdarev 1
A mom that is at her wits end.... Toddler with ... Nov 13 Sdarev 3
I found a NEW treatment for eczema! It is worki... (Sep '11) Nov '17 SequaviaShepparf 38
More from around the web