Food and Recipes and How We're Doing

Since: Jun 12

Location hidden

#94 Feb 6, 2013
Hi Anne,
Thanks for the info about the Anchor glassware. I've seen that brand. I'll check Target next time I'm there.

Betsy - How did your appointment go today? Any news?

Mary & Deb & anyone else reading....Hi there.

I don't have much to report, to be honest. Made some pad thai today. My stomach is really gurgly and I'm quite tired. I've been home all day. Got a lesson on using a serger from my sewing teacher. That was lots of fun.

Over and out.

Since: Mar 12

Location hidden

#95 Feb 6, 2013
Hi Applecake,

Not much new here...just working all the time now, but I had to quit early tonight at 10 pm, due to a problem with my left knee (sprained it somehow about 9 days ago, I think on the rebounder, and the pain moves to different locations around the knee every two or three days) and a stiff middle back from sitting at my desk for a long time every day (but it should be fine in the morning).

I started drinking about 8 oz of 2% milk with two little cups of whey protein powder (blended) on Sunday. I'm also eating a hard-boiled egg for lunch every day. I've been having some slight swelling above my ankles when I get done working at night, so I'm taking a Lasix every day for a few days. Also, my blood pressure was up around 140/100 for about three weeks, until the other morning, when I had a sudden nosebleed from my left nostril when blowing my nose. Quite a bit of blood and then my BP has been about normal since then. I don't know if that had anything to do with the reduction in BP, but I found sources on the web that said a nosebleed could be caused from high blood pressure.(I took BP pills for about a week in January, with no reduction in BP -- and then for a couple of days a few days ago.) Could I have had an artery or vein or something that was a little blocked and then became unblocked at the time of the nosebleed?

So far, no flu or cold, but a friend who's staying here temporarily currently has a bad ear infection (the roaring in the head kind) and also will be having a spinal fusion surgery in her lower back on Feb 28th, so I'll have to deal with that in a few weeks. I can take her and pick her up from the hospital during non-office hours, but I won't be able to wait on her too much. She'll be off work for three months, I guess, and will most likely stay here during that time.

Well, like I said, not much new here...just wishing it was April 16th tomorrow!

Hope you're healing process is almost over, and hope you won't have any more complications!

Hi to everyone else. I've been keeping up with the msgs here once a day or so, but I haven't had time to post very often. Hope you all are doing well!

Since: Mar 12

Location hidden

#96 Feb 6, 2013
For goodness sake! I meant "Hope your healing process is almost over!" I started to say "Hope you are healing," and then I changed it, but forgot to change you're to your. lol
Anne

Etobicoke, Canada

#97 Feb 7, 2013
Hi Mary and AC...was sent this link to a podcast in an email and found it to be really interesting regarding gluten free. A lot of the info I wasn't aware of so thought it might be of interest specifically to you guys (and anyone else).

http://scdlifestyle.com/2013/02/dr-osborne-on...

Mary..this doctor is located in Houston so maybe you are already aware of him. I just found what he had to say very informative and worth listening to.

Hope all is well with everyone.
Betsy

Germany

#98 Feb 7, 2013
Hi - had my appointment (despite a migraine)- trains, planes, buses ....- the doc was interesting - says he thinks it could be diverticulosis mixed with IBS and thick walls and that treatment is conservative here in Germany in that they have to make sure the patient will really benefit from the operation. I also got the wonderful pre-treatment drink stuff (yuck, but I got the milder version - all sorts of no-no foods the week before, too, and no coffee the day before)- and as you can tell, I am not giving you the date, because I am not sure I can carry through with it. Yesterday almost sent me over the cliff, and that was nothin'. Somehow the "get it over with" attitude isn't cutting it this time, if May or June would be just as okay, seeing I have not been having any problems. It's not that I am afraid something is going to happen. I cannot face the 24 hours of misery right now. Did anybody else feel that way? And such acute discomfort at the thought of the procedure?(last time I was in the hospital and whacked out and didn't have much of a choice). Tnx & greetings to all from Sauerkraut-Land (Mary, still haven't spoken to the sauerkraut friend)

Since: Jun 12

Location hidden

#99 Feb 7, 2013
Deb,
Sorry to hear about that nosebleed, and the high blood pressure and the sprained knee! Sounds like a lot is hitting you at once. Hang in there. Hope your work is satisfying.

Anne,
I listened to that podcast. Very interesting! Thanks so much for posting it. I guess I feel more convinced now that I have a "sensitivity" issue whether or not I test positive for celiac.(still no results). I'm curious though, why he says some of what he says...i.e. "There is no gluten free oats" and to be gluten free you have to be grain free. I do believe him that it's much more complicated than the celiac diagnosis...I just wish he had some more detail in what he was saying.

Betsy,
Sorry to hear about that migrane headache. Is it still happening? How can they determine if someone will definitely benefit from the surgery...? Are you already scheduled for the colonoscopy? Mine is going to be in March, I think. I've never had one before. Not excited about it.

More soon. xoxoxo
Mary

Lubbock, TX

#100 Feb 7, 2013
Thank you so much Anne, I will check into him. We are 9 hours from Houston but I do go there for work occasionally.
Anne

Etobicoke, Canada

#101 Feb 8, 2013
applecake wrote:
I listened to that podcast. Very interesting! Thanks so much for posting it. I guess I feel more convinced now that I have a "sensitivity" issue whether or not I test positive for celiac.(still no results). I'm curious though, why he says some of what he says...i.e. "There is no gluten free oats" and to be gluten free you have to be grain free. I do believe him that it's much more complicated than the celiac diagnosis...I just wish he had some more detail in what he was saying.
Hi AC..yes, I was confused about the oat thing too as I was eating oatmeal all the time I thought I was gluten free. My naturopath also said to me that oats were not gluten free and from looking at stuff on the web, it seems to have been a debate for a long time because there is a big chance for cross-contamination with wheat on how it is grown and stored. This was something that I came across:

What Do Most Experts Recommend?

Most of the large celiac societies and clinical treatment centers now advise patients with celiac disease to consider adding limited amounts of pure, uncontaminated oats to their diet under a doctor's supervision. They point out that oats can provide nutrients, fiber, and diversity to a celiac patient's diet. Newly diagnosed patients, however, are advised not to eat oats until their celiac disease is well controlled (that is, their symptoms have gone away and their blood test results are normal). In all cases, patients who add oats to their diet are advised to see their doctors three to six months later. Furthermore, celiac patients should not eat any products that contain oats unless the oats are clearly labeled as pure, uncontaminated, and gluten-free.

I guess it is a trial and error thing and up to each individual whether or not they want to eat them or not. All this food stuff is so complicated and so many different opinions on what to eat or not to eat that I think the person just has to see what works and what doesn't for them.

The other thing I don't like is all these websites who want to tell you all the secrets of how to feel better using their info and techniques...but there is always a price to buy their "program" to get more info like the SCD lifestyle one that had the podcast. I noticed too that Dr. Osborne's site has the gluten free program "for a price". I found a lot of what he said interesting but don't want to have to pay a lot of money and not even know if it is going to work for sure. At least Elaine's book was not expensive..lol.

I guess the bottom line is you have to check out all the options and do what you feel is going to work best for you. I am still doing the SCD and still not 100% convinced it will work for me but also found out I was using a few things I thought were legal but aren't so going to start over from the intro diet and see what happens. I don't miss the grains anymore or the sugar so whatever happens at least I know I am eating healthier than I was.
Betsy

Germany

#102 Feb 9, 2013
AC, yes, the migraine is still happening. Yesterday really bad, today medium. Weird. I feel like I am eating perfectly, raw veg & fruits, no sugar or honey, all whole wheat & fiber, etc. Very stressful.-- I reread what I wrote, and it sounded confusing. The gastroenterologist I saw was just voicing a prior opinion to the colonoscopy, which I can schedule any time. And what he said means that he will only recommend surgery if he really feels like it is necessary - which in Germany is not always the case. Here everybody pays (lots of) insurance and there are surgeons who "over" do surgery & perform surgery when not really necessary. All the doc said was that he wanted me to benefit from the surgery. My family doctor keeps insisting that I need surgery (and will hardly discuss anything UNTIL I have the surgery). Seeing I told this doc I was feeling fine and have been for about 2 months (the last diarrhea episodes were during the SCD diet and have not reocurred at all)- except for daily pain that does not sound as bad as others' here - so that was his response.

Now I am a chicken about the coloscopy because the prep for the last one made me feel awful (in hospital, it traumatized me). So I got the milder prep-drink version this time (less fluid - you drink about half a cup of the stuff which supposedly tastes of ginger & lemon - and then drink loads of water whereas with the rough prep you end up drinking a half a gallon of gunk that tastes like salt and citrus essence, gag). I would recommend you go for the milder one, AC - somebody mentioned Gatorade in another thread. The coloscopy itself is cynch (cinch?) here seeing they konk you out - it is the buildup beforehand, approx. 36 hours worth.(Seeing what you have been through with your surgeries you'll probably think I'm a whimp for saying so. It's true, I'm a whimp)

I actually hoped that it was the fear of the coloscopy that gave me the headache, but I am being proven wrong, alas. I cancelled and the headache remained.

Hope nobody is being troubled by the storm, and I wish you all lovely weekends. Take care.

Since: Jan 12

Stuart, Florida

#103 Feb 9, 2013
applecake wrote:
Deb,
Sorry to hear about that nosebleed, and the high blood pressure and the sprained knee! Sounds like a lot is hitting you at once. Hang in there. Hope your work is satisfying.
Anne,
I listened to that podcast. Very interesting! Thanks so much for posting it. I guess I feel more convinced now that I have a "sensitivity" issue whether or not I test positive for celiac.(still no results). I'm curious though, why he says some of what he says...i.e. "There is no gluten free oats" and to be gluten free you have to be grain free. I do believe him that it's much more complicated than the celiac diagnosis...I just wish he had some more detail in what he was saying.
Betsy,
Sorry to hear about that migrane headache. Is it still happening? How can they determine if someone will definitely benefit from the surgery...? Are you already scheduled for the colonoscopy? Mine is going to be in March, I think. I've never had one before. Not excited about it.
More soon. xoxoxo
I fe lt. T
the stupid little notepad thingie will. Answdf on desktop
TheRaz

Delray Beach, FL

#104 Feb 9, 2013
Betsy wrote:
Hi - had my appointment (despite a migraine)- trains, planes, buses ....- the doc was interesting - says he thinks it could be diverticulosis mixed with IBS and thick walls and that treatment is conservative here in Germany in that they have to make sure the patient will really benefit from the operation. I also got the wonderful pre-treatment drink stuff (yuck, but I got the milder version - all sorts of no-no foods the week before, too, and no coffee the day before)- and as you can tell, I am not giving you the date, because I am not sure I can carry through with it. Yesterday almost sent me over the cliff, and that was nothin'. Somehow the "get it over with" attitude isn't cutting it this time, if May or June would be just as okay, seeing I have not been having any problems. It's not that I am afraid something is going to happen. I cannot face the 24 hours of misery right now. Did anybody else feel that way? And such acute discomfort at the thought of the procedure?(last time I was in the hospital and whacked out and didn't have much of a choice). Tnx & greetings to all from Sauerkraut-
Land (Mary, still haven't spoken to the sauerkraut friend)
Well I felt the same way about having mine but I figured if I wanted to live and not have a BAG it would be better to have it done on my time and ant as a emergence room experience. better to get it done now when you are younger and heal faster then wait till you are to old to have it done there is a cut off point where they will not do it and just keep you comfortable so Please do not play chicken and have it done. even what I have been through I would do it all over again as they got rid of the colon cancer I still have diver-pockets and no more gallbladder dr. told me yesterday after my (PET) Scan there is fluid. Where my gallbladder was and now they want me to have a MRI to see how bad it is
wants a intervention Dr. to insert a needle and remove the fluid buy I am also glad the Chemo is over so I can eat the things I love on Chemo your diet is so limited

Well hope this has helped some God Bless and Hold your hand and the Raz Teddy Bear Hugs

Larry

P.S. my copy of Beavis and Butthead teaches Spelling and Gamer kind of Sux

Since: Jan 12

Stuart, Florida

#105 Feb 9, 2013
Betsy
I posted a new message TOPICX is doing there invisible replies again

you should really think of having it done while you are younger will heal faster and feel better

God Bless and The Raz Teddy Bear Hugs

Larry

Since: Mar 12

Location hidden

#106 Feb 9, 2013
Larry,

Your first message to Betsy is showing on my computer.

Since: Jun 12

Location hidden

#107 Feb 9, 2013
Larry,

I'm going to go out on a limb here and tell you that it's a little bit offensive when you (and other people) write about having a BAG as if it's worse than death. I had a BAG and yes it's hard, but sometimes it happens and having people talk about it like that online is really not very nice to people who (like me) have had to live with one. Also, there are other people who read this site who have colostomy bags who just don't speak up. There is a lot of shame and fear in having a colostomy bag. Many people (like me) get diagnosed with diverticulitis only AFTER having a BAG. So, please be mindful. I know of at least one person who chose to DIE of cancer rather than having a BAG because he was afraid that women wouldn't have sex with him. That kind of thing is simply caused by FEAR. People speak so disparagingly of colostomy bags and those who have them have to live with them-- many people do so in secret out of shame or don't leave the house out of fear. Anyway, it's really not cool to talk about them like that. I have never spoken up on this site to say so, because I totally understand the fear -- but people should know that there's nothing to be afraid of, should they have to have a BAG. There's nothing to be ashamed of, and for most of us having a "BAG" SAVED OUR LIVES.

Anyway....

What I really wanted to say was, Betsy - why don't you cut out just wheat for a while and see if it helps with the migranes? I think it's pretty common for gluten issues to cause migranes.
Betsy

Germany

#108 Feb 10, 2013
Larry, thank you for writing. Your first message appeared on my computer, too (I think sometimes it just takes time for posts to appear on Topix). I hear what you are saying. It's true. It's the fear of even the colonoscopy that is keeping me from having it done right now. I am giving myself another say three or four weeks. During that time, as a friend of mine who has been through a lot medically, said, you have to put the switch on "yes" internally. I like that and am working on putting the switch on "yes". I just want to get a handle on two work projects in the next couple of weeks. And then I'm on. And then, like you say, I think I will imagine god holding my hand when I go in there. Thank you. Sure am glad your chemo is over and that you can eat more of the stuff you like and I hope that doc gets the fluid out soon. Mary commented on the gall bladder / diverticulitis connection recently and said her doctor said lots of us have gall bladder problems after the operation. I hope you are feeling much better and stronger and that the chemo did not take too much of a toll energy-wise. It can be tough. Take care. Glad to hear from you. Hope to hear from you soon. Will definitely let you know when I have test. Sunday greetings from Germany.
Betsy

Germany

#109 Feb 10, 2013
Hey AC, thank you for pointing out the wheat connection, I should have maybe paid more attention to conversations here that were about gluten. I tried the gluten route a while back - but very inconsistently because a snappy allergy nurse told me you had to be really skinny to have a gluten allergy/intolerance, whereas I gather from what you guys have said and from the link Anne posted the other day that the gluten issue could also be way more complex that the way traditional medicine treats it (at least in Germany). I had a blood test for wheat & gluten (some say that is not possible anyway) and it was fine. At the time, a year or two ago, I had thought that maybe that is where my headaches came from (and I must say, for whatever reason, during my SCD phase for 3 months the headaches were much much less frequent - but I thought it was maybe the lack of sugar).-------I think I was told that you can only test gluten intolerance during a gastroscopy - when they take a sample from the small intestines? Or can they do something during a colonoscopy?(But I can just see a German doc saying no, you are not skinny, cannot be .....).-- Anyhows, did you mean leave out gluten or leave out wheat? Because in Germany you can eat - I think it is called "spelt" - instead of wheat, if that is your intolerance, a friend of mine did that and it eliminated her headaches - they have bread & pasta & cake, etc., with that here. If you go gluten-free here the foodstuff looks (and tastes, if I may say so) really bad, at least the bread. Like dry leather soles ..... It is so frustrating to go that route, too if you are not sure. Which brings me back to Mary's elimination diet, should really do that one. Lent is coming up. And I will think about it and look into it, good idea. Today, no headache. Thank god.

Since: Jun 12

Location hidden

#110 Feb 10, 2013
Hi Betsy,

I meant gluten. I also have a problem with spelt. Spelt is another variety of wheat. It's possible that you won't have a problem with it, but I do.

There was a bit in that NYTimes article that I posted about pediatric arthritis that mentions a study where they picked up antibodies in the intestine that they they couldn't pick up in the bloodstream. So it's possible that the blood tests don't pick up every kind of antagonist that people have to gluten. I think I'm one of those that falls in that category. I still don't have my last celiac results, but I took a test before and it was negative. Still didn't make much sense to me, though because I clearly have a problem.

If you're going to try a gluten elimination diet, I would also eliminate spelt at first and see how you do.

Gluten-free Whether You Need it or Not
http://well.blogs.nytimes.com/2013/02/04/glut...

The Boy with the Thorn in His Joints
http://www.nytimes.com/2013/02/03/magazine/th...
Betsy

Germany

#111 Feb 10, 2013
Hi, thnx AC - I read the article about the boy, was fascinating, indeed. It just that here in Germany they keep emphasizing that constant diarrhea and hence skinniness are an absolute prerequisite for even testing for gluten intolerance. could you tell me, do those gluten-free bagels taste good? And I wonder if spuds are gluten-free. Will google the spuds, knew that about the spelt - it's just that my friend was wheat-intolerant and not gluten-intolerant and when she left out the wheat the headaches went away. I was virtually headache-free during SCD, so that leaves dairy. Lent is coming up on Ash Wednesday, so I will contemplate giving up dairy for a while. Now I will read the first article. Thnx. Take care guys. Darned cold over here, but my brother, who lives in CN, says Germans are whimps when it comes to weather. They got whacked by that storm.

Since: Jan 12

Stuart, Florida

#112 Feb 10, 2013
Applecake

I am very sorry if I come on as incentive on the
colostomy bag. Did not want it to sound that way. I have friends that have colostomy. And one has had his for 20 years now.
So I do know that they save your life
let me keep my mouth shut on this subject

God Bless all and happy days to follow all of us

Larry

Since: Jun 12

Location hidden

#113 Feb 10, 2013
Betsy,

Potatoes don't have gluten.

Larry,

Thank you for the apology. I appreciate it. I think most people are just totally unaware that when they speak about colostomy bags like that it makes people *with* colostomy bags feel even worse. And honestly, they shouldn't be feared as much as they are. There's way too much shame and embarrassment and dread associated with them. There are many many people who have them, including children, who get along much better with them and who feel much better about life than when they were terribly ill.

Anne,

I finally got that Anchor container for the yogurt. Yay!

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