Anne

Mississauga, Canada

#641 Mar 25, 2014
Hi All!

Thought everyone had deserted the thread..lol. We still have winter in Toronto too...it just doesn't want to end this year. Still piles of snow and no sign of spring yet. I think it might melt by May if we are lucky!

Betsy, so sorry to hear you have not been feeling well. I hope it is not another attack coming on. Maybe the doctor can help you out with the depression. I don't like taking medication but sometimes it can help more than hurt..might be worth looking into. It can also help the anxiety and maybe help ease the pain and fatigue. It's nice that you are having such nice weather but too bad you are not really able to enjoy it.

AC..I'm glad to hear you are not vomiting any longer. That must have been awful. I hate doing that. I get lots of nausea but don't usually vomit (except last week when I had the stomach flu). How is your job going..hope that it is Ok and you are still enjoying it.

Nat, glad you and the family are well and keeping busy. Hopefully spring will arrive in Canada someday soon! I am really tired of this winter that doesn't realize it is now spring!

I have been pretty good on the DD front for the last couple of weeks but did have a major flare for several weeks prior. I think I have finally realized that I can't eat dairy in any form anymore or some of the high fodmap fruits and vegetables. I have sort of been combining SCD and low fodmap to see if there would be any improvement. I cut out dairy, peaches, apples and asparagus and found it was a big help as the pain subsided to next to nothing. I am going to start to add them back in one at a time to try and pinpoint the culprit.

Also, I have had another problem pop up...I woke up a week ago last Friday with blurry and double vision and it is still there. I had to take a sick leave from work as I can barely see my computer. I am writing this with a patch over one eye so I can see something. The double vision is in both eyes so if I cover one, I can see OK but it is really a pain. I had the stomach flu prior to it happening so not sure if it is a virus or something else that weakened the eye muscle. Had to have CT scan to rule out stroke/blood clot..which it did but now the eye doc is referring me to a neurologist to get it checked out as he said he can't do anything and doesn't know when it might go back to normal but did think it would only be temporary. It is such a drag! The stupid part is I had figured if I was going to have to take sick leave it would be because of the DD and certainly not my eyes. Not driving is also a big pain as I have to rely on other people to take me places or pay big bucks to take a taxi. Just hopes it goes back to normal soon!! The only saving grace is that I don't have the DD pain too right now..I couldn't deal with both at the same time.

Take care all!

Since: Jun 12

Location hidden

#642 Mar 26, 2014
Betsy,

What you describe very much sounds like a diverticulitis attack to me, including the depression. I do hope you will make an appointment soon. I know you've been considering the surgery for a long time. It sounds like something to talk about again with your doctor. Hang in there and remember that feeling this much in the dumps is as much a symptom of the illness as anything.

Anne,
Wow. So sorry to hear about your eyes. I hope it subsides soon. I lost my eyesight after my first surgery and have had to wear glasses ever since. Pretty weird.

Work is good for me. As of next week, I will finally have ordinary health insurance again. It will be a big relief. I am able to work at home a lot of the time, and generally feel like I am in the right place. There is enough stress to make the day go by quickly but lately very little of the bad kind of interpersonal stress that can be the worst at work, so I am pleased. Thanks for asking! Hang in there. I hope that your vision returns soon. I'm sorry to hear you had a big attack recently. I'll be curious to hear how avoiding dairy and some of these high fodmap foods help.

Thinking of you both today. xoxo ac.

Since: Jun 12

Location hidden

#643 Mar 26, 2014
P.S. Anne-

I've had a couple of weird rapid-onset vision issues, and of couse there 's the diver. I hope that eventually they figure out the neurology of the gut and how it connects to everything else. Because I think most of us in this situation can say with confidence that the experts don't know s@&@! But we feel the effects all over the place. It's too bizarre, but I think it's related. We just don't know how. So mysterious.

AC
Betsy

Darmstadt, Germany

#644 Mar 28, 2014
Hi AC, you were right, it's a full-fledged attack and the doc put me on Cipro today after blood work. At least I know why I have been so exhausted. Soon will be better. Greetings
Deb

Mason, MI

#645 Mar 28, 2014
Betsy,

Sorry to hear you're having another attack. I hate to tell you, but Cipro alone probably won't get rid of the infection. He should have also prescribed Flagyl, which is the antibiotic that works to get rid of infection in the colon. Cipro is mainly for the organs near the colon. Get better soon!
Anne

Burlington, Canada

#646 Mar 28, 2014
Betsy..sorry to hear you are having another attack..hope you feel better soon! Hope you have some probiotics on hand to replenish the good gut bacteria. Take care and gets lots of rest!

Since: Jun 12

Location hidden

#647 Mar 28, 2014
Thinking of you, Bets.

Remember, you can take saccaromyces boulardii when you're on the abx.
Betsy

Darmstadt, Germany

#648 Mar 29, 2014
Hi Girls, thank you for the tea & sympathy. Am better already with taking the anti-biotics. The fatigue may be diminishing, hoorah!- Deb, thnx, I noticed that the gastro doc prescribed flagyl a couple of years ago with the cipro, but my Family doctor did not, I am happy to have the cipro.---- And AC, yes, you've mentioned that s.b. before, googled it. I can get it here. The German Wiki said it was a yeast that acted against diarrhea? A probiotic to replenish the gut?--- I also asked for a prescription for Liallda/Pentasa that worked well for me the last time, that is what I will take after the antibiotics, already have the appointment for the colonoscopy in a month, and then I'm going for the surgery. I am sick of this. Literally. With me the Problem is detecting the DD - which, I think, has to do with DFMOP, because my gut does not react with such extreme diarrhea anymore, it is the fatigue and sense of defeat that half kills me. I think that is my Major symptoms, and then I go and ignore them for weeks .... dumbdumbdumb. And the pain is shifting, I feel fire throughout my abdomen and a dull ache on my right side, and needle sharp pain in the old lower left quadrant. Ugh.
Thank you for your kind thoughts! xoxoxoxoxo Betsy
NJ John

Cherry Hill, NJ

#649 Mar 29, 2014
Question - what do they say about shredded coconut? If you are post-surgery, is this a potential trouble-maker for us? Does anyone know?
Deb

Mason, MI

#650 Mar 30, 2014
Glad to hear you're gonna have the surgery, Betsy! You will feel so much better after the recovery period -- and you shouldn't have to worry about the foods you eat after that. I hope the Cipro will work for you, but after a few days, if the pain is still there, I think you should call your doctor and have him prescribe Flagyl. As unpleasant as it is to take, it really does work much better than Cipro for colon infection.

I tried Cipro back in June 2011. Went to Urgent Care and told the doctor I thought I had a bladder infection (which I knew I didn't, but I just wanted a quick way to get antibiotics). She gave me Cipro, and after four days, I could tell it wasn't working, so that's when I went to the ER and had to go through all of that -- 6 hours waiting, drank two containers of the yellow stuff, CT scan, and then was sent home the next morning with Flagyl and Bactrim. Even those didn't work completely, and as I've posted many times, after about two weeks, I would have to take another 10 days of those antibiotics. This continued from July through the end of October, just before my surgery.

Take care of yourself!
Deb

Mason, MI

#651 Mar 30, 2014
NY John,

I doubt if any foods will cause problems after you've had the surgery. All you can do is try them and see how they affect your colon. Quantity is probably the key. Don't eat too much of any one food.

The only problem I've had since the end of 2011 is when I eat shredded cabbage. A little bit wouldn't bother me, but I was eating a large amount, which caused diarrhea, so I won't be doing that again.
NJ John

Cherry Hill, NJ

#652 Mar 30, 2014
Deb wrote:
NY John,
I doubt if any foods will cause problems after you've had the surgery. All you can do is try them and see how they affect your colon. Quantity is probably the key. Don't eat too much of any one food.
The only problem I've had since the end of 2011 is when I eat shredded cabbage. A little bit wouldn't bother me, but I was eating a large amount, which caused diarrhea, so I won't be doing that again.
Deb, thanks. I ate something recently, with a lot of coconut, maybe the quantity is what bothered me, rather than the food itself. Thanks again!

Since: Jan 12

Stuart, Florida

#653 Mar 30, 2014
I'm going for the surgery. I am sick of this. Good luck on your up coming sugary and God Bless Big hugs also

Larry
Betsy

Darmstadt, Germany

#654 Apr 1, 2014
Hi guys, thank you all for your nice comments!
Larry, when are you going to have another surgery? I didn't know there was one pending. All the best. Tell us the date please.

Deb, thnx for the tip with Flagyl. Am trying to figure that one out, because Cipro is all I got. It is my Family doctor, and here in Germany they are all hesitant with anti-biotics so I was glad I got anything. Tomorrow he is doing blood work again, and maybe I will be better. I know the gastro doc prescribes Flagyl with the antibiotics, but he is a specialist. The system is different here. At any rate, I feel better already.

AC, I'm going to be plugging for Lialda because I am so sick and tired of feeling sick ..... to Tide me over.

Anne, thank you, too. But as it turned out, it was the Div rearing its ugly head again. You really made a Ppnt about not being to enjoy the nice weather, so I might even go for some meds to make me feel better. I am so tired of this. I don't know if I mentioned it, but I seem to get fewer of the diarrhea symptoms These days, and I think that is on account of the FDMOP/SCD diet. I just to react faster with the diarrhea. Now it is pain and misery that has got me spooked.

NJ John, I wasn't in the group you were asking about the coconut, but coconut makes me sick as a dog. Always has. And I love it., Thought I'd mention that. And then there's "The Bridge" Part II which they are showing on German TV presently and it is absolutely stunning. Fantastic and riveting and everything. Got rave reviews in England.

Take care, everybody, be well, will write soon. Greetings from Germany, where the weather continues to be awesomely beautiful.
NJ John

Cherry Hill, NJ

#655 Apr 1, 2014
Betsy wrote:
NJ John, I wasn't in the group you were asking about the coconut, but coconut makes me sick as a dog. Always has. And I love it., Thought I'd mention that. And then there's "The Bridge" Part II which they are showing on German TV presently and it is absolutely stunning. Fantastic and riveting and everything. Got rave reviews in England.
Take care, everybody, be well, will write soon. Greetings from Germany, where the weather continues to be awesomely beautiful.
Betsy, I LOVE coconut, and had something the other day with a lot of it, and then it (or something) ran through me quickly. I've been fortunate to not have too many things on what my doctor calls "John's no fly zone", and don't want coconut to be on the list. That experience, along with 2-3 incidents just after the one year anniversary of my surgery, just means I have to be more careful about rich food. Anyways, I haven't tried The Bridge yet, my favorite shows at the moment are The Walking Dead (season finale last night), The Black List, and Revolution. What I am waiting for is the second season of a French show called "The Returned" which was on US TV in the fall. Spectacular and spooky, it was. It got rave reviews in England as well. And today, we finally got warm weather here in NJ, so the LONG winter is finally behind us. Take care!

Since: Jun 12

Location hidden

#656 Apr 1, 2014
Betsy,

I have to say, I'm not super thrilled at the idea of you getting a colonoscopy around now. Can't they just give you a CT and call it a done deal? You obviously need the surgery. And we all know that colonoscopies near infection times are not ideal...

I haven't taken Liada/mesalamine -- only Dicyclomine. Dicyclomine has tohas been great for me, though. It's mostly for IBS.

Florastor is the same as Saccaromyces Boulardi. Basically it's a yeast that eats yeast, so it helps restore balance to the gut when certain microbiota grow out of control.

Deb, Sadly I can attest to the fact that one can most certainly have trouble with foods post-surgery. Many of us do. Some foods can cause extreme gas/and terribly painful spasms.

NJ, I know a handful of people who have serious difficulty digesting coconut.
Deb

Mason, MI

#657 Apr 2, 2014
Applecake,

I was talking about the majority of post-surgery patients (after the recovery period of two or three months). I also mentioned that quantity has a lot to do with whether you'll have problems or not. There are some harder-to-digest foods that everyone (not just those who have diverticulitis or who have had colon surgery) should limit the quantity that they eat, or they could have problems. Shredded cabbage is one of those foods in my case. Cinnamon rolls and donuts are other foods that used to cause constipation for me (several years ago), if I ate too many at one time. Currently, I do get gas when eating certain foods, but I think that's common with most people.

Guess I was talking about not getting diverticulitis again after having a portion of your colon removed. Most people don't have to worry about that too much, but there are always exceptions to everything, right?

Since: Jan 12

Stuart, Florida

#658 Apr 2, 2014
Betsy
The good luck on up coming sugary was for you

Hi guys, thank you all for your nice comments!
Larry, when are you going to have another surgery? I didn't know there was one pending. All the best. Tell us the date please.

I am out of it right now brain farts have to see Dr. Thursday April 3nd
and he will tell me more my bone marrow has been comprised and they do not know what meds they will be giving me. I can not have Sugary Until my plate come back to over 50 to 60K they are right now 13K critical low OUTCH !!!
Again good luck on your up coming sugary God Bless and Teddy bear hugs

Larry
Betsy

Darmstadt, Germany

#659 Apr 3, 2014
Larry, April 3 is today, so you will know more. Please Keep us posted. All the best. Hope those platelets go up higher to the desired number. Hope you are being looked after.

AC,thnx again. Thing is, I procrastinated so long with my colonoscopy - was supposed to have it last year at the latest - that is why myfFamily doc would like to have it done. He did not prescribe Lialda (that was just me and my wishful-thinking anyway), he's keeping me on the antibiotics another week . And seeing you mentioned IBS - I don't have that anymore, so maybe Lialda wasn't a good idea anyway.-------- If I marched over to the surgeon who was going to operate me year before last, he'd operate me, no colonoscopy, no CT, done deal (he had a good look at my last CT and said the formerly infected/thickened part of of the colon was so long surgery was the right thing to do, period). Personally I'd like a CT, too, but doctors are really miserly with those here in Germany, they say they are too expensive.... The colonoscopy won't be until another five weeks or so, seeing everyone in Germany goes on Easter vacations (and everybody else has Good Friday and Easter Monday off anyway, nation-wide ).

So what I will do is mull is your suggestion over. You could be right. But then again, I would do anything to avoid a colonoscopy (prep)..... Greetings & thnx

Since: Jun 12

Location hidden

#660 Apr 4, 2014
Betsy-

How much longer are you going to be on the antibiotics? The great part of this whole story is that you're going to have surgery and it doesn't have to be open, ER surgery. You can get past this infection and get the lap surgery and you'll be done!

I had a guy who was doing my colonoscopy explain to me that a colonoscopy is not actually the best way to see the condition the colon, re: divits from diverticulitis because of the internal perspective; actually, he said a CT scan is the best way to diagnose the diverticulitis.

At any rate, sounds to me like your colon will be a bit worse for the wear after this, my dear. And you're in line for surgery! Wish I could be there to bring you broth and tea and queue up the Broen. xoxoxo

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