Anne

Toronto, Canada

#560 Nov 12, 2013
NJ John wrote:
Another general question. In 2012, I had my annual physical with family doctor in September, 2 months after my discharge, including blood work. Just had my 2nd annual physical since surgery recently, and another blood test. I am still eating healthier than before resection. My weight is still down, and overall cholesterol is down, both LDL but also my HDL, with the HDL (the good cholesterol)now below acceptable levels. Was wondering if anyone else here has had this happen to them, and what diet adjustments you made to get your HDL back to a good level, while remaining careful with food because of our condition.
John..it's good you got your levels down. I had my physical in June and was told my cholesterol was above acceptable levels and was given 3 months to see if I could get it down without medication. Since I am doing the SCD diet, I figured..great, more things I now cannot eat. I was sent to a dietician who was very good and very interested in helping me adjust the SCD diet and not make me go off of it and back onto the SAD diet because the SCD was helping me. She did not want to change that. I was able to cut my fat intake by eating low fat cheeses instead of regular. I cut back on egg consumption (sometimes I was eating 1 or 2 a day), I cut back on butter quite a bit as I was putting it on all my veggies and used egg whites in my baking instead of whole eggs. I started eating more fruit (cooked) and more cooked vegetables. I also changed my homemade yogurt from using cream and homo milk to making it with 2%. I don't eat red meat so that was not an issue for me. I can't say for sure if this helped but I also started taking a plant sterol supplement recommended by my Naturopath called Colsterol by Genestra. Two of those per day with meals. It is supposed to help cholesterol levels. When I went for my follow up re-check I had gone from a 6.58 level (5 or below is acceptable) to a 3.8 level. My doctor was happy and I think quite surprised. Needless to say, I was quite happy too as I didn't want to have to start prescription medication. Hope this helps!
NJ John

Cherry Hill, NJ

#561 Nov 12, 2013
Anne wrote:
<quoted text>
John..it's good you got your levels down. I had my physical in June and was told my cholesterol was above acceptable levels and was given 3 months to see if I could get it down without medication. Since I am doing the SCD diet, I figured..great, more things I now cannot eat. I was sent to a dietician who was very good and very interested in helping me adjust the SCD diet and not make me go off of it and back onto the SAD diet because the SCD was helping me. She did not want to change that. I was able to cut my fat intake by eating low fat cheeses instead of regular. I cut back on egg consumption (sometimes I was eating 1 or 2 a day), I cut back on butter quite a bit as I was putting it on all my veggies and used egg whites in my baking instead of whole eggs. I started eating more fruit (cooked) and more cooked vegetables. I also changed my homemade yogurt from using cream and homo milk to making it with 2%. I don't eat red meat so that was not an issue for me. I can't say for sure if this helped but I also started taking a plant sterol supplement recommended by my Naturopath called Colsterol by Genestra. Two of those per day with meals. It is supposed to help cholesterol levels. When I went for my follow up re-check I had gone from a 6.58 level (5 or below is acceptable) to a 3.8 level. My doctor was happy and I think quite surprised. Needless to say, I was quite happy too as I didn't want to have to start prescription medication. Hope this helps!
Anne,

Thank you for the information. Another question for you. Have you had any issues with your triglycerides and if so, have you taken any supplements to help with them?
Anne

Mississauga, Canada

#562 Nov 14, 2013
Hi John

I don't think I have had any issues with triglycerides. No doctor has ever mentioned them. Not even sure what they are :-).
Deb

Mason, MI

#563 Nov 14, 2013
Anne,

Triglycerides is one of the lipid panel tests, when testing your cholesterol levels.

Below are the five tests and desired results or normal ranges:

Cholesterol < 200 mg/dL
Triglycerides < 150 mg/dL
Calculated LDL < 130 mg/dL
HDL Cholesterol 40-60 mg/dL (higher is better)
Risk Ratio 0.0-10.0
jen ht

Cicero, IN

#564 Nov 24, 2013
Oh man... woke up with scary familiar gut pain Sat morning. Better so far this am. Whew! Thought we were headed in for a ct scan n yucky meds there for a bit. Bet there will be a clnspy in near future.

So far I am sticking w liquids and taking it easy. Re reading your posts and reminding myself of your advice.

Thank you for sharing, friends.

Be well,
jen
Betsy

Weiterstadt, Germany

#565 Nov 24, 2013
Hey, Jen, are you feeling better today? Sure hope so. Usually the liquid diet will help, I think sometimes something gets stuck and you get a pain. All the best.

John & Anne, Anne, I think John meant that the good part of cholesterol, the HDL, was also low - and I have not heard of that, John, with our diet. What I find interesting is that the numbers (the ones Deb quoted, are different in Germany, they are somewhat higher, depending on your age, gender, etc.- My triglycerides were high once and it turned out that because I was on a liquid diet and having Ensure, that is what made them go up. I ate normally, and they came down again. John, did you know that you are supposed to eat zilch = Zero at least 12 hours before they test you? Maybe you are eating more fruit. I used to (inadvertently) eat fruit late, then be tested => higher numbers. So I leave out the fruit the day before (and sweets if I am in the cheating mode) and have lower numbers.
Take care guys, Jen you especially, keep us posted, plse

Since: May 13

Indianapolis, IN

#566 Nov 25, 2013
Thanks Betsy. So far so good. Taking it easy n fingers crossed. Take care!

jen.
NJ John

Cherry Hill, NJ

#567 Nov 25, 2013
Betsy wrote:
John & Anne, Anne, I think John meant that the good part of cholesterol, the HDL, was also low - and I have not heard of that, John, with our diet. What I find interesting is that the numbers (the ones Deb quoted, are different in Germany, they are somewhat higher, depending on your age, gender, etc.- My triglycerides were high once and it turned out that because I was on a liquid diet and having Ensure, that is what made them go up. I ate normally, and they came down again. John, did you know that you are supposed to eat zilch = Zero at least 12 hours before they test you? Maybe you are eating more fruit. I used to (inadvertently) eat fruit late, then be tested => higher numbers. So I leave out the fruit the day before (and sweets if I am in the cheating mode) and have lower numbers.
Take care guys, Jen you especially, keep us posted, plse
Betsy, nice to hear from you. Hope you are doing well. My doctor and I are working on this, but part of the confusion is based on my path since fall 2011, my last good reading before my life went haywire. I had started to change dietary habits around then, so while my LDL was high, my HDL was OK. Then the stuff hit the fan, I got sick and lost 45 pounds in 6 months through illness, surgery and 2 weeks recovery in the hospital (25 pounds of the 45). My doctor was unsure about what to conclude about my fall 2012 tests, since it was so close to discharge, so she wanted to test again this fall. She thinks that the results now reflect just normal stuff for someone my age (53), probably unrelated to surgery, but I was curious as to other's experiences, so I posted the question here. My results are probably not related to any specific diet aimed towards control of diverticulitis, just related to my overall changes in diet post-surgery. I've made significant changes in eating since surgery. I regained the 25 pounds lost in the hospital, but only 5 additional, so I have kept off 15 pounds of the total 45. We are tweaking my diet and will see what the test brings. Cheers to you!
Betsy

Weiterstadt, Germany

#568 Nov 26, 2013
Hi NJ John - what you said made me remember when I had my worst DD attack a couple of years ago and they put me in the hospital, yadayadayada - my numbers were all horrific, including thyroid, HDL; LDL, you name it. And never again were they that bad. Personally I have always had the impression that the cholesterol-related numbers never really "recovered", i.e. some of them remained bad (and I am hypothyroid since then and take the medication for that). There is stuff you can eat that makes the good cholesterol go up. I'm curious - did you want to lose weight or are you one of those skinny bones out there who became even skinnier on account of the diverticulitis saga - or are you one of (us!) guys who could stand to lose some weight but never lose the weight, even when sick as a dog?
NJ John

Cherry Hill, NJ

#569 Nov 26, 2013
Betsy wrote:
Hi NJ John - what you said made me remember when I had my worst DD attack a couple of years ago and they put me in the hospital, yadayadayada - my numbers were all horrific, including thyroid, HDL; LDL, you name it. And never again were they that bad. Personally I have always had the impression that the cholesterol-related numbers never really "recovered", i.e. some of them remained bad (and I am hypothyroid since then and take the medication for that). There is stuff you can eat that makes the good cholesterol go up. I'm curious - did you want to lose weight or are you one of those skinny bones out there who became even skinnier on account of the diverticulitis saga - or are you one of (us!) guys who could stand to lose some weight but never lose the weight, even when sick as a dog?
Betsy, I was not skinny. I was about 225, which was too heavy for being 5' 10". I wasn't trying to lose weight as much as I was trying to eat more healthy in the fall of 2011. Eat less crap, eat more fruit and good stuff. I wasn't a healthy eater, I enjoyed too many of bad pleasures in life and it showed. So I just started cutting back on portions, and adding better stuff to the mix, and had gradually dropped some weight. But then, early in 2012, I started having DD attacks again after 4 1/2 years - 3 in the space of 4 1/2 months. I was on antibiotics a lot during this time, and the meds killed my appetite so I wasn't eating and dropped a lot of weight fast. By my surgery in June, I was 205, and then dropped to 180 in the hospital. The hospital weight loss was not natural, and it's come back, but gradually. Now I'm hovering around 210. So I don't think I fit any of your categories, I'm the person who could stand to lose a little weight - and did! A lucky side effect, I suppose, although I wouldn't wish this on any of my enemies - the hospital stay was really bad because it took me 8 days after surgery before I could fart and they would put me on liquids again. So for 1 week after surgery, my only feedings were IV. And I had an antibiotic-resistant bug in my system, so I was in isolation for a few days. Yuchhh!!! I'm careful but not obsessive about what I eat now.
Betsy

Weiterstadt, Germany

#570 Nov 27, 2013
Man, those antibiotic bugs are tough. Glad you got rid of it, because they can linger. I think hospitals have a better handle on that! Sounds like you are doing great weightwise, and if you can enjoy food and not obsess, all the better! It's funny, meds don't kill my Appetite. Now there is that small time span when I am really sick and so scared, and then I am really careful ..... but the antibiotics kick in so well with me, I really react well to them - that I start feeling better in all respects within days. I tend to be really careful for weeks, though, after attacks, because I am so shook up.----- Funny, isn't it - you went without any attacks in 4 and a half years, and then 3 in the space of a couple of months. Such a treacherous disease. Usurps your life out of the blue. I think I remember you saying that for the disease-free period - that would make you feel like you are rid of it forever, and then bam. And so that is why so many are in favor of surgery. Every day there are so many interesting pro-surgery posts.--- It is the energy level business that will get me going - my strategy is now in motion again.(Categorizations probably never work!)
NJ John

Cherry Hill, NJ

#571 Nov 27, 2013
Betsy wrote:
Man, those antibiotic bugs are tough. Glad you got rid of it, because they can linger. I think hospitals have a better handle on that! Sounds like you are doing great weightwise, and if you can enjoy food and not obsess, all the better! It's funny, meds don't kill my Appetite. Now there is that small time span when I am really sick and so scared, and then I am really careful ..... but the antibiotics kick in so well with me, I really react well to them - that I start feeling better in all respects within days. I tend to be really careful for weeks, though, after attacks, because I am so shook up.----- Funny, isn't it - you went without any attacks in 4 and a half years, and then 3 in the space of a couple of months. Such a treacherous disease. Usurps your life out of the blue. I think I remember you saying that for the disease-free period - that would make you feel like you are rid of it forever, and then bam. And so that is why so many are in favor of surgery. Every day there are so many interesting pro-surgery posts.--- It is the energy level business that will get me going - my strategy is now in motion again.(Categorizations probably never work!)
Did I get rid of the bugs? Not sure, I don't think so. It was identified from a culture taken on the operating table, so I had it coming into the hospital, and probably have it still. But not contagious. Yeah, we talked before about this - just came back like a bad dream - the 'oh shit' realization. My doctor is really good. She's glad we're back to focusing on 'normal' stuff. I'm probably at the upper limit of where she wants me to be weight wise. But she's OK for right now, realizing my journey over the last 2 years. But usurps is a great way to describe it - sucked all the energy out of me, and the energy level recovery is the biggest thing for me. I think everybody has to consider their own circumstances, and whether surgery fits. Good luck as you pursue your options.
Betsy

Weiterstadt, Germany

#572 Nov 27, 2013
Well, option-wise surgery is a phone call away - a very good surgeon looked at my CT last year this time and said he was all for it (they moved him to another hospital, but only 15 miles away)- so all I have to do is give his secretary a call ... and my family doc is all for it, too.

And whenever I hear about the energy part, I feel like having it done immediately. The renewed energy must be marvelous. Like a gift.

It is fairly easy to get rid of the MRSA bug, my dad had it when he was in the Hospital. Here in Germany that bug is acquired in hospitals, whereas there is some superbug in the U.S. that is community acquired. So while the Hospital acquired one is no fun, you can get rid of it, they have that down to a System (and here in Germany everybody is put in quarantine for a day or 2 in hospitals for them to determine if you have it or not).

Here in Germany they are also more generous with weight, they say you don't have to be a skinny petunia to be healthy (I mean you and not me! me, I have to lose weight).

Since: Jan 12

Stuart, Florida

#573 Dec 13, 2013
Hi every one

I hope all are feeling good and that Santa will put nice things in your socks and you have wood for your fireplaces also

God Bless and Merry Christmas and a Happy New Yeas
Teddy Bear hugs all around

Larry
Anne

Milton, Canada

#574 Dec 22, 2013
HAPPY HOLIDAYS to everyone! Hope you are all well and enjoying the holiday season.

Also wishing everyone a happy and HEALTHY 2014!

Take Care All.
NJ John

Cherry Hill, NJ

#575 Dec 22, 2013
Betsy,

Just long distance best wishes to you for the holidays! Hope you enjoy them and hope your condition is quiet for the time being!
Betsy

Weiterstadt, Germany

#576 Dec 24, 2013
NJ John, thank you for thinking of me! The holidays start right now, this very moment, in Germany - stores close at midday of Christmas Eve (the actual holiday here - it isn't Santa who brings the gifts in Germany, it is the Christ Child who brings the gifts in the evening while parents decorate the tree ...) and the Christmas Holidays extend to Dec 25 and 26, the country comes to a grinding halt.

I have just recovered from my worst bout of bronchitis in 25 years (in fact, my only one), and it was excruciating. I had forgotten what that is like, when your rib cage hurts from coughing, etc etc, and after spending a fortune on cough syrups, and what not. at the pharmacy, I finally started drinking fresh ginger tea with lemon and honey, and then came the turnaround.(The doc refused to prescribe antibiotics). Now I am better.

And I finally found my favorite surgeon (he had moved), just yesterday in fact, at a hospital only 10 miles away, so that is where life will be taking me in January for consultations, and then perhaps the surgery he recommended.

Best wishes to you, too, thank you for asking about me.

Best wishes to everyone,happiness and peace and good fortune, and no pain. Take good care. Greetings from Germany, xooxoxoxoxox Betsy

Since: Dec 13

Scotland

#577 Dec 27, 2013
Hi everyone.
I am new to your board and found your site through searching on Google for some information on diet association with Diverticulitis, but in the very elderly, my Mother to be precise.

This post has been of interest to be for two reasons.
1 My Mother, now 93, who has been battling with Diverticulitis for many years.
2 I myself am Coeliac and although I do not require information on Coeliac disease, I was very interested to read how Coeliac may interact with Diverticulitis!

My Mother has managed to control her Diverticulitis over the years following cancer around 40 years ago, however, since last year things have become quite unbearable at times (most days) for her and although we have tried all sorts of dietary things and her GP has provided antibiotic medication when required (most of which don't agree with her by the way - hallucinations), I genuinely feel a Gluten-free diet would benefit her, which is why I was drawn to this thread where others have mentioned such.

Operations and endoscopy's etc are out of the question at this stage of my Mum's life, but I would really like to try and give her some better quality of life. Have any of you any advice which may help her? If so, I would be very grateful.

Just a little bit more information:
Mum doesn't leave her house anymore because of the embarrassment posed through both bowel and bladder releases on a permanent basis, which is not incontinence, but the Diverticulitis the GP tells us.
She is exhausted with the major bout lasting around 2 months at the moment.

Can anyone offer me some advice as to how to help her "dry up" and stop living in her toilet, but excluding immodium?

Thank you for reading this and thank you if you can assist with tried and tested advice.
Anne

Milton, Canada

#578 Dec 29, 2013
Alexis6 wrote:
Hi everyone.
I am new to your board and found your site through searching on Google for some information on diet association with Diverticulitis, but in the very elderly, my Mother to be precise.
This post has been of interest to be for two reasons.
1 My Mother, now 93, who has been battling with Diverticulitis for many years.
2 I myself am Coeliac and although I do not require information on Coeliac disease, I was very interested to read how Coeliac may interact with Diverticulitis!
My Mother has managed to control her Diverticulitis over the years following cancer around 40 years ago, however, since last year things have become quite unbearable at times (most days) for her and although we have tried all sorts of dietary things and her GP has provided antibiotic medication when required (most of which don't agree with her by the way - hallucinations), I genuinely feel a Gluten-free diet would benefit her, which is why I was drawn to this thread where others have mentioned such.
Operations and endoscopy's etc are out of the question at this stage of my Mum's life, but I would really like to try and give her some better quality of life. Have any of you any advice which may help her? If so, I would be very grateful.
Just a little bit more information:
Mum doesn't leave her house anymore because of the embarrassment posed through both bowel and bladder releases on a permanent basis, which is not incontinence, but the Diverticulitis the GP tells us.
She is exhausted with the major bout lasting around 2 months at the moment.
Can anyone offer me some advice as to how to help her "dry up" and stop living in her toilet, but excluding immodium?
Thank you for reading this and thank you if you can assist with tried and tested advice.
Hi Alexis

Welcome to the board. Sorry to hear about your mom. I have had great success with the Specific Carbohydrate Diet (SCD). It is outlined in the book by Elaine Gottschall called Breaking the Vicious Cycle and it is for people with many types of intestinal disorders such as Crohns, Ulcerative Colitis, Celiac, Diverticulosis and more. One of it's main functions is to stop diarhea if present. You should check out the website Breaking the Vicious Cycle.info. The book is a must read and is very inexpensive or could probably be obtained in the library.

The main points of the diet are to eliminate ALL grains, all sugars (except honey), all dairy (except lactose free). It takes awhile to get used to the changes but there is a lot of info on the web with support groups (yahoo scd group) and many recipe sites. I use almond and coconut flours to replace the grain flours.

One thing you could try right away (if you are not already) is a good probiotic capsule as that always helps for me for diarhea.

Everyone's experience with diver is different but this is something you might want to research as you never know what might or might not work.

Good luck and hope you can find something to help your mom.

Since: Dec 13

Scotland

#579 Dec 29, 2013
Anne wrote:
<quoted text>
Hi Alexis
Welcome to the board. Sorry to hear about your mom. I have had great success with the Specific Carbohydrate Diet (SCD). It is outlined in the book by Elaine Gottschall called Breaking the Vicious Cycle and it is for people with many types of intestinal disorders such as Crohns, Ulcerative Colitis, Celiac, Diverticulosis and more. One of it's main functions is to stop diarhea if present. You should check out the website Breaking the Vicious Cycle.info. The book is a must read and is very inexpensive or could probably be obtained in the library.
The main points of the diet are to eliminate ALL grains, all sugars (except honey), all dairy (except lactose free). It takes awhile to get used to the changes but there is a lot of info on the web with support groups (yahoo scd group) and many recipe sites. I use almond and coconut flours to replace the grain flours.
One thing you could try right away (if you are not already) is a good probiotic capsule as that always helps for me for diarhea.
Everyone's experience with diver is different but this is something you might want to research as you never know what might or might not work.
Good luck and hope you can find something to help your mom.
Hi Anne,
Many thanks for this information. It is really appreciated! xo I shall purchase the book you suggest. The information you have provided over the dietary changes is something I thought would help my Mum, but really didn't know, so your knowledge has now affirmed that these dietary changes are necessary and ones I shall put into practice right away.
Once again Anne, your information has been an excellent helping hand to me and my Mum, so a huge thank you. I shall post an update of how the new diet works.
Wishing you and your family a very Happy and Healthy New Year in 2014.

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