Diverticulitis attack recovery time?
Natalie

Montréal, Canada

#5150 Sep 17, 2012
Hi Nelly and others... I too have joint pain. I cannot bend and straighten my knees without groaning.
Recently, my wrists and PARTICULARLY my thumbs hurt all the time.
I am 5 years post resection AND I am a cook (use my hands a lot!!!), but I thought I'd mention the joint pain.
What do any of you do for the pain???????
thanx, Nat
Betsy

Berlin, Germany

#5151 Sep 17, 2012
Hi Natalie, I have heard it said that even if it does not help in the short-term, it is good to use your hands a lot (I make jewelry)- keeps the joints more limber - they don't hurt less momentarily, but in the long run they do hurt less. The wrists & thumbs are particularly painful, aren't they?(Here they have a little support thing for wrists & thumbs that you strap on) Haven't figured it out yet - sometimes I put anti-rheumatic cream on my hands/knees/elbows/shoulders at night. Sometimes it helps. Strong pain medication (that does not impact the gut) helps best (haha)- and watch out for the back, everybody. It's been said here before - but some of us thought back pain was plain old back pain, whereas it was inflammation of the intestines. Nasty. And I think it is connected to the weather - when it is humid and hot or cold it gets worse, dry weather is better. Have a good day everybody. Greetings
Maureen

Bradford, UK

#5152 Sep 18, 2012
Saw the surgeon last night to discuss future treatment ie surgery to remove sigmoid and therefore get rid of bladder fistula. He says I have to lose 2-3 stone before he'll do it. He also says he is a cautious surgeon and will do the 2 stage op ie a stoma for a couple of months- my nightmare. He says it produces better results less leaks etc for people like me whose bowel is stuck to bladder etc. he says he'll try laparoscopic surgery but could well end up as open. what am I to think- not what I have heard on this website

Since: Jun 12

Location hidden

#5153 Sep 18, 2012
Maureen:

Going with a conservative option is well worth it. I have had a colostomy for the past 5 and a half months and believe me it is not the end of the world - especially when it's temporary. It basically forces you to have a sense of humor about yourself and a real humility. Many, many people have ostomies but just don't talk about it in the open for obvious reasons. It's much better to have surgery that a surgeon is comfortable with than to have him take risks and potentially leave you with leaks and more risk for future surgeries.

In the beginning I was horrified, like you, but I have adjusted to it. I know now that if something happens later in life and I have to have an ostomy again permanently , I'd be able to handle it. I'm not saying it's a walk in the park, but there really are worse things and one of them is being in constant pain. Take care.

Since: Jul 12

Laguna Hills, CA

#5154 Sep 18, 2012
Maureen,

Is it possible for you to have a consultation about your options with at least one more colon rectal surgeon? Two would be ideal. This way you can make a well informed and confident decision. Doctors are all different and their approaches as well as their experiences can vary.

Good luck to you and I am sending you positive thoughts!
Todd

South Hill, VA

#5155 Sep 18, 2012
I was hospitalized in mid July with complicated diverticulitis. I actually had a perforation, however the perforation was located in a fatty wall and I was very lucky according to my Doctor. I got another CT scan about two weeks after and my inflammation went down however I was still not completley healed and fluid went through the perf. My Doctor has stated that since this was my first complicated diverticulitis he recommends waiting however he wants one more CT scan to see if the perforation has completley healed in two weeks. If it hasn't then he wants to do surgery. I am nervous that my perforation hasn't healed and will have to have surgery. Has anyone else ever had a similar situation?
Natalie

Montréal, Canada

#5156 Sep 18, 2012
Betsy wrote:
Hi Natalie, I have heard it said that even if it does not help in the short-term, it is good to use your hands a lot (I make jewelry)- keeps the joints more limber - they don't hurt less momentarily, but in the long run they do hurt less. The wrists & thumbs are particularly painful, aren't they?(Here they have a little support thing for wrists & thumbs that you strap on) Haven't figured it out yet - sometimes I put anti-rheumatic cream on my hands/knees/elbows/shoulders at night. Sometimes it helps. Strong pain medication (that does not impact the gut) helps best (haha)- and watch out for the back, everybody. It's been said here before - but some of us thought back pain was plain old back pain, whereas it was inflammation of the intestines. Nasty. And I think it is connected to the weather - when it is humid and hot or cold it gets worse, dry weather is better. Have a good day everybody. Greetings
Betsy, so true about the weather...it rained all day here and my thumbs feel like they got slammed in the car door!!!
Tricia

Brea, CA

#5157 Sep 18, 2012
I used to have joint pain all the time. Once I changed my diet and eliminated sugar and gluten I no longer have joint pain

Since: Jun 12

Lafayette, LA

#5158 Sep 18, 2012
Todd wrote:
I was hospitalized in mid July with complicated diverticulitis. I actually had a perforation, however the perforation was located in a fatty wall and I was very lucky according to my Doctor. I got another CT scan about two weeks after and my inflammation went down however I was still not completley healed and fluid went through the perf. My Doctor has stated that since this was my first complicated diverticulitis he recommends waiting however he wants one more CT scan to see if the perforation has completley healed in two weeks. If it hasn't then he wants to do surgery. I am nervous that my perforation hasn't healed and will have to have surgery. Has anyone else ever had a similar situation?
Hi, Todd. I had almost the exact situaiton except that I have suffered with diverticulitis for about 30 years. Had the same event in June/July - microperf that was blocked off by the fatty wall on the abdomen. Very lucky indeed! Kept me in for 8 days on IV antibiotics. I had been suffering about 2 bouts a year and had enough. Waited 8 weeks to be sure the perf had healed. Lost some weight and did the laparoscopic surgery. Removed about 15 inches of the sigmoid colon. My recovery, the doctor told me, was unusual, but within 2 weeks I was back at work and eating normally with no bowel issues or pain at all. Notihng to eat for the first day after surgery. Ice chips the next day. Clear liquid the next day followed by liquid the following day. After that, a week or so of low residue low fat diet. Then back to regular diet. Had some minor incision pain the first couple of days but easily controlled with meds. Todd, I am so glad I did this I can't even begin to tell you! Best approach in my opinion: have someone you can talk to who is close to you and who cares. Then find a surgeon who you can trust completely and who has done these before. My guy was an abdominal and bariatric specialist who specialized and was certified in laparoscopic surgery. He was fabulous! All is well here and I am glad it is over to be sure. I really sympathize with the anxiety you must be going through. It is not an easy journey - sometimes I think all the reading I did made it worse! But this forum had some good people with great stories and encouragement that really helped a lot. Good luck with whatever you decide. Find a good doc and follow his advice!

Since: Mar 12

Location hidden

#5159 Sep 18, 2012
Tricia wrote:
I used to have joint pain all the time. Once I changed my diet and eliminated sugar and gluten I no longer have joint pain
Tricia,

The same thing happened with me after I changed my diet to juices and raw fruits and vegetables and eliminated sugar and gluten, in addition to eliminating milk and reducing my meat and processed food intake by about 90%. I've had no Pepsi or milk since January 15th and have only eaten bread and meat no more than once or twice per week.

I discovered that eliminating milk got rid of the inflammation in my bladder (that I've had since 2001). Also, I recently discovered that tomatoes will cause inflammation pain in my bladder, so I need to eliminate them, too, or cut way down on eating them.

Also, drinking more water has helped a lot and, because I have a lot more energy since changing my diet, it's been much easier to get more exercise to keep everything in shape and more flexible (knees, ankles, feet).

I haven't been sick at all this year...no colds, flu, etc. I'm positive the change in diet is the reason why I feel much healthier than I've felt in the last ten years.
Anne

Canada

#5160 Sep 19, 2012
Hi all
Does anyone get lower back, hip and groin pain with an attack or flare? This seems to be what happens to me right before a flare or attack. I used to have a lot of joint pain but have noticed an improvement since giving.up red meat, dairy and wheat and increased my water. Not sure if there is a connection but noticed it in my hands as used to have a lot of pain when knitting and is much better now. Hip pain is the one that gets me now. Also now have bursitis and tendonitis in my left shoulder probably from all the baby knitting I was doing for my grandson :-). Funny how all the pain is on the left side same as sigmoid. I,m sure it is all connected.

Since: Jun 12

Location hidden

#5161 Sep 19, 2012
Hi Anne:

Yes, I get lower-back pain and pain in my left hip. The pain in my left-hip feels like it's very deep in the hip.
Anne

Canada

#5162 Sep 19, 2012
applecake wrote:
Hi Anne:
Yes, I get lower-back pain and pain in my left hip. The pain in my left-hip feels like it's very deep in the hip.
Hi Applecake
Mine is very deep too. I even had an xray done as I figured there had to be something wrong. Of course nothing showed up so again another side effect of DD. I am so fed up with this disease!
Maureen

Bradford, UK

#5163 Sep 20, 2012
applecake wrote:
Maureen:
Going with a conservative option is well worth it. I have had a colostomy for the past 5 and a half months and believe me it is not the end of the world - especially when it's temporary. It basically forces you to have a sense of humor about yourself and a real humility. Many, many people have ostomies but just don't talk about it in the open for obvious reasons. It's much better to have surgery that a surgeon is comfortable with than to have him take risks and potentially leave you with leaks and more risk for future surgeries.
In the beginning I was horrified, like you, but I have adjusted to it. I know now that if something happens later in life and I have to have an ostomy again permanently , I'd be able to handle it. I'm not saying it's a walk in the park, but there really are worse things and one of them is being in constant pain. Take care.
Thanks for the encouragement. How long before you have the second operation ?
Maureen

Bradford, UK

#5164 Sep 20, 2012
lovedusty wrote:
Maureen,
Is it possible for you to have a consultation about your options with at least one more colon rectal surgeon? Two would be ideal. This way you can make a well informed and confident decision. Doctors are all different and their approaches as well as their experiences can vary.
Good luck to you and I am sending you positive thoughts!
Am trying to set up a second opinion but it's quite hard in Uk. I just found the surgeon set in his approach and have heard on this site how successful lap surgery can be. Thanks for kind thoughts- much needed

Since: Jun 12

Location hidden

#5165 Sep 20, 2012
Anne:

I read "hip pain" on a medical reference list of symptoms for diverticulitis. I'll see if I can find that reference again. It was very comprehensive. Sometimes the pain in my hip gets really bad and then it completely goes away, so I do think it's the diver. There must be some kind of nerve in there that gets inflamed.

Maureen:

My next surgery is going to be in December: 12/12/12. Kind of a while yet. So I will have had the colostomy for 8.5 months. I had peritonitis. Evidently they have better results if they wait 6 months before reconnecting you if you had a rupture like mine. Of course in a perfect world, I would've had lap surgery and no infection and no colostomy; and no diverticulitis while I'm at it! But in that case my life wouldn't have changed that much and to be honest, my life really needed to change. The way this happened has forced me to revise my life plan in a big way. So in a weird way - I'm glad it happened. There's a great site for people with ostomies called " ostomyland.org ". Join it and read the message boards. I am "nova" on that site. I had the director of clinical medicine at Stanford tell me: "the last thing you want is a surgeon who isn't comfortable doing laparoscopic surgery doing laparoscopic surgery on you." I could see how dealing with a fistula and an infection under laparoscopic conditions could be risky. Abdominal surgery is serious stuff; I wouldn't want to take any more risk than necessary. And again, a colostomy is an experience that if anything will make you a better person; more compassionate; more amazed at what you can do that you never knew you could do; more capable of dealing with your own ****!

For a while I was stuck on the idea that I wanted my reconnect surgery to be laparoscopic...until I realized that I had absolutely nothing to gain by having it done that way. I already have a scar, so it's not like that would go away.

Hang in there; get a second opinion if you can, but when it comes to abdominal surgery, I say conservative is the way to go.
Todd

South Hill, VA

#5166 Sep 20, 2012
Thank you MiketheD! It is nice to hear someone has a similar experience to me! If my perforation has healed then I am going to hold off on the surgery at the advice of my Dr. I am obviously praying that it has healed!

Since: Jun 12

Lafayette, LA

#5167 Sep 20, 2012
Todd wrote:
Thank you MiketheD! It is nice to hear someone has a similar experience to me! If my perforation has healed then I am going to hold off on the surgery at the advice of my Dr. I am obviously praying that it has healed!
Best of luck to you. I had the surgery because mine healed. If it had not the surgery would have likely been emergency surgery with the bag and the works. I am 60, and it became apparent to me that I was going to continue to suffer bouts of this unless I handled it. Was really nervous but worked out fine for me. Do what your doctor recommends and hang in there!
Maureen

Bradford, UK

#5168 Sep 20, 2012
applecake wrote:
Anne:
I read "hip pain" on a medical reference list of symptoms for diverticulitis. I'll see if I can find that reference again. It was very comprehensive. Sometimes the pain in my hip gets really bad and then it completely goes away, so I do think it's the diver. There must be some kind of nerve in there that gets inflamed.
Maureen:
My next surgery is going to be in December: 12/12/12. Kind of a while yet. So I will have had the colostomy for 8.5 months. I had peritonitis. Evidently they have better results if they wait 6 months before reconnecting you if you had a rupture like mine. Of course in a perfect world, I would've had lap surgery and no infection and no colostomy; and no diverticulitis while I'm at it! But in that case my life wouldn't have changed that much and to be honest, my life really needed to change. The way this happened has forced me to revise my life plan in a big way. So in a weird way - I'm glad it happened. There's a great site for people with ostomies called " ostomyland.org ". Join it and read the message boards. I am "nova" on that site. I had the director of clinical medicine at Stanford tell me: "the last thing you want is a surgeon who isn't comfortable doing laparoscopic surgery doing laparoscopic surgery on you." I could see how dealing with a fistula and an infection under laparoscopic conditions could be risky. Abdominal surgery is serious stuff; I wouldn't want to take any more risk than necessary. And again, a colostomy is an experience that if anything will make you a better person; more compassionate; more amazed at what you can do that you never knew you could do; more capable of dealing with your own ****!
For a while I was stuck on the idea that I wanted my reconnect surgery to be laparoscopic...until I realized that I had absolutely nothing to gain by having it done that way. I already have a scar, so it's not like that would go away.
Hang in there; get a second opinion if you can, but when it comes to abdominal surgery, I say conservative is the way to go.
Thanks so much for the reply. I am at the stage when I lie awake agonising about it all. Definitely would need a sense of humour to cope with 'the bag'. I am getting more reconciled to it but I have to lose some weight between now and Christmas for surgery in Jan unless it goes wrong in the meantime. Will check out the ostomy site. Many thanks
Carol

Silver Spring, MD

#5169 Sep 20, 2012
Can someone please help me? I had my colon resection surgery last Thursday and I still haven't had a bowl movement. When I try to go the only thing I can her out is bloody mucus and some very small clots.Is this normal?

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