Repeat attacks of diverticulitis

Repeat attacks of diverticulitis

Posted in the Diverticulitis Forum

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Blink

Molesey, UK

#1 Feb 16, 2012
Hi,

I have been having problems for about 5 years now, at first they thought it was chrons disease, but after a few colonoscopies, they decided i had diverticulars disease. I got better after a number of bad attacks and went maybe 2 years without problem. Then last summer, ended up in hospital with it which turned out not to be that bad. There, they decided that i should be given the antibiotics for it and it cleared up.

since then, i have had three more attacks, the current one being quite bad. Im on metronidazole, amoxycillin and tramadol for the pain.

I seem to be having some side effects, feel jittery and have a bad headache but thats not as bad as the pain.

When im not having an attack, i still get bad cramps before a movement, and generally feel bad. Also, I am tired a lot, start to get tired by 3pm and when i get home, have to sleep for about 3 hours, then awake for a couple, then back to bed.

at 29, i dont think this is right and im just really down about it all.

Is being tired like this connected in peoples experience? I feel like its stopping me doing things i want to do, even going out for a walk, after a couple of hours, i get home and sleep for hours

Sorry to go on, but at least i feel like i have taken a load off my mind.

thanks :)
Gillian

London, UK

#2 Feb 17, 2012
Blink, Yes, diverticulitis does take it out of you and the meds on top of it don't help.

Antibiotics can make you feel sick and weak for a while -even after you have finished the course and Tramadol is an opiate analgesic and does make you feel very drowsy. Once your pain has eased somewhat it may be better to switch to Paracetamol as they don't have that effect -also, Tramadol is can cause withdrawal symptoms if taken for any length of time.

Have you tried Buscopan for the pain once the attack is over? It is quite good and doesn't have any side effects, you can also take it with Paracetamol - I lived on them before my op 18 months ago.

Probiotics are also good for helping you to get back to normal quicker as they help to recolonise the gut flora that have been destroyed by the antibiotics.

If your pain is still very bad while you are taking Tramadol and antibiotics then you should possibly go back to the doctor and let him have a look at you, as the attack should have started to ease after a few days on them.

Hope you feel better soon.
Blink

Molesey, UK

#3 Feb 18, 2012
Thanks Gillian, I am feeling better now, the cramping pains have gone but the area is still very tender. I have stopped with the tramadol now, just taking paracetamol. I have spasmonal but it seems to have only a limited effect.

The metronidazole seems to give me a fair few side effects but compared to the initial discomfort, ill put up with it!

What point did they start to consider surgery with you?

thanks :)
Gillian

London, UK

#4 Feb 18, 2012
Blink, I had a perforation followed by peritonitis -it left me with very bad scar tissue which blocked me up and then I developed a fistula between colon and bladder. It was a case of having it done or having no life whatsoever.

It took ages through the NHS though -I had to wait almost 6 months from them saying I needed the op, until I actually had it. Appointments with the consultant were forever being cancelled, and then they lost all my records so had to have all the investigations again! If you think you need the surgery (sounds like it's on the cards) sooner is better than later as they take so long to get things done on the NHS -if you haven't got BUPA.
Blink

Molesey, UK

#5 Feb 18, 2012
Im going back to my GP on thursday. I dont seem to recover completely before the next bout comes along, so really, i have been ill since last summer. I just arent looking forward to the many 'oscopies again. had 5 a few years ago and its just not entertaining at all.

Im going to try and get referred back to the gastroenterologist again and take it from there.

Thankfully, i havent had anything as serious as you, i hope you are feeling much better now

Im not expecting anything rapid!
Julz

Richland, WA

#6 Feb 18, 2012
Blink
I am just getting over my last attack and will be having surgery shortly. Please be careful as I had two attacks back to back and contracted C-Diff from all the antibiotics I was taking which killed all the good flora and allowing all the bad to grow out of control while being treated for Diverticulitis.

All the attacks I have had made me extremely tired as well. Let us know what your doctor says/

I hope you feel better soon!
Blink

Molesey, UK

#7 Feb 19, 2012
me too, yesterday, i was awake for 4 hours!

Its reassuring gjust hearing from other people with the same problem.

ill report back soon :)
Blink

Slough, UK

#8 Feb 24, 2012
Well, today, i have come out in a rash all over!

the dr said its an allergic reaction to the antibiotics which isnt good.

I have been referred to the surgeons at the hospital now so have ot wait and see the outcome.

thanks all for making me feel better :)
Julz

Richland, WA

#9 Feb 24, 2012
Well no surgery for me on Monday. The Doctor's staff forgot to get it pre-approved by the insurance company. Definitely upsetting. I am so worried that another attack will start up before I have this surgery. Will be calling the office manager first thing Monday morning! Thanks for listening all- I am so ready to start heading toward being healthy
Deb from MI

Port Townsend, WA

#10 Feb 25, 2012
Oh, what a bummer, Julz! Sorry to hear that. I hope they can reschedule your surgery soon!
Julz

Richland, WA

#11 Feb 25, 2012
So do I... was getting mentally ready for it, but I am trying to get it rescheduled for this coming week.
chrissy

United States

#12 Apr 3, 2012
I was put into the hospital on the 3rd of march with diverticulitis
they had be on ciprofloxacn and metronidazol and then I got better.
While I was on the antibiotics they made me really sick.
Now three weeks later I'm having anouther flair up and I'm told it's from stress.
On the same meds again all I want to do is sleep and I feel sick to my tummy I feel like I have to puke all day long.
I can not do anything I have to push myself to even move all I want to do is stay in bed but I can't I'm so done being sick and not feeling myself.
Does anyone els go through this?
Julz

Richland, WA

#13 Apr 6, 2012
Yes Chrissy,
I had the same issue with the antibiotics. I also had two back to back flare ups, then on my third flare up in a row they put me on the antibiotics which in turn caused me to get C-Diff which was from taking all the antiiotics. It is a condition that is caused by taking all the antibiotics which in turn killed all the good bacteria and allowing the bad bacteria to take over. C-Diff if not caught early causes ulcerative colitis. I had NEVER been that sick before! You really do need to stay with the diet plan the doctor recommends and get plenty of rest if possible. You need to allow your body to fight this darn disease. I have had the colon resection surgery- and doing great I am three weeks out. I am not saying that you should have surgery because that is a decision you and your doctor should make. I just want you to know so many of us have been where you are and have come through it either with surgery or meds and diet. I know right now you are fighting just to feel better, but know that we totally understand what you are going through. I pray that you are able to fight and are over come this disease quickly. Hang in there as we are all sending you good vibes. Use this forum for emotional support as it was invaluable for me as every one is compationate and here for you. Sorry for the rambling!
blink

Egham, UK

#14 Apr 19, 2012
Well, just out of hospital again, have been on 3 antibiotics, one was IV, then cipro and metronidazole
back home, i feel pretty sick and tired, am awake about 6 hours total each day.
As if to make matters worse, i now have to use a catheter, the reason for which is unknown but suspected to be connected.
Toni

Iowa City, IA

#15 Apr 19, 2012
Blink, I'm sorry you're having such a rough time of it. Every time I've had an episode, I felt sick throughout and totally exhausted. your body really does need time to heal - this is a deep, serious inflammation. People who don't have it have no idea. I hope you're resting and not trying to work, if at all possible. I tried to keep up at work with email and it wasn't such a good idea. Eat very carefully, drink a lot (water, I mean), sleeping is good.
Take care and know many of us have been there so keep asking questions.
blink

Egham, UK

#16 Apr 19, 2012
thanks Toni, i am just trying to rest, drink plenty. the taste in my mouth is driving me mad! just need to stop aching everywhere now :)
Mom

Kansas City, MO

#17 Apr 19, 2012
blink wrote:
thanks Toni, i am just trying to rest, drink plenty. the taste in my mouth is driving me mad! just need to stop aching everywhere now :)
The taste is awful. I found if I kept a Werthers in my mouth I could mask the taste in my mouth and it improved the nausea as well. Other hard candy would probably mask the taste but anything else seemed to make my nausea worse.
blink

Egham, UK

#18 Apr 20, 2012
I have tried the werthers and they work for me too :)
Texas Joe

Carrollton, TX

#19 Jun 21, 2012
I had a inguinal hernia repair surgery in Feb 2012. 3 weeks later i was in the hospital for a swollen abdomen and severe pain. Diverticulitis attack....antibiotics and pain meds. Had a colonoscopy bc it wasnt getting better. Immediately after the colonoscopy i felt better. Energy back...normal stools...etc. I thought that was it. Back in the hospital June 20th with an attack. Wth! I hate this! I'm only 41
Georgia

United States

#20 Jun 21, 2012
Texas Joe,
I am so sorry you are going through this. Diverticulitis can be horrible, and there seem to be so many things that can be a trigger for an attack from different foods to stress. I wish you luck in finding yours. Hopefully you know to eat a low fiber for up to a month after your flare, depending on how soon you can tolerate fiber. Everyone is different. Most of us use the Mayo Clinic diet for diverticulitis. If you need me to post that, I will be happy to. Good luck

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