Advice for After Colon Resection?

Posted in the Diverticulitis Forum

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Fancy

Henderson, NV

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#322
May 4, 2010
 
After reading what you all have to say about your experiences I have realized that what I have been going through is pretty much par for the course! And it Does make me feel better. Thinking about what I had eaten last week (before my gas attack!)I most likely brought it on myself. So I will stay away from these things until/if this goes away and try them one at a time to see the results. Nuts seem to be a problem, too bad I love them. I like to have a glass of wine after work but I think this may be a problem too. Sure hope not! Worst of all coffee! I only drink one cup of coffee in the morning and I love it but I think it does increase the burning gas pain feeling! Bummer! I take a medication for acid reflux and I had stopped taking it for about a week and found that when I resumed taking it I was able to pass gas and relive the pain and frequency of attacks! I also take acidpholous pills daily. I have always relied on it to neutralize stomach/bowel upsets and I think it is helping too. So thanks to you all for your input.
Linda

Apple Valley, CA

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#323
May 5, 2010
 
I had my colon resection on April 8, 2010. Only 6" removed along with a small part of my rectum and my appendix. All due to many diverticulitis attacks. Two in which I was hospitalized. I can tell you that I feel so much better than I did before the surgery. The piece of mind just knowing that hopefully I will never have to take that awful cipro/flagel combo again. I think I am healing normally. Doing the introduction of foods back slowly, and resting when my body tells me to. My problem is this awful smelly gas. Not really painful, just so noisy and full of odor that I can hardly stand myself. I have tried charcoal with a little success but need to take them often for relief. I do take probiotics, and peppermint tea seems to help a little. From reading these posts this all may be part of the recovery. Just want to know if anyone has found any product out there that I may purchase to help with this problem so that I may become part of the living again with out such embarrassment.
Debra

Las Vegas, NV

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#324
May 5, 2010
 
Fancy in Henderson: Who is your surgeon? I live in NW Las Vegas. It frightened me when you said your body will never be the same but I'm scheduled for surgery May 28th at Moutain View Hospital.
Joy: I have been following your very helpful input for several months now and am wondering --
My brother has been diagnosed with pancreatic cancer, 1-2 years left to live, give or take. He lives in Georgia and am wondering how long before I will feel good enough to travel to see him. Any helpful input would be much appreciated. Thanks.
Fancy

Henderson, NV

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#325
May 6, 2010
 
Debra wrote:
Fancy in Henderson: Who is your surgeon? I live in NW Las Vegas. It frightened me when you said your body will never be the same but I'm scheduled for surgery May 28th at Moutain View Hospital.
Joy: I have been following your very helpful input for several months now and am wondering --
My brother has been diagnosed with pancreatic cancer, 1-2 years left to live, give or take. He lives in Georgia and am wondering how long before I will feel good enough to travel to see him. Any helpful input would be much appreciated. Thanks.
Hi Debra good luck on your surgery. Sorry I don't want to frighten you. I do feel better almost every day. I have recently been having a "gas attack" that I hadn't experienced before. After reading most of the posts I am relieved to know that all that I have been through is the same as other people experience. When you are going through the recovery and you don't know if what you are feeling is what is expected or something bad it is upsetting. My doctor was John Davis with General Surgery Associates and I was in Spring Valley Hospital. Everyone at the doctor's office and hospital were very nice and helpful. The hospital bed was very uncomfortable and my back hurt worse than the surgery! The food (liquid) was awful. I was told I would be in the hospital 3 to 5 days but I was so uncomfortable I went home early. My surgery was Thurs 9:00 am and I went home Saturday at 3:00! I fulfilled all the requirements (passing gas and a bm -very small)so I just knew I would feel better at home and I was right! My husband made much better chicken broth than that salty swill they gave me at the hospital. I got up and walked a short distance down the hall on Friday three different times and was up on Saturday walking to the bathroom. I think they knew I wasn't going to give up and they let me go home. It worked out well for me but I know it wouldn't for everyone. After two weeks I was able to do some work at home, I'm a bookkeeper and was back at work part time the 4th week and almost full time at 6 weeks when I had my final appt with the surgeon. And I returned to my twice a week yoga class at 6 weeks too. It felt so good. I would have liked more information about what to expect on my recovery from the doctor. This forum has been very helpful to me even at this point.

I am planning a trip for our annul girls weekend at the end of June and I know I will be feeling great by then. So sorry about your brother. Good Luck. Fancy
Joy

Fremont, CA

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#326
May 6, 2010
 
Debra wrote:
Fancy in Henderson: Who is your surgeon? I live in NW Las Vegas. It frightened me when you said your body will never be the same but I'm scheduled for surgery May 28th at Moutain View Hospital.
Joy: I have been following your very helpful input for several months now and am wondering --
My brother has been diagnosed with pancreatic cancer, 1-2 years left to live, give or take. He lives in Georgia and am wondering how long before I will feel good enough to travel to see him. Any helpful input would be much appreciated. Thanks.
Hi Debra, I am so sorry to hear about your brother. HAs he looked at going to Germany for hyperthermia treatment? My husband has been doing a lot of research into cancer recently and he feels that might be something your brother should research for himself! My husband is also a strong advocate for the Dr Joanne Budwig approach (it is a dietary way to get oxygen into the cells and repair the cell membranes. I am not sure when you had your surgery but it took me about 6 weeks before I was well enough to travel. My biggest problem was that I was having bms about 12 times a day back then which made for a LOT of stops. I did a 6 hour drive (actually my husband drove me) on one day, stayed overnight at a hotel and then he drove back the next day. It was tiring but not a big deal. I hope that helps and again, I am so sorry to hear about your brother. All the Best, Joy
Debra

Las Vegas, NV

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#327
May 7, 2010
 
Joy, My surgery is May 28th and I have to be well enough to fly cross country from Las Vegas,NV to Jacksonville,FL and then a 2-hr car drive to my brother's home and I have to be sure I'm well enough not to be any burden to him. I don't even know if I can get a straight thru flight yet or if there will be a layover in Houston.My surgeon did tell me it'd be 6-8 weeks before I'd feel like doing anything and I know I have to be very careful not to try to do too much so I don't have a setback or pop the wound open.
May I ask why your husband is researching cancer and what specific types? My brothers' is in the head of his pancreas but that's not what's going to kill him. The problem is there is an important artery that lies across the pancreas and his cancer has wrapped around that artery. He starts chemo Monday and should know by then if he qualifies for a new experimental chemo that's only been out there couple months. He is retired Navy and the Mayo Clinic turned him away because they don't accept his insurance-can you believe that? He went to the MD Anderson Cancer Clinic in Houston last month, they said inoperable and sent him home for chemo treatment.Does your husband have a link I can go to to look at that Germany hyperthermia treatment?
Thank you Joy and Fancy, you have both been so helpful to me in sorting this all out.
Joy

Brampton, Canada

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#328
May 8, 2010
 
Hi Debra,
My husband lost his Mother to breast cancer in her mid 50s and his Father to bladder cancer in his mid sixties. He is 66 and was recently diagnosed with prostate cancer. It looks like it is contained and we are going through the process of deciding what, if anything, to do about it. My husband is a great believer in many types of "healthy" approaches to disease and, being a Ph.D chemist, likes to research everything! I will ask him for a link to some information about hyperthermia when he gets home later. I believe they bring the internal body temperature up in a controlled way to a point where cancer cells cannot survive and that is has been a widely used, non-invasive cancer treatment in Europe. As far as travel goes after your surgery I would agree with your doctor that 6-8 weeks is realistic (is it lap surgery?). If it is open surgery I expect it will be longer. My thoughts are with you and your brother. Take Care, Joy
Joy

Fremont, CA

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#329
May 8, 2010
 
Hi Again Debra, I can send you some information about hyperthermia but it will have to be via email. Send me an email joy.jennison@varianinc.com and I will reply with the info! Joy
Debra

Las Vegas, NV

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#330
May 8, 2010
 
Joy,
Just wanted to say how kind you are, having had your surgery a year ago and still helping people on this site.
Joy

Fremont, CA

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#331
May 8, 2010
 
Hi Debra, Thanks. I always think back to a guy called Patrick who used to post a lot and helped me so much before and after my surgery. He doesn't post anymore but he was a source of great comfort for me because he had come through his surgery well and was very supportive to others going ahead with it. I always said to myself that when I had got through my surgery I would "pay back" by trying to help others based on my experience.... so here I am :-) Joy
chiefswife

Melbourne, FL

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#332
May 9, 2010
 
I had 12in of my colon removed March 2010, via lap..I have had 2 csections and complete hysto prior to this and I have to say this recovery was brutal...3 weeks post op I was hospitalized for 5 days due to infection, I still feel like I live my life around my colon..bowel movements, bloating, constipation fearful of another infection..and yeast infection from all the antibiotics that I can't ge rid of.I have to say I don't think I could go thru bowel sugery again and never a laprascopic surgery EVER..even though I lost 14lbs I still can't button my regular size pants. Anybody have that problem ? I hope there is light at the end of the tunnel..I take gas x..stool softeners fiber miralax...any suggestions ??? Will I EVER feel better ?
natalie

Montréal, Canada

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#333
May 10, 2010
 
Chiefswife, sorry to hear you feel so bad but honestly, nature has to take it's course. You can take stool softeners, drink lots of water, walk around for exercise and rest as much as possible. Go for probiotics ( capsules, activia yogurt...), that should help with yeast infection.

Eat a normal diet (low fat, medium to high fiber...), eat small but frequent meals, it really does take 4-6 weeks to feel "human". Best of luck and keep us posted
Fancy

Henderson, NV

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#334
May 10, 2010
 
Joy, I just read your post when you were at 3 mos after surgery as I am at that point and having burning gas pains for the last two weeks. These "episodes" come and go along with frequent bm's most small to very small and very soft. Passing gas and the bm relieves the pain but it Always comes back sooner or later! I think that before this started I was feeling so good I thought I didn't have to pay attention to my diet and went overboard and now I am paying the price?? I am now back to being very careful of what I eat. I have always eaten yogurt daily and use half/half in my morning coffee along with skim milk on cereal. But I think this could be a problem now. I see where you and some others have talked about lactos intolerance becoming a factor so I have had no dairy for the last two days and had a good day yesterday without hardly a twinge of pain all day But when I went to bed it really flared up again!! I blamed it on spaghetti sauce I had for dinner. This morning I had toast with peanut butter and tea and I am having some bouts of pain again! Maybe I am alergic to work?? I don't know what to do next? Any suggestions from anyone out there? I had my last appt with the surgeon at six weeks. He never seemed to have any answers to my questions about what I was going through should I see the gastroenterologist? I would appreciate any input anyone has... Thanks
Dave

Mississauga, Canada

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#335
May 11, 2010
 
Hi Francine,

I too had lots of gas and more frequent BM's.
I am 13 months out from the resection so things have settled down considerably. My surgeon reassured me that it was all normal. He said I could eat what ever I wanted as long as I go with higher fibre diet and chew everything carefully. I was recently tested for food alergy/intolerance. Dairy and Wheat/Gluten are moderate so I have cut back and feel much better. Don't know if you have considered a food alergy test - it may be worthwhile to rule out possible reactions.
Dave
Joy

Fremont, CA

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#336
May 12, 2010
 
Fancy wrote:
Joy, I just read your post when you were at 3 mos after surgery as I am at that point and having burning gas pains for the last two weeks. These "episodes" come and go along with frequent bm's most small to very small and very soft. Passing gas and the bm relieves the pain but it Always comes back sooner or later! I think that before this started I was feeling so good I thought I didn't have to pay attention to my diet and went overboard and now I am paying the price?? I am now back to being very careful of what I eat. I have always eaten yogurt daily and use half/half in my morning coffee along with skim milk on cereal. But I think this could be a problem now. I see where you and some others have talked about lactos intolerance becoming a factor so I have had no dairy for the last two days and had a good day yesterday without hardly a twinge of pain all day But when I went to bed it really flared up again!! I blamed it on spaghetti sauce I had for dinner. This morning I had toast with peanut butter and tea and I am having some bouts of pain again! Maybe I am alergic to work?? I don't know what to do next? Any suggestions from anyone out there? I had my last appt with the surgeon at six weeks. He never seemed to have any answers to my questions about what I was going through should I see the gastroenterologist? I would appreciate any input anyone has... Thanks
Hi Fancy, it is tough when you don't know what to eat and drink in case it cuases you pain. I documentd my journey through a lot of posts and these days I have normal bms most of the time (several a day) and can eat pretty much anything although I have stuck with lactose free milk! I think it is partly what you eat and drink and maybe partly just good days and bad days with no particular reason. Try keeping a food diary and maybe you can figure out what are your "safe" foods. I ate VERY small portions and snacks, like fibre one bars and pretty bland food for quite a long time. I would stay away from acidic foods like tomatoes, spicy foods, keep the dairy low and avoid anything that is hard to digest like red meat! Keep your chin up, you will get through this :-) Joy
Joe T

South Gate, CA

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#337
May 13, 2010
 
I have had Crohn's Disease for 20+ years partial colectomy and SB recsection in 1995. Felt pretty good for many years, then started getting pain, frequency and small bowel obstructions. In the hospital 3 times in the past two years. I had surgery 2 months ago and feeling great taking 1-2 imodium prior to eating to reduce bowel movements as post op I was still going 10-15 times a day. I have a new GI doc and she wants to do another colonoscopy. I just had one a week prior to surgery and my other GI doc stated that everything was normal in the colon. I asked why this was neccesary and she didn't have a clear explaination, Does anyone know if this is a normal post op procedure. GI doc stated that the colonoscopy would not change treatment as I am supposed to go on 6mp after cleared from surgery.
Columbia Citizen

Lebanon, KY

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#338
May 16, 2010
 
Hi, I was wondering if someone could give me advice or answers. I had my colon resection 6 weeks ago and had 12 inches of my colon removed. When the Dr. got in there he said it was a mess, a lot of infection and I almost had to have a bag but he finally got some healthy tissue to reconnect. I know he did a lot of work during the surgery. I have done well and went back to work last week. What I'm experiencing now is some pain in the same place that I had pain before the surgery and sometimes it even runs down my leg. I'm so paranoid that the infection is coming back or I've read that it could be healing taking place that is causing the pain. Has anyone experienced this, I know someone told me that the skin will stretch and pull during healing but do you also have pain internally during the healing process? I really appreciate any help that anyone could give me. Joy, do you know? Thank you in advance.
natalie

Montréal, Canada

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#339
May 17, 2010
 
Columbia Citizen wrote:
Hi, I was wondering if someone could give me advice or answers. I had my colon resection 6 weeks ago and had 12 inches of my colon removed. When the Dr. got in there he said it was a mess, a lot of infection and I almost had to have a bag but he finally got some healthy tissue to reconnect. I know he did a lot of work during the surgery. I have done well and went back to work last week. What I'm experiencing now is some pain in the same place that I had pain before the surgery and sometimes it even runs down my leg. I'm so paranoid that the infection is coming back or I've read that it could be healing taking place that is causing the pain. Has anyone experienced this, I know someone told me that the skin will stretch and pull during healing but do you also have pain internally during the healing process? I really appreciate any help that anyone could give me. Joy, do you know? Thank you in advance.
Good day, I think that as long as it's not that stabbing pain that accompanies a flareup, you're OK. I remember feeling occasional pain for about a year after my resection and saying "oh no, did it come back, will the pain get worse...". So I would eat a bit less for a few days, rest a bit more and all was well. For me, the pain would come after a big meal, stress or being too tired ( I work full time as a cook and I have 2 young children. So relax, your body is healing, everything it replacing itself back in place!!!
Columbia Citizen

Campbellsville, KY

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#340
May 17, 2010
 
Natalie, I'm not worried about the pain just paranoid that the infection is coming back. Thanks for your advice.
natalie

Montréal, Canada

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#341
May 17, 2010
 
Columbia Citizen wrote:
Natalie, I'm not worried about the pain just paranoid that the infection is coming back. Thanks for your advice.
Totally understandable and normal. As time goes by, you will begin to feel more confident, your body will finish healing and maybe you will be writing on this topic , trying to reassure newcomers!!!!! health and happiness being sent your way!!!!

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