nancy

United States

#3238 Nov 11, 2012
Luvbug. Have u tried a pelvic flooring doctor for rectal seal?
Luvbug100k NY

Staten Island, NY

#3239 Nov 11, 2012
Nancy,
I don't know if it's the same or similar but I saw a physical therapist for biofeedback pelvic floor therapy. I went three times and then she said she couldn't help me because I was too weak and she needed to be more aggressive with me. She would roll my abdominal skin like she was ripping it off me. I don't know how her other patients tolerated it. It was also very difficult to do the pelvic floor exercises when the area that you are exercising is hurting you. Anyway, your suggestion sounds a little different. Is it? If so what is a rectal seal and how could it be helpful? I'm very interested.

Since: Jun 12

Location hidden

#3240 Nov 11, 2012
I know the testing for lymes can be dodgy. But seems worth checking that out more. Seems like you really need to find a doc that likes to crack these kinds of cases. I know there was a doc in the NY Times that people would write in to and he was one of those kinds of guys.

Here's a Mark Hyman video. Sorry if it seems cheesy, but I might try to track down a functional medicine doc like him (or maybe him?!) someone who really knows their stuff and is willing to go the extra mile for you.

Since: Mar 12

Location hidden

#3241 Nov 11, 2012
Luvbug100k NY wrote:
The protein drink might be good but I'll have to check with my Kidney Dr because I also have something called protienuria where I spill a lot of protein through my urine.
Luvbug,

I also have proteinuria, which my nephrologist called membranous glomerulonephritis. I was first diagnosed with interstitial cystitis in the bladder in 2001 and then MG in 2004. I think the two are connected somehow, but my doctor doesn't agree. I have pain in my bladder, which didn't go away after my colon resection a year ago. I was hoping the bladder pain was actually intestinal pain, but no such luck.

For the last 11 years, I thought I had to avoid citrus drinks and spicy foods. But then ten months ago, I decided to start juicing and eat raw foods most of the time, and I was surprised to find that drinking 30 ounces of orange juice each morning since then has not affected my bladder at all. I also eliminated milk from my diet at the same time, and the bladder pain has decreased somewhat. I'm not sure if eliminating milk actually helped the problem or not, because I also eliminated most standard foods ten months ago.

Anyway, I think the albumin in my urine has decreased a little (from +3 to +4 down to +2). I'd love to find a solution to these two problems.

Do you have the need to urinate often? Have you had your bladder checked (cystocopy)? I believe bladder pain might be mistaken for intestinal pain. Not sure in your case, but I wanted to mention it.

Since: Mar 12

Location hidden

#3242 Nov 11, 2012
That should be cystoscopy...

Since: Mar 12

Location hidden

#3243 Nov 11, 2012
Luvbug,

I'm reading backwards and just found your msg about your doctor recommending a hysterectomy for you. Wanted to let you know that I also had a hysterectomy in 1992 to remove a cyst on my ovary and due to endometriosis (which caused a lot of pain in the lower middle and left sides of my abdomen before the surgery). I had no problems after both the hysterectomy and the colon resection surgeries. In fact, I feel very good now, except for the minor pain in the bladder, especially at night when I lie down.

Just wanted to let you know that most surgeries are successful. It seems that people who continue to have problems continue to post on this forum, and people who had successful surgeries don't continue to post.

Good luck to you!
Luvbug100k NY

Staten Island, NY

#3244 Nov 12, 2012
Applecake and Deb,
Thank you Applecake, I will check that out since I've been trying to find a Dr like that for a long time now.I guess you don't remember the name of that NY Times Doc? Or is that Mark Hyman? Deb,I have seen a ton of different specialists but have not seen a urologist as of yet or had a cystoscopy. I think I had one when I was a teen due to a bad bladder infection and they stretched my urethra opening at that time. However, I have had eight cat scans in the past 3 years, an MR defogram- which is what caught my rectal and bladder prolapses and dropped bladder and uterus, MRI's which caught my fibroids/focal adnomyosis and the twisted and thickened colon (CAT scans caught that too), and numerous sonograms. I would think that at least one of those tests would have caught a bladder issue. They've done urine cultures that always come back negative so... I do urinate often but with all of my other issues I really haven't worried too much about that, plus now I know it's prolapsing Do the Drs know why you have bladder pain? And thank you for trying to make me feel better about the surgery but I'm really just being realistic when I say that I am the type of person that runs into complications. It's happened to me my whole life. I have sensitivities or bad reactions to almost every med they give me-herbal stuff too- so for these reasons this surgery does frighten me. I don't want to go into it unrealistically and at the same time would like to try every other option before I do. Like you I would like to designate the pain to one area but no Dr can do that for me so I could wind up getting this painful surgery- and I happen to have a very low threshold for pain- and then still have the pains I've had before. I would love for them just to be able to go in and remove exactly what is causing me my issues but they just want to remove everything at once !(spoke about that in an earlier post). They just can't see a lot of problems until they cut you open- it's just guess work till then. Can this cystoscopy tell if pain is coming from your bladder? My pain is all the way up the left side from my pelvic area to right under my rib.

Since: Jun 12

Location hidden

#3245 Nov 12, 2012
Lovebug:
Lisa Sanders, MD does a column for the NYTimes. I remember reading a story in the magazine a while back that featured a different doc, but Sanders seems like the type of doc you need. Maybe you could write to her even for a recommendation for a doc?

Here's an example.

http://www.nytimes.com/interactive/2012/03/18...
Maria

Des Moines, IA

#3246 Nov 12, 2012
lovedusty wrote:
How are you doing Maria? Today I am now 6 weeks post colon resection,
6 1/2 weeks post op. I am feeling quite good. Have delved into greens (salads, broccoli, zuchini and brussel sprouts). Nasty as Brussel sprouts are I am eating them with a dressing of 2 T olive oil, 1 T honey, some pecans pieces and dried cranberries. My stomach did not become distressed and I actually feel better because constipation is no longer an issue. I am going to eat a few every day. Blood pressure seems better too. I guess it really truly takes 6 weeks to feel "normal",
Jean

Richmond Hill, GA

#3247 Nov 12, 2012
I'm six weeks out from surgery. I'm feeling great but, have one issue. I'm not able to have a bowel movement without the help of milk of magnesium. My doctor is ordering a Sitz test. Has anyone had constipation after a colon resection?

Since: Jul 12

Laguna Hills, CA

#3248 Nov 12, 2012
Maria wrote:
<quoted text>
6 1/2 weeks post op. I am feeling quite good. Have delved into greens (salads, broccoli, zuchini and brussel sprouts). Nasty as Brussel sprouts are I am eating them with a dressing of 2 T olive oil, 1 T honey, some pecans pieces and dried cranberries. My stomach did not become distressed and I actually feel better because constipation is no longer an issue. I am going to eat a few every day. Blood pressure seems better too. I guess it really truly takes 6 weeks to feel "normal",
So happy you feel good and that you are eating high fiber foods without any negative consequences. I am feeling better too, I can eat high fiber and my energy is increasing.

I do though, still have a distended stomach with mild aches. Are you experiencing the same?

Since: Jul 12

Laguna Hills, CA

#3249 Nov 12, 2012
Jean wrote:
I'm six weeks out from surgery. I'm feeling great but, have one issue. I'm not able to have a bowel movement without the help of milk of magnesium. My doctor is ordering a Sitz test. Has anyone had constipation after a colon resection?
Jean, If I do not take a psyllium drink, I get constipated. I am six and a half weeks out. If I do, I will have anywhere from 1-3 firm bowel movements a day. I also drinks lot of water.

Are you bloated/distended at all?
Luvbug100k NY

Staten Island, NY

#3250 Nov 12, 2012
Applecake,

I will definitely try to contact this Dr. Sanders. Thank you again for all of the helpful information.
bonnie

Uniontown, PA

#3251 Nov 12, 2012
ihad it done last jan,,,,and would do it again...feel so much better..but reading other stories ....i think my doctor was heaven sent..i never knew him before he came in my room at the hospital...he took such good care of me..making sure no mistakes....i get gas once in awhile...never lost weight ..and can eat everything but i don't eat seeds yet ...hopoe you have a good doctor who knows what he is doing.....god be with you....
nancy

Los Angeles, CA

#3252 Nov 12, 2012
Et al........there is not one pat answer that makes the aftermath of a resection as a remedy. It is very complicated.
KimmieG

Kennesaw, GA

#3253 Nov 12, 2012
Jean wrote:
I'm six weeks out from surgery. I'm feeling great but, have one issue. I'm not able to have a bowel movement without the help of milk of magnesium. My doctor is ordering a Sitz test. Has anyone had constipation after a colon resection?
Jean, I believe that is quite common. I am five months out now and doing very well. But, I did have issues with "going" for a few months. I was so obsessed with pooping after surgery, that I believe I was causing more problems than necessary! I tried not to use anything for a while, but found out that I needed to. So, FOR ME, I used Phillips MOM once or twice a week to begin, then just once a week, and before you know it, I was down to once a month and now I don't need anything! My surgeon told me not to worry if I didn't have a BM everyday. He said every other day was fine...but to take the Phillips MOM on day three if no BM. I found this very helpful and eased my mind a bit. Also, it gave my system a chance to take control and start working on it's own. Everyone will respond differently, so please listen to your body. You will know if something doesn't feel right. But, I would caution you not to become dependent on any stimulant such a Milk of Magnesia (MOM), give your system a chance to "kick in". Good Luck!

Since: Jan 12

Stuart, Florida

#3254 Nov 12, 2012
Hi all

Well I have been given good new after my PET Scan from my oncology Dr. he told me that my CANCER is no longer now I have to recover from the effects of the Chemo this will take some time but each day I am feeling better. God Bless all and Teddy Bear Hugs to all also

Larry!! &#9829;
KimmieG

Kennesaw, GA

#3255 Nov 12, 2012
TheRaz Stuart Fl wrote:
Hi all
Well I have been given good new after my PET Scan from my oncology Dr. he told me that my CANCER is no longer now I have to recover from the effects of the Chemo this will take some time but each day I am feeling better. God Bless all and Teddy Bear Hugs to all also
Larry!! &#9829;
AWESOME NEWS LARRY!!!! CONGRATULATIONS!! Prayers for your recovery to be smooth...and now on to a healthy, happy life. SOOOO happy for you.
Mary

Lubbock, TX

#3256 Nov 12, 2012
This makes me smile Larry, I needed good news today.
Georgia

United States

#3257 Nov 12, 2012
Hi Larry,
I am so happy for you, I haven't seen an update from you in forever. I'm glad I saw this one, again, You are on your way, no more chemo---Yay!!!!

Congratulations and lots of hugs

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