Advice for After Colon Resection?
Deb

Columbus, OH

#3177 Nov 1, 2012
nancy wrote:
I was in the hospital for five days and four nights for my resection. The third day was the turn around day for me. Walking the halls in the hospital. Taking only Tylenol. However the procrdure has forever chsnged my life. Ibs c and d. Spastic colon also. No doctor can help me. I was perfect before the resection to remove a benigh mass. I suffer daily and it has been 2 1/2 yesrs
Nancy,
I have the same thing and also suffer from chronic pain. I am seeing a pain specialist. This surgery is one that I don't think any of us were educated by our surgeons, who after the surgery leave us all. I have seen so many so called specialists and have learned that the only way to cope is to be our own patient advocate! Never stop researching for someone to help! They are out there.

Since: Jan 12

Stuart, Florida

#3178 Nov 2, 2012
Glenda

where you been hidding hope you are feeling some what better these days and that you are hanging in there

say a few words to let people know you are still reading the messages

God Bless and may he hold your hand to comfort you also

Teddy Bear Hugs

Larry
glenda

Fort Lauderdale, FL

#3179 Nov 2, 2012
hey guys larry deb glad to see you guys are still on i havent been on in awhile sorry to say that things havent got any better for me the pain is so bad that i have just about given up on what to do anymore..went to the obgyn just to see if that might be causing the pain but that came back a ok..the docs. i had and the surgeon have cut me off they wont even see me anymore.they just keep saying they dont see anything its so heart breaking i have been suffering like this so long i dont know what its like to not be in pain its just not fare..they dont tell you that after the surgery you could be left with all these problems..with me i had 3 back to back all in 6 months and it has left me broken mind body and soul, the days of diver were bad but at least i got a break from the pain if i wasnt having an attack now im in pain 24/7 trying to have a life like this is impossible. i filed for ssi because i cant work like this hell i cant even stand up for more than a few minutes at a time its so bad.dont know how long it will take for the ssi but i know it wont happen fast, the thing is when i do get it i can see real docs. not the ones that been thrown at me by the health department that tell me to go away i know it seems harsh but thats how they treat you i dont have the money for real docs. i haven work in 7 yrs because of being sick so long.i put my time in 25 yrs of working and doing the right thing and i cant get the help i need.sorry if i seem pissed but it seems to me were in the greatest country in the world and are people are suffering and they talk about all this health care were is it ?i have tried to get help and they deny me because im a home owner. they say you have to be 3 payments behind cant have a car i was even told i could sell my car its a 2002 give me a break.well see thats what im up against im getting so bitter because i cant see how these docs let people go on like this in pain day after day.sorry guys i sound like a crazy person but im really getting to the lowest point i dont know how much longer i can go on like this im trying so hard but the pain is so bad its getting to me big time.. thanks for letting me get this out..
Elizabeth

Melbourne, Australia

#3180 Nov 2, 2012
Glenda, with all that pain it sounds like some nerve threads have been damaged. And, of course, this won't show up on any scans. If you could get to a pain specialist it would be good, but as you say your funds do not allow that. However, it is not right that you are totally ignored. Try some free legal advice, perhaps?
TT McCall

Issaquah, WA

#3181 Nov 2, 2012
glenda wrote:
hey guys larry deb glad to see you guys are still on i havent been on in awhile sorry to say that things havent got any better for me the pain is so bad that i have just about given up on what to do anymore..went to the obgyn just to see if that might be causing the pain but that came back a ok..the docs. i had and the surgeon have cut me off they wont even see me anymore.they just keep saying they dont see anything its so heart breaking i have been suffering like this so long i dont know what its like to not be in pain its just not fare..they dont tell you that after the surgery you could be left with all these problems..with me i had 3 back to back all in 6 months and it has left me broken mind body and soul, the days of diver were bad but at least i got a break from the pain if i wasnt having an attack now im in pain 24/7 trying to have a life like this is impossible. i filed for ssi because i cant work like this hell i cant even stand up for more than a few minutes at a time its so bad.dont know how long it will take for the ssi but i know it wont happen fast, the thing is when i do get it i can see real docs. not the ones that been thrown at me by the health department that tell me to go away i know it seems harsh but thats how they treat you i dont have the money for real docs. i haven work in 7 yrs because of being sick so long.i put my time in 25 yrs of working and doing the right thing and i cant get the help i need.sorry if i seem pissed but it seems to me were in the greatest country in the world and are people are suffering and they talk about all this health care were is it ?i have tried to get help and they deny me because im a home owner. they say you have to be 3 payments behind cant have a car i was even told i could sell my car its a 2002 give me a break.well see thats what im up against im getting so bitter because i cant see how these docs let people go on like this in pain day after day.sorry guys i sound like a crazy person but im really getting to the lowest point i dont know how much longer i can go on like this im trying so hard but the pain is so bad its getting to me big time.. thanks for letting me get this out..
Just made along post Glenda, but it disappeared into the netherland's. I have been though the wringer with SSI. Both figuratively, and literally. Contact Allsup.com , or phone them 1-800-279-4357. They are very good, and will stick with you.. Thick, or thin. They are very pro-active, and informative. But please don't think it will be easy sledding. I've found that SSI Disability Claims Adjuster's, are not there to approve you, but to exclude you. Please use my name Torris T. McCall, I could use the $100.00 bucks for referring you. Would much rather be candid, than fake. They helped me, and a neighbor through the Circus. If you are on FB look me up !!

Since: Jun 12

Location hidden

#3182 Nov 3, 2012
Glenda,

So sorry to hear about your chronic pain. Absent of the help of doctors, you might try exploring mindfulness techniques if you haven't already. There may be groups or classes in your area that practice mindfulness for stress and pain reduction. Here's a link to a CD that might be helpful:

http://www.amazon.com/Mindfulness-Meditation-...

Since: Jun 12

Location hidden

#3183 Nov 3, 2012
This is also supposed to be a great book. I haven't read it but I am going to get it.

http://www.amazon.com/Full-Catastrophe-Living...

Since: Jun 12

Location hidden

#3184 Nov 3, 2012
Glenda,

One final link. I am kind of a diy junkie when it comes to healthcare. And CBT therapy as well as mindfulness practice have demonstrated a huge amount of effectiveness when it comes to managing pain. There are circuits that wire together and recycle the sensations, so part of what has to happen is a kind of re-programming. I'm probably not telling you anything you don't already know, but perhaps this book would be of help too. Peace. Again so sorry you're struggling with a very real condition that your doctors are failing to acknowledge.
http://www.amazon.com/Managing-Chronic-Pain-C...

Since: Jul 12

Laguna Hills, CA

#3185 Nov 3, 2012
Applecake, I have been looking for a cd/book on stress reducing/pain management and I cannot wait to look into this book/author.

Thank you!

Since: Jul 12

Laguna Hills, CA

#3186 Nov 3, 2012
I have a question that I hope someone can answer. I am now 5 weeks post colon resection and I still have abdominal tenderness and distention.

Is this common? And if so, how long does it last? I have read very little on this subject and I am hoping this is not a permanent issue.

I feel much better but the distention and tenderness is preventing me from wearing most clothing and going out.

Thank you in advance
Janae

Micro, NC

#3187 Nov 3, 2012
Lovedusty,

I am 7 1/2 weeks post op and I still have tenderness and swelling and can't wear some of my clothes. It's better some tho. I noticed last night I was actually sleeping on my side..first time!!
I was wondering how long it took for the swelling to go away too?

Since: Jul 12

Laguna Hills, CA

#3188 Nov 3, 2012
Janae wrote:
Lovedusty,
I am 7 1/2 weeks post op and I still have tenderness and swelling and can't wear some of my clothes. It's better some tho. I noticed last night I was actually sleeping on my side..first time!!
I was wondering how long it took for the swelling to go away too?
Hi Janae, Thank you for responding. I do not feel so worried now. Hopefully someone else will respond so that we can get an idea on how the selling and tenderness will l last. Congrats on sleeping on your side! I cannot wait to sleep on my side and stomach. I am just able to sleep on my back.

Since: Jul 12

Laguna Hills, CA

#3189 Nov 3, 2012
applecake wrote:
This is also supposed to be a great book. I haven't read it but I am going to get it.
http://www.amazon.com/Full-Catastrophe-Living...
Applecake, I purchased the audio book on itunes this afternoon and have listened to it for 1 hour. I like what I hear. I believe it will have a positive effect on my life.

Thanks for recommending it!

Since: Jun 12

Location hidden

#3190 Nov 3, 2012
Hi Lovedusty:

I'm glad you got that. I'm going to order the hard copy from Amazon and the meditation CD. Trying to think how long I was swollen after surgery and I guess it's a bit unrelated because I was still infected for a while. I was such a mess, I don't really remember. It was about 5 weeks before I started feeling human again. I was tender for a while...Unfortunately I can't remember how long specifically. xoxoxo

Since: Jul 12

Laguna Hills, CA

#3191 Nov 4, 2012
applecake wrote:
Hi Lovedusty:
I'm glad you got that. I'm going to order the hard copy from Amazon and the meditation CD. Trying to think how long I was swollen after surgery and I guess it's a bit unrelated because I was still infected for a while. I was such a mess, I don't really remember. It was about 5 weeks before I started feeling human again. I was tender for a while...Unfortunately I can't remember how long specifically. xoxoxo
Applecake,

Thank you for trying to remember. I can imagine how difficult ti was for you during that time. You must be so relieved that those days are gone.

Lovedusty
Elizabeth

Melbourne, Australia

#3192 Nov 4, 2012
I found my tummy was distended for a long time, and I still cannot wear anything tight around my waist. I have decided not to worry about it, as I no longer get the pain of div. I have found that too many carbohydrates in one meal is inclined to make my tummy swell, and also a cup of hot tea after a carb. meal is a bit heavy feeling. Maybe have carbs for breakfast and stick to lighter stuff after that. I also have to try and keep my weight down, as carrying that extra doesn't help. I have also discovered that walking or exercising before a meal and not after is also helpful. It's 2 years since the surgery.

Since: Jul 12

Laguna Hills, CA

#3193 Nov 4, 2012
Elizabeth wrote:
I found my tummy was distended for a long time, and I still cannot wear anything tight around my waist. I have decided not to worry about it, as I no longer get the pain of div. I have found that too many carbohydrates in one meal is inclined to make my tummy swell, and also a cup of hot tea after a carb. meal is a bit heavy feeling. Maybe have carbs for breakfast and stick to lighter stuff after that. I also have to try and keep my weight down, as carrying that extra doesn't help. I have also discovered that walking or exercising before a meal and not after is also helpful. It's 2 years since the surgery.
Thank you for your advice Elizabeth. I mainly wear pants and not dresses and it now looks like it might have to be the other way around.
Maria

Des Moines, IA

#3194 Nov 4, 2012
lovedusty wrote:
I have a question that I hope someone can answer. I am now 5 weeks post colon resection and I still have abdominal tenderness and distention.
Is this common? And if so, how long does it last? I have read very little on this subject and I am hoping this is not a permanent issue.
I feel much better but the distention and tenderness is preventing me from wearing most clothing and going out.
Thank you in advance
Lovedusty
I am 5 1/2 weeks out too. Did you have laproscopic/robot surgery?
My belly is swolllen too and my incision is sore. I think this surgery takes way longer to recover from then anyone expects. My energy level is zilch. I, too, can't wear jeans. Try some sweat pants or yoga pants. Keep in touch. I'd like to hear about your progress. Maria
Maria

Des Moines, IA

#3195 Nov 4, 2012
5 1/2 weeks out colon resection. I recenly started having sharp pain across my belly before going. I also have noticed slight bleeding. My surgeon is hrs away, i guess i should see my PC physician. It's embarassing for sure.
Anyone ever have this happen? M

Since: Jul 12

Laguna Hills, CA

#3196 Nov 4, 2012
Hi Maria,

My surgery was on Wednesday, September 27th. I had laparoscopic surgery and in addition I had both my ovaries and fallopian tubes removed and a abdominal hernia repair. Wow, can't believe I had it all done at one time but I am happy I did, just for the fact that this was one my first surgery and hopefully will be my last. Pain was extreme. I have had two children delivered vaginally and that was a walk in the park compared to this surgery.

I feel awful for writing this but it is comforting knowing that there is someone else that feels the same. My energy is zilch too. I agree with you about this surgery taking way longer than doctors expect. One fellow from England just wrote that the doctors there expect recovery in 12-14 weeks. That sounds much more reasonable.

I have been wearing long nightgowns and caftans and have only left the house twice, once to have my staples removed and the second time for a quick trip to the ocean. I will try yoga pants or sweats. But to be honest I just do not want anything touching my abdomen.

I am sorry to hear that you have slight bleeding and sharp pains before going to the bathroom. The pains could be caused by gas. Are you walking enough? I too had sharp pains before I had to eliminate but found that by walking I was able to stop the pains. I walk anywhere now from 1 to one and a half hours daily. I split it up, 30-45 minutes in the morning and then 30-45 minutes in the late afternoon/evening.

You definitely should see your primary physician for the bleeding or at least call your surgeon. My surgeon is 1 1/2 hours away . It is not easy to have them so far. But he was my first choice and I interviewed many.

How is your diet? Are you having any problems?
I too, would love to hear your progress.

Lovedusty

Tell me when this thread is updated:

Subscribe Now Add to my Tracker

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Diverticulitis Discussions

Title Updated Last By Comments
Diverticulitus: Red Clay (taking clay) helps!!! (Dec '11) 3 hr BetsyJean 5
Chia Seeds and Diverticulitis (May '12) May 27 donz 33
Sigmoid Colectomy for Diverticular Disease May 27 labfish 40
Regrets on having Diverticulitis surgery/colon ... (May '12) May 26 Cinzia 2,363
Has anyone tried the Pain Free Foods Diet? (Dec '13) May 26 Veronica francis 43
Food and Recipes and How We're Doing (Jan '13) May 26 BetsyJean 1,178
Young with Diverticulitis May 25 Mario 11
More from around the web