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Peter

Mansfield, MA

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#81
Apr 14, 2009
 
Sunni wrote:
Thanks for answering my post. I can't get in to see my gp till Friday anyway. So I'll keep on hangin in there. Hopefully I will be recovered to be at my daughter's wedding in 3 1/2 weeks. That is why I am so worried.
Hi Sunni,

I'd have to echo what sjcy said, I noticed the same indications when I had an attack, however, when it went away I would get back to normal. On a broader note, I've talked to many surgeons on the causes of this disease and not one could say with any level of confidence what causes it. The common factors of it are low fiber diet, constipation and straining when going to the bathroom, this puts tremendous pressure in the colon and might lead to the formation of diverticuli. This is anecdotal, but people in the developing world who have a very high fiber diet and eat no processed foods, have a virtual zero occurance of diverticulitis. Food for thought.

Since: Mar 09

Tulsa, OK

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#82
Apr 14, 2009
 
I have a theory that it may be caused by genetic weakness in the wall of the colon. Just a theory, but as you say, no one has ever studied the causes and proved any of them for certain. The fact that it's more common in certain populations could just as easily be genetics as diet, IMO. And people in developing nations might not have it diagnosed as often since they don't go to the doctor nearly as much. My "day job" is evaluating medical research, I may make a project of seeing what kind of studies have actually been published, that would be interesting!
Peter

Mansfield, MA

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#83
Apr 14, 2009
 
sjcy wrote:
I have a theory that it may be caused by genetic weakness in the wall of the colon. Just a theory, but as you say, no one has ever studied the causes and proved any of them for certain. The fact that it's more common in certain populations could just as easily be genetics as diet, IMO. And people in developing nations might not have it diagnosed as often since they don't go to the doctor nearly as much. My "day job" is evaluating medical research, I may make a project of seeing what kind of studies have actually been published, that would be interesting!
There was a study completed recently ( http://www.medicalnewstoday.com/articles/1192... ) that showed no corellation between eating seeds, corn, nuts, etc (all "trigger" foods) and attacks of diverticulitis. Go figure. I guess the docs just use common sense when telling you to not eat those foods. As an aside, my day job is a research and development engineer designing medical devices and working closely with surgeons, so I question these guys pretty about this disease. I've been able to learn a huge amount from our discussions.
deborah

Canada

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#84
Apr 14, 2009
 
sjcy wrote:
I have a theory that it may be caused by genetic weakness in the wall of the colon. Just a theory, but as you say, no one has ever studied the causes and proved any of them for certain. The fact that it's more common in certain populations could just as easily be genetics as diet, IMO. And people in developing nations might not have it diagnosed as often since they don't go to the doctor nearly as much. My "day job" is evaluating medical research, I may make a project of seeing what kind of studies have actually been published, that would be interesting!
There is something about us that is different or the same however we want to look at it....my doctor says just about everybody has diverticulous however it is only a small percentage actually go on to develop diverticuli...or the infection etc...i am curious about that and what is likely the same about us....i have had my gallbladder removed, i incubate stapph so have to watch that...i have had IBS as long as i can remember which causes diahrea and constipation....i may also be allergic to wheat and dairy.....i do not have the best living habits....i probably, until now anyway, do not drink enough water or eat enough fibre.....i have always found i had to be careful with everything i ate and drank because i could not control my bowels because of the IBS so i naturally developed habits based on fear...eg...no bathroom in sight...lolo...

Maybe we should consider making a little project of ourselves....starting with some background...there may be some similiarities...i have mentioned some of my background...who knows ..there may be others who have experienced the same....not being a researcher i would not know where to start or what to ask but some of you are very talented and could probably come up with something ...just for the heck of it...who knows...something may twig here...who better to try and figure this out then us who live with this....just a thought.......
Susan M

Long Branch, NJ

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#85
Apr 14, 2009
 
According to the Canadian Society for Intestinal Research( www.badgut.com ) the studies that showed diverticulosis was rare in underdeveloped countries were done at a time when their life expectancy was much less than ours so it may just mean that people in those areas didnt live long enough to get the condition. Their website has a really good article on diverticulitis. I paid dues and joined this group as their bimonthly magazines are excellent sources of info for me. Deborah, you can have a breath test done for lactose intolerance and a blood test for the gluten also. I have had both done.
Peter

Coventry, CT

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#86
Apr 14, 2009
 
deborah wrote:
<quoted text>
There is something about us that is different or the same however we want to look at it....my doctor says just about everybody has diverticulous however it is only a small percentage actually go on to develop diverticuli...or the infection etc...i am curious about that and what is likely the same about us....i have had my gallbladder removed, i incubate stapph so have to watch that...i have had IBS as long as i can remember which causes diahrea and constipation....i may also be allergic to wheat and dairy.....i do not have the best living habits....i probably, until now anyway, do not drink enough water or eat enough fibre.....i have always found i had to be careful with everything i ate and drank because i could not control my bowels because of the IBS so i naturally developed habits based on fear...eg...no bathroom in sight...lolo...
Maybe we should consider making a little project of ourselves....starting with some background...there may be some similiarities...i have mentioned some of my background...who knows ..there may be others who have experienced the same....not being a researcher i would not know where to start or what to ask but some of you are very talented and could probably come up with something ...just for the heck of it...who knows...something may twig here...who better to try and figure this out then us who live with this....just a thought.......
I'm intrigued by your idea, how could we do this? Maybe one way would be for everybody to do an "online" bio of themselves, when they were diagnosed with the disease, etc. Talk about our diets (be honest), exercise habits and occupations. Stress levels might play into this as well.

What do you think?
deborah

Canada

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#87
Apr 14, 2009
 
Peter wrote:
<quoted text>
I'm intrigued by your idea, how could we do this? Maybe one way would be for everybody to do an "online" bio of themselves, when they were diagnosed with the disease, etc. Talk about our diets (be honest), exercise habits and occupations. Stress levels might play into this as well.
What do you think?
hey why not...maybe there will be something common to all of us......by also reading about each other we may trigger something we haven't thought about.....i have really been giving this some thought....i totally forgot that i had a severe case of salmonella poisoning when i was much younger....i am sure food poisoning could certainly change our gastro system in some way that is not good.....it would sure be nice to figure out "why us"......maybe we will make a medical breakthrough and can save thousands from our misery.....lolo......a bit dramatic but you never know what we may discover by just focusing and chatting..........
deborah

Canada

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#88
Apr 14, 2009
 
Susan M wrote:
According to the Canadian Society for Intestinal Research( www.badgut.com ) the studies that showed diverticulosis was rare in underdeveloped countries were done at a time when their life expectancy was much less than ours so it may just mean that people in those areas didnt live long enough to get the condition. Their website has a really good article on diverticulitis. I paid dues and joined this group as their bimonthly magazines are excellent sources of info for me. Deborah, you can have a breath test done for lactose intolerance and a blood test for the gluten also. I have had both done.
thanks Susan...i didn't know about the breath test...thats easy...lol...i am planning to see my GP this week to talk about the allergy tests...i will mention this to him.....i was seeing a naturopath and i have to say their method for testing for allergies kind of took me back....you hold a metal bar in one hand and they give you glass vials of different substances and however high the meter registers the more you are allergic to whatever it is...i felt dubious about the whole thing but they assured me they were reading my energy reaction to the vials...turned out i was allergic to every single thing i eat ....the only food etc i was not allergic to were the things i didn't like so didnt' eat anyway......too bizarre for me....so...i am off to a real allergist and will be happy to get needle poked.....or hopefully breath checked....i like that.....

has anyone else had any experiences with naturopaths in trying to heal.....these colon cleansings look interesting...especially all the kelp like things that seem to form on our colons...is this for real i wonder...has anyone had this done????

Since: Mar 09

Tulsa, OK

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#89
Apr 15, 2009
 
I think "colon cleansings" are potentially dangerous for people with a history of diverticulitis. Forcing liquids into a colon that's already inflamed and possibly narrowed could spread or increase infection, or even cause a perforation.

Your body is pretty good at cleaning itself, and I guarantee that I saw the pictures from my colonoscopy and after just a routine bowel prep there was *nothing* in there that shouldn't have been! Except the diverticulitis-affected area, of course.

http://www.sciencebasedmedicine.org/

http://whatstheharm.net/coloncleansing.html
Joy

United States

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#90
Apr 15, 2009
 

Judged:

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Hi Deborah,
I am also very sceptical about "cleansing"... after all the colon needs the good bacteria to be able to do it's job! Actually I did try a system myself for about a noth which was for exactly that...I am not convinced that it didn't make things worse and it definitely didn't help me! Be very careful about what you read that is not strongly based on good science! Joy
Peter

Coventry, CT

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#91
Apr 15, 2009
 
sjcy wrote:
I think "colon cleansings" are potentially dangerous for people with a history of diverticulitis. Forcing liquids into a colon that's already inflamed and possibly narrowed could spread or increase infection, or even cause a perforation.
Your body is pretty good at cleaning itself, and I guarantee that I saw the pictures from my colonoscopy and after just a routine bowel prep there was *nothing* in there that shouldn't have been! Except the diverticulitis-affected area, of course.
http://www.sciencebasedmedicine.org/
http://whatstheharm.net/coloncleansing.html
Exactly! These are hucksters I think. Your entire colon mucosa is replaced by the body approx.~ every 6 weeks. When I saw my video of my colonoscopy, it was perfectly pink and clean!
deborah

Canada

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#92
Apr 15, 2009
 
thank you everyone....i agree.....it can be so easy to get sucked into it though when you are desperate...i read some of the horror stories form the whatstheharm site from peter...everyone should read that...unreal....had to see my doc today...he is concerned because my left side is just not fully healing, and i also have pain in my sciatic area so he is sending me to see a surgeon...to at least get going on the colonoscopy to see what is going on there.....so..just have to wait as usual.....in Canada it can take a long time to see specialists...if it gets too crazy it is almost worth while to pay the money and go private....what is your health worth when you are trying to navigate through a overtaxed system......i just don't want to become an emergency case so am taking really good care of myself...at least if i can limit the rounds with the anti biotics.....they make me nervous that one day they won't work.......this is a great forum and it is wonderful to chat with you all....i learn so much .....there doesn't seem to be anywhere to turn with this....what better than to chat with those who are the experts...all of us who live with this everyday......thanks again for responding to my questions....
Michelle

Bellevue, WA

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#93
Apr 23, 2009
 
I have had what I call flare ups. I have been out of work for three days now and hope to go back tomorrow. I am 42, and depressed and angry. I get upper right pain that presses down and then I feel like I need to throw up to purge the pressure. I don't have a gallbladder. The doctor is now looking at ulcerative colitis. I flip from diahhrea to constipation. Certain foods just go right through me. Even good foods! No one in my family really understands what I am going through. That is something that hurts the most. To be violently nauseas, throwing up etc and have everyone ignore me! My last flare up was April 6th and now recently April 21st. I take dicyclomine and it says take when you eat a meal or three times a day. The drug makes me sleepy so I only take at night.

Since: Mar 09

Tulsa, OK

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#94
Apr 23, 2009
 
I think our loved ones sometimes just can't handle our being sick, Michelle, and that's why they seem to turn away like they do. Do you have anyone among your family and/or friends that you *can* talk to about how you're feeling, physically and emotionally? It sounds like you're really going through a lot right now. For what it's worth, I imagine most of us on here have dealt with similar difficulties.
Susan M

Long Branch, NJ

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#95
Apr 24, 2009
 
Michelle, I have ulcerative colitis and constipation is not part of it. UC is bloody diarrhea with lots of mucous. The raw inflamed portion of the colon can can easily be seen with a colonoscopy. Alternating between diarrhea and constipation with pain IS a symptom of irritable bowel however. Which can be pretty unpleasant. That is what your symptoms make me think of.
Michelle

Bellevue, WA

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#96
Apr 24, 2009
 
I can't talk to anyone right now for this. I have some friends who maybe can give me support but then they just don't know what I am going through. My step mom gave me the lecture about do you want to eat better or do you want to be alone and an invilid (sp) talk this morning which really stressed me out. I didn't go ot work today. Waking up and being nauseas is the pits. I feel better in the afternoon, still nauseas but able to hang in there. Hoping to just take it easy and be back on Monday. I am all type A and gung hu when I am at work. This laying down business is not good.
Thank you for the comments.

Since: Mar 09

Tulsa, OK

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#97
Apr 24, 2009
 
That sounds really frustrating, Michelle. I'm sure your step mom was trying to help, like all moms do. But just eating better does not necessarily fix symptoms like what you have. It sounds like you're doing the best you can, maybe getting back to work will help you feel less stressed. Keep working with your doctor and I hope things get better for you!
deborah

Canada

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#98
Apr 24, 2009
 
Good luck Michelle....stay on your doctor to get to the source of your problem...i have suffered from irritable bowel syndrom for years...i have serious attacks of diverticulous now and am booked to see a surgeon early May..i think the constant constipation from the IBS plus not eating enough fibre or drinking enough water has caused my problems today...one thing you may be interested in that my GP mentioned to me....you have had your gall bladder out...so did i many years ago....he has said that some people can develop a condition called bile salt intolerance or bile salt colitius when they don't have a gallbladder.....the symptoms are the same as IBS....he suggested to me to go on a low fat diet to keep fat out of my bowel .....i have taken his advice and i am doing much better...i have not had diarrhea for over a week and this is unheard of for me...i can't say its just the low fat though as because of the diverticulous attack i have taken other things out of my diet....bile salt intolerance may be something you would want to research and discuss with your doctor...its worth a try..hope all gets better for you.......
Michelle

Bellevue, WA

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#99
Apr 25, 2009
 
Thank you for your kindness. I am still nauseas so going to take meclizine. I am afraid to eat but did eat some yogurt and toast but it went through me. I am looking into the raw diet with some exceptions while having diverticula.

Deborah, I am sorry you are going through this mess.I am guilty of a high fat, junky diet and this has finally caught up for me. The wake up call of all wake up calls! I hope you will be okay. I am sorry that you have to have surgery.

I have supplements that contain something that is suppose to help the bile etc called Bowl Build. I am also taking Slippery Elm but might have mentioned that.
deborah

Canada

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#100
Apr 25, 2009
 
Hi Michelle.......i think a raw diet would be hard on you...not only for the div but also for the bowel irritation..for me i would build gas eating raw vegetables......i found with the div attack the first couple of days or more was a liquid diet...then i introduced porridge..rice, puddings...stayed away from dairy, caffiene, chocolate, raw vegetables, spicy and fatty foods.....this seemed to help with the healing process.....there is another crazy diet out there that even the docs are raving about as the fix for those of us with bowel disease...its called the Specific Carbohydrate diet by Elizabeth Goshall....something like that....google SCD and it will give you the info....its quite extreme and not for me but apparently it works and if you cannot eat anything this may seem like an ok eating plan for you.....isn't it terrible....being afraid to eat....being afraid of what we eat when we eat.......i am not looking forward to surgery if indeed i have to go that way but i am also not looking forward to the next attack even more......hope you are feeling better really soon.....keep us posted as to what your outcome is and what the doctors figure is going on....take care

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