Recovery from Diverticulitis

Recovery from Diverticulitis

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Sharn

Hutchinson, MN

#1 Sep 30, 2007
I am interested in hearing others stories of recovery. How long did it take to feel 100% again and were there set backs along the way. My husband is recovering from his first and I hope only bout with diverticulitis. He was hospitalized for a couple days and then sent home with cipro and flagyl. The flagyl was a problem for him and he seems to two weeks after being done with it, shaking the side effects. He still tires easily. He worked all week and then worked at home all day yeserday, and today is on the couch. Not really sick, just worn out. Are these things others have experienced? He has just never been one to lay around so it drives me crazy! Anyhow, how long does it take to completely shake this??
Jeannie

AOL

#2 Sep 30, 2007
Sharn,

While everyone is different in their recovery time. I can only speak from my own experience. Some of my bouts I have been back up, or even never even really slowed down as much as I was supposed to. But, being a Mom to three kids I don't have a lot of luxury to slow down too much. However, I have had bouts that have slowed me down for quite some time. This last one for me was a doozy and I have already had surgery to supposedly clean things out. This is two years later and this last bout landed me in the hospital for 5 days. That was two weeks ago, and I am still not recovered. The surgeon who did my surgery said he needed to wait a minimum of 6 weeks from the last bout I had two years ago prior to surgery, in reality it was more like 8 weeks to make sure I was all healed.

I know it has been frustrating to my husband at times as well because we are both young and I certainly didn't expect this to happen to me, nor happen so young. So...give hime some time to heal and try and be as patient as can be. Any change in someone is difficult, but this is for a health reason so try and hang in there and be as accomadating to his dietary needs as can be. This will help him get back on his feet more quickly. Also allowing him to rest as need be will also help his body to fight the infection. It's a difficult thing because from the outside no one can see that you are sick.....but in reality, one with Diverticulitis is pretty darn sick.

Sincerely,
Jeannie
mary

Senatobia, MS

#3 Sep 30, 2007
Sharn wrote:
I am interested in hearing others stories of recovery. How long did it take to feel 100% again and were there set backs along the way. My husband is recovering from his first and I hope only bout with diverticulitis. He was hospitalized for a couple days and then sent home with cipro and flagyl. The flagyl was a problem for him and he seems to two weeks after being done with it, shaking the side effects. He still tires easily. He worked all week and then worked at home all day yeserday, and today is on the couch. Not really sick, just worn out. Are these things others have experienced? He has just never been one to lay around so it drives me crazy! Anyhow, how long does it take to completely shake this??
How old is your husband?
Is this his first attack and how did they diagnose him? If second attack what did they treat him with the first time?
Does he exercise alot?
Sharon

Hutchinson, MN

#4 Sep 30, 2007
My husband is 47. Yes this is his first attack. He was diagnosed first by xray and then confirmed a few days later by a ct scan. He had probably had the infection for at least 2 weeks before finally seeing a doctor. He doesn't exercise as regularly as he could.
mary

Senatobia, MS

#5 Oct 1, 2007
I was diagnosed at 38-very mild attack-last year at 44 had acute attack-treated sucessfully OP with meds-took about 2 1/2 weeks to recover-had a third acute attack 3 weeks ago-I am still not fully recovered-still down about 7lbs and don't feel much like eating-have him continue to eat small meals slowly adding fiber-he needs to start taking a fiber supplement(citcricil or metamucil) but have him slowly add it-he has to heal-it usually takes 8 weeks to fully recover-dont start back with caffine or alcohol until he is recovered-hopefully this will be only attack-this is my second in a year and doc says next one he is referring me to surgeon-if I have another I will get consult myself-I would also get him a good gastro doc-he might need to be looked at after he heals -best of luck and give him your support-this is serious crap
Jeannie

AOL

#6 Oct 1, 2007
Mary,

I am sorry to hear about your latest attack. I feel so much better after finding this board. While I have done a lot of reading and educating myself on Diverticulitis, it is good to hear the stories and troubles of actual people going through their own trials with the disease. Like you, still I don't feel like eating much and am down 12 pounds (I could stand to loose a few though so I am not too worried about the weight loss.) This latest bout has been different than any other one I have had, which is why I guess I searched out some type of forum. I don't ever remember losing so much weight a few years back prior to surgery when I was having frequent accute attacks, nor do I remember it taking quite so long to heal. Just last night I had to take anti nausea meds twice just to fight that yucky feeling. I have been eating very little for the last 4 weeks now. I only feel like drinking, so lots of water and sorta flat (regular)cola seems to settle my stomach. While I know caffeine isn't good, the cola seems to be one of the few things my stomach can tolerate. Normally I don't even drink regular soda, but diet pop just turns my stomach right now. I know also that through the education I have received along the way has said a low fiber diet during and following an attack. However, my problem seems to be more related to constipation than diet. EVERY time I have had an attack I have been severly backed up, so it seems only right to keep on with the fiber as the Doc says constipation will hurt the resection to my colon more than anything. Putting that extra strain on it isn't good. So, I have been making sure to get my fiber through primarly liquid form. Soups mainly.

Has anyone here used Miralax? Any pros or cons to this? Other than the obvious no no to laxatives? Doctor said he is going to prescribe this soon if my body doesn't start "behaving" the way it should
:-) I want to avoid laxatives at all costs, knowing the long term damage it does to ones internal workings. But I feel like I am at the end of the road in that I have tried all dietary changes, even cutting it down to liquids only to give my colon somewhat of a break in having to work too much and still there is extreme constipation. I do exercise, drink my quota for water (and other fluids, tea etc.) each day and take in at LEAST 30 grams of fiber daily. Still, no regular bowel functions.
Just trying to glean whatever knowledge and suggestions from others who have been or are going through this same thing.
Thanks for any feedback.

Jeannie
Jason

Endicott, NY

#7 Oct 1, 2007
Hi 34 year old male here
hard to believe I just found this site...
I sure could have used some advise like I'm reading now.
2 years ago october 20th I went to the ER with serious pain. Turns out I had diverticulitus. Problem was they had ruptured the day before due to my lack of knowing and the fact that I took a full dose of laxative.
I had emergency surgery woke up with "A BAG"
at least I was alive I said to myself.
11 weeks and an absess later they did a reversal surgery.
After a long healing process I feel good If I take fiber daily. Problem now I am afraid is blood in my stool. hmmm Doc bills are high enough
Anyone have any advise? Is it normal 2 years later to see blood?
Biker

Polk, OH

#8 Oct 2, 2007
Jeannie wrote:
Mary,
I am sorry to hear about your latest attack. I feel so much better after finding this board. While I have done a lot of reading and educating myself on Diverticulitis, it is good to hear the stories and troubles of actual people going through their own trials with the disease. Like you, still I don't feel like eating much and am down 12 pounds (I could stand to loose a few though so I am not too worried about the weight loss.) This latest bout has been different than any other one I have had, which is why I guess I searched out some type of forum. I don't ever remember losing so much weight a few years back prior to surgery when I was having frequent accute attacks, nor do I remember it taking quite so long to heal. Just last night I had to take anti nausea meds twice just to fight that yucky feeling. I have been eating very little for the last 4 weeks now. I only feel like drinking, so lots of water and sorta flat (regular)cola seems to settle my stomach. While I know caffeine isn't good, the cola seems to be one of the few things my stomach can tolerate. Normally I don't even drink regular soda, but diet pop just turns my stomach right now. I know also that through the education I have received along the way has said a low fiber diet during and following an attack. However, my problem seems to be more related to constipation than diet. EVERY time I have had an attack I have been severly backed up, so it seems only right to keep on with the fiber as the Doc says constipation will hurt the resection to my colon more than anything. Putting that extra strain on it isn't good. So, I have been making sure to get my fiber through primarly liquid form. Soups mainly.
Has anyone here used Miralax? Any pros or cons to this? Other than the obvious no no to laxatives? Doctor said he is going to prescribe this soon if my body doesn't start "behaving" the way it should
:-) I want to avoid laxatives at all costs, knowing the long term damage it does to ones internal workings. But I feel like I am at the end of the road in that I have tried all dietary changes, even cutting it down to liquids only to give my colon somewhat of a break in having to work too much and still there is extreme constipation. I do exercise, drink my quota for water (and other fluids, tea etc.) each day and take in at LEAST 30 grams of fiber daily. Still, no regular bowel functions.
Just trying to glean whatever knowledge and suggestions from others who have been or are going through this same thing.
Thanks for any feedback.
Jeannie
Jeannie, I noticed you mentioned tea. Tea is a diuretic. Tea may not be the sole problem, but my guess is it doesn't help. Regarding the "C" word, constipation is bad stuff. I became severly constipated post OP because of taking Amodium to stop 15 bms a day through the second week. It stopped the BMs but the consequences were the worst. Keep them You-know-whats movin'.
Chris

Fort Huachuca, AZ

#9 Oct 2, 2007
I have lurked here for a while…I figured it was about time to tell my story. Starting in my late 20s, I had a few mild attacks (I am now 33). However, the attacks were few and far apart. The attacks were not properly diagnosed by my Dr. at the time. I always felt really bad for a few days but it would usually clear up on its own. This July, however, it all changed. I was at work feeling fine one minute and the next, I was in severe abdominal pain. I went to my Dr. and he thought I was having an appendicitis. I went to the ER and after the catscan, they figured out that I had diverticulits and my colon had ruptured. I had free fluid in my abdominal cavity so I went into surgery immediately.
I had open surgery and they took out about 8in of my colon. Luckily, I did not need the dreaded bag. I was in the hospital for about 1 week after surgery and recovered at home for 2 weeks after that. I then started back to work part time for another 2 weeks.. For a while, I had no energy, the area around the incision was very sore, it hurt to walk, sit up, or do just about anything. I lost 25 pounds throughout the ordeal. I feel much better now and am almost back to 100%. Sometimes I am still a little sore around the incision but for the most part, I feel fine.
The Drs were surprised to see someone my age with divert. However, I found out after my surgery that my Uncle had the exact same thing happen when he was 31 and my great grandmother died following a divert attack many years ago. My uncle’s story made me feel a little better. It has been 30 years since his surgery and he has never had any problems again. Which is good considering that he does not take care of himself very well.
Now, I take fiber supplements daily, try to exercise 5 days a week and am trying to be healthier. It took a while for me to recover but I did get a little better every day.
Jeannie

AOL

#10 Oct 2, 2007
Biker,

Yeah....it's the constipation that gets me everytime! I have come to realize that my entire life I have had chronic constipation issues, but no one ever caught on, and of course since it isn't the topic at the dinner table, I never knew until I started having problems with Diverticulitis. While some foods might contribute to my issues, I KNOW this last bout it wasn't food related, in the sense I ate a "no no food." It was due to constipation. And I do believe all of my other attacks have been due to this reason as well. My Dr. told me I am a young woman with a sluggishly old woman's colon :-) I believe I have over the course of my life unknowingly overworked my poor colon and now it is really struggling and I am trying desperately to find foods, medications ANYTHING to keep me from having to take drastic measures in order to rid waste from my body in an unnatural way.
Thanks for your input about the tea. I hadn't thought of the diuretic aspect of it. I will do some more reading on tea's. Wondering if they are ALL diuretcs....hmmmm.
Thanks again,
Jeannie
birch33

Toronto, Canada

#11 Oct 2, 2007
I had this problem too. It is more serious than people think.

My cure was simple and effective:

http://www.drnatura.com

It works wonders, it is simple, and has no dietary restrictions.

When it was very, very bad, I used the cure for one month. About every three months, I perform a cleansing of my colon for cca one week.

This method removes the root cause of the disease, not treating the symptoms. No surgery is involved.

I have no commercial or any ties with this company.

Go to the web site of

Natural Healing Today

and see what they say about several remedies.

Regardless of political sympathies, look at Fidel Castro. He has diverculitis. The doctors have operated him a few times but he is still sick. A
whole nation is waiting.
Biker

Polk, OH

#12 Oct 2, 2007
Chris wrote:
I have lurked here for a while…I figured it was about time to tell my story. Starting in my late 20s, I had a few mild attacks (I am now 33). However, the attacks were few and far apart. The attacks were not properly diagnosed by my Dr. at the time. I always felt really bad for a few days but it would usually clear up on its own. This July, however, it all changed. I was at work feeling fine one minute and the next, I was in severe abdominal pain. I went to my Dr. and he thought I was having an appendicitis. I went to the ER and after the catscan, they figured out that I had diverticulits and my colon had ruptured. I had free fluid in my abdominal cavity so I went into surgery immediately.
I had open surgery and they took out about 8in of my colon. Luckily, I did not need the dreaded bag. I was in the hospital for about 1 week after surgery and recovered at home for 2 weeks after that. I then started back to work part time for another 2 weeks.. For a while, I had no energy, the area around the incision was very sore, it hurt to walk, sit up, or do just about anything. I lost 25 pounds throughout the ordeal. I feel much better now and am almost back to 100%. Sometimes I am still a little sore around the incision but for the most part, I feel fine.
The Drs were surprised to see someone my age with divert. However, I found out after my surgery that my Uncle had the exact same thing happen when he was 31 and my great grandmother died following a divert attack many years ago. My uncle’s story made me feel a little better. It has been 30 years since his surgery and he has never had any problems again. Which is good considering that he does not take care of himself very well.
Now, I take fiber supplements daily, try to exercise 5 days a week and am trying to be healthier. It took a while for me to recover but I did get a little better every day.
Chris, It's great to hear that you are healing well. Many of us beleived that the onset of this disease occurs only in older people, but you and many more are convincing us otherwise. I had laporoscopic surgery in February. My GP says that I could have had symptoms for 15 years prior to my first attack. I believe that diver was affecting me as well when I was in my thirties or earlier. I'm 60 now. Your uncle's story is interesting. I have friends that have had one attack and no further problems. There are a few people that are having post-operative problems that you can find on this site, too. There is just too little known about diverticulitis to determine why so are so severly affected and others are not. Anyway, glad to hear you are back on your feet.
Elliot

Houston, TX

#13 Oct 8, 2007
Glad I found this site - although a little late. I can relate to your story about being young with this condition. I am 29, and have been in the hospital for 10 days waiting for surgery following a series of acute attacks. I am scheduled for Wednesday Oct 10th. My father also had a resection when he was 30.

Do you have any reccomendations for recovery? How long until you felt mobile? And back to work? Any information helps. Thanks!
Leo

Brantford, Canada

#14 Oct 9, 2007
Hi Elliot,

If you are cut wide open (sorry about that) expect at least a 12 -15 week recovery period. You can go back to work after a few weeks but it takes the full 15 weeks to get back into it. If you are scoped it will be faster. Take your time with the recovery or you will have complications. Slow and steady.
Biker

Polk, OH

#15 Oct 10, 2007
Elliot wrote:
Glad I found this site - although a little late. I can relate to your story about being young with this condition. I am 29, and have been in the hospital for 10 days waiting for surgery following a series of acute attacks. I am scheduled for Wednesday Oct 10th. My father also had a resection when he was 30.
Do you have any reccomendations for recovery? How long until you felt mobile? And back to work? Any information helps. Thanks!
Elliott, Leo's advise is wise. My lap prcedure got me 'normal' in 30 days, but I must define what normal is. With lap, you chould return to normal bm's in 30 days. I introduced fiber after 30 days. I was riding my bike in about 45 days and putting weight back on. I went from about 190 to 174 in no time after the operation. It takes a lot out of you. Discomfort will be felt from the incisions for a month or so. Everyday after the first couple will get better and better. Good luck as 'countdown' appears to starting now.
kay

Quincy, IL

#16 Oct 14, 2007
I am recovering from a second attack since April, have actually battled the disease for 40+ years..am determined to give up popcorn, seeds, nuts, etc..my question for the forum: Can any of you tolerate plain hot dogs? I a invited to numerous "weiner roasts" this fall, and that will be the food of choice. I love this forum! If I had found it sooner, I would not have relapsed!
Rose

Saint Catharines, Canada

#17 Jun 22, 2008
I have suffered from constipation and left side stomach pain for 30+ years. Recently the attacks (as I call them) have been more severe. I have considerable pain on the left side of my abdomen and I feel nauseous. I am also very fatigued. My pain seems to intensive and then it weakens. Does strenuous exercise or lifting items worsen diver?
Patrick L

Langhorne, PA

#18 Jun 22, 2008
Rose wrote:
I have suffered from constipation and left side stomach pain for 30+ years. Recently the attacks (as I call them) have been more severe. I have considerable pain on the left side of my abdomen and I feel nauseous. I am also very fatigued. My pain seems to intensive and then it weakens. Does strenuous exercise or lifting items worsen diver?
Rose,

I don't know if this is a medical reality, but in my experience, yes. When I was first diagnosed properly, I was in a martial arts class where we did a lot of rolling and flipping. I complained to my Dr about the constant cramp I got in class. A CAT scan later, I officially had diverticulitis.
Becky

Philadelphia, PA

#19 Jul 18, 2008
I am glad I found this site!! Maybe someone can help!!!A few days ago I was awoke at 4:30am with diareah, vomitting, and pain on my left side. Everyone kept telling me it was probaby food poisoning or a stomach bug(both of which I've had before, and never experienced the pain on the left side). After my diareah and vomitting it just completely stopped and I began to feel very bloated and consipated in adition to being naseaus! 24 hours later I decided to go to the doctor...he said it was probably diverticulitis and put me on antibiotics. I am concerned because he did not do any tests! Also, I am only 27 years old! PLEASE HELP!!!
bob

Senatobia, MS

#20 Jul 18, 2008
Becky-I would of asked for a CT to verify the diviticulitis

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