Betsy

Darmstadt, Germany

#413 May 14, 2013
Hi Dave - I've had DD infections on and off for years, and my family doctor kept recommending that I have surgery (I've gone back and forth on it for 4 years or so). I went to one of the best surgeons in the area a week or two ago, and he gave me such a scary account of what could happen - all the "what ifs" etc.- and looked at me with a straight face and said "when I operate people and something goes wrong they say to me 'why didn't you tell me this before' and so now I do" - I live in Germany and people here are very direct, but I was quite grateful that he did that, because nobody can give you a guarantee, even though lots of people fare well. And I agree with you, even when you adhere to strict diets, there is no telling when you are going to have an attack. That happened to me recently (but the antibiotics worked wonders). When I asked that surgeon if he thought it was better to suffer through the attacks, he said "yes" - with a straight face. I think he meant it. So I am waiting. There is lots you can learn here about what to eat - no sugar, half an avocado and cooked bran cereal is what saves my life, the NO SUGAR being the most important part (and the hardest).

Eric, I wanted to express my sympathy for what you are going through, and I hope you will be much better. And actually soon. Rest as much as you can and eat well and look into the blue skies and pretty flowers when you can. That really was a nighmare, and it sure does sound like they should not have sent you home with a distended stomach. Somewhere on this site someone wrote about a kind of corsett/belt they got themselves to wear to support the abdomen, and that it helped a lot. Cannot remember the exact name, but seeing you will be going back to work in a couple of weeks, that could be beneficial. Maybe you will be much better very soon, and then it will have been worth it. I wish you all the best and a thorough recovery. Take care. Try not to stress out, and try not to blame yourself, either. Greetings from Germany, Betsy

Since: Jan 12

Stuart, Florida

#414 May 14, 2013
Betsy wrote:
Eric, Somewhere on this site someone wrote about a kind of corset / belt they got themselves to wear to support the abdomen, and that it helped a lot. Cannot remember the exact name, but seeing you will be going back to work in a couple of weeks, that could be beneficial.
Eric I wore one for a year it is a Model 90-M121-U
Universal 12" Elastic Abdominal Binder with Stays White
U.S Orthotics, Inc. Tampa,Fl

www.usorthotics.com

Give that a shot made me feel really good when I needed it
God Bless and Heal well High 5's for speedy recovery also

Larry
Liz

Australia

#415 May 16, 2013
Hi there!

I am an Aussie and have had diverticulitis on and off for 6 years. In the last 2 years I have had a hysterectomy, 2 oopherectomies (sp?), an abscess drained from a diverticular and emergency surgery when a subsequent abscess leaked. I have a stoma bag and am due to be reconnected on Monday. I am looking forward to it and hope to lead a normal life afterwards. Check everything with your specialists and make your decision. Believe me the emergency stuff is very tough.
Worried--UK

Newport, UK

#416 May 16, 2013
Thankyou for this post-you have all given me hope!
My attacks always start with pain,chills and lots of mucus-pouring out of me.I don't usually have a temperature but I have had so many antibiotics that I rattle!I haven't been hospitalised but my Doctor wants me to see a Colo-Rectal surgeon so I guess he is thinking of surgery.I have to carry changes of clothes with me as the mucus soaks through everything and pours on the floor.This is a rotten condition and I want to know if you have to have a temporary Colostomy with surgery or does it depend on how much colon they take out?
Cat

Laurel, MD

#417 May 21, 2013
myfathersdaughter wrote:
<quoted text>
Hi Dave,
As I wrote to Tom, I cannot thank you enough for sharing your experiences and actions regarding this disease. Your imput is extremely helpful and I feel very fortunate that there are people like you that generously share their time with people like me.
You have given me a lot to think about and it all has been positive. Thank you Dave!
Monica
Im 3 months post op and had 2 ft of my colon removed. BEST decision i made in the 2+ years i was sick!
Cat

Laurel, MD

#418 May 21, 2013
I had a resection (no bag) and 2 ft, sigmoid and part of my decending removed. The kicker for me was an abcess the size of a tennis ball on my colon. While i get tired often still i wouldnt chage a thing! I loved my surgeon and feel like i dont have "the monkey" on my back! Bet decision EVER!
Moe

Mattoon, IL

#419 May 21, 2013
CAT,
I am right here with you! I even had a leak at my anastamosis (hookup spot) and infection, but I would do it all over again. I will be 4 months post op this week and I feel really good! Lost a foot of my sigmoid colon. I still get tired too, surgeon says that is normal and will be gone in a few months.
Moe
Cat wrote:
I had a resection (no bag) and 2 ft, sigmoid and part of my decending removed. The kicker for me was an abcess the size of a tennis ball on my colon. While i get tired often still i wouldnt chage a thing! I loved my surgeon and feel like i dont have "the monkey" on my back! Bet decision EVER!

Since: Jul 12

Laguna Hills, CA

#420 May 21, 2013
Eric wrote:
I guess I am one of the few who nearly died due to complications from laparoscopic diverticulitis. I had the initial surgery on 1/29/2013, stayed in the hospital for a week. I was then released to go home. Now they released me with a fever and a distended stomach, which I don't think is right.
Within 4 days I was in the emergency room with bowel leaking from my incisions. My wife and I were told I would die if I didn't have emergency surgery. All of the pressure in my stomach had pushed everything up which collapsed my left lung. I could barely breath. Really short, fast breaths.
I had the emergency surgery which left me on a ventilator for 7 days while the doctors took me the OR daily to try and remove more and more of the infection. I had 5 abscesses and therefore 5 drains. They finally had to take me off the medication that was keeping me in what was basically an unconscious state. It took me a couple days to start breathing on my own once the meds were stopped. They closed me up internally, but left the wound open to heal from the inside.
I then had a reaction to morphine that I was given. I had hallucinations, and my personality was so affected that I told my wife I didn't want her there. Made her feel terrible. I had horrible dreams of dying and thought the nursing staff was out to hurt me. Even now I can't believe they were not trying to hurt me.
After one month in the hospital I was sent to a nursing home/rehab center with an ostomy bag and a wound vac. I was there for 2 weeks and finally back home for the first time in 6 weeks. I recovered for another month and then went in to get the ostomy removed and my colon reattached. I am now back home and recovering. I will go back to work 1/2 days on May 28th.
I sometimes think to myself that I voluntarily went in for the initial surgery. I didn't have to do it. I didn't have to put my family through all of this. It was elective surgery. You never think that you will be part of the 1% of surgeries that have complications, but it does happen.
I am still pretty weak and truly feel that I will never be the same. I walk at least a mile a day and usually 3 miles. I exercise with weights (5 lbs). I do what I can to get back in shape. But it is difficult. The real test will be going back to work.
Best of luck to anyone having this surgery.
Eric
Eric, I am so, so sorry that you have gone through so much trauma and pain. I had laproscopic surgery last September and had a very difficult recovery and also had a horrible reaction to the morphine with hallucinations, etc. It was a nightmare . At that time I too felt that I had made the wrong decision to have elective surgery. But I am so thankful I did. I feel wonderful now and am blessed to have had a wonderful surgeon, Dr. Thomas Sokol at Cedars Sinai Hospital in Los Angeles.
Every day I think of him and feel so grateful that he was my surgeon.

Please be patient with your recovery. You are doing everything right and one day you will find out that you are not only the same but better. You have gone through an ordeal, physically, emotionally and mentally. Be gentle with yourself and know that I and I am sure many people on this board are thinking and praying for you.

Lovedusty
Bryan

Dallas, TX

#421 May 29, 2013
Best way deal with diverticulitis is to change your diet. I had four attacks before curing the disease with diet. Fratio()com talks about how I did it. Surgery is much more dangerous than anyone thinks. Mortality is around 6% and complications are about 1 in 6.
Bryan

Dallas, TX

#422 May 29, 2013
Cat wrote:
I had a resection (no bag) and 2 ft, sigmoid and part of my decending removed. The kicker for me was an abcess the size of a tennis ball on my colon. While i get tired often still i wouldnt chage a thing! I loved my surgeon and feel like i dont have "the monkey" on my back! Bet decision EVER!
Be sure to eat the right foods after surgery. 15% of people end up needing additional surgery. Eat low F-ratio foods.
NJ John

Cherry Hill, NJ

#423 May 29, 2013
Bryan wrote:
Best way deal with diverticulitis is to change your diet. I had four attacks before curing the disease with diet. Fratio()com talks about how I did it. Surgery is much more dangerous than anyone thinks. Mortality is around 6% and complications are about 1 in 6.
You posted a similar claim in this thread in March, without any reference to those claims. Only a paper discussing the threshold - in terms of frequency of attacks - at which resection ought to be considered.

This link:

http://www.ncbi.nlm.nih.gov/pubmed/22397975 references a 2012 study by American College of Surgeons that indicated a mortality rate of 1.56% for elective resection, which is strikingly lower than the 6% you claim.
NJ John

Cherry Hill, NJ

#424 May 29, 2013
Bryan wrote:
Best way deal with diverticulitis is to change your diet. I had four attacks before curing the disease with diet. Fratio()com talks about how I did it. Surgery is much more dangerous than anyone thinks. Mortality is around 6% and complications are about 1 in 6.
Bryan, besides posting unsupported claims about mortality rates and recurrence of diverticulitis for post-resection, you're also not disclosing that you're on here just shilling for your own website, Fratio.com . This is really sleazy, to come on here like this to try to profit off people on this board.

That you've suffered from 4 attacks of diverticulitis means you have the underlying condition, diverticulosis. Once you have diverticula, diet will not cure or reverse that. Diet may help you avoid further incidents, but the diverticula won't go away. anything, dude.
Moe

Mattoon, IL

#425 May 29, 2013
Totally agree and if you look at the stats, those that are normally getting this surgery are older and not in great health already. The stats are less than 2% and guess what NJ John, I did everything right, never cheated ect and still got it 4 times in one year. So diet does not work for everyone, because not all of divert is caused by a poor diet. Not all fat people have divert either. I love that one, when people claim it's all weight related...lol. NOT!
Moe
NJ John wrote:
<quoted text>
You posted a similar claim in this thread in March, without any reference to those claims. Only a paper discussing the threshold - in terms of frequency of attacks - at which resection ought to be considered.
This link:
http://www.ncbi.nlm.nih.gov/pubmed/22397975 references a 2012 study by American College of Surgeons that indicated a mortality rate of 1.56% for elective resection, which is strikingly lower than the 6% you claim.
Bryan

Dallas, TX

#426 May 29, 2013
NJ John wrote:
<quoted text>
Bryan, besides posting unsupported claims about mortality rates and recurrence of diverticulitis for post-resection, you're also not disclosing that you're on here just shilling for your own website, Fratio.com . This is really sleazy, to come on here like this to try to profit off people on this board.
That you've suffered from 4 attacks of diverticulitis means you have the underlying condition, diverticulosis. Once you have diverticula, diet will not cure or reverse that. Diet may help you avoid further incidents, but the diverticula won't go away. anything, dude.
Diverticulosis is a condition that will heal. I have the colonoscopy results to prove that. I'm not trying to spam anyone. I am trying to get the word out about how much diet causes and cures diverticulitis. All the blog posts on my site will be free and will contain the proof. Sorry you were offended by me referencing my site.
Bryan

Dallas, TX

#427 May 29, 2013
Moe wrote:
Totally agree and if you look at the stats, those that are normally getting this surgery are older and not in great health already. The stats are less than 2% and guess what NJ John, I did everything right, never cheated ect and still got it 4 times in one year. So diet does not work for everyone, because not all of divert is caused by a poor diet. Not all fat people have divert either. I love that one, when people claim it's all weight related...lol. NOT!
Moe
<quoted text>
It is definately not weight related. It is diet related. This disease doesn't even exist in the East. It is related to the makeup of the diet. The result of the diet is that you also usually lose weight.
Bryan

Dallas, TX

#429 May 29, 2013
NJ John wrote:
<quoted text>
You posted a similar claim in this thread in March, without any reference to those claims. Only a paper discussing the threshold - in terms of frequency of attacks - at which resection ought to be considered.
This link:
http://www.ncbi.nlm.nih.gov/pubmed/22397975 references a 2012 study by American College of Surgeons that indicated a mortality rate of 1.56% for elective resection, which is strikingly lower than the 6% you claim.
It is interesting that you are so opposed to non-surgical options. It is my belief that the statistics that you referenced are underestimated. These are reported results by hospitals and surgeons that want the rates low. If another cause of death can be found, they will use it. In your reference there were outlier hospitals above 4%. Just more honest numbers. Complications that results in additional surgery can be as high as 16% in some studies. It is my opinion that surgery should be the very last resort.

I didn't believe that my diet caused my condition either. It is like cancer. Some people are just more prone to get it. Smoking just increases the chance. Same thing with diverticulitis. Some people are more prone but the poor diet increases the chances.
NJ John

Cherry Hill, NJ

#430 May 30, 2013
Bryan wrote:
<quoted text>
It is my belief that the statistics that you referenced are underestimated. These are reported results by hospitals and surgeons that want the rates low. If another cause of death can be found, they will use it. In your reference there were outlier hospitals above 4%. Just more honest numbers. Complications that results in additional surgery can be as high as 16% in some studies. It is my opinion that surgery should be the very last resort.
I didn't believe that my diet caused my condition either. It is like cancer. Some people are just more prone to get it. Smoking just increases the chance. Same thing with diverticulitis. Some people are more prone but the poor diet increases the chances.
You 'feel' the statistics are underestimated, challenge the integrity of the study, but offer no real data to refute the 1.56%. Yet, when it suits your purposes, you have no problem citing a scientific study you like, mis-representing the conclusions and quoting it as gospel. Your clear bias is a significant credibility issue.

For the outliers you mention - why don't you also state for this audience that it related to only 6 hospitals out of the 193 teaching hospitals. And since the results from those 6 hospitals are considered in the calculation of the 1.56%, then if you want to focus on the outliers and the 4.1%, let's also make clear that the mortality rate of the 187 non-outlier hospitals is even lower than the blended 1.56%.

With regards to the complications requiring additional surgery and the claimed 16%, reference the studies. Show us the evidence instead of hiding behind general statements.

And if you now state that diet didn't cause your diverticulitis, that people are just "prone to get it", then it seems really illogical to claim, as you did yesterday, that diet alone can cure diverticulitis. IWhere diet is not the cause of the condition, then how could managing diet alleviate the effects?
Jennifer

Steele, ND

#431 Jun 2, 2013
Hi all,
They are telling me that the only way my attacks will stop is by me having this surgery. I am scared because I have never had surgery. I found out when I was 27 that I had it. I am now 39 and since March 23rd I have had 3 attacks. I have tried the fiber diet and that has done nothing for me. I meet with the Surgeon on Tuesday so we can schedule this. I am so glad that I have come across all of you that have had to deal with this. Most of you have had such positive experience's. I want to know how was it after the surgery? They say I will be in the hospital for 5 to 7 days and that 2 weeks after I will be on bed rest and that 4 to 6 weeks later I will be good to go. What kind of clothing should I wear? What kind of food and such do I need to pick up for after? Is there anything that you can think of that I will need for after? Also what should I bring to the hospital with me? Any help would be appreciated. Thanks
DianaL

American Canyon, CA

#432 Jun 2, 2013
Jennifer wrote:
Hi all,
They are telling me that the only way my attacks will stop is by me having this surgery. I am scared because I have never had surgery. I found out when I was 27 that I had it. I am now 39 and since March 23rd I have had 3 attacks. I have tried the fiber diet and that has done nothing for me. I meet with the Surgeon on Tuesday so we can schedule this. I am so glad that I have come across all of you that have had to deal with this. Most of you have had such positive experience's. I want to know how was it after the surgery? They say I will be in the hospital for 5 to 7 days and that 2 weeks after I will be on bed rest and that 4 to 6 weeks later I will be good to go. What kind of clothing should I wear? What kind of food and such do I need to pick up for after? Is there anything that you can think of that I will need for after? Also what should I bring to the hospital with me? Any help would be appreciated. Thanks
Well, welcome to the club ;0)

Not to make light of it. We all so know well what you are going through. If you just put Diverticulitis into the search field here on Topix you will find 100's of threads. So browse through here and you'll find the answers to all your question. Your surgeon is a Colo-Rectal surgeon, right? He seems a little long in estimation in stay time at the hospital as well as bed rest but we all know it is different for everyone.

If you don't find the answers you are looking for I can share some of my thoughts. Short on time today.

The short version is most everyone has a positive outcome. Most go on to have better health than they have had in years because once the diseased portion of colon is removed, the disease is gone. Surgery is scary but the possibility of a rupture or the ongoing illness was scarier to me.
Cynde

Prairieville, LA

#433 Jun 2, 2013
I am glad I found this site. I am 54 and had been putting off having a screening colonoscopy but decided it was time. Had it in early May, no polyps but a few diverticuli. No problems, felt great but 2 days later was in the ER with cramping and temp.CT scan revealed perforated diverticuli. I was in the hosp for 4 days for antibiotics and went home with 10 days of antibiotics. When done, felt great and went on with life. But this week began with the cramping again and beack on fluid diet and antibiotics. MD states recent CT doesn't look good, whatever that means. After reading everyones comments, I think I will ask for the surgery cause I don't want to go on like this. I feel so weak and tired.

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