colon and bladder problem
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joan

Mississauga, Canada

#1 Nov 8, 2010
i have heard that your bladder can fuse to your colon. has anyone had this happen and what were your symptoms? did they find out during surgery? i am having almost the amount of pain on the right side. my doctor said that he would have to wait till after surgery and do a colonoscopy then. They werent able to get a scope (even a pedi) because of all the scaring. I hope he wille able to tell if it is diver. i dont want to have this done twice.
I am suffering from incontinence and feel little razor like pokes and it feels like the pain is in my ureters. i have heard the bladder can fuse to the colon. can you please tell me about your experiences?
Gillian

London, UK

#2 Nov 8, 2010
Hi, I ended up with a fistula from the colon to the bladder. It only appeared a few weeks before I went in for the op. I had already decided on surgery because of a severe stricture that was blocking me up. In fact, it was the blockage that caused it.

My symptoms were just continual urine infections: pain in the bladder area, backache and stinging and prickling when passing water. The urine was also very dark - sometimes even brown! Another quite painful and disconcerting thing was passing wind through the uretha -i.e. farting instead of peeing!

A simple urine test can diagnose if this has happened, as there will be faecal particles in the urine.

If you do have this, it should be sorted out during your surgery,- in fact, I can't see how the damaged part of your colon can be removed if it is adhered to your bladder (or any other parts)otherwise.
joan

Mississauga, Canada

#3 Nov 8, 2010
was your surgeon able to deal with the fistula at the same time? or is it something you have to go back under for?
Gillian

London, UK

#4 Nov 9, 2010
Joan, everything was done at the same time as it was all stuck together anyway. It was done as an open operation.
Anonymous

Stoke-on-trent, UK

#5 Nov 9, 2010
joan wrote:
i have heard that your bladder can fuse to your colon. has anyone had this happen and what were your symptoms? did they find out during surgery? i am having almost the amount of pain on the right side. my doctor said that he would have to wait till after surgery and do a colonoscopy then. They werent able to get a scope (even a pedi) because of all the scaring. I hope he wille able to tell if it is diver. i dont want to have this done twice.
I am suffering from incontinence and feel little razor like pokes and it feels like the pain is in my ureters. i have heard the bladder can fuse to the colon. can you please tell me about your experiences?
Hi Joan,
I had the fistula - from sigmoid colon to the bladder.
Until they found it I just kept getting urinary infections, feeling tired, and the diverticulitis symptons of "bubbling" in the intestine.
When I first got rushed into the A&E, it was for suspected kidney failure - one of the diverticulitis pouches had trapped the tube so the kidneys had gotten infected. BUT then the CT scan showed exactly that it was diverticulitis and that the bladder and sigmoid had the abnormal connection.
They were leaving me for 6-12 weeks so that inflamation could go down - but during this time urinary infections got more severe, very smelly urine, stinging when passing it, and also wind (gas) passing through my penis after urinating, sometimes lots, sometimes little. Not painful, but very pronounced. This is gas from the intestine passing through the bladder.

Surgery was to remove some of the sigmoid colon - the part that wss attached. Im still unsure if they have cured the diverticulitis or just the fistula. Am still recovering after 6 weeks really, but trust me, its far better to not have the fistula - it was debilitating!

Let me know how you get on - the CT scan is the one that showed it for me. Mainly don't be panicking about it, the pains could be any number of things

Mr.Will
joan

Scarborough, Canada

#6 Nov 9, 2010
I don't think i am suffering from that. Wow, that must have been the worst! I have surgery in a couple of weeks. I am glad i was able to wait for the infection to clear up prior to surgery. They didn't mention anything about it so I am guessing nothing showed up on the ct scan.
Glenn

Aiken, SC

#7 Mar 28, 2011
I have a fistula between my colon and bladder and have the same symtoms,passing of gas,urine dark and not normal.The first dr. I went to tried to scare me into having the sugery right away,told me I was going to need a colost bag and also needed a bladder surgeon there to fix my bladder.Thank God I walked away.The next dr. I went to seemed much more experienced and told me no bag and no bladder surgeon,that the bladder heals on its own after it is removed from the colon.I scheduled the sugery with him but he sent me for a heart check up and I failed a stress test.Went for the heart cath.procedure and the stress test was a false positive.Just so you know, I am a big chicken and pass out when giving blood so you know how I felt about the heart cath.It was a piece of cake,I watched the whole thing and had no stress at all.I dont know what kind of drug they give you but I think had he told me they were going to cut off my arm I would have held it out for them.I still have not had the fistula sugery yet and am trying to look into stem cell and PRP to possibly fix the problem.I train and ride racehorses and would have a hard time staying away from my kids for too long.My symtoms do not affect my quality of life much at all but that might be because I take 5mgs of Prednisone twice a day and the antibiotic bactrim twice a day.If anyone knows about PRP or stem cells as a treatment for this, let me know.I also think that if anyone is not deathly ill and a surgeon tries to rush you to sugery,you should get a second opinion.It is amazing the diffrence in doctors. Glenn
Gillian

London, UK

#8 Mar 29, 2011
I'm so pleased that I had the surgery -I was not rushed into it, in fact being on the NHS in England, I had to wait nearly a full year for it. It gradually became the worst year of my life. Continual pain and infections were the order of the day and it was just getting worse. Living on medications has a negative effect on other systems in the body as well.

http://arthritis.about.com/od/prednisone/f/ri...

I don't see how stem-cells or anything else can cure an unnatural connection between 2 organs. The only thing that can be done is to repair it surgically.
Eduardo

Alexandria, VA

#9 Nov 13, 2011
Someone has already discribed the sensations, constant medication, and so forth. I did not know what my condition blaming too much work for feeling tired and feeling sick, my blood plates dropped significantly; my endocrinologist recommended that I be seen by oncology. Mid of the month in 2010 I was scheduled for bone marrow testing and CT scan; the CT scan was done first and it pointed out to significant inflammation and fusing. I was started on massive dosages of anti-biotics and at the end of the month I underwent 5 hours surgery to correct the problem. There was a colon resecting and the bladder repaired. I guess I am alright now although the sensations seem to be coming back. I was told that cancer is normally found in persons with my condition and although I had abnormal T cells and am seen every 6 months, I did not have cancer. Have any of you have the condition recur?
Please note http://www.webmd.com/cancer/bladder-cancer/ne... that long term use of ACTOS has been implicated in bladder cancer.
Have any of you have the condition recur?
Gillian

London, UK

#10 Nov 13, 2011
Eduardo, My condition was caused by scarring from diverticular disease - once the damaged section of colon was removed and the bladder repaired, I have had no further problems, nor do I expect any.

Nobody ever mentioned cancer to me and I have never taken Actos so I am not worried at all about it.

If you feel that the symptoms are coming back, then you should go to the doctor.
Meg Quinn

Sarasota, FL

#11 Feb 4, 2012
Will can I ask what hospital you attended?
Meg
Will Sherratt-UK wrote:
<quoted text>
Hi Joan,
I had the fistula - from sigmoid colon to the bladder.
Until they found it I just kept getting urinary infections, feeling tired, and the diverticulitis symptons of "bubbling" in the intestine.
When I first got rushed into the A&E, it was for suspected kidney failure - one of the diverticulitis pouches had trapped the tube so the kidneys had gotten infected. BUT then the CT scan showed exactly that it was diverticulitis and that the bladder and sigmoid had the abnormal connection.
They were leaving me for 6-12 weeks so that inflamation could go down - but during this time urinary infections got more severe, very smelly urine, stinging when passing it, and also wind (gas) passing through my penis after urinating, sometimes lots, sometimes little. Not painful, but very pronounced. This is gas from the intestine passing through the bladder.
Surgery was to remove some of the sigmoid colon - the part that wss attached. Im still unsure if they have cured the diverticulitis or just the fistula. Am still recovering after 6 weeks really, but trust me, its far better to not have the fistula - it was debilitating!
Let me know how you get on - the CT scan is the one that showed it for me. Mainly don't be panicking about it, the pains could be any number of things
Mr.Will
Skeet

Glen Allen, VA

#12 Feb 26, 2012
I had to have 1/3 of my colon removed due to colon cancer. When it healed it attached to the bladder wall. This became very painful. I'm having the symptoms all listed by everyone except the gas passing (thank goodness, a penis passing gas isn't too cool). I also was diagnosed with P.E. on my right lung, a very large one. So, i'm giving myself 2 shots a day of Lovinox and I take a blood thinner (effient) and an asprin a day. I need to know if they can separate my bladder from my colon. The cancer center of America told me I would just have to live on the pain pills for the rest of my life. This is unacceptable. My trust in them is totally gone. Anyone have any suggestions on how to correct the problem. I live in Richmond, VA area. Thanks.
Gillian

UK

#13 Feb 26, 2012
Skeet -my bladder and colon were attached and it was fixed during my colon resection (I suppose they just cut that bit of the colon out along with the rest).

Possibly there is a reason that they can't do that, you must ask them if there is.
Sheila

Winder, GA

#14 Dec 11, 2012
I just had this surgery where my bladder was attached to my colon..
I had many infections and was told I UTI infections but then I wonder why I was having so many and taking the antibotic to clear them up only to have them come back and I too had the gas and all the same symtons I went to the emercy room and was told I needed a ct scan..
They had to do surgery on me cause I was in so much pain ..
They took out about 6 inches of color which I had diverticultis also and this surgery cleared everything up; I had a great surgen and also had a bladder doctor..whom help to fixed the bladder from where there was a bridge to the colon.. and I also had a upper blockage in the small intestine and they also fixed that...three weeks after the surgery and I feel so much better lost about 15 lbs and still healing now this did hurt the first couple of days after surgery...:)
Les

Ponchatoula, LA

#15 Dec 30, 2012
I have the same symptoms as u guys frequency, pain with urination, and the air at the end of urination I have been on different antibiotics since early December. I saw a urologist this past Friday and he says I probally have a connection between my bladder n colon I am scheduled for ct scan tomorrow n cystoscope wenesday. If these findings show a connection I have to have a colonoscopy then surgery. Can anyone tell me about the surgery. Where is the cut how big n I know this sounds crazy but can it be fixed blind or with lap surgery with a scope.
Soundguy

Mansfield, OH

#16 Dec 30, 2012
Welcome to the club les. I can tell you the cystoscopy is not a lot of fun. But it is over quickly. If you do have a fistula the cystoscopy will tell them where it is located. That will give you more info on the type and risk of the surgery. Well that and the info gained from a colonoscopy.

As for me, I am 13 days out from an open proceedure and doing well. The incision runs from about 3.5 inches below my breast bone all the way to my waistline. Goes right through my belly button and my best guess says it is 8-10 inches long altogether. I have about 40 staples and 4 large sutures that hold the staples in place.

There is a lot to consider when it comes to the proceedure. I found that most of the info here was spot on. I chose my method based on the fact that the surgeon I selected has over 30 years of experience and is highly regarded by patients and peers alike. And open is his prefered method. Had he not been available I would have probably rolled the dice on a lap and hoped they didn't have to open me up all the way.

I think the main thing going into this is being as infection free as possible, that will greatly reduce the likely hood of a bag and complications. If there is any other info I can help you with please let me know. I felt pretty lonely when I first started this journey as this isn't a real common condition.
Les

Ponchatoula, LA

#17 Dec 30, 2012
Glad to hear u are ok. I am hoping for a lapascopy surgery but I know it has to be fixed did u have diverticulitis cause I have never been sick or had any problems with my bowels this has been a sudden onset I am very healthy and athletic run everyday and just don't get it ya know how this happen I am struggling with this
Soundguy

Mansfield, OH

#18 Dec 31, 2012
Les wrote:
Glad to hear u are ok. I am hoping for a lapascopy surgery but I know it has to be fixed did u have diverticulitis cause I have never been sick or had any problems with my bowels this has been a sudden onset I am very healthy and athletic run everyday and just don't get it ya know how this happen I am struggling with this
Yes diverticulosis was listed as the cause. It is the most common cause. Not to be the bearer of bad news but the other causes are a lot less favorable. I never really had any outbreaks that required medical attention. But with that being said after the diagnosis I started having memories of pain in my lower left abdomen. I have taken fiber supplements most of my adult life and I attribute that to not having any itus. There were no abscesses found during the colonoscopy or in the removed portion of my colon. The only irritations they found were on/in my bladder.

I will also add that I think wearing my clothes too tight in the waistline helped cause this. I hope you get favorable news and have a speedy recovery Les.
Wendy

Australia

#19 Feb 20, 2013
Hi everyone, my question is this....during a long attack of diver I also had dark smelly urine despite drinking plenty of water and was up at least every half an hour or so to urinate. My surgeon thinks there may be a fistula between the bladder and colon. Are they able to heal over themselves when the attack of diver eventually clears up? I am to have a CT scan in a few days then a colonoscopy which should help but I don't have the bladder symptoms now so wonder if it can heal up itself. Thank you for all the great info, I am finding it very helpful.
Les

Denham Springs, LA

#20 Feb 21, 2013
Had my surgery I was dx. with colon vestibular fistula opening from my descending colon to my bladder. I had uti and air passing at the end of urination. The surgery so far has been a breeze. I am one week post op. The surgery was done using laposcoty and a approximate 2inch cut to left lower abdomen. I was n the hospital for a 5days no complications. I am walking around with some soreness especially when I first stand up n when I sit down. I feel so much better. I was having so much trouble with my bladder before surgery always feeling bladder distention and needing to go to the bathroom. The cause of my problem was diverticulitis that caused my bladder n colon to adhere to each other CRAZY. But I am on my way to recovery n so glad it is over. Can't imagine how this happen to me I am a healthy adult n run everyday n did a marathon the week before my surgery.thanks to all u guys that answered my questions before my surgery. Les

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