Since: May 12

Location hidden

#384 Jun 11, 2012
Joanie wrote:
My husband was diagnosied with Diverticulitis about three weeks ago. He was given and anitbiotic by injection, then ten days of oral antibiotics. He is doing better now but still very tired and weak. He has lost about 13 pounds or so. Since this is our first episode with this illness we don't know a lot of what to expect. Such as: How long does it take to recover from a bout of this? The doctor said the CT scan showed there was no abcess so that's good, just the infection I guess. Also, we have such conflicting advise about what he can and cannot eat. Any help you can give would be great. Thanks!
It is June 2012 and I just read your story! Oh my gosh, I am so sorry you had to go through so much.

How are you now? I hope 100% better.

If you have time, I would love to hear from you and your advice on a colon resection surgery. Also, were all the surgeries done at the Mayo Clinic?

thank you.
Robert Hughie

Atlanta, GA

#385 Sep 17, 2012
Colette wrote:
work. Bottom line-DO NOT HAVE SURGERY UNLESS IT IS THE LAST RESORT!!!! I am having all this done at the Mayo Clinic, couldn’t imagine what could have happened else where. I have had it!!
I feel for you but this is horrible advice. You see the proactive surgery as the cause, not realizing that even if it actually was the cause there are more positive outcomes than not when patients are told to consider the surgery and have it in a timely manner. Its wrong to scare away people if a vadt majority may have experienced pisitive outcomes. You could have died the week after your first surgery if you had NOT had it. Do you see that? Someone who would live if they had the surgery this week might read that and put it off too long. You just killed her.

I believe it is working when still recovering that is the major problem. I believe diverticulitis patients all too frequently are such strong people for some reason. All that "work through the pain" nonsense. If your actively aggravating your condition, you're not convalescing properly.

Let yourself heal. Please.

Since: Aug 09

Madison, MS

#386 Sep 28, 2012
I wish I had found this forum several days ago. After having a colonoscopy, I was diagnosed with Diverticulosis. The doctor seemed to be in a big hurry that day to get out of town for a college football game and did not say much at all about this. What led me to him was by advice of my general doctor because of severe abdominal pains, bloating and constipation. A few days after colonoscopy the pain worsened and I was called in Flagyl and Ciprofloxacin. Eight days later I am still so sick and have found so much useful info on this site. Why could the nurse not have told me when she called in these antibiotics that they can make you nauseated, and why did she not tell me I should try a liquid diet for a few days? I am so frustrated with doctors at the moment. I had a CT scan yesterday after I called the day before because I was hurting so bad. The scan showed nothing. When the nurse called this morning she said to finish antibiotics this weekend and if not better on Monday give them a call. I asked her if she had any suggestions for the bloating, nausea and pain and she said try Gas X. That's all the advice she could give me, the nurse? Sorry, I had to vent. I never realized before reading this how serious this disease could be and was never told the things I have learned on here. Thank you all! I am trying the liquid diet starting now for a few days.
Dee Kay

Douglasville, GA

#387 Nov 1, 2012
I am 48 years old and I'm recovering from my 3rd Diverticulitis attack in 11 months. My GI doctor is suggesting surgery. I've been on 2 antibiotics for 18 days and I still have some tenderness. I have read everything I can find on every detail of this problem. I have also researched and hand picked the surgeon I am going to use. He has had 26 years experience in diseases of the colon. He is on staff at Piedmont Hospital in Atlanta, but I will interview with him before I commit. I don't find the pain with my attacks unbearable but at its worst the fever and chills make me feel like I'm dying. I am a very busy person and I'm raising a preschooler. I never have time to go to bed and wait til I recover. I've never taken pain meds for this condition. After reading the risks of not having the surgery, I don't think I'm going to leave my health up to chance. I want to be here to raise my daughter. I've never had a problem with constipation, just the opposite I always gone several times a day. When I had my first attack, I was following a heart healthy high fiber diet. I know for sure that not enough fiber was not my problem.
chris-Perth WestAust

Perth, Australia

#388 Nov 1, 2012
Hi Dee,

I'm 47 and work full time, kids are all grown so luckily I don't have that worry.

I'm booked in for surgery on December the 6th, I have suffered with this disease for about 5 years now, my last attack was in April this year, I ended up in hospital briefly and that was my second time in hospital with it, the first time I was there for 5 days! This last attack took 4 weeks worth of antibiotics before it started to clear up, and it still took more time after that before I started to feel better.

The thing is the recovery time seems to get longer and longer each time you have an attack so for me surgery is my only option.

To say I'm nervous is an understatement, like you I have read everything there is to read on this disease and the surgery,(ohh and i utubed the op, probs not the best idea I've had)
my surgeon will be doing open surgery on me and that is petrifying me even more, I think the idea of a nasty scar is putting me off more that the actually op!

Like you I want to be around to see my kids get married ect, and I also want a better quality of life, my tummy is playing up at the moment and to be honest it really gets me down so come December ill be ready to take my life and my health back!!!!

Good luck with everything and I'm sure you'll make the right decision.
CookingCat

Woodbridge, UK

#389 Nov 2, 2012
I've suffered since my late thirties but this recent attack put me in hospital on iv antibiotics for a week. I've seen a dietitian and all food was stopped followed 3 days later by a fluid only diet then clear soups. Then for the next 5 weeks my diet has been crackers, fresh made bread (due to starch build up in part cooked breads) & clear soups. I've started to introduce foods again but keep having painful episodes. I had s colonoscopy which said I had mild diverticular disease but the MRI showed extensive damange in two parts of my bowel. My attack was so sudden it frightened me & my blood relative also died from this disease. I live in fear now of another attack & get panicky if I'm on my own or without pain medication. I've been told here in the UK if you have 2 attacks in 6 months it will result in surgery. I care for patients who have had part or all of their bowel removed & they live reasonable active lives but I never thought I could end up like my patients.
chris-Perth WestAust

Perth, Australia

#390 Nov 2, 2012
Hi cookingcat,

I think for me it doesn't even matter what I eat, I still have episodes even when I'm being extremely careful, my surgeon said he believes it doesn't really matter what you eat, he said to me "I've never removed a section of the colon and found popcorn or nuts in there" :) I think he was trying to crack a funny!

My surgeon said more than 3 attacks period warrants surgery! But then again he maybe surgery happy :)

All I know if as much as I'm scared I'm looking forward to being pain free!

Since: Jun 12

Location hidden

#391 Nov 3, 2012
chris:

What you're saying makes a lot of sense. There's little evidence for food making much difference with diver. Some studies say fiber is good; some studies say fiber is bad. Some people notice particular effects following specific foods; some people don't. Personally I have noticed I feel like crap when I eat wheat and/or gluten. So now I steer clear of that. It's a personal thing. I'm trying the SCD diet and generally it's working well for me. I have less grumblings and less gass.(It's a no sucrose; no lactose; no white-carb diet intended to rebalance the digestive flora by eliminating hard-to digest leftovers sitting around in the intestines rotting.) Anyway there's a book by Elaine Gottschall if anyone wants to check it out called: Breaking the Viscious Cycle. We're all kind of fumbling in the dark on this condition since there's so much contradictory information that you kind of have to sort it out yourself. Personally I am pro-probiotic; pro-omega-3; mostly off red meat; mostly off sugar; only have dairy sans lactose; definitely steer clear of gluten and trying to get off white carbs more completely than I am now. Since my bowel ruptured I am trying to avoid it happening again (lol-obviously). I had the weird silently lurking kind of diver -- or just maybe I was perversely in denial of the periodic pain and intestinal distress I experienced fairly regularly. I haven't quite decided which.
chris-Perth WestAust

Perth, Australia

#392 Nov 3, 2012
Hi apple cake,

Wow your so educated on this disease, I'm so happy I have joined this forum.

I will definitely google that book, I'm at a lose as to what I can eat and what I can't, only this weekend I've been in constant pain and I have no idea what set it off, but woke up this morning and it seems to have settled down a bit.

I'm taking probiotics and was taking magnesium & fish oil but the 3 together seemed to upset my tummy so I'm now just taking probiotics.

Like you I don't eat red meat, well not very often anyway :)

I pray this operation is a success cause I really need my life back!

Since: Jun 12

Location hidden

#393 Nov 3, 2012
Well, I almost died and I was completely *clueless* that I had diverticulitis, so I got real curious real fast. Once I had my head screwed back on straight after my ER colostomy surprise I spent plenty of time online looking for answers. And the truth is the more you look for answers with this, the more questions you end up having (as with so many things). So when people say you have to find what works for you, it's really true. I started a google group where I've posted a bunch of research papers that I've come across. There are a few good overviews in there. You can find it here.
https://groups.google.com/forum/ #!forum/diverticulitisresearch

Since: Nov 12

Eastham, UK

#394 Nov 10, 2012
Hi there,

My first time here today, so I'm a real newbie. I have no idea how to do this posting thing. Whether its updated or an old thread?

But, what I want to say is this.

Everyone's different. I know that by all the things that I've seen written over the past couple of months...

Personally...

I had a major flare up, I was diagnosed with DD. That was 4 months ago. I also had almost a week of the I.V. antibiotics. I was home a few days and was back in again...the 2nd time was the antibiotic time, the first time they didn't put me on them even though I was diagnosed at the first colonoscopy!! Fools that they were!

I've had 3 admissions up to now. Yesterday I got a phone call to tell me I am being admitted on Monday morning. A massive shock to me. But that's a long story. I don't know how long for, they dont know, well, they may, I suspect they do!

The surgeon saw my notes for the 1st time the other day and didnt like what he saw. I was supposed to have been back for an 'urgent' apmt at clinic after the 4th colonoscopy 2 weeks ago. But there isnt one. My son wrote to the surgeon who had my notes pulled that same day and the last test results.

He's said he isnt happy at all, not with the tests, the results of the 22lb weight loss I have had, and am still losing, since I cant eat and have lived on yoghurts and mousse, melon and oranges for almost 3 months...

But you could be the opposite, you could have this flare and it could go away...that's what's happened to a lot of people I know. So it depends on the person, if you know what I mean? I've just been unlucky for just on 4 months!! lol

I hope this helps?

Catherine

Since: Nov 12

Eastham, UK

#395 Nov 10, 2012
Oh Jackie, that reads like a nightmare!!!
How the hell has all that happened to you? Have they even explained why this has happened? I've never heard of anything like it, you are in a living nightmare!!!
These hernias, why do they occur, have they said. Or is it a common thing?
Do you regret not having the surgery done when you first went in and they wanted to do it. Because an infection like that would batter the body I would think?!! Maybe, in hindsight you may have been better off biting the bullet right back then...
Oh but I feel for you, I really, really do...
I hope things get so much better for you in the future, like as in, from tonight!!!
I think you have had far more than your fair share of traumas to last 4 lifetimes!!!
I'd like to be updated by your news, but I don't know how to do it, my first time on here tonight. lol
Best of luck! And keep that chin up, seems to me you are one hell of a tough cookie!!!
Catherine

Since: Nov 12

Eastham, UK

#396 Nov 10, 2012
FOR JACKIE...I LOST THE START OF YOUR POST!!!

Oh Jackie, that reads like a nightmare!!!

How the hell has all that happened to you? Have they even explained why this has happened? I've never heard of anything like it, you are in a living nightmare!!!

These hernias, why do they occur, have they said. Or is it a common thing?

Do you regret not having the surgery done when you first went in and they wanted to do it. Because an infection like that would batter the body I would think?!! Maybe, in hindsight you may have been better off biting the bullet right back then...

Oh but I feel for you, I really, really do...
I hope things get so much better for you in the future, like as in, from tonight!!!

I think you have had far more than your fair share of traumas to last 4 lifetimes!!!

I'd like to be updated by your news, but I don't know how to do it, my first time on here tonight. lol

Best of luck! And keep that chin up, seems to me you are one hell of a tough cookie!!!

Catherine
Nancy

Florence, SC

#398 Feb 8, 2013
I am 62. Sunday will be three weeks since my first really bad attack. I had what the Dr. assumed, kidney stones. I have recurring UTI's and knew this was not just that. I was put on Cipro for the infection. The Sunday following the first attack I literally could not function. I got up from the table at 5 pm ran to the bathroom thinking I had to go. The pain was worse than when I had my baby. I immediately broke out in cold sweats, was nauseated and just did not know what was happening to my body. PAIN, PAIN AND MORE PAIN. I finally ended up in the ER. An IV was put in, pain meds immediately, and then a CT Scan. The CT Scan showed NO stones. However, the ER Dr. said it was Diverticulitis. Since Sunday I have been taking the Cipro and Flagyl (sp) and feel so weakened. I have not been able to have a BM. I went to the Dr. on Weds. She told me that a Vegetarian Diet may help and to drink Miralax or Metamucil. I still have not had any luck. I'm now to the point of taking Senna tablets. I'm upset that this is happening and am at a loss as to what to do next. I'm reading all these posts and and am feeling like I need more help than what I am receiving. Otherwise, I am in great health. Can someone tell me if they've experienced this constipation after a week of an attack? I feel that I am about to explode. AND...more importantly feel that this is NOT a good sign. Thanks in advance for any response.
angie

Green Bay, WI

#399 Feb 9, 2013
I had something very similar to what you are describing. They sent me home after many enemas and other meds. It ended up my colon was collapsed from the diverticulitus. I won't get into everything that happened after that but make sure you are not dealing with a collapsed colon. Good luck. I know exactly how you are feeling.Prayers to you.
Mary

Lubbock, TX

#400 Feb 9, 2013
Hi Nancy - the intestines show way down during a diverticulitis infection. It is nature's way of protecting the colon. You will probably benefit greatly from a liquid diet. Please be very careful with a vegetarian diet with lots of fiber right now. I made the mistake of listening to a doctor who recommended fiber during treatment for an attack and it prolonged an attack for several weeks. Miralax is safe but takes a couple of days to work. Metamucil during an attack is TERRIBLE advice. Doctors don't know often about proper diet during a diverticulitis attack. Search this site or ask Mr. Google about the Mayo clinic diet for diverticulitis. Hope you feel better soon.
Cath-KATMALAN

UK

#401 Feb 10, 2013
Hi Mike, well though I've not written on your posts, I have been following them. Being as no surgeon will operate on me because I have a lot of pre-existing serious conditions...

...I would say that you should take this opportunity in both hands, go for the surgery and be thankful. Because I would give anything for them to take this thing out of me. But unless it bursts, they wont operate.

Instead, I have to be taught to do self administered colonic irrigation daily. Not something I'm looking forward to I have to admit, I'm dreading it. And since I am disabled with a spine that's breaking up, it wont be easy for me to do this procedure...

So I think yes, go for it! Get it sorted and get your life back!!!

I wish you good luck, not that you need it, cos it will be the best thing you've ever done. I also wish for you a speedy recovery and that you have your life back on track soon!!

I will keep following your posts to see how you get on. Stay focused and remember, no pain, no gain and at the end of the day, they have great pain relief on tap for you!!

Be well!

Cath
Adam

Bronx, NY

#402 Feb 25, 2013
Hey everyone,

I'm suffering from my first bout with Diverticulitis and was out on Cipro and Flagyl each on a 14 day cycle. I took the docs advice and stuck to mostly clear liquids for the first few days, and by this past weekend, was feeling close to 100%. On Saturday night, I went to a basketball game with box seats and probably ate too much too soon, but I'm back to feeling awful. I'm assuming I was just too cocky too quick with food, and that I can start feeling better by going back to liquids. Has something similar happened to any of you or should I be a lot more concerned? Thanks.
Wendy

Australia

#403 Feb 26, 2013
Hi Adam! Yes I made the same mistake because in the beginning the antibiotics work well in most cases and you start to feel bett in a couple of days and think you can eat a little more adventurously. I have had this illness for about 3 years now and don't make that mistake anymore. The last episode I had it took 4 lots of antibiotics to get the rid of the problem. I found that if there's even a little tenderness left you need to remain very cautious of what you eat, only small amounts at a time and don't stop the antibiotics until the pain is all gone.
I've just had another CT scan and have a colonoscopy on Monday because I seem to have a colovesical fissure, very small but still there.
Treat this disease with a LOT of respect or it can be very serious indeed.
Cheers, Wendy
Adam

Pittsburgh, PA

#404 Feb 27, 2013
Wendy wrote:
Hi Adam! Yes I made the same mistake because in the beginning the antibiotics work well in most cases and you start to feel bett in a couple of days and think you can eat a little more adventurously. I have had this illness for about 3 years now and don't make that mistake anymore. The last episode I had it took 4 lots of antibiotics to get the rid of the problem. I found that if there's even a little tenderness left you need to remain very cautious of what you eat, only small amounts at a time and don't stop the antibiotics until the pain is all gone.
I've just had another CT scan and have a colonoscopy on Monday because I seem to have a colovesical fissure, very small but still there.
Treat this disease with a LOT of respect or it can be very serious indeed.
Cheers, Wendy
Thanks for the advice, and yeah it's definitely not a mistake I'm planning to make again. The second wave was 100 times worse than the first. Lots of progress today, though, starting to feel myself!

Tell me when this thread is updated:

Subscribe Now Add to my Tracker

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Diverticulitis Discussions

Title Updated Last By Comments
.Diverticulitis. Breakthrough book 1 hr Jennifer1974 5
Sigmoid Colectomy for Diverticular Disease 13 hr Cielo 38
flareup after eating hot sauce yesterday 14 hr Cielo 10
Alcohol (Sep '14) Sun Rob Stock 10
Regrets on having Diverticulitis surgery/colon ... (May '12) Mar 26 richardboyce 2,328
Advice for After Colon Resection? (Jan '09) Mar 23 BPKaren 4,558
Food and Recipes and How We're Doing (Jan '13) Mar 23 Anne 1,095
More from around the web