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Alison

UK

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#1
Aug 23, 2006
 
I was diagnosed with this last November. I had Antibiotics and they didn't work. Had to go into hospital for a antibiotic by drip. Have been to the doc's today and they have given me antibiotics again. I am in very bad pain at the moment. This is worse when I have to sit at my desk. Nothing I can do about that, don't like to be off work. Just get up and moved around now and again. Once you have been diagnosed with this it can raise it's ugly head from time to time. Let's hope the antibiotics work this time. They are very strong and I cannot have any alcohol until 2 days after taking them. This will then be my birthday 1st Sept. I seem to get this either just before my birthday or christmas. Not that alcohol bothers me because it makes the symptoms worse.
Leo

Ajax, Canada

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#2
Aug 23, 2006
 
HI Alison,

I hear what you are saying. I have suffered from this since 1999 and had the surgery last month. Go see a surgeon and have a colonoscopy. It will be more concluusive. If you continue to have attacks you may perforate your bowel and it can cause you to get very sick or even die. I read somwhere that 2 of every 10 people die with a perforated bowel.

I have as many as 6 attacks and then finially went for the surgery. I feel great now.
Colette

Rockford, MI

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#3
Sep 6, 2006
 
I am a 41 year old woman; in July of 2004 I was diagnosed with diverticulitis, hospitalized for four days with IV antibiotics. Between July and November I had 6 additional attacks. I decided to go with the "preventative" surgery on Dec 29, 2005, to prevent an emergency situation. They removed the sigmoid colon. On the ninth day in the hospital I had a perforation, very life threatening, which resulted with an emergency surgery to repair the perforaration. I came out of surgery sporting an illieostomy. I went home after 28 days in the hospital; this was supposed to be a 3-4 day stay. They illieostomy was very difficult to deal with, but was giving me life, so I accepted it . Eight weeks later I returned to work. I felt horrible and left for what I thought would be a quick visit with my doctor. I had developed a peristomal hernia, one week later it became prolapsed. I was admitted for an emergency surgery for a strangulated stoma, also life threating, This hospital stay was also very agonizing, as my bowel was paralyzed, so I was throwing up a lot of bile, not pleasant at all. But the illesotomy was reversed. Again nine weeks into recovery, I developed a very large incisional hernia, they wanted to wait at least one year before any surgery, because my body simply couldn’t deal with it. This was a very long time to go with a lot of pain. So June 13th , 2006 I went in for a “complex insicional hernia repair, 2 hour surgery, 2-3 days in. Well the surgery was 6.5 hours and my stay was 11 days.(Med bills are now at $892, 00.00!!) After eight weeks of recovery time I finally returned to work. I clocked in 40 hours, didn’t feel well, called my Doctor, she immediately sent me to the ER, and the next day I had my Fifth surgery, bowel had snaked its way through and ripped through the alladerm (cadaver skin) that they used to correct the hernia. It has been 18 days into recovery, and I had to go see the doctor yesterday, running a fever, and very “strange things” are draining into to the Jackson Pratt drains. She put me on Keflex, and sent me home with Ultram. I have an appointment with my surgeon in two hours to get his opinion on my now bubbled, red, nasty looking incision. Wish me luck. Bottom line-DO NOT HAVE SURGERY UNLESS IT IS THE LAST RESORT!!!! I am having all this done at the Mayo Clinic, couldn’t imagine what could have happened else where. I have had it!!
Joanie

United States

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#4
Sep 14, 2006
 
My husband was diagnosied with Diverticulitis about three weeks ago. He was given and anitbiotic by injection, then ten days of oral antibiotics. He is doing better now but still very tired and weak. He has lost about 13 pounds or so. Since this is our first episode with this illness we don't know a lot of what to expect. Such as: How long does it take to recover from a bout of this? The doctor said the CT scan showed there was no abcess so that's good, just the infection I guess. Also, we have such conflicting advise about what he can and cannot eat. Any help you can give would be great. Thanks!
Leo

Ajax, Canada

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#5
Sep 15, 2006
 
Hi Joanie,

before my operation I had about 6 attacks, one of them I was hospitized for. I found that to much red meat almost the problem for me (a little was okay. Also to much pasta also triggered things. I found eating small meals where the key,I only had one attack after I started doing that. Of course I opted in for the surgery this year, which for me has been a dream. Other people on this site have had issues with the surgery. I am in week 8 since the surgery and feel great. I am back to hockey and running and have lost 30 lbs, I was 250, 6'1 before the operation. One thing to not on things I have been reading overweight people tend to have more issue after the surgery. I hope this helps.
Joanie

United States

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#6
Sep 17, 2006
 
Thanks Leo for your answer. At this stage, anything helps! I have another question that you or someone here might have an answer to. Most people say nuts are a no-no to eat with this illness. My husband LOVES nuts, especially on things. Today I have made a crustless organic pumpkin pie. We are wondering if it would be okay to pulverize nuts (grind them almost to the consistency of cornmeal) and sprinkle on top of the pie, oatmeal, or whatever?
Leo

Ajax, Canada

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#7
Sep 17, 2006
 
Joanie wrote:
Thanks Leo for your answer. At this stage, anything helps! I have another question that you or someone here might have an answer to. Most people say nuts are a no-no to eat with this illness. My husband LOVES nuts, especially on things. Today I have made a crustless organic pumpkin pie. We are wondering if it would be okay to pulverize nuts (grind them almost to the consistency of cornmeal) and sprinkle on top of the pie, oatmeal, or whatever?
Hi Joanie,

I have no idea.... I found that anything in excess gave me an infection, including alcohol. Does that sound werid but yeah..... Even when I went to a high fiber diet I still got the infections, so who really knows...I tried everything. From my experince, and what works now, moderation, smaller meals, more often. Thats what works for me. Good luck.
Sue

Minneapolis, MN

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#8
Sep 17, 2006
 
Hello everyone! I am glad I found this forum. I have been sick for the last four days with this. I am on the antibiotics-- the doctor suggested the Cat scan. I was going to pass on this unless I get another attack, but from what all of you are saying, i think I should have it done, huh? The pain seems to get worse with activity-- why is this? Joanie-- How is your husband feeling? Sue
Joanie

United States

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#9
Sep 18, 2006
 
Hi Sue, he is doing much better. Appetite is returning and no pain now. He still tires easily but other than that doing good. He is still watching what he eats carefully and trying to do what he is supposed to. He has been off the antibiotics a week yesterday. Get the cat scan. Even though the doctor thought it was diverticulitis, the CT scan shows more detail and they were able to tell there was no absesce (sp?) in his colon. So that is important I think. More serious if you have one. Hope you feel better soon. Connie
Colette

Rockford, MI

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#10
Sep 19, 2006
 
Hi All, Just to throw my two cents in. I have found the best thing to do is eat small meals 4-5 times a day. Try to stick with a bland diet. There is no “hard evidence” against nuts, and seeds, even though this used to be known as “the seed disease” I stay away from nuts, popcorn, and sesame seeds, and iceberg lettuce. I also am experimenting with Activa-(I hate yogurt!) but it has live “good” bacteria. There is also a product out there called Ultimate Flora-it is a PROBIOTICS-Lactobacillus, and Bifodobacteria-live good bacteria. This “good bacteria is also found in fermented dairy and vegetable foods, like yogurt, and sauerkraut. Good bacteria is essiential for a healthy digestive tract. Walking is the best way to exercise and relieve pain. I also find great comfort in a heating pad (or hand towel, wet with water, place in a gallon size Ziploc bag, and heat in microwave for 1.5 minutes-stays hot for about 20 mins) Watch your alcohol intake –especially true when on antibiotics such as cepro and flagel. In fact any alcohol with those two antibiotics will make you sick, such as hair spray, window cleaners, ect. I HIGHLY suggest a CAT scan, I feel it is of utmost importance, and insist on seeing it, it is yours, you bought and paid for it. It is one thing to be told what you have it is another to actually see, and understand what you’re dealing with. Side note for men in the midst of a severe attack…yep that’s what it feels like when a woman is in labor. At least that is clearly the way it felt for me. I am now 5 weeks post op…from 5th surgery, and am trying any and everything to not have to go through another attack or surgery.
Andrew

Grand Island, FL

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#11
Sep 19, 2006
 
Greetings! I was diagnosed in 1998 (age 45) with a severe case and immediately had to have the surgery. Over the next few years I still had very severe reoccurrences. I usually required hospitalization 1-2 a year. I tried all the diets restrictions, etc. I finally realized that the foods that cause reactions seems to vary greatly from person to person. Bottom line, you simply have to find out what bothers/irritate you. In my case I can handle some popcorn (Yea!), and strawberries. And I can tolerate beans, cooked cabbage, and sausage in small amounts. I have to avoid entirely nuts and alcohol! The good news is that I’ve gone two years without hospitalization. Remember DD varies considerately, not everyone gets symptoms, and the severity varies greatly. So consult your doctor and regarding diet, your body is the best guide. Best wishes to all.
Colette

Rockford, MI

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#12
Sep 19, 2006
 
I think one of the most important things to avoid, and it is seldom talked about, is constipation. Do Not allow ever yourself to get constipated! This forces fecal matter into those "out pouches" and your risk for infection sky rockets. Best to see and ASK your Dr. the best way to avoid it. P.S. One of the Biggest contributors to constipation is, of course, any type of pain medication. And please all of you keep one thing in mind...Attitude is Everything. Please, Please, Please, make sure you talk to your Doctor, ask them questions no matter how dumb you may think they are, if your Doctor doesn't take the time to answer them, find a new Doctor. Best Wishes and care to All.
Mike Z

Orlando, FL

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#13
Sep 22, 2006
 
Wow! I was told I need this surgery as I've had 5 attacks since November last year. Your post has me thinking that I don't want to go there - the "preventive" route. By any stretch, do you think your case is an "outlier?" Did you know any stats of how many are perfomed and how many of those are successful? I've had two botched shoulder surgeries in the last couple of years and I certainly don't want another surgery if I can avoid it, but these bouts, as you know, suck. Reading your post though.........we put a lot of faith in the hands of surgeons. Did you do homeowrk on yours? Do you think the surgeons messed up?

Thxs
Colette

Rockford, MI

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#14
Sep 26, 2006
 
Hi Mike, It's hard to know what really happened. But it just so happens I ended up with all the things that could go wrong did go wrong. Yes, do your homework. If you decide to have the surgery make sure someone is there to be your "bulldog" If it were not for my mother and sister being there they would have killed me a couple of times, wrong doses, wrong meds. At one point, they told me that I overdosed on morphine....ummm no they were one administrating it. Like I said before I was at Mayo Clinic, this is supposed to be one of the best in the world. Also check with your surgeon-interview them. They have different theories on wound closure, the first time my surgeon left the wound open to heal from the inside out, it was a huge gapping hole, I could fit a turkey in there, it required a lot of packing, it was just gross and very hard to deal with. I selected a different surgeon the next time, and asked a whole lot of questions. None of the surgeons here would do the operation laparoscopic, from what I have read on the internet that seems to be the most common practice. But from the research I have done and the other patients I met in the hospital, generally the surgery is very successful.
Joanie

United States

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#15
Sep 26, 2006
 
As you probably read on here a few posts back, my husband has recently been diagnosed with diverticulitis. He is recovering nicely, but if he eats very much his stomach gets really hard, especially on the sides. Has anyone else experienced this? Is it related? If you can shed any light on this, thanks.
Trish

Hattiesburg, MS

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#16
Sep 28, 2006
 
Joanie wrote:
Thanks Leo for your answer. At this stage, anything helps! I have another question that you or someone here might have an answer to. Most people say nuts are a no-no to eat with this illness. My husband LOVES nuts, especially on things. Today I have made a crustless organic pumpkin pie. We are wondering if it would be okay to pulverize nuts (grind them almost to the consistency of cornmeal) and sprinkle on top of the pie, oatmeal, or whatever?
My husband has many bouts with this disease and the doctors always say not to have nuts or anything with seeds that will get trapped and cause pain.
Joanie

United States

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#17
Sep 28, 2006
 
Thnaks Trish. He has been avoiding nuts and seeds in everything so far and he absolutely loves nuts. But, not worth a bout of this illness for sure!
Mitch

Havre De Grace, MD

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#18
Oct 10, 2006
 
My first experience with diverticulitis was constipation, barely being able to pass gas.
Everyone is different.... Get a colonoscopy. This will confirm it. Liquid diet for 3 days, cipro, and flagel will fix average attacks for me. After that do a bland diet for 3 days... baked potato, pasta, plain cheeseburgers
Stay away from seeds, nuts, and corn, and maintain a high fiber diet. Small meals are also important.
Too much fiber can be bad also. Figure out your body. When I am well, I take metamucil or benefiber once daily religiously.
My 83 yr old mother had the disease and had 18 inches of her lower intestine removed. Two weeks later she was eating tacos covered in hot sauce, while I salivated. For me the knife is next. Good luck..........
Comments......... He4mitchs@aol.com
Mike Z

Orlando, FL

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#19
Oct 11, 2006
 
Colette wrote:
Hi Mike, It's hard to know what really happened. But it just so happens I ended up with all the things that could go wrong did go wrong. Yes, do your homework. If you decide to have the surgery make sure someone is there to be your "bulldog" If it were not for my mother and sister being there they would have killed me a couple of times, wrong doses, wrong meds. At one point, they told me that I overdosed on morphine....ummm no they were one administrating it. Like I said before I was at Mayo Clinic, this is supposed to be one of the best in the world. Also check with your surgeon-interview them. They have different theories on wound closure, the first time my surgeon left the wound open to heal from the inside out, it was a huge gapping hole, I could fit a turkey in there, it required a lot of packing, it was just gross and very hard to deal with. I selected a different surgeon the next time, and asked a whole lot of questions. None of the surgeons here would do the operation laparoscopic, from what I have read on the internet that seems to be the most common practice. But from the research I have done and the other patients I met in the hospital, generally the surgery is very successful.
Thxs Colette,
Appreciate your response. I just saw this today. Sorry it's taken so long to get back to you. I'm scheduled to go in for surgery next Thursday, the 19th and to be quite honest, since I've felt so lousy for so long, can't wait to get it done. I can only be optimistic that things will turn out OK. I know it'll be a real drag in teh beginning, but I'm ready. I can't remember the last time I felt fine. I'll keep in touch.

Mike
Leo

Ajax, Canada

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#20
Oct 11, 2006
 
Good luck Mike.... If you need support were here I was done in July and feel great!! You will too.

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