POIScenter.com Announces Fundraising ...

POIScenter.com Announces Fundraising Effort to Combat Rare, Severely Debilitating Sexual Disorder

There are 11 comments on the AndhraNews story from Aug 21, 2012, titled POIScenter.com Announces Fundraising Effort to Combat Rare, Severely Debilitating Sexual Disorder. In it, AndhraNews reports that:

In an effort to combat POIS , a rare disorder that affects men, the POIScenter.com announces a fundraising event for medical research to help end the suffering of those affected by the disease.

Join the discussion below, or Read more at AndhraNews.


Barcelona, Spain

#1 Aug 21, 2012
This illness is a nightmare. We are trying to raise the awareness, because we are sure that some men are suffering from it and never have listened anything about the illness. I suffer from it since I was 18.

Bremerton, WA

#2 Aug 25, 2012
Hi, I am a nurse practitioner student getting my doctorate. POIS has taken most of my life from me and I have given up the rest to get where I am academically and professionally. Please help us by donating, so that we can cure this insidious disease.

Snook, TX

#3 Aug 26, 2012
Hello. I'm the RN and the Clinical Information Specialist at the non-profit, international organization that is sponsoring the POIS research grant.
POIS (post-orgasmic illness syndrome) is HORRIBLE! It has recently been officially recognized by NIH (USA) and Orphanet (Europe), but research funds for all rare disorders are scarce. Please donate for their research -- help give them back their lives.

Roanoke, VA

#4 Aug 26, 2012
Ever since I was about 13, this life-and-sanity-robbing illness has brought me suffering, agony, and depression. I have suffered mostly in silence because of the sensitive and embarrasing nature of the symptoms, but most tragically because doctors who have treated me have many times said it was mental, a problem I was creating.

I would be grateful if anyone read about what I am going through, and extremely gtateful to anyone who donated towards our research grant. Ask me anything. And thanks.

Since: Aug 12

Sherman Oaks, CA

#6 Aug 26, 2012
Visit POIScenter.com to find the best resource on the Planet for All Things POIS!

Chicago, IL

#7 Aug 26, 2012
I'm 27 years old and have been suffering from POIS for about 15 years. The symptoms are both physical and mental. They are real, they are consistent, and they are debilitating. I speak not only for myself but on behalf of hundreds of fellow POIS sufferers (visit POIScenter.com for more information on our active and engaged online community).

Limerick, Ireland

#8 Aug 27, 2012
Imagine if every time you had an orgasm you felt dizzy, disorientated and unable to think clearly. You forgot familiar words and recent events. You were irritable and utterly confused as to why this was happening to you. Over a few days you would become more normal if you avoided having another orgasm but, over time, this condition would wear you down. POIS is ruining people's lives and because there has not been significant research into this condition, patients cannot be diagnosed. Their claims are dismissed as hysteria or malingering, just like the sufferers of many previously undiagnosed illnesses.

Our research grant may not find a cure but if we can establish diagnostic criteria then we can help sufferers to stop living in shame. Every dollar you donate to our research will help restore dignity for sufferers! Please give everything you can.


#9 Aug 27, 2012
My POIS start when I was 19 years old. Since then my life have been terrible. I stay all the time in my home and I always feel terrible and with the sensation I couldn’t control my acts. I can´t have a relation with women because the disease make me avoid social relations and I avoid sex to not be sick. Because the doctors said that my disease doesn’t exist, I didn’t explain my problem to the doctors. My body is always tired and I feel depressed. All this symptoms improve a lot if a can stay a lot of days (10 or more) without ejaculation. This may seem easy for a normal person, but it´s very difficulty to who have POIS. I have noturnal emissions if I stay 7 days without ejaculation. After each ejaculation I became compulsive of sex and it´s very difficult to not have another in sequence ande become more sick. So it very hard to me because I´m always ill and I have to try to live that way. For you that can´t imagine how i feel it´s like 365 days of the year with flu and, besides, brain fod, depression, suicidal thoughs, muscle pains, extreme tired, diarrhea, sore throat… It´s impossible to have a good life with this disease, but I think that the cure will be easy to find with apropriate research. We only need money. If you can help us, we will be very glad…

Ishimbay, Russia

#10 Oct 8, 2012

Ishimbay, Russia

#11 Oct 8, 2012
Please help us very difficult for us to live.


#13 Jan 30, 2014
I've been on Effexor from http://goo.gl/3FuqC7 only one week but am cautiously very optimistic. Prior to this I was on citalopram but still feeling very low and sleeping poorly, feeling like I needed to be in bed 12-16 hours a day. Now I am waking naturally after only 8 hours sleep and finding it much easier to concentrate at work. I can hardly believe it is working so quickly but I feel so much better. I've had no side effects.

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