Ask Dr. Gott: MS drug needs more research

Dear Dr. Gott: I would like to inform you and your readers about low-dose naltrexone .

[Rene]

Dear Dr. Gott,
There is a whole community of "clinical trials" called LDN USERS! I know what my symptoms were, I know what they are NOT now! I've never ever been on CRAB drugs and I never ever will be. I'd just settle for NOT having clinical trials as they are often scewed and run by those that are looking for financial gain.- although with this drug being orphaned, that might not be the case. As far as I'm concerned I'd rather get the drugs from a compounding pharmacy anyway- they have always treated me so well and the cost is very reasonable. I have told many people about this drug... some are takers, others are not..You can only lead a horse to water... Note to your readers: advocate for yourself, read, research, study and go with your gut...

[Mike Doyle]

Low dose naltrexone (LDN) is helpful for many inflammatory diseases. I have Crohn's Disease. After eight years' therapy on Remicade at an out-of-pocket cost of $426 every eight weeks, it began to lose its effectiveness. I joined the Hershey LDN study and am enjoying remission. Until there's a cure, there's LDN. As of February 24, 2009 the Hershey clinical trial is no longer recruiting new adult participants. They are, however, still recruiting pediatric participants. If your kid has Crohn's you might want to check it out.

[Sacramento Copaxone user]

I was diagnosed with MS in late 2000. I use Copaxone, LDN, and 4-aminopyridine. I am an unblind study of one, but all my doctors have noted improvement.

[diane]

i take ldn for two years now and it is slowing the progression of m.s.
i would like to see more people have the change to take LDN.
but you know if it is fda approve most people can not afford ldn.