Dealing with depression with crohn's ...

Dealing with depression with crohn's disease

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Since: May 07

Grand Rapids

#1 May 7, 2007
I'm have a hard time dealing with my crohn's. I'm 41 years old and I want to do things that people my age do. I can't because I'm scared I might have a flare up and ruan everyones day. Thats why I just saty at hom all the time and because of that I'm having very bad depression to the point I don't want to live anymore. Any advise will really help me right know.

“Crohn's disease patient”

Since: May 07

Cincinnati

#2 May 7, 2007
Hi Angela,
I can really understand being very upset and depressed. I was just recently diagonised with crohns disease about a month ago and I'm still having alot of trouble excepting that I have this horrible disease. It just so nasty and gross and very un-predicitable. My advise to you is to stay strong and keep your head high. I know you said you worry about leaving the house but try wearing some protection I really believe if you went out and had a nice outting it would really help you start feeling better. One great day could mean the world to you especially now. Just wear some protection just in case so there's no added stress about the possible embarrisment and make the whole day all about YOU. I would also reccomend you check out another site called crohns zone I've found lots of support and advice there good luck hope you start feeling better soon keep me posted

Since: Jan 08

Nashville, GA

#3 Jan 9, 2008
Don't give up, I am 15 years old and was diagnosed with Crohns 2 years ago. And now I am leading a much healthier life than before and am generally contented with my life. Just make sure you are careful with what you eat, don't try foods unless you know exactly whats in it, and take that medication you need. And I agree with everything Stefani says above, keep your head high and never give up.
Wendy

Canada

#4 Jan 21, 2008
Angela, I have been living with Chrohns for the past ten years, Surgery about five years ago. Since then I haven't been the same. I have b12 shots by the doctor.
I know how you feel not wanting to leave the house. For the past 5 years I have been suffering depression and recently I have gone into theropy. Although I am very blessed to have a very supporting husband, how can I expect him to truely understand how I feel. Unless one has Chrons they can't possible understand how we feel and what we have to go through. Some days I tell myself somebody out there feels a whole lot worse than I do right now.

I feel that I don't even know who I am any more. I wear a mask and cover up when I am feeling. Life has just become a routine. I tired all of the time, I force myself out of bed everyday, plan my days outside of the house to pit stops (where are the washrooms along the way?) I go to the gym to feel better and I have less enery when I leave then when I left the house. Doing something is better than not doing it at all. But deep down I just want to sleep and not move at all.

The best is resturants the will not allow you to use their washroom even though it is a emergency. Many accidents... do to people saying I can't use their washroom. The pain, nausa, and now joint pain just becomes to much. Gravol is part of my daily routine.

But I find that holding on to tomorrow..I may have a ounce more energy than I do right now is something to look forward to. If get three days in a row where I feel great it is a blessing. I just remember somebody out there in our Chrons World truly understands how dark it can get for us living with this Chronis Chronic Illness with no cure.
Ashley

Nottingham, MD

#5 May 6, 2008
I have been living with Crohn's for a little over 2 years now. I know all about the depression. I was affected by it on and off for over a year, mostly at night when my thoughts had more time to wander. I found it imparative to have my family around me that was very supportive even though I was 20 years old when I was diagnosed. They really helped me get through the rough patches, when I felt like my life was over. I mean, it really sucked. I had to quit school in Florida and move back to Maryland and I had no idea of how my life would turn out. I had so many relapses in the first year that I was diagnosed that I wondered whether life was worth living; no I did not consider suicide, I'm not that messed up ;). Now that my medications are sorted and suited to my personal needs I am doing great and have been for almost a full year. Its been really nice to feel like myself again. So I hope that everyone suffering from Crohn's and the depression that tags along, comes to a point where they feel comfortable with themselves and get any help they need so they can live the healthy life they deserve.
Shannon

China Grove, NC

#6 May 7, 2008
I was diagnosed 1 year ago with crohn's. My sister has had it for 10 years, she's 31 years old, I am 35. It has been nothing but a horrible experience every day. It is a daily struggle to just get up in the mornings. I am glad I found this forum to help talk about my feelings. Thank God, I have my sister to talk with also.
Vickie

Gallatin, TN

#7 May 13, 2008
I am 55 and have dealt with disease since I was 16. I lost my colon 20 or so years ago and tried to have a resection, a pull thru and a continent ostomy to no avail. I ended up with short bowel syndrome.6 ft. and have to go to the bathroom ever 15 mins. some times every 5 with a large appliance attached to my stomach to contain it.I have to be fed vitimins and mins intervenously because my colon will not absorb them. I have to do that every other night or my kidneys will fail.
If you have your colon or if you have enough to absorb nutrients you are doing great in my book. Be sure to take vitimins you are losing.
Ask a nutritionist to check your blood for thing you are low in. They will not otherwise until you get like me. The vitimins have helped me feel so much better even better than when I had my colon. People say I look 40 vs 55 no one knows I have the pouch I go out A lot on the week ends and mingle. When I have to go I just disappear and come back. I am depressed about not having a boyfriend but just got out of a 4 year relationship with a guy that was 16 years younger than me. I dumped him. So chin up get some nutrients you and your doc. are not seeing you are losing and roll with all the punches. This disease makes you know life is not fare but what can we do? I just count my blessing a thank God that it is me and not my son or another loved one.
Jenn

Sault Sainte Marie, Canada

#8 Jul 16, 2008
I got diagnosed with Crohn's today. I am a little mad because I have been struggling with bipolar and borderline personality disorder since I was 14. Now I have this too to deal with. Well, I have learned to manage and advocate for people with my mental illness, so i guess I feel like maybe the reason I ended up with this is because I am suppose to advocate for this disease. I am a firm believer in positivity, and frankly I am going to manage it with diet, sleep, exercise, limiting my stress and positivity!!! I feel very sad for those of you that are depressed. I know what depression is like...I have bipolar right. The best thing I can tell you is to remind yourself that "this too shall pass". Based on the research that I have done today, it appears to me that this is a chronic condition but it has breaks. Well, use the same moto for your crohn's as well. If there is any information that anyone can suggest for me, or tricks of the trade please let me know I am very open to learning. Keep your head up, and remember that there is always a reason for things, find out what yours is.
Jennifer

Anderson, MO

#9 Jul 27, 2008
I was diagnosed with crohns when i was 15 i will be 25 in aug. I was having horrible pains in my right side and so i called my mom and she took me to the doctor well he thought it was my appendix so he told me to go to the emergency room and i did well i was put into surgery and nope it wasnt my appendix well they took it out just for the hell of it along with 8 in of my small and 5 in of my large intestine along with part of my colon and cyst off my overies and a big mass out of my stomach yea i was pretty messed up and now iam paying for it.. i know what you mean depression i just had a baby 7 months ago and also have a 3 year old and a wonderful husband but all i want to do is lay on the couch and i have to force my self to get out of bed.. I know what you mean about planning your day and where you eat on your stomach i give myself about 30 mins after i eat to be by a bathroom sometimes sooner if thats the first thing i have eatin all day and no eating if iam by myself with the kids they dont make bathrooms big enough for 3 people to squeeze into lol. I worry every day that my kids will end up with this horrible disease or i might end up with a colostomy bag because after i was diagnosed with it i found out that a lot of people in my family have it or a form of it. well i know things happen for a reason and so i try and keep that in mind but some days i just want to curl up in a ball and just cry but i just try and keep my head up and think of my kids.. Thanks for listening to me.. Always keep god in your heart and n your mind..
gail

Fredericton, Canada

#10 Aug 4, 2008
Hi I have a good site I go on Healing Well.com it is a great place to get help and support. I too live with crohn's and am doing good now. lol gail
Chris

United States

#12 Aug 16, 2008
I have noticed only men posting here. Is this a female only posting site?
Mandy

AOL

#13 Dec 24, 2008
I was diagnosed, after many months of wrong diagnosis, with Crohn's Disease. I was sick for over four years! vomiting profusely. I went 2 1/2 weeks without food. I lost 12 lbs. in 24 hrs. I have a severe case. I think,especially for a woman, this is a very hard disease to deal with. I'ts hard to hold a job! My Mother passed away in front of me, and I was very deppressed and alone for the past 3 years. Imodium A.D. works wonders, and makes it manageable. I understand now, how deppression links with this disease! It makes sense! Drinking, smoking, and fast food, is the enemy. Organic foods, yet very expensive, are worth it. I had surgery, right colectomy, almost 4 yrs. ago. took 2 1/2 feet of my intestines out!! I finally stopped vomiting. I dont get my nutrients, but much better than before. I'm always tired. and hungry!! I dont sleep well. There's no vitamin anywhere that can truly make you feel 100% Positive thinking works. Dehydration is like many times a year. in the hospital.I just turned 29. hoping my life will get better! Drinking bottled water is the best thing. all day. It's the best thing for your intestines. small meals, 6x a day, is also great. Stay away from the ruffage! soo good when you eat it, but you suffer for it for days! Whatever doesnt kill you, makes you stronger! My mom used to say that everyday. Live life to the fullest! Life is to short. Stay healthy~
Mandy

AOL

#14 Dec 24, 2008
I also wnted to say...Anxiety and deppression go with this disease. I get panic attacks. don't like to drive at night, or go aywhere alone, long driving trips are not an option. I have recently stopped drinking for 3 months, only drink wine now. trying to quit smoking ciggs, but its the hardest thing I ever tried to do! If you know, or think theres something wrong with you, or have been sick all your life,It's so much harder. I had open heart surgery when I was 17. I'd rather do it all over again, than deal with my Crohn's. This disease is horrible. My Fiancee' understands, and loves me... but does anyone else have no sexual drive, whatsoever? I am not on any meds, I dont understand why I have no sexual urge? at all. even when I'm feeling ok. Anyone else deal with this problem? I love my man and want to please him. he does everything for me. He pleases me in every way possible. Is sexual dissfunction part of this disease? hope I atleast helped one person. Is not wanting to do anything or go anywhere, also?
Ariel

Sarnia, Canada

#15 Dec 28, 2008
I was diagnosed with Crohns about a month ago after months of feeling awful, and I have no sex drive either. You're not alone, don't worry.
It's just probably the least sexy disease in the world, I guess.
LeeAnn

Morehead, KY

#16 Dec 29, 2008
I have experienced so many of the symptoms since being diagnosed with Crohn's. I can barely get up in the morning and a full week of work is almost unheard of. Part of it is that I don't have the energy to go to work. Part of it is the depression. Part of it is that I can't think well anymore.

How do you all deal with the Crohn's, the depression, and having to work?(not to mention having to deal with Crohn's while AT work).
Matt

West Des Moines, IA

#17 Jan 3, 2009
I have had chrons for about 18 years now...misdiagnosed for half that time. I too have had a surgery and been hopitallized a few times...A few things that work for me..Remicade every 4 weeks sometimes i can last up to 10 weeks. i think you can tell when you need it. I am fortunate to have a Dr. that sees it this way. Along with that I have found I need antibiotics about every 6 months now> I know my body well enough to tell whats changed. I also need Iron which is tough on our systems. I take a pill that is basically broken down and easy to absorb...cant remember the name right off hand but it costs $12 for 60 tablets at the pharm. Cleated or something..nothing else worked, but this gives me the energy I need...I can qlso tell when I need more due to energy loss. I have been thru the ringer, divorce and am a single parent with full custody..its not easy, but after feeling dead for so many years, I have had the last three be great, yeas I still have to worry, I never touch fast foods, I was a chef so I cook everything my self or try to...Find something a hobby or so that you can be happy with...you need it and deserve it....I have been slowly moving further south, started in Alaska and am in the midwest now...I have taken trips to Cali, Floridi and Texass...I dont now what it is but the sun helps soooo much> my next move will curtainly be to a sunny place year round...
I have been on so many different meds that are just poison....and really did nothing but give me a false sense of energy..ie prednisone...and some of the othe chemos they give us in pill form..It takes trial and error on foods...find out if you have ciliac spruce disease too and if you are lactose intolerant....these are common with chrons patience but not all of us suffer from them.
Good luck, and keep smiling. change doctors if the ones you have dont listen or dont seem they know enough about your suffering...there is a world of a difference between a great doctor that listens and a D+ doctor who thinks they know it all and wont listen to you....yer life is worth it.
Peace, MK
Sara

Mentor, OH

#18 Apr 25, 2009
I was diagnosed my first semester of my freshman year of college. I kept going. I had surgery over winter break. I kept going. I had to leave my sophemore year to have surgery. Then I moved around a lot working with horses. Long story short, my family does not understand. They think I make bad choices, and that I am a failure. I have always given 110%. Now I am sick, and I don't know how to explain that to them. It's very frustrating. I already feel bad enough. I just remind myself that I can't expect them to understand. I could have never imagined how terrible(for lack of a better word)this disease could be. I'm livin' life, doin my thing. Surround yourself with good people.
Mike Doyle

Centerburg, OH

#19 Jun 27, 2009
My doctor prescribed trazodone for me. I'm much happier and sleep better.
Jason

Eden Prairie, MN

#20 Aug 1, 2009
Angela Holme wrote:
I'm have a hard time dealing with my crohn's. I'm 41 years old and I want to do things that people my age do.
I know I'm responding late... If you're still struggling, or for others who just found this and are in a similar spot as Angela.

I hear you on things being difficult with Crohn's.
Before I ask my questions of you I'll share a little about my experiences with it. I'm 38 and have had it since I was 12... 3 surgeries, tried a TNF-alpha suppressor, made me feel like hell... Purenithol (6mp) seems to stop working after a while and then only damages the liver. So I've been off and on steroids most of my life now. It's been an unpleasant journey at times. But I try not to lose focus, and fixate on the bad...

So, the big questions you need to answer for yourself are:

#1. What are the chances you'll get a flare that ruins everyones day?

I suspect it ruins your day more so than anyone else's. If it's low to midling, then you should get out as much as you can. However, you might need to compromise. In my case - among other things - I can't ever trust my gut enough to be very far away from society, despite my love of being out in the woods...

#2. What things do you enjoy that aren't substantially impacted by having to make a run to the restroom; or having to bail out on people because your health took a nose dive?

Preceeding my last surgery I was in a band, and karate...etc. I made great friends doing those activities. I had high hopes that after the surgery, I could resume these hobbies. No such luck. So I did some soul searching to find other hobbies and ultimately other groups of friends to spend time with. It's wasn't easy, but it was necessary for my emotional health.

#3. What's the main reason you're depressed? This is something you may need some professional assistance in pinning down. Counselors are wonderful people to talk to and help you work through underlying issues with depression. I've got first hand experience with Major Depression (and Generalized Anxiety to boot!) Depression is a horrible thing to have, regardless if it's acute or chronic. In my case I needed medication too. Don't rule out any options on getting help in dealing with depression!

Best of luck to you!
Jason

Eden Prairie, MN

#21 Aug 1, 2009
Sara wrote:
... my family does not understand. They think I make bad choices, and that I am a failure. I have always given 110%. Now I am sick, and I don't know how to explain that to them....
Sara,
If you have a good GI doctor who is willing to have family sit in and listen and discuss concerns with your doctor, that might be worth a try... But you know your family best.

Here's A metaphor I've used when explaining what the cramping pain from partial obstructions is like: "It's like someone has kicked me in the gut really hard, and their foot is still there. I also feel like I might puke at any minute."

For the all over body aches I get too I've explained it as, "Imagine the worst body aches you've had from a flu bug. Now take away the fever... and any of the energy you might have had with that flu too."

For the arthritis like joint aches I've used "You know when you see little old men or women hobbling around because of arthritis. I imagine what I'm feeling is a lot like that." (In reality, it is almost the exact same kind of pain!)

For the extended and painful restroom breaks I need to take I've explained it a couple of different ways. "I nearly achieve lift off, for about 20 minutes. It usually feels like I've torn something..." or "Have you ever projectile vomited from food poisoning? Well imagine that, only not happening out the mouth, and it lasts about 20 minutes... sometimes longer."

For the actual all night fits of vomiting I've explained it as "Well... I puked all night. I passed out once or twice from exhaustion. I nearly choked to death on my own vomit. I kept dry heaving until blood came up. That was at hour number four. It lasted another four hours. Oh yeah. And my gut decided to send the mostly digested, nearly fecal matter all the way up from the lower reached of my small intestine. Other than all that it was a walk in the park. You really should try it some time."

When asked about the over all effect of the worst of it, I summarize it as "My body tortures me. I'm not exaggerating when I say I'm pretty sure I could keep a government secret and laugh at the low level torture the enemy might start with..."

Some of the above is hyperbole... but it's not an extreme exaggeration from what I've been through. I'm pretty sure anyone who's had Crohn's for a couple decades has had similar fits as to any of the above that I've mentioned. Hopefully when people are slapped in the face with how brutal this disease can be, they will wise up and realize that anyone with it has far more challenges in their life than most people will ever have once they're elderly... and those of us living with active Crohn's will be doubly blessed once we're elderly... we'll get all the other "fun" that mother nature has in store for everyone who grows old.... of course we're more well practiced at coping so we'll fair better than our healthy counterparts. ;-)

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