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Sharon

Las Vegas, NV

#1 Mar 13, 2007
I have developed arthritis as a result of my crohn's disease which is very painful. Has anyone out there done the same thing? I would be interested to know.
Chris

Pittsburgh, PA

#2 Mar 13, 2007
Hi Sharon, yes, I too have developed arthritis as a result of my Crohns Disease and it is very painful. I didn't know at first that they were related but at 34 years old I knew I wasn't supposed to have this severe arthritis pain, and I don't know about your condition, but my arthritis moved all around, one day my wrist, the very next day my toes, it was crazy. I was on Naproxen for the pain and Steroids for the crohns, It was not enough. I am now on Remicade and it helps me in both my crohns and my arthritis symptoms. Actually while checking out the CCFA sight I just saw that the FDA just approved Humira for crohns treatment, it was previously used for arthritis treatment. I think more doctors are realizing that patients like us with moderate to severe crohns are developing arthritis as another one of our horrible symptoms. I recommend Remicade or maybe you can try the Humira. I don't know much about Humira but the couple draw backs with Remicade is it's super expensive ($3,000.00) a treatment, you have to go every 8 to 10 weeks and it kills your whole day, (4 to 5 hours) at a clinic for your infusion. It does work though, hope I could help.
Lea

San Diego, CA

#3 Mar 23, 2007
I also had really bad arthitis that at first I didn't realize was connected to crohn's. I did some research and discovered it is pretty common in people with crohn's. Anyway, I have been on 6-MP for over a year now and my arthritis symptoms have completely gone away!
kim

Rocky Mountain House, Canada

#4 Mar 31, 2007
Chris wrote:
Hi Sharon, yes, I too have developed arthritis as a result of my Crohns Disease and it is very painful. I didn't know at first that they were related but at 34 years old I knew I wasn't supposed to have this severe arthritis pain, and I don't know about your condition, but my arthritis moved all around, one day my wrist, the very next day my toes, it was crazy. I was on Naproxen for the pain and Steroids for the crohns, It was not enough. I am now on Remicade and it helps me in both my crohns and my arthritis symptoms. Actually while checking out the CCFA sight I just saw that the FDA just approved Humira for crohns treatment, it was previously used for arthritis treatment. I think more doctors are realizing that patients like us with moderate to severe crohns are developing arthritis as another one of our horrible symptoms. I recommend Remicade or maybe you can try the Humira. I don't know much about Humira but the couple draw backs with Remicade is it's super expensive ($3,000.00) a treatment, you have to go every 8 to 10 weeks and it kills your whole day,(4 to 5 hours) at a clinic for your infusion. It does work though, hope I could help.
I was wondering if you know if Humira has been approved for crohn's in Canada? I would appreciate knowing.
kim

Rocky Mountain House, Canada

#5 Mar 31, 2007
I was wondering if you know if Humira has been approved in Canada for crohn's disease. I would really appreciate knowing that.
mike

Reno, NV

#6 Mar 31, 2007
Sharon wrote:
I have developed arthritis as a result of my crohn's disease which is very painful. Has anyone out there done the same thing? I would be interested to know.

Yes i have developed bad arthritis too.
TO where i could not walk.
I have been eating plaintain bananas about
4 a day and I think they are working very good try it it may help.
they are going to take this type of banana and make a medicine out of it.
Jamie

Greensburg, PA

#7 Apr 24, 2007
I am going through a severe flare of Crohn's right now--my 3rd since being diagnosed in 1999. I had remicade the last time, which was shortly after its approval for use in Crohn's and it gave me over 3 years in remission. Back then, they were not using it as an on-going treatment so I was on azathioprine as a maintenance drug. This time all the steriods (including during a hospitalization) and other drugs have not worked. My doctor was waiting for the re-dosing/packaging of Humira but it has gotten delayed. I will be starting Remicade next week but with the idea that I will switch to Humira as soon as it becomes available. The reason I'm saying this is because they have decided that Remicade should really be held out as a treatment for as long as possible. They have discovered that you build antibodies to it over time and it will become less effective and it increases the chances of a dangerous infusion reaction. Humira is not thought to have this same problem, but of course, that is what they said about Remicade. As far as arthritis, I too have experienced it. I actually didn't know what it was when I was first diagnosed at 29 years of age. I find now that the pain works like a gauge as to the progression of my disease. When I am doing well, I don't have much pain and vice versa. The exception to this is sacroileitis. I hear it's very common in Crohn's and always seems to be hanging around to some degree for me. For this type of localized pain, I get periodic injections of a steriod and then use a lidoderm patch in between--it just numbs the area.

Since: Apr 07

Brooklyn, NY

#8 Apr 29, 2007
Well, both colitis and arthritis are considered autoimmune diseases, so that's not a surprise - I've heard of many ppl who have developed both..

Have you considered doing some detoxing/cleansing to get rid of the toxins in your body? I don't know if toxins are an issue, but in many cases they can lead to serious ailments internally.

You can do cleansing by making your own P&B shakes (Psyllium Husk and Bentonite Clay), or by getting a cleansing kit somewhere... I'm sure there are great options out there.

I just googled a page with a review of some of the most popular cleansing kits:

http://www.colonzone.org/best-colon-cleanser....
Sunny

Las Cruces, NM

#9 Apr 30, 2007
Fiber can sometimes cause problems for Crohn's patients. I loosely follow the specific Carb diet (SCD) in "Breaking the viscious cycle" and it really helps the digestive problems. Before I discovered that diet, when symptoms got real bad I would just fast on a liquid diet for 3-5 days (better than 3-5 days on an IV with an obstruction). That's when I tried the SCD diet, with great results. However I still have some arthritis that comes and goes. All I've found that really works is 2 Tylenol plus 2 glasses of wine and a heating pad. Not something you can do at work, they jsut don't understand.
Lisa

Cedar Rapids, IA

#10 May 3, 2007
I have had crohns for 21 years, just had my 1st surgery 2 yrs ago. Was having problems after surgery and was put on Remicade. All other meds didnt work any longer. I was able to take it for 1 yr before i built up antibodies to it and was taken off immediately. I was put on Humira and was able to take 3 injections and was taken off. MD seems to think that I had so many antibodies already from the Remicade that my body fought off the Humira, so now my only option at this time is my Imuran. Had unexplainable pain other over my body that moved around from day to day with the Remicade and i ended up with rashes at all of my injection sites which I still have from 5 weeks ago.I can say that I felt pretty good on the Remicade while I was on it and wasnt on the Humira long enough to tell. Both are very expensive and the Humira was difficult to get through my insurance since it is so new.
Stefani

Cincinnati, OH

#11 May 4, 2007
I too am experancing some pain in my lower back and my right knee. I'm not sure if it's arthritis or not it seems to come and go.
Angela Holme

Grand Rapids, MI

#12 May 7, 2007
Hi I'm on remicaid too, but it's starting to not work because i've been on it for so long. I've been taking remecaid for about 2-3 years, and now I'm starting to have slare-ups about every week. My doctor want me to try the capsule but I can't do the prep any more. Every time I start to do the prep I just start to throw up. By being on steroids for 3 years I've developed a detereating dise in my lower back. My doctors descovered that my arthirities was Fybermialgia, and yes you hurt from your fingers all the way done to your toes. I don;t know whats left for me to do. Any Ideas will help.
sara

Ghana

#13 Jun 6, 2007
Hi, I'm on Humira and it was working but I've now relocated to Africa and have discovered that i can not buy Humira here. I am trying to find a courier service to transport Humira into Africa for me, so far without any luck, since it must be transported cold. Does anyone know how quickly anti bodies to Humira can build up in the body? I expect to be in Canada in september when I can purchase Humira but i'm worried I would have built up anti bodies by September. Grateful if anyone can answer my question.
Krysty

Yonkers, NY

#14 Jun 29, 2007
I am a 24 year old woman and have
Crohn's only in my large intestine and have joint swelling in my leftfoot and my right knee. I am on Entocort for the Crohn's and on indomethacin for the arthritis. I started with joint swelling first and Doctor's didn't know what was wrong with me and after 6 months they figured out it was CRohn's. it is terrible, the arthritis is soo painful and my knee swells to the size of a bowling ball and my toes get fat and it is painful. anyone have this and what are they on?
becky phoenix az

United States

#15 Jul 20, 2007
Hi! My name is Becky and I'm 45 years old and I have had Crohns disease for 20 years. I was on Remicade for a year and it did help me more than the other meds I have been on over the years. But I was worried about the long term side effects. I've been on the gammit of other meds; prednazone (steroids) being the most frequent because it was the only thing that would bring me out of my flares. 6 years ago I had a fistula in my colon so they did a resection and took out 18" of my colon. I've always had severe stomach pain, diahrea, joint aches, vommiting and at one time a 50lb. weight loss (92 lbs) but today I am 98% symptom free and 100% pain free and living a normal life. A friend of mine from childhood told me about a nutritional drink that has changed my life. I am grateful to the person who has helped me get to this place and I am here to help other people who are looking for an easy and all natural way to get healthy. Please contact me and I will be happy to give you more info. My email is ifeelgreat4@yahoo.com.
helminthic therapy

Felton, CA

#16 Aug 26, 2007
has anyone here considered helminthic therapy? It has proven effective and safe for Crohn's and if one reads between the lines there is reason to believe it might be effective against RA, too. Both are inflammatory diseases due to autoimmunity, helminthic therapy modulates the inflammatory immune response.

http://en.wikipedia.org/wiki/Helminthic_thera...
Ellie

Fort Myers, FL

#17 Oct 13, 2007
Im 15 years old and was diagnosed with ankylosing spondylitis, crohns,(ulcerative colitis) and antiphosphate lipid syndrome about five years ago. Ive tried all of the medications available so far - methotrexate, enbrel, humira, 6mp, and remicade.

i currently take remicade, and have for almost a year. i also take methotrexate, but sadly the mixture doesnt seem to work too well. along with those i also take: bayer asprin, valtrex, protonix, celebrex, asacol, synthroid, and zyrtec.

apparently all of my problems go hand-in-hand (says my doctors)- i have frequent troubles like the regular aches, pains, and stomach stuff BUT in addition i also have frequent bouts of herpes in my eye, throat, etc (ive had this since i was a baby) and am just prone to every infection in the world! i feel hopeless =[
Dee

Sevierville, TN

#18 Nov 12, 2007
I have been on Humira for 2 years and I started medicare this month and find that I cannot continue to use Humira at the price that is charged. Does anyone know anywhere in the world that Humira could be bought at a lower price?
Jrp

Nu▀loch, Germany

#19 Nov 27, 2007
Currently in Europe and trying to find a business, company or reseller that i can buy Humira from. I don't have insurance. any help is appreciated!
probable

Miami, FL

#20 Dec 9, 2007
Call the drug company directly. You may qualify to receive Humira or remicade for FREE!

If you are in medical debt because of any disease you can also call the billing departments of your medical providers and tell them your story and pay off your bills in payments each month with NO interest charged. Sometimes they will cut deals and forgive some or all of your bill. They are required to do so much pro bono work throughout each year. Write letters. Call your pharmacies, the drug companies, your Dr.'s, ask for help when you need it!

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