Antibiotics offer hope for Crohn's pa...

Antibiotics offer hope for Crohn's patients

There are 17 comments on the Orlando Sentinel story from Dec 2, 2007, titled Antibiotics offer hope for Crohn's patients. In it, Orlando Sentinel reports that:

Doctors are trying a new strategy to treat Crohn's disease, an often-debilitating digestive condition that typically strikes in the teens or 20s and causes lifelong problems.

Join the discussion below, or Read more at Orlando Sentinel.

Sick of it All

Lakeland, FL

#1 Dec 2, 2007
"He worries that drug companies, which typically don't make as much money on antibiotics, will not be interested in investigating their wider use in Crohn's sufferers."

It figures...it's all about the money and how much medical insurance companies can be milked for, and not about the welfare of the patient.
Ramunda

AOL

#2 Dec 2, 2007
This is interesting reading, and an understandable treatment. I agree with the information. However, my daughter, who is 25 yrs old, has dealt w/Crohns & ulcertive collitis since she was 13. Had her colon removed, and now for 4 yrs with Crohns. My problem is she is on disablilty and has Medicaid. And where is she supposed to get the care she needs? She is past around by one Medicad doctor to another saying that she is to difficult of a case to handle. Now she has RA and no one is on Medicad who handles RA, also she may now have Lupus???, but she is in so much pain and no one wants to treat her. They think she is after only pain meds!! Ya! She in pain! There doesn't seem to be anyone who wants to look at the auto ammune system and really find out whats going on.(even though they are all linked) I ask if there is anyone else out there in this same situatuin? I'm sure there is. So I ask, is there anyone who can help with this? Please let me know.
Janice

Clearwater, FL

#3 Dec 2, 2007
Ramunda wrote:
This is interesting reading, and an understandable treatment. I agree with the information. However, my daughter, who is 25 yrs old, has dealt w/Crohns & ulcertive collitis since she was 13. Had her colon removed, and now for 4 yrs with Crohns. My problem is she is on disablilty and has Medicaid. And where is she supposed to get the care she needs? She is past around by one Medicad doctor to another saying that she is to difficult of a case to handle. Now she has RA and no one is on Medicad who handles RA, also she may now have Lupus???, but she is in so much pain and no one wants to treat her. They think she is after only pain meds!! Ya! She in pain! There doesn't seem to be anyone who wants to look at the auto ammune system and really find out whats going on.(even though they are all linked) I ask if there is anyone else out there in this same situatuin? I'm sure there is. So I ask, is there anyone who can help with this? Please let me know.
We have a nephew who has Crohns at age 17, and is due for some injections tomorrow. His Mother has Lupus and it is a very difficult situation.
I have been reading about anti-inflammation foods and their relationship to different inflammatory diseases on a cellular level. The more I research, the more logical it sounds. Would something like that help your daughter with symptoms?
schmed

Winter Garden, FL

#4 Dec 2, 2007
Would the writer of this story care to elaborate on which antibiotics Dr.'s are prescribing along with the strength and length of time?

These to me seem to be the simplest and most pertinant questions that this reader needs answered without having to research it in less than ten seconds myself. I thought that was the medical staff writer's job.
Dataperson

Eddyville, KY

#5 Dec 2, 2007
Ramunda wrote:
This is interesting reading, and an understandable treatment. I agree with the information. However, my daughter, who is 25 yrs old, has dealt w/Crohns & ulcertive collitis since she was 13. Had her colon removed, and now for 4 yrs with Crohns. My problem is she is on disablilty and has Medicaid. And where is she supposed to get the care she needs? She is past around by one Medicad doctor to another saying that she is to difficult of a case to handle. Now she has RA and no one is on Medicad who handles RA, also she may now have Lupus???, but she is in so much pain and no one wants to treat her. They think she is after only pain meds!! Ya! She in pain! There doesn't seem to be anyone who wants to look at the auto ammune system and really find out whats going on.(even though they are all linked) I ask if there is anyone else out there in this same situatuin? I'm sure there is. So I ask, is there anyone who can help with this? Please let me know.
You may want to contact the Information Resource Center of the Crohn's & Colitis Foundation. Topix won't let me post their phone number for you because they don't 'condone it',how very helpful of them. So you can find their phone number by going to the CCFA website at http://www.ccfa.org or you can send an e-mail message to [email protected] They may be able to direct you to someone local who can help.

Besides funding research, CCFA also acts as an advocate for patients. One thing they are doing is trying to get the US government to understand all the different treatments that patients need, so patients won't be denied Medicaid or Medicare. Be sure to tell whoever you talk to that you have this problem.

As far as the connection with Lupus - one of the terrible problems with Crohn's is that it has so many symptoms it can be mistaken for other inflammatory diseases like Lupus. It can take up to 7 years for someone to be diagnosed with Crohn's.

I was tested for Lupus twice before my intestines began to show the major symptom that is dominant in my family (major blood loss).
Serious joint pain is also a symptom of Crohn's and sadly some of the meds that work for the intestines can cause more damage to the joints.

CCFA has lists of doctors in each local area who are members. CCFA isn't allowed to recommend a particular doctor, but can give a list, and you may be able to find one your daughter hasn't gone to, who will be open to listening to her and not simply telling her he can't handle her case.

A good gastro doctor knows that Crohn's has many complications that don't even involve the gut, so he or she should be able to handle all of that. An example: spinal arthritis called spondylitis can also be part of Crohn's, and steroids taken to manage Crohn's can make spondylitis worse.
CCFA also has support groups around the US, so you may be able to find one locally where your daughter can talk to other patients for suggestions about pain relief that they've tried. I've only lived here a short time and don't know of any support groups here.

I wish you and your daughter the best. This is a very tough disease, no question and still not very well understood, even by doctors. For sure it isn't understood by the nonmedical bureaucrats who decide what to pay for at insurance offices or government offices for Medicaid and Medicare...
11 yr old on MAP therapy

Guelph, Canada

#6 Dec 4, 2007
My son was diagnosed with Crohn's at age 9 and went the traditional med route with no success (but so many horrific problems) and was then offered immune suppressant drugs (which are risky). I knew of this antibiotic treatment 2 yrs ago and followed up with my own research and insisted my son be allowed to try the antibiotic therapy before I would consider immune suppressants (due to their serious life threatening risks for children). We have experienced an almost full recovery but also had a long way to climb out of the crohn's pit because his disease had progressed to severe by the time we started the MAP antibiotics. His disease is under control now and he has resumed a normal life. Thanks to Dr Chamberlin and his staff for their dedication and perseverence to the alternative therapy they offer. There is no cure but there are treatment options and this has been a real life saving/restoring one for our son. It has almost been one full year on the meds and I am scared to take him off the antibiotics because I don't want the Crohn's to return. My son tested positive for the MAP bacteria and I agree that this is the right approach for some sufferers.
ELois Poole-Clayton

United States

#7 Dec 4, 2007
I pray that you are very careful with the use of antibiotics for, as we all know, to be on them for an unspecified amount of time, without being monitored, could be dangerous. As you know, vitamin ficiency, is significent to a persons well, being as well. It seems that this is a very noticable time for all medications. I want to believe that doctors are learning more about what really works for patients, but at the same time, many patients are still being preyed upon. I hope that they all get it together and really allow their talents be used in a positive productive way, as "intended".
Nathan

Clearwater, FL

#8 Dec 5, 2007
Can any of the symptoms be alleviated by diet?
I ask this because of friends who have used the ketogenic diet for their son's seizures. I am wondering if certain foods can provoke exacerbations of the disease.
Crohns for over 46 years

Australia

#9 Dec 5, 2007
I live in australia.
I have endured the torture of Crohns disease for a very long time.
I have tried everything..........I have researched, eaten almost every supplement etc.....and still have the burning chronic diarrhea.
When will a cure be found..........
Kind regards,
Carmen spence
[email protected]
CANADIAN COMPANY

Surrey, Canada

#10 Jan 19, 2008
PROBIOTIC-LAB.COM

Helps my sister for her chrons.
Costly product,but good.
Reality

Candelaria, Spain

#11 Feb 3, 2008
THE CAUSE OF CROHN,S DISEASE IN YOUTUBE
http://es.youtube.com/watch...
pkhogue

North Houston, TX

#12 Mar 6, 2008
11 yr old on MAP therapy wrote:
My son was diagnosed with Crohn's at age 9 and went the traditional med route with no success (but so many horrific problems) and was then offered immune suppressant drugs (which are risky). I knew of this antibiotic treatment 2 yrs ago and followed up with my own research and insisted my son be allowed to try the antibiotic therapy before I would consider immune suppressants (due to their serious life threatening risks for children). We have experienced an almost full recovery but also had a long way to climb out of the crohn's pit because his disease had progressed to severe by the time we started the MAP antibiotics. His disease is under control now and he has resumed a normal life. Thanks to Dr Chamberlin and his staff for their dedication and perseverence to the alternative therapy they offer. There is no cure but there are treatment options and this has been a real life saving/restoring one for our son. It has almost been one full year on the meds and I am scared to take him off the antibiotics because I don't want the Crohn's to return. My son tested positive for the MAP bacteria and I agree that this is the right approach for some sufferers.
My son also sees Dr. Chamberlin. He has only been on antibiotics for a few weeks. I sure feel sorry for the children who don't get the treatment they deserve.
TMaalouf

Butler, PA

#13 Mar 8, 2008
11 yr old on MAP therapy wrote:
My son was diagnosed with Crohn's at age 9 and went the traditional med route with no success (but so many horrific problems) and was then offered immune suppressant drugs (which are risky). I knew of this antibiotic treatment 2 yrs ago and followed up with my own research and insisted my son be allowed to try the antibiotic therapy before I would consider immune suppressants (due to their serious life threatening risks for children). We have experienced an almost full recovery but also had a long way to climb out of the crohn's pit because his disease had progressed to severe by the time we started the MAP antibiotics. His disease is under control now and he has resumed a normal life. Thanks to Dr Chamberlin and his staff for their dedication and perseverence to the alternative therapy they offer. There is no cure but there are treatment options and this has been a real life saving/restoring one for our son. It has almost been one full year on the meds and I am scared to take him off the antibiotics because I don't want the Crohn's to return. My son tested positive for the MAP bacteria and I agree that this is the right approach for some sufferers.
It is exciting to know that your son has responded to the antibiotic therapy prescribed by Dr. Chamberline and I am happy for you. I have a similar situation with my son who is 11 year old also. we tried the helminthic therapy for almost one and a half year with decent response but he had 2 or 3 minor relapses. Currently he is not gaining weight. What antibiotics did Dr. Chamberline put your son on. and what was the dosages? Did he develop any side effects and what were they?
Ezio Crescenzi

Toronto, Canada

#14 Dec 5, 2008
I agree with the comments on the use of MAP antibiotics. Dr. John Herman-Taylor from from St. George's Medical School in London England is currently testing a vaccine for the DNA of the MAP bacteria in human subjects in England. I believe that they are half way through their study and should hopefully be publishing their results soon. There is a great editorial published in the Journal of Medical Microbiology - Vol. 51 (2002), 3-6 that speaks to the dileman our society is facing if the cause of Chron's and IBD is the MAP bacteria but this should not stop our society from working to eliminate this pathogenic bacteria from our food chain.
Ezio Crescenzi

Toronto, Canada

#15 Dec 5, 2008
Dr. Herman-Taylor also published an article in the Journal of Clinical Microbiology in Dec., 2007 comparing Chron's disease and IBD with Jones Disease with respect to their common pathogenicities.
nena303

Shirley, NY

#16 Jul 16, 2010
please people DO NOT take antibiotics they are what cause the illness in the first place! yes doctors say there is "no cure" and you have to "learn to live with your disease" well thats all bs they just want to drill all that into your head but the truth is if you want to get cured you CAN! the problem is your body's whole immune system got low bc of the antibiotics bc doctors dont tell you that you must take probiotics after bc they arent true doctors i call them "prescription writers" all they are taught is what drugs to give to what symptoms! your whole bodys balance is all thrown off they say your immune system is "overactive" and yes that is true but its because the body is on overdrive trying to kill the fungus the antibiotics bought into your stomach. the truth is that your bodys immune system was low before the antibiotics but the antibiotics only made it lower. please educate yourselfs before believing any doctor! google what i have said and you will get a better explanation sorry its not that great but if you really want to get cured then trust me ;)

p.s. just heard on the news they might make a law banning antibiotics in livestock... hmmmm wonder WHY!
Traci Richard

Greenville, SC

#17 Oct 8, 2012
11 yr old on MAP therapy wrote:
My son was diagnosed with Crohn's at age 9 and went the traditional med route with no success (but so many horrific problems) and was then offered immune suppressant drugs (which are risky). I knew of this antibiotic treatment 2 yrs ago and followed up with my own research and insisted my son be allowed to try the antibiotic therapy before I would consider immune suppressants (due to their serious life threatening risks for children). We have experienced an almost full recovery but also had a long way to climb out of the crohn's pit because his disease had progressed to severe by the time we started the MAP antibiotics. His disease is under control now and he has resumed a normal life. Thanks to Dr Chamberlin and his staff for their dedication and perseverence to the alternative therapy they offer. There is no cure but there are treatment options and this has been a real life saving/restoring one for our son. It has almost been one full year on the meds and I am scared to take him off the antibiotics because I don't want the Crohn's to return. My son tested positive for the MAP bacteria and I agree that this is the right approach for some sufferers.
Please let me know if your on I still in remission and please send me the dictors contact info

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