Fecal bacteriotherapy - Human Probiot...
Olga

Castle Rock, CO

#63 Oct 26, 2010
I'm looking for a doctor or clinic who would do HPI on a 9 yo child with Ulcerative Colitis and Chrons. It could be out of US as well.
Please help!
Bev

Eugene, OR

#64 Oct 26, 2010
Olga, Im told they are doing HPI in Carson City, Nevada.
Ami

Ottawa, Canada

#65 Oct 26, 2010
Steve wrote:
I have a copy of Borody's protocol for Home Infusion if anyone is interested. I understand that quite a lot of people do this at home on thmeselves with good results. Personally I would rather have it done by a hospital but maybe on balance it is better than having to travel to Oz.
Thank you very much Steve for the protocol. We are looking in to it to do at home because we have done it before however not taken all the steps he mentioned. First of all, I am not sure if we can get the antibiotics without perscription. That is the key to this protocol. When we did the first time, we did at the doctor's office and neither antibiotic nor colon cleansing was done and we kept the sample for long hours. We would try again however I assume it will be difficult to get the priscription. We will try with our family doctor however I am not sure.
We will let you know.

Thank you very much.

ami
Steve

Redcar, UK

#66 Oct 26, 2010
Ami wrote:
<quoted text>
Thank you very much Steve for the protocol. We are looking in to it to do at home because we have done it before however not taken all the steps he mentioned. First of all, I am not sure if we can get the antibiotics without perscription. That is the key to this protocol. When we did the first time, we did at the doctor's office and neither antibiotic nor colon cleansing was done and we kept the sample for long hours. We would try again however I assume it will be difficult to get the priscription. We will try with our family doctor however I am not sure.
We will let you know.
Thank you very much.
ami
Ami - you will need a prescription for the antibiotics. Good lcuk and let me know how you get on.
Steve
Jeneva

Tacoma, WA

#67 Nov 15, 2010
dave wrote:
I am 1 year post a successful infusion performed at home. I had c diff not colitis but it was hell. I was 100 percent healthy 2 days later and have remained so. This is a link for an article I wrote explaining step by step the at home version, which is nearly identical to what the doc will do.
http://www.ehow.com/how_5181693_cure-infectio...
and this is the link to the Duluth doc who performs it in his office.
http://www.duluthclinic.org/specialtycenters/...
I have had UC for almost 20 years and am very intersted in this therapy, but I could not find the article as this link redirects to a general page. Could you please send it to me? my email is [email protected]
Bev

Eugene, OR

#68 Nov 15, 2010
Bev wrote:
<quoted text>
UPDATE! I had HPI done yesterday 10-18-10 in Medford with Dr. Schleinitz. Now have to wait 2 weeks to see if it took. I was the 14th patient he has done this on. All 13 others treated before me were successful. I will update in 3 weeks. FYI, they are now doing the HPI now in SF and Carson City NV.
Unfortunately it did not take. Cost me a lot of money for Doctor's fee and Motel charges. Dr Schleinitz has started me back on Vancomycin.
Bev

Eugene, OR

#69 Nov 15, 2010
Steve wrote:
<quoted text>
The places you say that are doing HPI are they doing it only for C.Diff or for other issues?
only for C-diff.
Pat

San Bernardino, CA

#70 Dec 13, 2010
My 32 year old daughter has had c diff since her daughter was born by c section in August. She has been on vancomycin for 4 months. As soon as she goes off it's back. She is ready for HPI and we are looking for somewhere around Los Angeles. Can anyone help us?
Maria

Australia

#71 Dec 14, 2010
Steve wrote:
I have a copy of Borody's protocol for Home Infusion if anyone is interested. I understand that quite a lot of people do this at home on thmeselves with good results. Personally I would rather have it done by a hospital but maybe on balance it is better than having to travel to Oz.
Hi Steve,

I would love to have a copy for Home Infusion for my husband. My husband is very desparate for thi sprocedure, he has very strong side effects from flagyl and vancomicine. appreciate your help very much. Maria. My email: [email protected]
Marcie

Auburn, WA

#72 Dec 17, 2010
Hi Steve. I would like a copy of the Home Infusion also. Desperate not to go back on prednisone. My email is [email protected]
Arthur

Miami, FL

#73 Jan 22, 2011
Steve wrote:
I have a copy of Borody's protocol for Home Infusion if anyone is interested. I understand that quite a lot of people do this at home on thmeselves with good results. Personally I would rather have it done by a hospital but maybe on balance it is better than having to travel to Oz.
Hi Steve,
I was hoping you could send me a copy of the protocol. [email protected]
Thanks,
Arthur

Since: Jan 11

Nottingham, UK

#74 Jan 28, 2011
Steve wrote:
I have a copy of Borody's protocol for Home Infusion if anyone is interested. I understand that quite a lot of people do this at home on thmeselves with good results. Personally I would rather have it done by a hospital but maybe on balance it is better than having to travel to Oz.
Hi Steve, could u email me a copy of the protocol too? My email is [email protected]

Many thanks!
Bev

Eugene, OR

#75 Jan 28, 2011
Hi Steve, guess i'll need a copy of the protocol too! my email is [email protected]
Thank You!!
Jennifer

Tucson, AZ

#77 Feb 8, 2011
Hi Steve,

Hoping to receive a copy of home infusion protocol. I have UC diagnosed after gallbladder removal. Thanks!
Jennifer

[email protected]
Lola

Chicago, IL

#78 Feb 12, 2011
Bev wrote:
Hi Steve, guess i'll need a copy of the protocol too! my email is [email protected]
Thank You!!
Hey Bev did you ever try oregano? It worked wonders for a friend of mine. She took emulsified oregano called ADP by Biotics Research Corp for two months. She also took Interfase by Klaire Labs and Clove oil. She aquired this horrible bacteria from antibiotic use while in the hospital. Had it for about three years. Now she is fine.
Lola

Chicago, IL

#79 Feb 12, 2011
Pat wrote:
My 32 year old daughter has had c diff since her daughter was born by c section in August. She has been on vancomycin for 4 months. As soon as she goes off it's back. She is ready for HPI and we are looking for somewhere around Los Angeles. Can anyone help us?
Hey pat,
The same thing happened to my friend. She was given IV antibiotics for Group B strep when she was in labor and after that she aquired c diff. We were all so angry and they don't know enough about how to eradicate it yet. It's like we are still living in the 1950's. They should have made more progress by now. My friend was on vanco several times for about three years and as I replied to Bev, she finally found an integrative MD who put her on oregano(It helps to be the emulsified oregano) clove and interfase. Apparently they use this successfully on dogs all the time. This worked for her in two months but some people have to take it longer. Oh an make sure a good probitic is taken if using these for more than two weeks. I wish her all the best. As I said my friend is now fine and her second baby was a home birth.
Pat

San Bernardino, CA

#80 Feb 12, 2011
My daughter had this done three weeks ago and felt better the next day. She had c diff for 6 months after having a c section. She was never able to get off of vancomycin for more than two days without having a relapse. Dr. Alistar George, a gastroenterologist, in Thousand Oaks, CA did the fecal transplant via colonoscopy. He is very knowledgable about c diff and was very confident that she will be "cured" within 6 months. It has been three weeks and she is doing amazing. The c diff was awful...diarrhea, fever, 30,000 white blood count, gut pain, and fatigue, now she feels great. I would definitely recommend this procedure. This was the first time we have had hope that she could beat this. Other doctors would keep giving her vancomycin in different doses...then they tried adding refaximin. She had one doctor tell her she may have to be on vancomycin for up to two years. they kept trying the same thing and expected different results. She was also on probiotics and any other treatment we found on any c diff site. Good luck.
Lola

Detroit, MI

#81 Feb 14, 2011
Pat wrote:
My daughter had this done three weeks ago and felt better the next day. She had c diff for 6 months after having a c section. She was never able to get off of vancomycin for more than two days without having a relapse. Dr. Alistar George, a gastroenterologist, in Thousand Oaks, CA did the fecal transplant via colonoscopy. He is very knowledgable about c diff and was very confident that she will be "cured" within 6 months. It has been three weeks and she is doing amazing. The c diff was awful...diarrhea, fever, 30,000 white blood count, gut pain, and fatigue, now she feels great. I would definitely recommend this procedure. This was the first time we have had hope that she could beat this. Other doctors would keep giving her vancomycin in different doses...then they tried adding refaximin. She had one doctor tell her she may have to be on vancomycin for up to two years. they kept trying the same thing and expected different results. She was also on probiotics and any other treatment we found on any c diff site. Good luck.
Pat,
I am very happy to hear this worked. I am looking into this for a family member who has Crohn's. I was wondering who they usually use as a donor? Were you the donor for your daughter or was her baby? Also, Thank you for the doctor's name.
Pat

San Bernardino, CA

#82 Feb 15, 2011
They prefer a spouse or someone who is a close family member. Her husband was not a candidate due to some health issues. Babies don't have all of the bacteria that adults have so that was not an option. I have never had any stomach problems and seem able to eat or drink anything without problems, so I was her donor. She is adopted so we aren't linked genetically. I did a lot of research on foods that help produce good gut bacteria and ate exclusively for the transplant for two weeks before. This isn't necessary, but being a mom I treated it like being pregnant and eating for health. It has been almost 4 weeks and so far it's working. I don't know how it works for Crohn's, but it was really no worse than getting a colonoscopy, so I can't understand why they don't try it. I had a colonoscopy before being a donor (also not necessary) because she is my daughter and I wouldn't want to subject her to any problems I don't know about. I would get blood work and stool samples done for potential donor to screen for potential problems. Really it was no big deal. The idea was worse than the procedure. Not too many people have this done, so all of the nurses at the clinic were excited. My daughter said they treated her like a rock star. Good luck.
Chad

Elyria, OH

#83 Feb 21, 2011
Pat/Lola
Is the procedure done for both c-diff and crohns? I am a victim of U.C. and I ahve not found a doctor that would do the procedure for anything other than c-diff. I have just been taking Lilida and doing my own diet and research but would like to someday beat this disease that seems with todays technology that there has to be a cure out there performed by an experienced gastro.
Hope to hear back and best of luck to all!
Chad

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