Improved fecal bacteriotherapy for c.difficile & ulcerative colitis sufferers

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Since: Sep 10

London, UK

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#1
Sep 17, 2010
 
Gut Flora Rehabilitation (also known as fecal bacteriotherapy, human probiotic infusion, fecal transplant) is a treatment for patients with chronic Clostridium difficile infections or similar gastroenterology disorders (ulcerative colitis, IBS). The technique involves killing off all the existing ‘unhealthy’ bacteria in a patient's gut and then replacing the existing gut bacteria with new ‘healthy’ gut bacteria isolated from another person, via nasal feeding tube or colon feeding tube. This technique is effective (90% success rate) in the treatment of chronic C.Difficile infection. An improved technique recently developed is Autologous Gut Flora Rehabilitation (AGR) which involves taking gut flora from a person’s gut when he is still healthy and reintroducing it into that same person gut when he becomes unhealthy. This new technique is administered by capsules.
I would like to know what current C.diff or ulcerative colitis sufferers, think of this new treatment.
Chad

Elyria, OH

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#2
Sep 17, 2010
 
Where is this procedure offered? I live in the United States in Ohio. Sounds interesting but would like more info. My email is cmh9961@hotmail.com

Since: Sep 10

London, UK

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#3
Sep 20, 2010
 
The procedure is not offered yet as trying to assess if there is enough interest.
In order to make progress, could you and every potential person interesetd give me their opinion: http://www.surveymonkey.com/s/6TP56D3 .
Thank you.

Since: Sep 10

Pontypridd, UK

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#4
Sep 23, 2010
 
This is very interesting. I have completed your survey. I know of other forums where this subject would be of great interest and I have sent you Medarg a personal message in this regard.
Bev

Springfield, OR

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#5
Oct 26, 2010
 
medarg, went to the link for surveymonkey and it says "Thanks for taking the survey"!!!! So there was no place to click to take it!
Just had HPI on 10-18-2010. It did not take.
Lori

Los Angeles, CA

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#6
Nov 8, 2010
 
I currently am suffering from C. diff infection and have been on antibiotics many times, only to get the infection back again once I'm off the antibiotics. I live in Southern California and, although I've discussed the fecal transplant procedure with my gastroenterologist (and will discuss it with my colo-rectal surgeon), they aren't able to "write" the procedure for me. Any locations close by where this procedure is done? Thanks for any info!
Lori

Los Angeles, CA

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#7
Nov 8, 2010
 
I should have been more specific -- I live in Brea, CA (north Orange County).
Steve

Pontypridd, UK

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#8
Nov 8, 2010
 
Lori - I am not in the US but I know from research that there a several places in the US who do this. From memory I can only think of one which was in Duluth I think. If you search online you will fidn others. If you get really stuck let me know and I will help more. In the meantime if you haven't tried vancomycin or rifaxamin they might help. Good luck.
dany1958

Bursa, Turkey

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#9
Dec 26, 2010
 
how can find the plase for treatment
dany1958

Bursa, Turkey

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#10
Dec 26, 2010
 
ı want to learn the place where can ı find

Since: Sep 10

London, UK

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#11
Jan 5, 2011
 
Lori,
Sorry for not replying to your email earlier but I have not check this site for comments for a little while. If i can still help, in the US, the following centers are carrying treatemts or providing advice: Duluth (Minnesota), Integris Digestive Center (Oklahoma), Fairview Maple Grove Medical center(Minesota), Montefiore Med.Center (New York), Rogue Valley Med. Center (Medford Oregon), Harborview Gastro Clinic (Settle, Washington), Hines Va Hospital (Chicago).
I hope that it helps.
Good Luck!
Steve

Pontypridd, UK

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#12
Jan 5, 2011
 
Medarg - I am in the UK in Hertfordshire. As I have said before I am very interested in this development. However, I really do think that an even better use for this 'product' would be to supply flora from a healthy person to a sick person. The idea that it would be fed to the sick person by capsule is far more compelling than the current procedures using antibiotics, which in themselves can damage gut flora, or via enema, colonoscopy or nasal-gastric tube. I may be in a position to offer funding for such a development. Either way it is of great interest and I hope you will suggest ways in which I can contact you or vice vers please. Many thanks.
Lori

United States

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#13
Jan 5, 2011
 
Thank you so much for the info, medarg. I'm still researching the procedure, although my doctors are going to try and taper me off the antibiotics slowly and see if I'm able to kick this C. diff infection once and for all!

Since: Sep 10

Leeds, UK

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#14
Jan 11, 2011
 
Hello Steve,
If you were able to leave me your contact details - via Messages - I would be happy to pass them on to the project developer. Thank you for your interest.
Medarg.
John

Europe

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#15
Apr 28, 2011
 
Does any one know if this treatment is offered any where in the UK??

Since: Sep 10

Pontypridd, UK

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#16
Apr 28, 2011
 
John wrote:
Does any one know if this treatment is offered any where in the UK??
Dr MaConnachie at the Gartnavel Hospital in Scotland does it but only for C. Difficile, he will not do it for anything else.
Rob

Riyadh, Saudi Arabia

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#17
Jul 2, 2011
 

Judged:

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Friends - Take Courage!

Fecal bacterio-therapy cures UC and is available in Australia!

Its called HPI (Human Probiotic Infusion). I was treated in 2010 for Ulcerative-Colitis at the Center for Digestive Diseases in "Five Dock" - 15 minutes outside Sydney ( www.cdd.com.au ).

They're one of few clinics actively taking UC/HPI cases. They pioneered it!

They use their own bank of carefully screened donors - so don't worry if you can't find someone.

While achieving almost 100% permanent cures for C. Diff - don't worry that their website states only 50% cures for UC. Their magazine "Inside Story" claims far higher UC cures - even for the worst cases.

I had full blown pan-colitis, on 250mg/day Imuran, 3500 mg/day Salofalk & the odd pred enema. The standard 10-day infusion plan completely solved my UC & halted ALL meds. Full Stop.

Even if your's doesn't clear (it probably will) you'll need FAR fewer meds than before.

Here's the deal:

1: You start with 10 days oral Vanco to clear any bad bacteria & a small 10 mg/day oral Pred to stop any mucosal inflammation that may interfere with new bacteria implantation.

Their Vanco pill dissolves in the large intestine - reducing side effects. It doesn't "destroy the old set of bacteria".

2: Day ll halts these meds (Yay - no moon face!). You get one mandatory colon-oscopy with the 1st enema given while your under. They don't do nasal delivery anymore!

You then get 1 HPI enema per day for 9 more days. It's nothing - over in 30 seconds - you lie on your side for 45 minutes & go home.

These guys are pro's & put you at ease. You're in & out with no fuss - and you'll wonder what you were so worried about!

You also stop Salofalk / Asacol now - its anti-microbial properties interferes with the new bacteria.

3: Don't do enemas before the next day's infusion to "make room" for the implant - it interferes with the new bacteria! Even if your bowel is full - it just ain't necessary - the implant doesn't occupy much space so trust me!

You're discharged from the clinic & do follow up from your home country. Just email CDD with any questions.

4: I tapered off Imuran by month 10 and said goodbye to my UC. Stay on a high fiber diet during this time (including salad greens daily)- to feed the new bacteria - but DON'T OVERDO the raw spinach. It mimics diarrhea and you'll think the treatment is failing. It isn't.

Watch the fiber cereals. Your not on Asacol anymore - and if your colon is scarred - it won't be as efficient anymore in removing water from the contents (its main job). Eat cereals & greens to feed the bacteria - but not so much that you flush the colon.

5: Expect some ups & downs in your bowl movements until month 5 - when things start to settle. By month 10 - if you're going to be cured - that's when you get your life back for good.

6: Clinic fees are $6500 (USD). Sydney has zero hotels - so rent a house in the suburbs for the 4 weeks thru Rentahome.com .au. They've plenty of weekly rentals. They'll even drive you from the airport to your rental.

This will set you back another $4500 - the place ain't cheap. Taxi's abound.

Don't sweat the long plane ride - you need to get out anyway. Plan a 2 day stopover somewhere to rest.

7: The clinic doesn't want tons of desperate people emailing them. You must CALL for a scheduled phone interview & fax a 1 or 2 page medical history SIGNED BY YOUR DOCTOR. They take international patients & VISA cards.

8: They'll usually accept your case if your reasonably healthy. Don't worry if your UC is active - but HPI works better if your not inflamed or bleeding.

Tough cases get 10 MORE infusions - 1 a week. You'll get a home infusion kit relying on a family donor.

So get off your duff & get to Sydney. It's lovely there! See the opera house - get some cultcha - and some great dinner! Rejoin the living.

Take out a small loan for it & call it a long-overdue vacation. It is.

I'll slip another shrimp on the barbie for ya.

Rob
John B

Walpole, MA

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#18
Jul 21, 2011
 
Hey Rob (Author of "Take Courage!),

Thanks for the post. Can you add a little more about the take home kit and the enima procedure at the center. How much did they inject (volume)? Did they say if it matters if it reaches beyond the descending colon?

How are you doing now and how long have you been UC symptom free?
Joanne Shonfeld

Stamford, CT

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#20
Nov 24, 2011
 
Lori wrote:
I currently am suffering from C. diff infection and have been on antibiotics many times, only to get the infection back again once I'm off the antibiotics. I live in Southern California and, although I've discussed the fecal transplant procedure with my gastroenterologist (and will discuss it with my colo-rectal surgeon), they aren't able to "write" the procedure for me. Any locations close by where this procedure is done? Thanks for any info!
My father is suffering from c-diff, I was wondering if you found a place in Southern California that does the fecal transplant. I would appreciate it.
Joanne Shonfeld

Stamford, CT

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#21
Nov 24, 2011
 
Lori, My father is suffering from c-diff, I was wondering if you found any hospitals in Southern California that do the fecal transplant?
Thank you,
JOanne
I was thinking about calling some hospitals, but if you have any pertinent info that would be great.

JOanne

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