Weight gain!!!!! and inability to los...

Monroe, NC

#22 Mar 29, 2008
I have been diagnosed with cd for about two years. I first I lost so much weight. But now I have gained all the weight back and more. I'm so frustrated this has affected my life in every way. I hate the way I look . I wish I could find the answer I need. If anyone knows any information to please help me let me know. Thank you.

Cullman, AL

#23 Apr 4, 2008
I just had my test for celiac today but I am 110% sure I have it. I have all the symptoms BUT I have gained weight and not lost. I gained 15 pounds since December. It's awful. I have always been 5'4 and 120 lbs. I look pregnant!! I eat sensibly and work out 6 days a week. I am at wits end.....


Since: Jan 08


#24 Apr 7, 2008
First of all please consult your doctor.

If he/she does not suspect any other related or non- related conditon for the weight gain then start to keep a diary.

Write down everything you do and eat all day long! I mean every little detail...

After a week work on the log...Find out how long or much you exercise, what and when and how much you eat...

gluten free does not mean salt or sugar free! just as non celiacs, they make you gain weight...

Mandeville, LA

#25 Apr 9, 2008
i'm different, i gained weight before and still gain faster weight after gf.

I don't understand why was so large before going gf.


Since: Jan 08


#26 Apr 14, 2008
The endocrine system is an integrated system of small organs that involve the release of extracellular signaling molecules known as hormones. The endocrine system is instrumental in regulating metabolism, growth, development and puberty, tissue function, and also plays a part in determining mood; including diseases such as diabetes mellitus, thyroid disease, and obesity..........
Check these sites:

Sorry I am not a MD; I still advice you to see a specialist! Good luck


#27 Jun 16, 2008
I have just been dx celiac and I am struggling to lose weight. I joined weightwatchers a year ago and lost 28lbs on their core plan and then stuck for ages, wondered why after doing so well. Now I know what is wrong with me and why I have felt 'ill' for such a long time. I now make sure I calculate the points in all foods and now follow the weightwatchers points plan and I'm slowly starting to lose weight again, albeit only half a pound a week but it all adds up. I also wear a pedometer and make sure I do the recommended 10k steps per day. Try it and see if it works for you. Good luck to everyone.

Kansas City, MO

#28 Jun 17, 2008
I was diagnosed with Celiac Disease last year but I have also had PCOS (Poly Cystic Ovarian Syndrome) for several years along with weight problems. PCOS is very common with Celiac disease and it will cause unexplained weight gain and difficulty loosing weight. If you have irregular periods you might ask your doctor about PCOS. Unfortunately, a diagnosis does not give you a easy solution, but some people have found they are able to loose the weight while on Metformin.

Bristol, UK

#29 Jul 22, 2008
ive only had coeliacs a couple of months but ive gained 14 pound already.
i hate it, i wasnt thin to begin with and ive been trying to lose weight for a long time.
im only 17, so i should really find it easier to lose weight since im still young,but its just not the case.
however, polycystic ovaries does run in my family, so that might also be an issue with my weight.
im planning on seeing about a gastric band operation as soon as i turn 18, and if i qualify i will definatly go through with it.
also, on a gluten free diet i seem to be hungry all the time, unless i eat gluten free bread, which fills me up more than most foods, but probabaly isnt the best option if i want to lose weight

United States

#30 Jul 23, 2008
Wow !! It's a good feeling knowing that you are not alone in your weight gain..isn't it? Anyway, I too was recently diagnosed in November and have gained 15 pounds within the last 3 months. Although, I am very happy that this is a good sign that my intestines is healing, it is very depressing packing on those extra pounds :( I feel in my case that some of the weight gain may be due to sub-conscience feelings of being food deprived therefore I am eating more because my choices are less. I am going to take Ankara's advise and keep a food diary.

Good Luck Everyone!

Clarksville, TN

#31 Aug 2, 2008
I have been diagnosed since April 08. I started the gluten free diet immediately and now have gained at least 20 lbs. I will be seeing a nutritionist this month and hope to get some ideas. I seem to be like everyone else. I am very active and eat less that I did before. I am very optimistic that things will get better, but it is discouraging. Do any of you have blisters on your scalp?

Cranston, RI

#32 Aug 16, 2008
Well, thank God I'm not a freak!! Thank you all for courageously posting about your struggles. I was dx'ed with CD 3 months ago--after being dx'ed hypothyroid and severely D deficient, all in less than a year. This is AFTER working my tail off to lose 95 lbs. Now I still have about 85 to go since putting about 25 back on.

The only lead I have on this is that I was told kicking the dairy, too (casein) may help with the weight loss. One huge problem: I LOVE my cheese!! All my life, I have had to deal with neuro issues, so this is making me so frustrated and disgusted with healthy people. I am SICK of it all! Sorry to be such a whiner, but WHEN DOES IT END?????!!!!! Haven't I been through enough already, God??!! Please go screw up someone else's life and leave mine alone!!

Okay...I'm better now. Sigh...

eamonn somers

Celbridge, Ireland

#33 Aug 17, 2008
does every1 here know that it takes bout 2years 4 ur body to detox its self fully after you went on the gluten free diet . im on the diet nw 2 years and my hair and all is getin mad thick my skin is clear i feel great . ant1 who has cd dsease stick to the diet coz in the end its great. any1 that feels they cant loose wait its because yez have te giv it achnce to work plus dont eat to much of the gluten free bread its very fatning. any1 anytin to say let me no thanks

Honolulu, HI

#34 Aug 23, 2008
I was diagnosed a year ago and have gained 40 pounds. I exercise, eat very healthy lots of fresh fruit and vegies. I was told that I would gain weight but am very discouraged because it just keeps on creeping up on me. I take vitamins, iron and do lab work every three months. I just dont know what to do. I am thinking about doing the lap band. One thing I have to admit, since going GF I do feel much better and will never eat gluten again.

Soquel, CA

#35 Sep 6, 2008
I do not know if I have celiac disease. Which is quite weird because # 1 I am a psychic!! I have 3 children adn I never really had any issues with weight. After my 2nd child I noticed more difficulty in losing weight. After my 3rd child 9 years ago I was able to lose the new baby weight right away. But one day I just stopped losing weight. The next thing I know I had gained 22 lbs in about 6 weeks. I was not over eating or eating fast food. I was a very conscientious mom who was breastfeeding. I had several years of dealing with some yeast issues and was finally able to get it under control a few years ago now. But now things are really bad. I decided to get on the scale this morning and I have gained about 20 lbs over the last few months. Just before the weight gain I had been going to the gym weight training and had been able to lose a little wight. Not as much as you would think by 5 or 6 months of working out but it was a start. I am so sad today I cannot even go outside and enjoy the nice weather. I weigh more than I ever had in my life. I went to have a check up last year and all my tests came back fine. The doctor did not mention a test for celiac. I went specifically because I know there is a problem and I told the doctor I wanted to find out what it was. She did not say so bluntly but basically eluded to the fact she thought I might be over eating and sedentary. I explained I am not but she gave the web address for a calorie counter. I know something is off. For 5 years after my last child was born I did not have a period. I went on progesterone and that seemed to help that. Anyone have a similar problem or experience? I just feel so sad. If I'm gonna weigh this much, I should at least be able to pig out and ride a segway around everywhere.

East Aurora, NY

#36 Sep 18, 2008
Emma wrote:
Has anyone gained weight from cd as all medical reference i have read says you lose weight. With me this has not been the case my weight fluctuates quite bad. Even though i hardly eat and take regular exercise I dont seem to be able to lose weight.I have been following a cd diet now for the past nine months. I have not lost any weight i have gained it also my symptoms dont really seemed to have improved. Its so frustrating i have had my thyroid checked and that seems to be fine. Another thing is my body seems to reject iron supplements i have had to stop taking them as i come out in massive bruises. Has anybody had similar problems.
hi, i just read your post, and am experiencing the same issues. i eat extremely healthy and do vigrous exercise. but always strugggle to lose any weight. have you had any success?
Rachel Nackman

Middle Village, NY

#37 Sep 23, 2008
Linda: I had blisters on my scalp too. Check your shampoo and conditioner; mine had hydrolyzed wheat protein in it, and once I switched hair products to GF products, the blisters disappeared.
Linda wrote:
I have been diagnosed since April 08. I started the gluten free diet immediately and now have gained at least 20 lbs. I will be seeing a nutritionist this month and hope to get some ideas. I seem to be like everyone else. I am very active and eat less that I did before. I am very optimistic that things will get better, but it is discouraging. Do any of you have blisters on your scalp?

Québec, Canada

#38 Sep 27, 2008
I have found an amazing website for women on weight training and nutrition. After following the advice on this website, www.stumptuous.com , for six months I lost 30 lbs and was in great shape.
The really great about this site is that it addresses the issue of weight training specifically for women.
eamonn somers


#39 Sep 30, 2008
any1 here who wants to loose weight its mad easy i can garente it. theres just simple few things you have te do. if you want to know email me [email protected]
Kevin Finkenbinder

Lansing, MI

#40 Oct 22, 2008
Having had CD for 35 years, I have constantly been frustrated by the lack of support for those of us who did not become skin and bones due to the disease. I am obese and have yet to find a diet that works well with CD and no gall bladder (the high protien diets are not recommended if you don't have a gall bladder).

If someone had the nutritional background, I bet they could make a fortune by creating a GF diet plan!

Barrie, Canada

#41 Nov 7, 2008
I have also recently been diagnosed with CD over the past two weeks and have gained weight. I was the opposite with already being heavier than I would like as I had developed other issues with osteo and numbness in limbs. I am just wondering if now that our bodies can absorb more nutrients and that our bodies no longer feel that they are in starvation mode from the malabsorption if this is part of it.

I am not a dietitician nor related to the industry of weightloss but people have told me I lost weight when in fact I have gained 10 lbs in two weeks. Part of the swelling in my face and neck has substanially come down along with my stomach being smaller but for whatever reason I have gained 10 lbs according to my scale which I checked this morning. I have increased my rice intake and also added corn to the diet which I never really ate before. Perhaps these may be the culprit but I am keeping a diary to find out as well.

One thing I have noted as well is the snacks they you find that are gluten free are full of sugar such as cookies... I don't have a sweet tooth so I can go without but I am at a loss for this weight gain?



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