Weight gain!!!!! and inability to lose weight with CD

Posted in the Celiac Disease Forum

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1 - 20 of 23 Comments Last updated Jun 24, 2013
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Emma

Chester, UK

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#1
Apr 17, 2007
 
Has anyone gained weight from cd as all medical reference i have read says you lose weight. With me this has not been the case my weight fluctuates quite bad. Even though i hardly eat and take regular exercise I dont seem to be able to lose weight.I have been following a cd diet now for the past nine months. I have not lost any weight i have gained it also my symptoms dont really seemed to have improved. Its so frustrating i have had my thyroid checked and that seems to be fine. Another thing is my body seems to reject iron supplements i have had to stop taking them as i come out in massive bruises. Has anybody had similar problems.
oxnard ca

La Habra, CA

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#2
Apr 20, 2007
 

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Ok, recheck Thyroid. Stop eating lots of carbs. GF carbs tend to be very high in calories. Go protein and change your workout to a cardio and fat burning workout. I had the exact problem and I was able to reset my body by eating fresh foods and protein, lots of water, no soda, watching carbs and working out. If you are cheating on the diet at all this will not work! Walking is a great start.
Kim

Vancouver, WA

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#3
May 17, 2007
 
I have had the same problem. My dietician stated that my weight gain and inablility to lose weight could be from my body not metabolizing fat properly. I am very sensitive to extra calories; in other words, if I don't watch it closely the pounds just keep adding up. I have not had the pleasure of losing any weight yet, but as oxnard above suggests, protein and fresh veggies is all that has ever worked for me. Don't give up...you have finally found out what makes you feel bad, now take the next step. Cut those carbs and GF foods. It's tempting to start replacing all the wheat with ric. But keep in mind how difficult it is to burn all those carbs. Try a low carb diet and you should start to see some results. Try cutting back caffeine as well. You can do it!
Donna

Cairns, Australia

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#4
May 31, 2007
 
I stacked on the weight a couple of months before I was diagnosed, and it continued to go up once I was on the diet. This scared the crappers out of me becuase no matter how much cardio exercise I did the weight still went up. I have since lost the weight by eating only a small portion of carbs and I have mainly protein and fresh fruit and vegies. I now maintain a healty weight.
Sheila

AOL

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#5
May 31, 2007
 
I gained weight. I was told that my body was so hungry for vitamins and minerals that it just loved all the gluten free food and said yum yum!!
sheila holland

Groningen, Netherlands

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#6
Jul 19, 2007
 
I also put weight on after being diagnosed with cd. Specialist said I would gain weight ,he thought I was to thin before the diagnose. I have put on 5 kilos in 18 months, just hoping that it does not get any higher, because my clothes just about fit me.
Salena Leeds England

Kingston Upon Thames, UK

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#7
Aug 19, 2008
 
Same here, I put on about 14lbs since diagnosis 14 months ago, weight now steady but can't lose. Consultant said I would need to do 2 x 5 mile runs a day to lose the weight!
Sandra

United States

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#8
Oct 27, 2008
 
I have been struggling w/cd for that past 2 years and still am having a hard time with losing weight. I get sick of eating veggies and fruit all the time b/c that's all I was told to eat so that I could lose weight, I'll do it for a little bit but then I completly fall off track. Even with the gf things. HELP! any suggestions.

“the baby who would be king!!!!”

Since: Jan 07

fort worth

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#9
Oct 28, 2008
 
Sandra wrote:
I have been struggling w/cd for that past 2 years and still am having a hard time with losing weight. I get sick of eating veggies and fruit all the time b/c that's all I was told to eat so that I could lose weight, I'll do it for a little bit but then I completly fall off track. Even with the gf things. HELP! any suggestions.
you must have protein ! make sure your carbs are complex rather than simple carbs - remove all processed food from your diet - eat as close to the earth as possible
Becky

Coal Valley, IL

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#10
Mar 16, 2009
 
I found out I had cd when I was 28 yrs old. I gained 80 lbs dieting and was miserable every time I ate. Luckily I found out, at that time I weighed 225 lbs...not pretty on a girl who is 5'3. I did get down to 203 lbs within 3 months. Now 9 yrs later even though I continued on the GF diet, after 2 babies and 2 miscarriages I was at my highest weight 449lbs. It is miserable. I bought a pedometer and walk 10,000 steps every day. I also take some important supplements. My thyroid tests in normal levels also. It just happens to be the lowest number of normal possible. I had no energy. My anxiety/depression was at its worst. I get an iodine supplement and a L-tyrosine ( something a normal working thyroid should produce) I get them from the Heritage store in Virginia Beach VA and they mail them to me. Since Last april I take the supplements 2 times a day. one is formula 636 (tastes terrible but definiely gives me energy) and the other is Thyroid T-3. I now am down to 225. It sucks still. It is a real struggle but I plan to keep going. I will probably up my steps per day. Also I have a lot of problems staying hydrated. I think that would be true for anyone here. You need to be hydrated to burn fat and flush trapped gluten toxins released into the body during weight/fat loss. maybe we can figure out the solution that the medical doctors can't.
kelly

Carshalton, UK

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#11
May 27, 2009
 
Hi emma

yes exactley the same thing! i have had it for just over a year! i thought would loose weight as well seeing the amount of food i have had to cut out...take aways etc!!

i find i eat alot of carbs! but do exercise and its still piling on! did you get any tips?
Emma wrote:
Has anyone gained weight from cd as all medical reference i have read says you lose weight. With me this has not been the case my weight fluctuates quite bad. Even though i hardly eat and take regular exercise I dont seem to be able to lose weight.I have been following a cd diet now for the past nine months. I have not lost any weight i have gained it also my symptoms dont really seemed to have improved. Its so frustrating i have had my thyroid checked and that seems to be fine. Another thing is my body seems to reject iron supplements i have had to stop taking them as i come out in massive bruises. Has anybody had similar problems.

“the baby who would be king!!!!”

Since: Jan 07

fort worth

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#12
May 27, 2009
 
carbs = sugar = weight gain = diabetes in addition to your celiac

choose nothing but complex carbs and no other kind of carbs

increase your lean protein and vegetables
Susan

Greensboro, NC

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#13
Jul 20, 2009
 
My daughter and I are currently being tested for cd. She has trouble with weight gain and she eats nothing. We both work out 3-4 times per week with cardio and weights. I tend to eat healthier. She's in college and it is hard to stick to the cd diet. We both have hypothyroidism. Look into the book, Eating For Your Blood Type. It suggests eating foods that will not cause reactions with your blood which reduces inflamation. Look at the website livingfuel.com . They have a protein powder that we have found very beneficial to help us lose weight. I like super berry. Take resveritrol supplements. I like Venetra. Hope this helps.
Victoria

Palmetto, FL

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#14
Jul 29, 2009
 
Do you use the living fuel as a meal replacement?
Susan wrote:
My daughter and I are currently being tested for cd. She has trouble with weight gain and she eats nothing. We both work out 3-4 times per week with cardio and weights. I tend to eat healthier. She's in college and it is hard to stick to the cd diet. We both have hypothyroidism. Look into the book, Eating For Your Blood Type. It suggests eating foods that will not cause reactions with your blood which reduces inflamation. Look at the website livingfuel.com . They have a protein powder that we have found very beneficial to help us lose weight. I like super berry. Take resveritrol supplements. I like Venetra. Hope this helps.
myrna

Monroe Township, NJ

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#15
Mar 14, 2010
 
Kim wrote:
I have had the same problem. My dietician stated that my weight gain and inablility to lose weight could be from my body not metabolizing fat properly. I am very sensitive to extra calories; in other words, if I don't watch it closely the pounds just keep adding up. I have not had the pleasure of losing any weight yet, but as oxnard above suggests, protein and fresh veggies is all that has ever worked for me. Don't give up...you have finally found out what makes you feel bad, now take the next step. Cut those carbs and GF foods. It's tempting to start replacing all the wheat with ric. But keep in mind how difficult it is to burn all those carbs. Try a low carb diet and you should start to see some results. Try cutting back caffeine as well. You can do it!
Hi! I have the same problem that I gained 30 pds. since I went on the GF diet. I was always very thin, then the scale didn't stop going up, it is scary. I need some help. I do not eat GF breads all that carbs and still can't lose the weight. It doesn't seem after reading every body's blurbs that's there is much help. I do not excercise alot, but I never did before and I was always thin and could eat anything or amount I wanted to. Dr's did tell me that now my body is absorbing the right way, so I guess I was meant to be a chubette...I can't settle for that. I am going to watch the carb intake and my little GF snack that I love and eat a lot of veggies. I will keep you posted.
myrna

Monroe Township, NJ

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#16
Mar 14, 2010
 
I never had to count calories, I don't know how and I hope not to have to do that. I believe that after being diagnosed and having to cut out the Gluten that my body just doesn't work the same way. Nutritionists want you to eat more food, I can't believe that, since I do eat more at times. I try to drink a lot of water, I could do more exercise (boring). I hope someone has a good trick to lose this weight. I gained 30 pds since I was diagnosed. I can't fit into all my clothes and I refuse to buy clothes for this body. My diet hasn't changed much since I was diagnosed, the only thing is that I can't have bread & pizza, cakes. I get around everything else which is okay for me. That's why I just don't understand why I am gaining wait like I did. I hope things change.
marianne

Naples, FL

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#18
Apr 15, 2010
 
I was diagnosed almost 2yrs ago with celiac disease. I went through a rough time before I was diagnosed and them weighed 102 pds. Since being diagnosed I now weigh about 119 pds. I am 62yrs old and before I was diagnosed I always weighed around 110. I do alot of experimental baking because I have always loved to bake. I exercise lots!!! Walk fast for 4.5 miles and swim for 50min. a day. My dr. said the same thing that my body has been malnurished all my life and now it is absorbing the neutrients it should. I would like to loose about 5 lbs but in doing so I think I will have to give up desserts and carbs. I am going to make the effort this spring and fall and see how I do.. I will keep you posted.
Shannon

Las Vegas, NV

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#20
Jan 1, 2011
 
I was diagnosed with CD about 4 years ago after having a blood test that showed a severe vitamin deficiency. I had to undergo blood fusions for nearly a year just to make me healthy again. After sticking to a GF diet, my weight steadily increased, 60 lbs. I ended up switching doctors and at my first visit he told me to stop eating the marketed GF foods. He said most of the foods contain chemicals to help store the food as fat since most people with CD are under-weight. I just ate normal food and tried to keep it fresh and real, not processed. It's a slow process but the weight is finally coming off. Hope this helps.
Lisa

Palo Alto, CA

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#21
Feb 28, 2011
 
I was diagnosed about 5 months ago. I originally lost 35 pounds because I wasn't barely eating and was vomitting and spending alot of time in the bathroom. Now that I feel better my weight will not budge. I am only eating protein and fruit and vegetables....No processed food or starchy carbs at all. I walk and do some toning exercises regularly. I am very frustrated and confused as to why I can't lose anymore weight. Any ideas?
ga-girl

Columbus, GA

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#22
Mar 23, 2011
 

Judged:

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The weight gain may be due to severe fluid retension and not over-eating.
"Moreover, weight loss can be masked by fluid retention. Fluid retention occurs in advanced malnutrition because the reduced absorption of protein results in low protein levels in the blood. Normal protein levels in the blood are necessary to keep fluid from leaking out of blood vessels and into the body's tissues. When blood protein levels fall as in celiac disease, fluid leaks into many tissues (edema) but particularly the ankles and feet, which swell due to the edema." ( http://www.medicinenet.com/celiac_disease/pag... )

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