Diagnosed with Celiac Disease later i...

Diagnosed with Celiac Disease later in life

Posted in the Celiac Disease Forum

Concerned

Hesperia, CA

#1 Dec 20, 2010
I was wondering how many of you know of anyone that was diagnosed later in life . My mom is 65 and has had symptoms all her life.. She has complained about a pain under her ribs since I was a child.. She had her gallbladder removed in her 30's .. Osteoperosis since her 30's , thyroid removed aroun 25,lost all her teeth at 17, she has severe numbness in feet and hands, and 3 yrs ago diagnosed with prenicious anemic. She recently moved to Ky and has a new DR.. Finally this doctor is testing her for this.. I'm so concerned because I am 41 yrs. old my son is 21 we both have several of the symptoms. I am concerned if my mom starts a Gluten free diet , will her intestine be able to heel. Are they permantly damaged. Why did it take so long. I had never heard of CD before . Why. Since I learned of the possible diagnoses I have gone gluten free . Day 6 for me . The pain under my ribs is barely noticable and my ankles havent hurt in 3 nights . They would hurt everynight.. She has a blockage in her small intestines. Should they have not tested her 3 years ago with prenicious anemia. I'm sorry to go on . I am just concerned of the damage that has already takin course.
Concerned

Hesperia, CA

#2 Dec 20, 2010
Oh sorry I did not edit this. I was typing with emotions instead my mind.. I have so many mixed emotions. Why? Why? why? This should be scanned for just like they do diabetes, cholosterol, etc...
SME

Ruskin, FL

#3 Dec 21, 2010
Wow, sounds like my grandmother. She lost her teeth at a fairly young age and she has bad arthritis. It may take longer for your mom to heal because of her age, but she will eventually recover. When my grandma stayed with me and my family a while back she had to eat the same way as us, and her symptoms started to disappear within a week or two.
I agree, this disease should be scanned for at birth because of all the other diseases it can cause later on in life. It's actually mandatory in Italy that all infants be tested for it. Unfortunatley there are only a few labs in America that know how to properly test for it, and if your doctor doesn't know how to read the results you can get a false negative. At least now people are becoming more aware. I wish the best for you and your family.
nc handmade

Apex, NC

#4 Dec 25, 2010
SME wrote:
Unfortunatley there are only a few labs in America that know how to properly test for it, and if your doctor doesn't know how to read the results you can get a false negative.
Which are the labs and how does one read the results? My dr recently tested me and it showed I was negative, yet I have been off gluten for 15 months. They sent my blood to a local lab.
SME

Ruskin, FL

#5 Dec 26, 2010
nc handmade wrote:
<quoted text>
Which are the labs and how does one read the results? My dr recently tested me and it showed I was negative, yet I have been off gluten for 15 months. They sent my blood to a local lab.
You were recently tested and you've been off gluten for 15 months? Your doctor apparently didn't know what he/she was doing. You have to have gluten in your system for at least two weeks before you get your blood drawn, otherwise the results will come back negative. The bloodwork has to show that your anit-bodies are reacting to the presense of gluten, and it can't very well do that if there's no gluten present. One of the labs I believe (could be wrong) is in Ohio, and I'm not sure how the results are read, I just know that my doctor said they had to be read a certain way (but maybe she's wrong, idk). In any case I'd recommend you go with a differant doctor.
Angelo

Puyallup, WA

#6 Jan 28, 2011
I would highly recommend checking out the work of Dr. Stephen Wangen, including his book "Healthier Without Wheat." This has truly helped me gain a better understanding of gluten intolerances.
In his book, he also outlines the various testing strategies for celiac disease. As mentioned above, there are many things that can go wrong when testing for gluten intolerances and celiac disease, so I would suggest finding a doctor who is well-versed in this area.
You spoke of your concern over healing of the intestines; well, there is good news! Switching to a gluten-free diet generally reverses your health problems, and often results in complete recovery of damage to the small intestine.
Let us know what you are able to find out!
suz

Paterson, NJ

#7 Feb 22, 2011
Hi-I was diagnosed with CD close to 5 years ago. I am good with my gf diet for the most part-but never really had severe symptons from the start, therefore making it hard to follow! I have felt bloated for years, now not sure if from CD or the beginning of menopause-Recently, to lose weight I went on the Atkins diet and not only lost weight, but had no frequent episodes of frequent bowel movements-Has anyone with diagnosed CD found if they elimanated carbs, they felt better? Curious to see any responses-
anaida

Delhi, India

#8 Apr 13, 2013
i miss my paranthass n pizzas yet i great ful to d gastro who diag me @ 36 ...now 41...
years of age years of suffering frm anaemia gulping down bottles of haemup dexorange n d folic acid popins widout any significant change
......
diaarhea''''' constipation ........aching joints fatigue insomnia mood swings headaches nausea n throwing up of food more often dan not severee burning sensation as if my intestines were put to fire burning high speed flames getting higher after i ingested wheat yes so we had ultimately found d culprit ....now wat? but obvious i m religiously following gf diet my swings out of d window n me yummily dose off ....my aches lessened cbc improved i feel deliciously healthier n energetic like i hve never felt before sometimes d fatigue returns on surface but leaves as soon as its onset.

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