Son diagnosed with B cell lymphoma stage 1e, needing some help
Posted in the Cancer Forum
#1 Jun 4, 2006
Hi, I hope my post does not offend.
My name is Mary McKinney, I am a wife and mom of 5. Our oldest son Joshua age 18, has been diagnosed with B cell lymphoma, the odd part, it's not in his lymph's but in his bone. It is stage 1 e, which from what I understand means it has not spread beyond where it started and I know that has to be good.
His doctor is Dr. Jane Bramham in Bowling Green Ky.
Our insurance is weak and so I have set up a site to sell the crocheting that I do while waiting with him through his appointments and chemo. Anything raised through this site will go directly to his care.
The site is http://www.crochetingforcancer.com
He started his chemo on June 2, 2006, a drug called Ratuxin (I'm probably spelling it wrong), and follows it up Monday with Chop, I don't know much about these drugs other than what Dr. Bramham and the nurses have told me, so if you guys do, tell me anything that you know.
I don't know what we do after the Chop but I will keep everyone informed at my web site, here too, every chance I get.
Thank you in advance,
Mary & the entire McKinney gang
#2 Aug 28, 2006
I have had non-hodgkins lymphoma for 22 yrs-it did not return for 19 yrs after radiation in 1984.When it returned the new therapy was ratuxin and any tumors that I have had periodically -the ratuxin has completely gotten rid of over the past few yrs.There are very little side effects,so far. It is new and long term effects are not known. I have been very happy with the results for myself.I now take it as a preventative every 3 months 1X.
#3 Oct 25, 2006
I was just diagnosed in December of 2005 with NHL B-cell. I too had it in my bones but also the lymp nodes in my chest and abdomen. I started with R-CHOP in January. One treatment ever 3 weeks for a total of 6. They gave me the Ratuxin at the same time as the CHOP. I had a few reactions in the beginning with the Ratuxin. Burning in my throat, feeling weird in my head and an overall panic feeling. This only lasted for a short while. The CHOP did have some side effects but was controlled with medication given to me at the time of treatments. The first few days after treatments I would get very antsey. Couldn't sleep, ate like a pig, bones aches, and blisters in my nose and throat. By the forth day I would crash hard and sleep for hours on end. After the week was over I felt better then ever. The side effects were the same each time. I am in remission now, but I do maintenance therpy with Ratuxin every two months for the next two years. I am not as young as your son (46) but my doctors told me the younger you are the better chance you have of fighting this awful cancer. I wish your son well and I will be praying for him. God Bless.........
#4 Nov 14, 2006
My R-CHOP was every 2 weeks for three months - the idea was to just stay on top of any new cancer - it worked, but now they want to do radiation on the area to " insure no roccuraance there", but I am worried about radiation - if tere is no cancer what are they zapping.
#5 Nov 29, 2006
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