Chemo hair loss messy, awkward; advance preparations can make i...

Full story: The Canadian Press

Their work involves lots of entertaining and myriad social commitments for which chic black is pretty much the diplomatic dress code.But black wasn't an option when the chemotherapy drugs battling Smith's ...
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81 - 100 of 117 Comments Last updated Mar 4, 2014
TonyW

Jacksonville, FL

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#83
Jun 3, 2009
 
I've worked in the hospitals most of my life in LTAC, nursing, Phys. therapy and there are those things we just cannot say - there really is hope:
checkout Gerson videos on youtube. ps. stay away from anything corn related, even the corn syrups, no fats or cancer will not go completely away, and if it does will rear it's ugly head again every single time, no fats :) Cancer is a Fungus www.knowthecause.com These are things we have known since the later 1920's when people were actually being cured with a "high success" rate after being told they were untreatable and send home to ... contessantony@hotmail.com
celisa

Boca Raton, FL

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#84
Sep 24, 2009
 
Hello everyone!
I am a doctoral student who is about to begin a project entitled:A Feminist Cultural Study of Identity, Hair and Hair Loss Due to Chemotherapy.
I examine the many symbolic meanings of hair portrayed in the media, and the psychological impact hair loss engenders on women fighting cancer. My project will include interviews with female cancer survivors, as I strongly believe that narratives enlighten our understanding of what it means for women to live with cancer and hair loss.
I decided to concentrate my research on Chemotherapy Induced Alopecia and its impact on women following my cancer diagnosis in 2005. As the majority of patients undergoing chemotherapy, I experienced hair loss and it had a disastrous impact on my day to day life.
If you are interested in my research, please contact me via email (CGuiller@fau.edu) and I will be delighted to give you more information about myself and my research, and I will send you a questionnaire to fill in.
All questionnaires will be kept anonymous.
Thank you for your help!
Jmc

Vernon, Canada

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#85
Nov 20, 2009
 
I am on round two of docetaxol and cyclophosmate for triple negative grade 3 breast cancer. My hair started to fall out on day 14 and took about a week for most of it to go. Almost everyone told me should shave it right away. I wasn't ready to, and was glad to have the extra two weeks with hair. Yes, I had hair everywhere. My lovely husband who is a clean freak even put up with it. I went through about six sticky lint brushes. Everyone is different. Shave it when you feel it's right for you.
Gail Perry

Plant City, FL

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#86
Nov 21, 2009
 
Celisa I wish you luck with your research but it was no big deal to me. I found a wig I liked, and every time I put it on it reminded me that I hadn't gone into a gunfight with a pea shooter.
Gail Perry

Plant City, FL

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#87
Nov 21, 2009
 
I know someone who spent five days in the hospital with severe malnutrition after deciding that juice was the answer.
Surviving

San Jose, CA

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#88
Apr 27, 2010
 
Sending you many blessings. I'm really sorry that you have to go through this, yet again. Is it coming back in the same place or in different places? Hopefully, they can get rid of it in this third round. Prayers sent for you.

www.truefacesofbreastcancer.org
lin

Ireland

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#89
Aug 24, 2010
 
hi my mam is on her 2nd dose of chemo she says her scalp is tingly dose this mean its the start of her hair falling out .she has breast cancer and feels so sick and tired afer each session thanks lin
Gail Perry

Sun City, FL

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#90
Aug 24, 2010
 
Lin, not all chemos make your hair fall out. That said, I was told that it would be happening by then. I headed it off and just shaved my head since I knew it was going to happen and got a good-looking wig. Not everyone likes wigs but that was the solution for me.
Janet

Huntsville, TN

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#91
May 5, 2011
 
I'm 57 year-old female with no gray--naturally black wavy hair, green eyes, and fair skin. I've always been told I have beautiful hair.

I had my first chemo 15 days ago, and just five minutes ago my husband just shaved my head. It feels wonderful!!!! I don't care if it ever grows back. So what if I'm bald. I am not my hair. I am me--hair or no hair. I thank God I'm alive.
Sarah

Rochester, MN

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#92
May 7, 2011
 
As a Cancer Patient I can feel her. For everyone I can suggest one link, visit there and you will be able to find more articles related to cancer.

http://www.livewithyourself.com/
Gail Perry

Atlanta, GA

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#93
May 7, 2011
 
I agree with you, Janet. I shaved my head. In fact, I put the wig on and started wearing it before I started chemo, because I didn't want the wig to announce to everyone that "it" had started. By the time I started chemo, that was the normal way I looked to everyone.

For me, that worked very well.

I did have one very unpleasant experience. Someone who was supposed to be a good friend came by my home, and just walked in. She knew me well enough to do that, but caught me without my wig on -- and burst out laughing. That caused very hard feelings between us because she couldn't seem to see why that bothered me. That crack revealed other serious differences between us and the friendship ended. But she was an unusual person and I don't think her response was at all typical.

I tried going out bald with a hat, and people stared at me. It really made me uncomfortable. For myself, I really recommend the wig route, and I think my idea of putting it on before chemo starts was a really good one.
Pam p

United States

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#94
Jul 27, 2012
 
My daughter is 7 years old she was just diagnosed with immatuer tertoma stage 2 she has to have 3 rounds of chemo once a mont for 3 months its a five day treatment the doc say thats a low dose and hair loss may or may not happen my aunt told me to just shave it off but i dont know im scared my daughter dont know and i dont know how to tell her
Gail Perry

Saint Petersburg, FL

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#95
Jul 27, 2012
 
Tell her about side effects. Big medicines get big results, so she can recover, but big medicines can have big side effects.

Her hair may or may not fall out. If it does, let HER decide if and when to shave. Let HER decide whether to wear a wig or scarf (she'll need something to protect her scalp in the summer.

Be honest with her. If she senses that you're keeping secrets just over the medication she won't trust you to tell her the truth about bigger issues.

Honesty, and give her choices where she can. She can't decide whether or not to have the chemo, but she can decide between the choices for dealing with her hair. And do tell her ahead of time that her hair *might* fall out, but that it will grow back.

Tell her it's a nuisance to be sick but that many children and adults have been through it and she will get through it too.
Christa

Rockford, IL

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#96
Aug 4, 2012
 
I had my first chemo treatment a little over a week ago for breast cancer...It's day 8 and I notice thinnning but not falling out yet. I am 32 and it's been hard on my kids but I bought my 7 year old daughter the bald american girl doll for when I "buzz" my head!:) I believe I will buzz it within the next few days...I have that reoccuring nightmare of sobbing on the shower floor watching hair fall out in the drain.:(
Gail Perry

Tampa, FL

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#97
Aug 4, 2012
 
Christa, I went even further and started wearing the wig I had bought before I needed it. I liked people not knowing when I'd started chemo. I didn't want it to be an "issue."

By the way I tolerated chemo really well. Not everyone has a hard time with it. I'm out on the other side for six years and glad to be alive, even for everything I went through to be here.

I took up sailing again after chemo, something I hadn't done since I was 23. Now I live on a sailboat and will soon be helping someone move their boat from Miami, around the Keys and up to Tampa Bay. What an adventure! And I don't think I would have done any of it except for the cancer. It made me recognize the opportunities I truly wanted when they came along.
Nan

Saint Louis, MO

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#98
Oct 12, 2012
 
My hair starting coming out in clumps 12 days after the first treatment. I have been so sick I
am afraid to go back for another one. All of may hair has fallen out.
Gail Perry

Saint Petersburg, FL

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#99
Oct 12, 2012
 
Nan wrote:
My hair starting coming out in clumps 12 days after the first treatment. I have been so sick I
am afraid to go back for another one. All of may hair has fallen out.
But that's what happen. Most chemotherapy drugs target cells that grow very fast, and unfortunately that includes hair.

In the GREAT majority of cases your hair will grow back, but be warned -- if you follow it with hormone therapy that return will be slow and thin. It was terribly discouraging for me.

Has your doctor offered you anything to deal with the other side effects?
Kathyj747

Mission Viejo, CA

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#101
Mar 20, 2013
 
I'm very frightened. Just been diagnosed with breast cancer. 4 lumps all on right side. Told I'd have to have breast removed. Less than a week ago & currently, simply shell
shocked. Of course every women is petrified of losing their hair. Who ever said, do you want hair, or do you want to die, was pretty cruel. You'd be crazy, to think every women, is going to think of it this way! At least it's a sign your started to accept what is happening, or going to happen to you. Also, that your not pretending nothing is wrong! This past week, I've been ignoring everything! Not calling my referral Dr.'s, thinking its just going to go away! Then yesterday, I thought of my hair. That alone, has given me a tiny push, that I better, start doing something! Especially after reading these letters. My hair is very long. Always has been. I'm an older flower child from the '60's, always having long blonde hair,( way past my shoulders) has been like a trade mark to me. My daughters, followed suit. Ironically, I of my daughters, just recently,(couple of months ago) just had 13 inches of HER hair cut, to donate to the cancer foundation, so a women with cancer could have a wig made. I was so very proud of her. Now her Mother, is in that position! So thoughts wondering thru my head, was, can a women have her own hair cut,(before falling out) & perhaps a wig could be made of her own?
I know I should be worrying of other things, right now. But this here, what I'm writing is admitting SOMETHING! Has anyone done what I'm enquiring about? Is it possible?

Since: Feb 09

Location hidden

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#102
Mar 20, 2013
 
Kathyj747 wrote:
I'm very frightened. Just been diagnosed with breast cancer. 4 lumps all on right side. Told I'd have to have breast removed. Less than a week ago & currently, simply shell
shocked. Of course every women is petrified of losing their hair. Who ever said, do you want hair, or do you want to die, was pretty cruel. You'd be crazy, to think every women, is going to think of it this way! At least it's a sign your started to accept what is happening, or going to happen to you. Also, that your not pretending nothing is wrong! This past week, I've been ignoring everything! Not calling my referral Dr.'s, thinking its just going to go away! Then yesterday, I thought of my hair. That alone, has given me a tiny push, that I better, start doing something! Especially after reading these letters. My hair is very long. Always has been. I'm an older flower child from the '60's, always having long blonde hair,( way past my shoulders) has been like a trade mark to me. My daughters, followed suit. Ironically, I of my daughters, just recently,(couple of months ago) just had 13 inches of HER hair cut, to donate to the cancer foundation, so a women with cancer could have a wig made. I was so very proud of her. Now her Mother, is in that position! So thoughts wondering thru my head, was, can a women have her own hair cut,(before falling out) & perhaps a wig could be made of her own?
I know I should be worrying of other things, right now. But this here, what I'm writing is admitting SOMETHING! Has anyone done what I'm enquiring about? Is it possible?
i dont see why not, as far as i know u can cut and donate ur hair at Any time.

to me, doing so is a wonderful gift to someone who is already going thru the worse possible moment in their life, u Should be proud of ur daughter..

i know u dont want to hear this, but hair IS nothing to cry about, it will grow back.
the thing for u now is to concentrate on ur health because THAT is what matters.
i wish u all the luck in the world, maybe u can join a group to express all of what ur feeling at this time, i think somehow talking to others in the same boat helps keep u strong throughout all of it. its these women who completely understand all of ur emotions.
:}


Since: Feb 10

Clearwater, FL

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#103
Mar 20, 2013
 
Kathyj747 wrote:
I'm very frightened. Just been diagnosed with breast cancer. 4 lumps all on right side. Told I'd have to have breast removed. Less than a week ago & currently, simply shell
shocked. Of course every women is petrified of losing their hair. Who ever said, do you want hair, or do you want to die, was pretty cruel. You'd be crazy, to think every women, is going to think of it this way! At least it's a sign your started to accept what is happening, or going to happen to you. Also, that your not pretending nothing is wrong! This past week, I've been ignoring everything! Not calling my referral Dr.'s, thinking its just going to go away! Then yesterday, I thought of my hair. That alone, has given me a tiny push, that I better, start doing something! Especially after reading these letters. My hair is very long. Always has been. I'm an older flower child from the '60's, always having long blonde hair,( way past my shoulders) has been like a trade mark to me. My daughters, followed suit. Ironically, I of my daughters, just recently,(couple of months ago) just had 13 inches of HER hair cut, to donate to the cancer foundation, so a women with cancer could have a wig made. I was so very proud of her. Now her Mother, is in that position! So thoughts wondering thru my head, was, can a women have her own hair cut,(before falling out) & perhaps a wig could be made of her own?
I know I should be worrying of other things, right now. But this here, what I'm writing is admitting SOMETHING! Has anyone done what I'm enquiring about? Is it possible?
I'm not going to say it's nothing to cry about. I tried going out without my wig, with just a cap or scarf, and people did stare. you could see them trying not to. But ... I live in Florida, and wigs are hot.

In addition, if you take an aromatase inhibitor, your hair may not all come back, and it may grow extremely slowly. This has to be a shock for someone who has always had long hair.

I think it would be very expensive to have a wig made of your own hair, and you may find that some kinds of hair are better suited for that than others.

What I did was have my head shaved and start wearing the wig before I started chemo. No one knew when I started and I didn't continually clean my hair up all over the place. But that's only what was right for me.

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