Women With Breast Cancer No Longer Ha...

Women With Breast Cancer No Longer Have to Settle for Second Cl...

There are 64 comments on the Med Ad News story from Aug 11, 2006, titled Women With Breast Cancer No Longer Have to Settle for Second Cl.... In it, Med Ad News reports that:

Today the National Institute for Health and Clinical Excellence published a positive Final Appraisal Document on the class of breast cancer drugs known as aromatase inhibitors post surgery.

Join the discussion below, or Read more at Med Ad News.

Jacoline-mexico

Jiutepec, Mexico

#42 May 22, 2007
I just turned 50, have been fighting BC for over 4 years, had 2 lumpectomies, and a year and a half ago a mastectomy, all lymphnodes under right arm removed, as well as ovaries.(ovaries were free of cancer, but I was premenopausal, so dr's wanted to take them out to induce menopause). I have all my treatments in Switzerland. I had radiation, and have been taking arimidex for 2 years, and it has been hell for me. Terrible aches all over, joints, muscles, back, lack of concentration, problems with sleeping, headaches, extreme tiredness all day, hot flashes sometimes up to 3-4 in just half an hour, plus having to fight depression. I felt I aged maybe 15 or 20 years. Also, I had to eat maybe half of what I was used to, to keep from gaining more weight. I tried for 6 months to take Arimidex every other day, and it has helped relieve the pain some, I also take GNC Enjoint G-C, 4 a day, and found it to be very helpful.
However, 2 days ago I decided to stop taking Arimidex, and I am sooo relieved, I look forward to feeling much better, and feeling young again. I don't want to destroy my body anymore, I've had enough.
I'd rather live well whatever is left to live, then enduring the hell I have tried to for the past 2 years, it's not worth it to me. My dr started me on Arimidex 6 months before the mastectomy, along with monthly injections to block ovarian production, in order to see if the tumor would shrink. It did shrink a bit, but mastectomy was still needed, since the tumors filled my entire breast.
I wish you all the best, but I'm off the drug now. I keep my weight down with daily exercise, swim and walk,(can't do anything else, because I lost all agility, plus get swollen arm if I overdo), and I follow a pretty much vegan diet, 60% raw, with some fresh juices every day. I try to stay away from dairy products, they say that dairy is to breast cancer as tobacco to lung cancer. I learned a lot from Dr Day and her website, as well as from many other such alternative cures for cancer.
God bless you all.
Gill

Plymouth, UK

#43 May 23, 2007
My oncologist has asked me to come off arimidex after having been on it for 7 years. My spine and left hip are nearing the osteoporosis stage and although I know I should stop taking it for this reason I am worried about getting cancer again. I was originally on tamoxafin for 6 years then came off it and the cancer came back so I feel reluctant to come off Arimidex. I would be interested to hear what anyone else thinks.
no name

United States

#44 May 23, 2007
Jacoline-mexico wrote:
I just turned 50, have been fighting BC for over 4 years, had 2 lumpectomies, and a year and a half ago a mastectomy, all lymphnodes under right arm removed, as well as ovaries.(ovaries were free of cancer, but I was premenopausal, so dr's wanted to take them out to induce menopause). I have all my treatments in Switzerland. I had radiation, and have been taking arimidex for 2 years, and it has been hell for me. Terrible aches all over, joints, muscles, back, lack of concentration, problems with sleeping, headaches, extreme tiredness all day, hot flashes sometimes up to 3-4 in just half an hour, plus having to fight depression. I felt I aged maybe 15 or 20 years. Also, I had to eat maybe half of what I was used to, to keep from gaining more weight. I tried for 6 months to take Arimidex every other day, and it has helped relieve the pain some, I also take GNC Enjoint G-C, 4 a day, and found it to be very helpful.
However, 2 days ago I decided to stop taking Arimidex, and I am sooo relieved, I look forward to feeling much better, and feeling young again. I don't want to destroy my body anymore, I've had enough.
I'd rather live well whatever is left to live, then enduring the hell I have tried to for the past 2 years, it's not worth it to me. My dr started me on Arimidex 6 months before the mastectomy, along with monthly injections to block ovarian production, in order to see if the tumor would shrink. It did shrink a bit, but mastectomy was still needed, since the tumors filled my entire breast.
I wish you all the best, but I'm off the drug now. I keep my weight down with daily exercise, swim and walk,(can't do anything else, because I lost all agility, plus get swollen arm if I overdo), and I follow a pretty much vegan diet, 60% raw, with some fresh juices every day. I try to stay away from dairy products, they say that dairy is to breast cancer as tobacco to lung cancer. I learned a lot from Dr Day and her website, as well as from many other such alternative cures for cancer.
God bless you all.
Have you tried the vegetable juices as well?
Jacoline-mexico

Jiutepec, Mexico

#45 May 23, 2007
Yes, I drink 1 freshly pressed carrot juice a day, also 1 orange juice first thing mid morning, and one apple juice mid afternoon. Each one on empty stomach, and freshly pressed or squeezed. I don't eat ever in between meals, just the juices, also helps keep my weight down. Besides, carrot juice is one of the best detoxifiers you can drink.
Margarita

Boonton, NJ

#46 May 26, 2007
Hi everyone,
I would like to share my perspective on Arimdex. I was diagnosed with cancer in 2004, I decided after having a masectomy to not take anything. I didnt like the way I felt after two weeks and decided to not take pills. Thank the Lord above, I'm still going. I believe that it is important that you eat right. Stay away from red meat, soy products for you estrogen positive ones and pray alot for yourself. God loves you and knows when it will be your time. Dont stress about it. Live each day as it's last with happiness. That's what keeps all of US going. God Bless.
forgetter

United States

#47 May 26, 2007
Jacoline-mexico wrote:
Yes, I drink 1 freshly pressed carrot juice a day, also 1 orange juice first thing mid morning, and one apple juice mid afternoon. Each one on empty stomach, and freshly pressed or squeezed. I don't eat ever in between meals, just the juices, also helps keep my weight down. Besides, carrot juice is one of the best detoxifiers you can drink.
I believe Dr. Day did 35 pounds of carrots per week. 5 cabbages a week 21 heads of Romaine lettuce a week and much more if you are interested I will obtain that information for you. She is still alive 15 years after her breast cancer. Also another man had cancer of the colon at the age of 42 and is now still alive at the age of 73. Both of these also use barley green but it is expensive and I don't truly know how necessary it is.
annemarie

Dartmouth, Canada

#48 May 27, 2007
I had stage3 breast cancer and had chemo and radiation. My bones are so sore I feel like I'm 90. I'm 50. I also suffer with dry mouth,nose and eyes. The corners of my mouth are cracked. I'm getting ready to return to my nursing job and I don't know how I'm going to do it. Life will never be the same
aghast

United States

#49 May 28, 2007
annemarie wrote:
I had stage3 breast cancer and had chemo and radiation. My bones are so sore I feel like I'm 90. I'm 50. I also suffer with dry mouth,nose and eyes. The corners of my mouth are cracked. I'm getting ready to return to my nursing job and I don't know how I'm going to do it. Life will never be the same
I know someone who felt that juicing lots of vege juice after chemo helped her to recover. Work is stressful for a cancer patient Dr. Day feels it is better perhaps to rest. Of course the decision is yours. I wonder if work would help keep a person's mind off themselves as long as it is not overdone and not too stressful. If you become well nourished I feel there is a possibility you will stop hurting.
Carol Lane

United States

#50 Jun 4, 2007
I would not advocate rest for everyone. As with most things, it depends on the individual. My work is a big part of my life; I enjoy it and my collegues. Not working during chemo and radiation would have added to my stress and removed me from important support. I did take days off when I needed to, worked from home a lot but did not feel that the cancer altered my life significantly. My husband was supportive of my choice. It is a life changing diagnosis but also lead me to use time more wisely, spend time with people I really like and continue meaningful work to support research folks living with HIV/AIDS and other diseases.
annemarie

Dartmouth, Canada

#51 Jun 4, 2007
aghast wrote:
<quoted text>
I know someone who felt that juicing lots of vege juice after chemo helped her to recover. Work is stressful for a cancer patient Dr. Day feels it is better perhaps to rest. Of course the decision is yours. I wonder if work would help keep a person's mind off themselves as long as it is not overdone and not too stressful. If you become well nourished I feel there is a possibility you will stop hurting.
I will definitely try the juice. I do drink juice every morning but not throughout the day. I miss my job and I'm anxious to return to work but I'm worried about the lifting because I m a community nurse and there is often no help when transferring and moving very heavy people. Do you knoe if I'm in danger? I have not had reconstruction because of the amount of radiation I had, and I'm not a candidate for the flap(too thin). I have a lot of discomfort.
Lisa

Thousand Oaks, CA

#52 Jun 7, 2007
I was diagnosed with stage 1 breast cancer at the age of 37. I was so afraid of having to face this a second time that I opted for a bilateral mastectomy. I was given the choice of two chemo regimes and chose the harder one. After 2 1/2 years on tamoxifen I was sick of having ovarian cysts drained. I had a hysterectomy and began arimidex. I know this all sounds very aggressive, but my intuition told me that I needed to be very careful. I still get very scared before check ups. I've been on arimidex for 6 mos. and I hurt all over. After sitting, I move like and old woman and I'm only 41! Only 18 mos to go before I'm done with meds.
Rose from Canada

Sherbrooke, Canada

#53 Sep 12, 2007
I am just starting Arimidex. This is my 4th day. So far so good - although this forum makes me think it could be a long five years. Is there anyone out there that has had positive experience with arimidex? I would love to hear some good news.
I know it is a new drug? Is there a reason why it is being prescribed for hormone receptive cancer instead of tamoxifen.
Paula

Palm Springs, CA

#54 Sep 14, 2007
Rose from Canada wrote:
I am just starting Arimidex. This is my 4th day. So far so good - although this forum makes me think it could be a long five years. Is there anyone out there that has had positive experience with arimidex? I would love to hear some good news.
I know it is a new drug? Is there a reason why it is being prescribed for hormone receptive cancer instead of tamoxifen.
I just ended 2 1/2 years of Arimidex after 2 1/2 years of Tamoxifen. I have had most of the symptoms recounted on this list. Nobody has said much about how long it takes to feel better once we stop the meds. I will keep you posted. I am looking forward to my brain clearing, the end of the overwhelming fatigue and the end of joint and bone pain. I can't believe how different I am from the person diagnosed with breast cancer 5 1/2 years ago. Amazing.
Paula

Palm Springs, CA

#55 Sep 14, 2007
I should add that I also had 6 weeks of chemo and 37 days of radiation before the oral meds. Now I am only taking vitamins.
MBW

United States

#56 Sep 19, 2007
I was diagnosed at age 33. Had a lumpectomy, one node out of 16 partially involved. Went through radiation and chemo. Had a reocurrence 3.5 yrs. later. Lymph node full of cancer but contained. Removed lymph node and was put on Tamoxifen. Took away coping skills at first but it got better. Also caused ovarian and vaginal cysts. Had a hysterectomy at age 39.Stopped Tamoxifen after 9 years and switched to Arimidex. After being on it for 2 years I finally realized it was causing a lot of symptoms. It took me a while to figure it out because during those 2 years we had a very ill child, I had surgery on my rotator cuff and broke my foot. I thought it was stress, aging and being inactive because of my shoulder harness and then the boot I was in for 6 weeks.
I'm 5'4" and weigh 135lbs. I have no ovaries. My question to my oncologist was "how much estrogen could I be producing?" He agreed and said to stop the Arimidex and have a serum estrodiol done in 4 weeks. I have been off the Armidex for 2.5 weeks and feel so much better already. I have my energy back, I'm not longer walking around in a fog, my eyesight is clearer, my joints are no longer stiff and swollen. I can so relate to the posts about feeling like a 90 yr old and having difficulty walking when I first got up, or got up after sitting for a while. I actually had not realized how swollen my joints were till I went off the Arimidex. I can actually see my see and feel my knees, elbows and ankles again. My husband says he sees a difference in me and I didn't even think he noticed how much difficulty I was having. I must admit I'm scared though. Do I stay off it and feel great or go back on, be miserable, but hopefully keep the cancer away?
Thank you for all your posts. It really helps.
MB
Charlotte

Auburn University, AL

#57 Jun 17, 2008
Where can I find Enjoint GC? It seems GNC no longer carries it
Jacoline-mexico wrote:
I just turned 50, have been fighting BC for over 4 years, had 2 lumpectomies, and a year and a half ago a mastectomy, all lymphnodes under right arm removed, as well as ovaries.(ovaries were free of cancer, but I was premenopausal, so dr's wanted to take them out to induce menopause). I have all my treatments in Switzerland. I had radiation, and have been taking arimidex for 2 years, and it has been hell for me. Terrible aches all over, joints, muscles, back, lack of concentration, problems with sleeping, headaches, extreme tiredness all day, hot flashes sometimes up to 3-4 in just half an hour, plus having to fight depression. I felt I aged maybe 15 or 20 years. Also, I had to eat maybe half of what I was used to, to keep from gaining more weight. I tried for 6 months to take Arimidex every other day, and it has helped relieve the pain some, I also take GNC Enjoint G-C, 4 a day, and found it to be very helpful.
However, 2 days ago I decided to stop taking Arimidex, and I am sooo relieved, I look forward to feeling much better, and feeling young again. I don't want to destroy my body anymore, I've had enough.
I'd rather live well whatever is left to live, then enduring the hell I have tried to for the past 2 years, it's not worth it to me. My dr started me on Arimidex 6 months before the mastectomy, along with monthly injections to block ovarian production, in order to see if the tumor would shrink. It did shrink a bit, but mastectomy was still needed, since the tumors filled my entire breast.
I wish you all the best, but I'm off the drug now. I keep my weight down with daily exercise, swim and walk,(can't do anything else, because I lost all agility, plus get swollen arm if I overdo), and I follow a pretty much vegan diet, 60% raw, with some fresh juices every day. I try to stay away from dairy products, they say that dairy is to breast cancer as tobacco to lung cancer. I learned a lot from Dr Day and her website, as well as from many other such alternative cures for cancer.
God bless you all.
Charlotte

Auburn University, AL

#58 Jun 17, 2008
I can't seem to find Enjoint GC any longer at GNC.. Can you tell me where I can find it?
susan

Forney, TX

#59 Jul 21, 2008
Kathleen Scott wrote:
I have been taking Arimidex for seven months. Initially I had headaches and joint pain. The headaches subsided and the swelling set in along with wicked hot flashes; much worse than anything I had going through menopause!! Recently I developed hives on my back and abdomen. In addiation to Arimidex I take Crestor and vitamins (primarily calcium and "D". I went off of everything a week ago and (as of two days ago) I feel much better. I had stage I breast cancer. I need to decide if I m going to go back on the medication. Like Marilyn I struggle with feeling so awful for five years vs the risk of a recurrence. Any input appreciated.
I have been on arimidex 8 months and quit taking it the first of June. I became stiff almost felt froze in my joints. I felt so fuzzy and awful. I nave been off it almost two months and I feel great. I had stage II but I thought I cannot feel like this for 4 more years, I could not move around and I am 54. I am worried about it but I felt so bad. Anyway good luckin your decision.
Gail Perry

Bradenton, FL

#60 Jul 22, 2008
"I don't understand why you are taking this drug if you have had both breasts removed as the drug is to prevent estrogen from getting to the tumors in your breast to feed them!!!"

This is not accurate information. That is ONE way AI's can help, but they can also prevent the spread to other organs -- Stage IV.
Gail Perry

Bradenton, FL

#61 Jul 22, 2008
AI's make menopause more extreme. Anyone who has been through menopause will understand the significance of that statement, but women who had not entered menopause will not.

I have a lot of symptoms from the Femara I take, but I know it could very well be saving my life, so I take it.

As for working during chemo -- if you feel up to it, work. Let your life be as normal as possible. When all of these interventions work, which they often do, breast cancer is just another bump in the road, and no one ever promised us a road with no bumps.

Just be very direct with your doctor about AI's side effects, and don't let them be brushed away. They are real but they can be dealt with. For me, the worst was insomnia, which started severely and within 2 days of starting it. When the doctor hesitated to prescribe anything for it (nothing else was contributing to it, there was nothing else to fix)-- I said fine, then I just can't take this stuff, because I feel wretched when I'm sleep deprived and I'm not going through five years of this.

I think why he finally took it seriously is that lack of sleep is my only trigger for migraines, and I was having one every four or five days, but personally I think he should have taken the sleep deprivation just as seriously. I can accept that meds have side effects, but I won't tolerate dismissing them as unimportant.

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