Women With Breast Cancer No Longer Have to Settle for Second Cl...

Full story: Med Ad News

Today the National Institute for Health and Clinical Excellence published a positive Final Appraisal Document on the class of breast cancer drugs known as aromatase inhibitors post surgery.
Comments
21 - 40 of 64 Comments Last updated Nov 2, 2013
M Bryon

Australia

#22 Nov 25, 2006
From talking to otherw with breast cancer, it seems that everyone experiences some side effects from medication. I have heard of rashes, sore fingers, vaginal discharges.
oman

Selden, NY

#23 Nov 28, 2006
Mary wrote:
I have taken Arimidex for almost 5 years, and may continue after 5 because of fear of recurrence. Many in my family have died of different types of cancer. Initially I had the terrible pain and stiffness in my feet and ankles. I had some physical therapy for my feet in the first year, and was given Celebrex for the pain, but stopped that after the bad reports. Didn't go thru cancer treatments to die of a heart attack. In the ensuing years, the probs with feet have subsided, and I'm not sure if it was the Arimidex, the chemo, or standing all day teaching that caused the prob, but I am grateful to be rid of it I did walk several times a week and took an oxy-breathing class all this time, and that may have helped. Now I will just have to read everything available on continuing Arimidex and play the odds on continuing with it.
Where do you take an oxy-breathing class? Is that for your aches and pains? I may have to take that class myself. I have just started taking Celebrex primarily for my left wrist, but I'll stop, it is helping, it seems. I have gotten used to all the aches and pains in general. I walk, exercise and move a lot, eat healthy, take calcium and vit D, multivits, get at least 7 hrs. sleep, build up my immune system and positive thinking. And I'd like to take Arimidex beyond my 5 yrs. hopefully to prevent recurrence. By the way, I had 1 lymph node not 2.
Lois

Leesport, PA

#24 Dec 8, 2006
Carol French Johnson wrote:
I remember the swelling when I initially went on the drug over a year ago. That seemed to get better gradually. It was't a problem in winter. Not so with the joint pains, but on this forum somehwere there is a message from a woman who has been on Arimidex for 4 1/2 years--she says the pain lessens, and I think that fact offers us optimism.
I have been on Arimidex for almos 3 years after haveing a lumpectomy, chemo and radiation. 1st 2 yrs. were not too bad but now I am experienceing joint pain in my hands and knees and have noticed the knuckles in my hand are swollen and almost deformed. Have been to physical therapy for my knees which helped some. I have also joined Curves and try to work out 3 times a week to try and maintain bone strength. I see my Oncologist in Janurary and am going to discuss the issues I am having with him. I did mention the knee pain at my last visit and he sort of scoffed at it and attributed it to getting older. I am 63-still work 40 hrs a week and would feel pretty good if it were not for the joint pain and occasional bouts of fatigue. It is good to know that I am not the only one experiencing these problems. May god help all of us-this Cancer has been hell on earth for me.
Connie

Bullhead City, AZ

#25 Dec 11, 2006
marilyntabor wrote:
I have been taking arimidex for 3 months and I hurt all over. My lower back aches,my knees are stiff,my hands and fingers feel tight and swollen. All I want to do is lay around all the time because I feel so achy and tired all the time. I wish I had some answers. I had stage II breast cancer. I've had a double mastectomy with a tram-flap breast reconstruction (which was very painful). I don't won't to take a chance on a reacurrance but I don't think I'm going to be able to take this drug for five years. I'm 59 and I don't want to feel bad for the next five years.
I agree with you. Quality of life is important to me. I am 58 and feel 90. Have the same pains as you. I quit yesterday. No more drugs for me.
Good Luck!
Lynn

Raleigh, NC

#26 Dec 17, 2006
Lois! Take a copy of this forum with you and ask why ALL of us are experiencing the same side affects! The joint pain is not because we are old--it is a by product of Arimidex!!!!!!! It would help if he would take the drug for 6 months and then evaluate himself! You bet your sweet booty he would change his tune then! I am now going on 3 months without Arimidex or Boniva. My joint pain is practically non-existent now. Fingers, elbows, knees, hips----------give him my regards and by the way, I am 59, physically active, and not yet ready for a wheeel chair....Good Luck, Lynn
Lynn

Raleigh, NC

#27 Dec 24, 2006
Connie wrote:
<quoted text> I agree with you. Quality of life is important to me. I am 58 and feel 90. Have the same pains as you. I quit yesterday. No more drugs for me.
Good Luck!
Connie, Please let me know how you feel after 2-3 mos. off this drug. I feel 100% better and will interested to know what you experience. I think it is important to tell our oncologists about these problems. Lynn
Helen

Eatontown, NJ

#28 Jan 26, 2007
In late 2005 I had a lumpectomy and lymphectomy for a pea-size lump in my left breast. It was cancerous, but stage I and the slowest growing kind. After 7 weeks of radiation, my doctor put me on arimidex, and I have been taking it for a year. I feel that this drug is poisoning my body. Nothing could have prepared me for all the pain I have all over, even my collarbones. I was taking 600 mg of ibuprofen every day just to alleviate some of the pain, so I could function. Then it occurred to me that I was damaging my stomach and my liver, so what do you do? From what I've read, Tamoxifen and Femura are not good, either. I decided to quit taking it and see what happened. I've been off of it for a week, and I feel like a different person--no pain whatsoever. I am 67 years of age and have been in excellent health until this situation occurred.
Irene

Vancouver, Canada

#29 Jan 29, 2007
I've been taking Arimidex for 7 years but stopped several months ago because of the effect it was having on my memory and how it was slowing down my thinking. It took a few weeks for the drug to clear my body but now I feel I have my brain back. Anyone else dealing with "fuzzy brain"?
Carol Lane

Germantown, MD

#30 Jan 30, 2007
Yes but I was not sure if it was job overload, the medicine or snother factor. I get waves of dizziness sometimes. And, can't remember words or names. Good to know that yours cleared after stopping the med. Are you taking anything else?
Lynn

Raleigh, NC

#31 Feb 1, 2007
I hope all of you have read the recent news about the joint pain (oesteoartritis) and the high cholesterol after being treated with tamoxifen and arimidex. PLEASE discuss this with your Drs. I know we all are guinea pigs for all these drugs but it is now time to say enough.
Lisa

Honolulu, HI

#32 Feb 20, 2007
Anzie Lawlor wrote:
If I'm idle for an hour or two my fingers swell up and I can't remove my rings. Is this just another side affect of 4 months on Arimidex/Zometa or is it a sign that my heart isn't in great shape. Apart from this and stiff joints I have loads of energy.
I've been on Arimidex and then Aromasin. I had to have my rings resized after I started taking the meds. I am now going to try Femara to see if maybe I can reduce the joint pain.

So far, it has been 17 months on one or the other of the aromatase inhibitors. Thinking about doing this for 5 years is depressing!
Lisa

Honolulu, HI

#33 Feb 20, 2007
Lynn wrote:
I hope all of you have read the recent news about the joint pain (oesteoartritis) and the high cholesterol after being treated with tamoxifen and arimidex. PLEASE discuss this with your Drs. I know we all are guinea pigs for all these drugs but it is now time to say enough.
I missed this news. Where was it posted, please?
Vivienne

Falls Church, VA

#34 Feb 21, 2007
Lynn wrote:
I hope all of you have read the recent news about the joint pain (oesteoartritis) and the high cholesterol after being treated with tamoxifen and arimidex. PLEASE discuss this with your Drs. I know we all are guinea pigs for all these drugs but it is now time to say enough.
I have made the decision not to take arimidex. I had a strong sense that it was not going to be good for me.(Had mastectomy and reconstruction few months ago.) Quality of life is very important to me and I am not willing to subject myself to potential harmful side-effects. Oncologist says that it's my decision but I need to make an informed choice and know why I am not taking it. She says that some of her patients don't take it. Doc did not push it, she just said it's my choice. Research stats show that over a five year period there is a 10% chance of reoccurence of breast cancer. Amitrex reduces that to a 5% chance of reoccurence. However there are many other risk factors for reoccurence of cancer, e.g. excess weight (estrogen is carried in the fat cells). I am working hard at getting my weight down to normal levels which will reduce risk of reocurrence.
rosetta

Australia

#35 Mar 26, 2007
Shirley Brush wrote:
I have been taking Arimidex for Ten years. I was first on Tamoxifen for three years, then the cancer came back and Tamoxifen was changed to Arimidex. I have and still suffer from pain and striffness in hands wrist and feet. Did not know all my problems are being caused by the medication till reading all this info and reading the side affects. I have been on oxygen for three years at night and 24 - 7 in the mountians, with no reason for the breathing problems. osteoporosis, hair loss, cataracts, cholesterol, vaginal dryness. It is not worth it. The Arimidex was new when I started taking it and the drug companies do not know how it affect you with long term use. I have an appointment next week and will discuss the complications of going off the drug.
Did you find out? I would love to know as I am suffering very much with Femara and am thinking of going off it?
Cindy

Greensburg, PA

#36 Apr 7, 2007
I had once thrown around the idea of eating apricot seeds as an alternative medicine instead of the traditional stuff. THe FDA does not approve it because it is "toxic" to our bodies. And Femara, Armidex, chemo, etc. ISN'T? I am on Femara and haven't gotten the seeds only because I've been brain washed like everyone else that traditional meds are best but do we REALLY know that to be true? This is just all so scary sometimes (most of the time) and so hard to make decisions on what is the best thing to do. I don't think that the FDA is our friend. It's all about the profit.
Yvonne

Lehigh Acres, FL

#37 Apr 7, 2007
Please keep in mind that the vitamin D that is needed to absorb calcium is vitamin D3 which is cholecalciferol. Vitamin D is calcium carbonate basicly chalk and can coat your thyroid causing yet another health issue. Doctors don't specify which vitamin D to take but it is vitamin D3 I take 400 units with the arimidex it has helped 25% but I have lost faith in doctors and am going out of my mind being in pain all of the time and not being able to sleep. I am throughly disgusted. Have they got a pill for that?
Yvonne

Lehigh Acres, FL

#38 Apr 7, 2007
Lynn wrote:
I hope all of you have read the recent news about the joint pain (oesteoartritis) and the high cholesterol after being treated with tamoxifen and arimidex. PLEASE discuss this with your Drs. I know we all are guinea pigs for all these drugs but it is now time to say enough.
You got that right Lynn WE ARE GUINEA PIGS and I for one am pissed off about it. My cholesterol is sky high, my thyroid is low cuz I was taking vitamin D (calcium carbonate) and it coated my thyroid when it is vitamin D3 Cholecalciferol that we need to take to help absorb calcium and where did I learn that SURELY NOT FROM MY DOCTOR, heard it on TV from a nutritionist on the Today's show. I don't know what to do anymore about the quality of my life it is so depressing I can't find work my marriage is in the toilet my daughter is overseas, I just wish I was dead.
cancerfree7years

Mill Valley, CA

#39 May 14, 2007
Estrogen is not limited to the breasts, its a systemic hormone and is inhibited to prevent metastatic spread throughout the body. Studies indicate a 30-40% lessoning of risk from using this family of drugs. My advice is stay with it a while and the symptoms may lesson. I had a lot of issues for the first three months on Femara and now I'm feeling great.
Kathleen Fairfield Ohio wrote:
<quoted text>
I don't understand why you are taking this drug if you have had both breasts removed as the drug is to prevent estrogen from getting to the tumors in your breast to feed them!!! I have considered having my breasts removed because my doctor told me I would no longer have to take this stuff if i did. Why are you still on it? I woud be interested in your doctors explanation for prescribing. Isee my oncologist today. i will inquire about this.
sjj

Worcester, MA

#40 May 15, 2007
Dr. Lorraine Day remains cancer free roughly 15 years after a bout of cancer with huge tumors on her chest. For those with cancer I suggest drday.com Others have also survived doing health measures as hers.
nrs

Worcester, MA

#41 May 15, 2007
cancerfree7years wrote:
Estrogen is not limited to the breasts, its a systemic hormone and is inhibited to prevent metastatic spread throughout the body. Studies indicate a 30-40% lessoning of risk from using this family of drugs. My advice is stay with it a while and the symptoms may lesson. I had a lot of issues for the first three months on Femara and now I'm feeling great.
<quoted text>
Some research indicates estrogen causes cancer of the uterus. A doctor Clark of Bath Me. says estrogen opposed with so called progesterone causes breast cancer. Heads up.

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