Study shows some breast cancer patients avoid endocrine therapy

Apr 14, 2013 Full story: Observer & Eccentric 6

Five years of daily tamoxifen or aromatase inhibitors -- two types of endocrine therapy that are taken as a pill -- is recommended for many women whose breast cancer expresses the hormones estrogen or progesterone.

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Since: Feb 10

Clearwater, FL

#1 Apr 14, 2013
This article very politely blames the patients for being "noncompliant." At least they were tactful enough to not use that word, but that's what they meant.

They didn't BEGIN to describe all the common side effects of 'endoctrine therapy.' For me, those side effects were horrendous.

I do not fit their study *at all.* I am very concerned about the cancer coming back; mine was high risk for that. My oncologist was clear about this without being intimidating. He tried very hard to find a way for me to tolerate some form of this therapy for two years. I tried all four drugs. Each one was worse than the one before, adding yet more side effects (this tells me that my onc is very familiar with this treatment and I am grateful for his excellent guidance.)

Chemo was a CAKE WALK for me compared to these drugs. Not everyone will do so well with chemo; not everyone will do as badly with endoctrine therapy as I did. I would URGE those 11% of women who haven't even tried it to give it a try. It might be a cake walk for them, and you don't have to sign an iron-clad contract in order to try it. Vaginal dryness is not the end of the world. My side effects were much worse than that. Since I didn't have insurance, deaing with them -- one of which put me in the hospital for tests -- were EXTREMELY expensive as well as trying. All this cancer treatment wiped out a substantial retirement fund and moved me from well-to-do to working at Wal-Mart, and that's the truth.

These sugar-coated articles are part of the problem, not part of the solution. We're all big girls and we can handle the truth.
Wired Al

Montréal, Canada

#3 Apr 14, 2013
A British company is developing computer chips that store music in women's breast implants.

A company spokesperson declares this a major breakthrough, as women are always complaining about men staring at their breasts without listening to them.

Since: Feb 10

Clearwater, FL

#4 Apr 14, 2013
Wired Al wrote:
A British company is developing computer chips that store music in women's breast implants.
A company spokesperson declares this a major breakthrough, as women are always complaining about men staring at their breasts without listening to them.
Jerk. Women are DYING over this issue, and that's the best you can do.

Since: Feb 10

Clearwater, FL

#6 Apr 16, 2013
Thank you, Topix, for running a good board. To women debating whether to try endoctrine therapy: IT MAY SAVE YOUR LIFE.

Truly I could not tolerate them, but ... I am not YOU. Many people CAN tolerate it. You can stop taking them, and when you do, the side effects go away quickly. There's a very big downside to not doing this therapy if you're a candidate. Please give it a try if you're a candidate. I have constant worry because I could not finish it. Maybe you won't have to live with that.

Since: Apr 13

Location hidden

#7 Jun 24, 2013
nice story.. very informative

Since: Feb 10

Clearwater, FL

#8 Jun 24, 2013
nurseamyg wrote:
nice story.. very informative
It's pseudo-information. If this is an issue in your life or the life of someone you care about, I urge you to put it through the shredder and get better information.

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