Side Affects AFTER CHEMO
angi4cats

Holmen, WI

#121 May 24, 2009
I would just say that it is a very personal choice, but most doctors will push you to have chemo before radiation. Doctors get huge kickbacks on pharmacudicals, they do not on radiation. My sister in law had chemo, and it was told to us by the doctors she seen in Denver that the chemo she received in Wisconsin had severly damaged her heart. It was at 14%. Her heart failed and she died in her sleep. She had beaten the cancer, but not the chemo. My best friend the same way. The cancer was in remission, but the chemo had damaged her liver, kidneys and heart, that is what killed her, not the cancer. The side effects from chemo can show up years later, and you don't know when it's happening. Cancer treatment is each individuals choice. But as for me, they can keep it. I watched my best friend go from a vibrant 50 year old to an 80 year old within weeks, and slowly, painfully fade away. I do not trust chemo, never have, and now for sure never will. I have seen what it can and can not do. My oncologist told me up front that he has had patients have their 1st or 2nd treatment, and die on the table. So at least he was honest about it. Also what type of chemo did you have, radical or the real light dosage. Big difference.
Donna

Hampton, VA

#122 May 25, 2009
DENISE wrote:
You don't hear much about what happens to our bodies AFTER Chemo. If anyone knows anything about this let me know. I had problems with Arimidex, causing "Neuropathy type symptoms". All the joint pain I got from using Arimidex, never left.
Also I now have "Connective Tissue disease" an autoimmune disorder. Which causes pain in most/all my joints and fatigue.
Also, I was "dropped into menopause"...
I'm 45, its been just over a year since I finished Chemo(4 double AC's) 26 weeks and Radition, 30 treatments.
I'm having a hard time dealing with this disease twice, no-less menopause, fatigue and joint problems, and I'm still trying to get the weight off after all the steroids. Thought it would be a chemo diet....thought I'de lose 20 pounds...no I gained about 30! And I'm tired and achy...Anyone else?
You sound exactly like me. I also had 4 rounds of chemo done every other week and 38 rounds of rad. Also had the shots of Arimidex and Neulasta which gave me so much pain by the last shot I couldn't get out of bed and walk. I didn't start having all my other problems until about 3 months after all of it was over. I don't even know where to start with all the issues my body has now. I was 44 when I started my treatments and also went into menopause. I'm 49 now so it's been a few years and I figure I'm stuck with all of the crap now for the rest of my life.
Susan jhs

Southall, UK

#123 Jun 30, 2009
Hi, I think it's called amenorea, can be caused by low carb diet, or weight loss.( no periods). Anorexics routinely have no periods. When your wife's general health picks up it will reverse naturally. I don't think it is anything to worry about. My husband has just had chemo and we are constantly battling weight loss. We have also gone on to a vegan diet for health reasons. Best scientific book to read is "The China Study" by someone cambell.
Hope things get better.
Alton wrote:
My wife has just finish her chemo this month and she going in next month for her breast to be removed. my question to you is she having trouble with the chemo leaving her body. I know your not a doctor if you are that's great. but she hasn't had a period in four month, she's not pregant but can the chemo stop her from having peroids. she breaks into sweats, she also has nerropathy in her hands and feet from the taxsaw. if you can help me out or refer me to a website i would really be grateful. thanks
Pat

Whittier, CA

#124 Sep 4, 2009
mary wrote:
<quoted text>
I keep thinking it's come back, because i feel so fatigued like i did before diagnosis. been nearly 3 months now since chemo. depressed, aching joints, depression, hot sweats (tamoxifen). anxiety, panic attacks, feellings of despair and such an ordeal to do the simplest of tasks. anyone else experience this?
I just finished chemo and am starting radiation in 1 week. i am feeling the same symptoms you are experiencing. I have a drs appr today because I feel like i jave the flu but no fever. My right side of my head is congested and my right side of nose is draining. I have been in and out of bed all week due to this and fatigue!!! I'm also feeling a little depressed and feel like crying. What is going on here? I will try to get answers today. hope things get better for you and for myself!!
Carol

Baldwin Park, CA

#125 Oct 19, 2009
I can relate Im in chemo, taking30 pills a day i hurt all day for the most part. I have a Caregiver who helps me alot. she puts me in a bath of alot of epson salt. and calgon or vasaline intensive care just to beautify it, but its really the epson salt that helps the pain. GOOD LUCK ON YOUR ROAD TO RECOVERY. MAY GOD BLESS YOU. YOU WILL BE IN MY PRAYERS.
shirley

Toulouse, France

#126 Oct 20, 2009
It took me alomost 3 years to feel really normal again. I felt so much better when i came off Tamoxifen though and feel great on Femara.
The only other problem is Taxotere has made me (and others) permanently bald and there is no cure.
People think once your chemo finsihes thats it straight back to being normal! they dont know the half of it.
Gail Perry

Plant City, FL

#127 Oct 20, 2009
shirley wrote:
It took me alomost 3 years to feel really normal again. I felt so much better when i came off Tamoxifen though and feel great on Femara.
The only other problem is Taxotere has made me (and others) permanently bald and there is no cure.
People think once your chemo finsihes thats it straight back to being normal! they dont know the half of it.
Shirley, you're absolutely right about that. I wonder how many cancer patients have been told THAT? I know I wasn't. I really thought "OK, I'll deal with this, and then life will go on as normal." Well, you've had a major problem from one treatment and I've had a major problem from another, but it appears to me that both of us had important information withheld from us so we would do what the doctors wanted us to do.

I'm going to be switching from Femara to Taxotere, but in doing research on line, once again I haven't been told the major side effects -- because the doctor wants me to take it. I understand that, but I'm a big girl and I can handle the truth. I think oncologists cause some of the psychological problems they note afterwards in some patients (and they dismiss some of our symptoms to that, too)*because* they don't tell us the whole truth.
shirley

Toulouse, France

#128 Oct 20, 2009
I always felt fuzzy headed, achey and fluey with tamoxifen. When i first started femara i had a rash so was advised to come off it for a week. Then started again and i was fine, i have to say i feel completly back to normal apart from looking in the mirror at my bald head which will always be a reminder.
When your rads have finsihed nobody warns you how vulnarable you will feel. My one bit of advice would once your rads have finished dont go onto breast cancer forums on a daily basis.
Margaret

Birmingham, AL

#129 Oct 20, 2009
I had a lumpectomy, then 4 treatments of Taxotere and Cytoxan (ending in April), then a bilateral mastectomy, followed by a Rx for Arimidex. I switched from Arimidex to Tamoxifen after a few months because I wasn't growing hardly any hair, and was quite bald on top. The hair on the top of my head is starting to come in much better now. It's still not good, but at least it's growing in evenly, and not completely bald on top like it was. I am just going to have to wait and see if my hair ever recovers. For now, it's still wig time. I found that the Arimidex made my bones and joints ache, particularly my hands. I was taking Aleve every day. When I switched to Tamoxifen, that stopped.

The Taxotere was very toxic for me during treatment. Or it could have been the Cytoxan - I have no way of knowing. I do know the Taxotere gave me a lot of neuropathy in my feet, which isn't good since I am a Type 1 diabetic and started out with a little neuropathy already. For 6 weeks after my last Taxotere treatment, I had tremendous fatigue in my thighs and could hardly walk. Luckily, that went away, as did the neuropathy in my hands. I still have a lot of tenderness in the soft tissues over my hips. On one of the boards, a doctor described it as myofascial pain over joints, and said it is most likely nerve rather than muscle in origin. I have high hopes for eventual resolution of my myofascial pain, but only give my hair about 50-50.

Margaret
Gail Perry

Plant City, FL

#130 Oct 20, 2009
Margaret, I had Taxotere once a week for 11 weeks. It was supposed to be twelve but after the 11th I suddenly had no feeling in my toes. By then I'd been on chemo, and I told my doctor I didn't think five months and one week was superior to five months of chemo. It also really tore up my nails (hands and feet) and the toenails are FINALLY growing out -- since I went off Femara.

I don't know if my hair is thickening on the scalp since I got off Femara but it's quite obvious on my arms. I start Tamoxifen in about 10 days and I just pray I don't have as many side effects as I did from the Femara.

I'm so glad you're doing better. Fighting cancer is quite a battle.
Gail Perry

Plant City, FL

#131 Oct 20, 2009
PS I'm going to respectfully disagree with Shirley. I think each person will have her own needs. For me, when I had finished all the major treatments I liked getting online. For other people it might not be the right thing to do.

What I liked about it was that I could talk about what I'd been through, but just go on with my life in "real life."
mary buell

Benton Ridge, OH

#132 Nov 4, 2009
I'm 4 years out. I had 4 surgeries on one breast my margines kept comming back not clear and the last surgery I had a infection from all the other surgeries. My boob looks like its tied up under my arm pit. Why did I think my little boobs were so important. I'm wondering why I get so tired and can't spell cemo went fine radiation fine tamoxifen fine HOT FLASHES GREAT especialy in ARUBA with a wig on.That was my graduation gift from radiation.I finally lost weight wasn't easy. Just can't do alot I get so tired. Could this be still from cemo?
Gail Perry

Safety Harbor, FL

#133 Nov 5, 2009
Mary, are you taking anything? An AI,like Femara or Arimidex, or Tamoxifen, or anything else? They can all make you feel tired. But it's my understanding that feeling tired from chemo can last quite a while.

Also make certain you haven't developed any depression. That will make you wiped out. Finally, compare your red blood cell count with before chemo. It's been 2 1/2 years since I ended chemo and my red blood count still isn't back to where it was.
kathy

Portland, OR

#134 Dec 31, 2009
I too gained about 35-40 lbs. My left side seems to be very swollen no matter if i'm standing or sitting. My memory or lack there of are very bothersome to me. I still have exzema in alot of areas. Where i had my pick line stil gives me some pain,itchy, and still very dry all around from the dressing.Theres alot of black spots that i see. My vision isn't the same anymore. I still get car sick if i go very far.
elizabeth

Whitehall, PA

#135 Jan 16, 2010
DENISE wrote:
Any one else relate to this
yes i can relate,iam three months out of chemo and my body is sosore and ache ..my 1 hand tingles and i have alot of muscle weekness
No surprise here

Plant City, FL

#136 Jan 16, 2010
BIOLOGY should be taught in high school -- ACCURATE biology, not theology.
Diane

United States

#137 Jan 23, 2010
Hello Denise, I can relate to how you are feeling. Untill I just read this I thought I was going nuts. I had stage 2 BC which lead to a bi-lateral mastectomy. I went through 8 months of chemo. Cytoxan, Adriamycin and Paclitarel were my chemo cocktails. I did alot of research on BC and treatments but I sure don't remember seeing anything on the after-chemo-effects. Of course that could be due to the chemo brain. Which by the way is better but not gone. I too,hurt all over. Every joint in my body cries out in pain by mid-day. I am extremely tired all the time. I push myself to do the every day things. I feel better knowing I'm not alone with these after effects but I wouldn't wish this on anyone. Thanks for sharing your feelings. I wish someone would have told me this was to be expected after chemo. I was starting to think something was really wrong with me! Every time I get a new ache, the first thing that runs through my mind is The C is back. I was told by my doctor that chemo brain should go away after 1 year and it may never go away. Forgetting is a breeze compared to this every day pain. I should own stock in tylenol, lol! Good luck and God bless to everyone. Thanks for sharing, it helps!
DENISE wrote:
You don't hear much about what happens to our bodies AFTER Chemo. If anyone knows anything about this let me know. I had problems with Arimidex, causing "Neuropathy type symptoms". All the joint pain I got from using Arimidex, never left.
Also I now have "Connective Tissue disease" an autoimmune disorder. Which causes pain in most/all my joints and fatigue.
Also, I was "dropped into menopause"...
I'm 45, its been just over a year since I finished Chemo(4 double AC's) 26 weeks and Radition, 30 treatments.
I'm having a hard time dealing with this disease twice, no-less menopause, fatigue and joint problems, and I'm still trying to get the weight off after all the steroids. Thought it would be a chemo diet....thought I'de lose 20 pounds...no I gained about 30! And I'm tired and achy...Anyone else?
Gail Perry

Plant City, FL

#138 Jan 23, 2010
Diane wrote:
Hello Denise, I can relate to how you are feeling. Untill I just read this I thought I was going nuts. I had stage 2 BC which lead to a bi-lateral mastectomy. I went through 8 months of chemo. Cytoxan, Adriamycin and Paclitarel were my chemo cocktails. I did alot of research on BC and treatments but I sure don't remember seeing anything on the after-chemo-effects. Of course that could be due to the chemo brain. Which by the way is better but not gone. I too,hurt all over. Every joint in my body cries out in pain by mid-day. I am extremely tired all the time. I push myself to do the every day things. I feel better knowing I'm not alone with these after effects but I wouldn't wish this on anyone. Thanks for sharing your feelings. I wish someone would have told me this was to be expected after chemo. I was starting to think something was really wrong with me! Every time I get a new ache, the first thing that runs through my mind is The C is back. I was told by my doctor that chemo brain should go away after 1 year and it may never go away. Forgetting is a breeze compared to this every day pain. I should own stock in tylenol, lol! Good luck and God bless to everyone. Thanks for sharing, it helps!<quoted text>
They know what chemo does to the brain and have known for decades. I took a class in pediatric neuropsychology and neuropsychologists are often involved in the treatment of children with cancer because the treatments affect their brains.

This isn't news. They don't tell adults because adults can say no. Parents will do anything to save their children, even if it causes things like severe learning disabilities afterwards, which it can.
shannon

Chicopee, MA

#139 Mar 8, 2010
okay so - I hope some can maybe help me out . In 2007 I had radiation and chemo therapy for a rare anal cancer just on the outside of the rectum. During my radiation I hyrniated a disc in my lower back - after my treatments were done they operated on the disc - and though t is a little better - my back and my jionts and muscles hurt so bad - feels like the pain is coming from the inside out - I keep saying its my bones - all my doctors are saying I need a shrink - I am crazy - anyone have similar problems ?

Since: Feb 10

Gibsonton, FL

#140 Mar 8, 2010
Shannon, have you looked into fibromyalgia?

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