Side Affects AFTER CHEMO
Breast Cancer Survivor

United States

#41 Sep 14, 2007
Anona, that would be a great new topic. Why not start a new topic on that question? I think more women will see it and you'll get more responses. I'd be interested in seeing all of the responses, as well.

Where is the cure???
www.truefacesofbreastcancer.org
Joni

Florence, SC

#42 Sep 18, 2007
I had breast cancer in 99- had a lumpectomy, 8 chemo treatments a 6 1/2 weeks of radiation. I have chemo brain, fatigue and chronic leg weakness. I have had all sorts of tests done as well as my knees x-rayed for the weakness and they have found nothing. Not a single one of my doctors will admit that chemo is the culprit. When I squat down I cannot get back up without help. As far as the fatigue when it hits me I can hardly walk from one room to the bed. My joints ache, etc. Does it ever get better?
Michele

United States

#43 Sep 23, 2007
Had stage 0 breast cancer in 06 with lumpectomy and radiation.mamogram in 2007 revealed stage 3 breast cancer in r breast. had chemo a/c and taxotere, surgery ande radiation to follow. Currenlty having joint pain, stomach bloating, nueropahty in hands feet , constipation, chemo brain and general dis-ease. Grateful to be a live but want to get back to normal and feel like myself. How long Lord? How Long?
Denise

Newport, MI

#44 Sep 25, 2007
Anona wrote:
NOT SAME TOPIC, BUT---any of you with 2nd+ round of breast cancer --- How did you find out it was back? Did you have physical symptoms or did the doctor discover it was back? If you felt symptoms (pain/discomfort/etc) what were they? What tests were done? If the doctor discovered it was back, how?
HERE!!!! 1998 1ST MASTECTOMY, 2/05 TUMOR SAME SIDE UPPER RIGHT QUAD 11:00 1.5 CM - THEY MISSED IT! 2 months later i realized it had grown from 1/2 cm to 1.5 - they said it was a lymph node- It is very rare to have this happen in a mastectomied breast- it was "in the tail of the breast" Chemo//radiation this time - THEY said it was "contained in 1998" from a frozen section biopsy - it WAS DCIS originally, now estrogen receptive tumor - they think it was the same but not sure(??)- I am losing my mind most the time with recurrence worries, my BEST friend had Breast metastatic and Mom had Lung mets to brain, bones ect) both died April 22 2007 & May 4 2007- and I'm about to go through a divorce so I come here for support and sharing - Thanks to all I just went to Joyce meyers in St Louis for some awesome blessings.... e-mail me if you like [email protected] - bless you all!
Sue

Three Lakes, WI

#45 Sep 25, 2007
I am a cancer survivor. My last chemo was Oct. 7th 2004. I had stage 1 breast cancer, doctor took 29 lymphmodes in left arm along with masectomy of left breast. My cancer is inherited. Negative to estrogen/progesterone. My mother died when she was 36. I am now 43 years old. My symptoms from chemo and surgery are; lympedema of left upper arm. severe chemo brain I have a hard time remembering words and forming sentences. I have a severe bloated stomach, I look like I am 9 months pregnant. Can't lose weight, constipation, diverticulities, pancratitis from chemo. Severe hair loss for 3 years. Hair breaks off and scrunches up like its burnt. I used to have a beautiful head of hair. When my stomach is bloated I have a hard time breathing. I do not have any neuropathy. I did during chemo. I will bring up something women do not talk about. I have lost my sex drive. Vaginal dryness, dropped bladder. Lets just say Im a mess. But I am still alive. Very thankful for that. But I paid a huge price like all these other people on this blog. My heart goes out to all of you. Good luck and keep the faith.
Breast Cancer Survivor

United States

#46 Sep 25, 2007
Hi Sue. So sorry you lost your mom. Yes, you...we have paid a huge price having this disease. Things do get better yet never the same. I, too, got pancreatitis. Also fatty liver...and I don't even drink. But, I read somewhere that it could come from chemo. From chemo I was given the "gifts" of headaches, two blown disc from the taxotere, sciatica, cocxydynia, old bones, body stiffness something terrible, pancreatitis, sinus problems, which I NEVER had before, on and on...but I am so thankul to be alive. I had a really poor pathology with large, aggressive tumor, grade 3, positive nodes, extensive angiolymphatic invasion, so much so that they couldn't get an exact measurement on my tumor. I also had multifocal spread and triple negative. I'm a little over 5 years out from diagnosis and still kicking.

Where is the cure???
www.truefacesofbreastcancer.org
Sue

Three Lakes, WI

#47 Sep 26, 2007
My story continues: I understand what you are all going through. I had invasive infilterating ductal carcinoma x 2, one was 1.6 cm and the other 0.3 cm-I first had to have a port put in my chest before chemo began-I have a bad story here, I was laying on the operating table and I had a tear rolling down my face and the surgeon said can you feel that and I said yes. He said didn't they give you anything for pain? I said no, they didn't. He responded oh, we will be done in 15 mintues. That was a terrible proceedure it felt like eternity on the table. My chemo treatment consisted of 4 treatments of Cytoxan which I called the red devil and of course 4 treatments of the dreaded Taxol. The Cytoxan was bad, but the taxol was worse. When I think about what it was like going through that time of my life I don't want to ever go back there again. If I had to go back in time I would do things differently. So for all the women out there with breast cancer take note. Like I said above my mother died of breast cancer in 1973. Surgeon felt it would be best to have a masectomy and so did the oncologist. So I went with there advice. This is the one part I would change if I could. I would do the lumpectomy in a heart beat. The sad part here is after the surgeon removed the two lumps which where cancerous along with 29 lymph nodes when they proceeded to do the testing on my breast tissue after masectomy there was no cancer anywhere including the lymphnodes. So I just had my breast/lymphnodes removed for nothing. I was devestated. You see I had immediate reconstruction of that breast with an expander. I went on the advice of my surgeon and oncologist again on a referral of a female Plastic surgeon in this area. Another big mistake. Long story short on the plastic surgeon, a nightmare. I currently have a nipple not in the center of my breast but closer to my armpit. It is a lovely sight. I had so many surgeries with this Plastic surgeon. Plastic surgeon also reduced my healthy breast and that too is not pretty. She made mistake after mistake. I have not been back since. I have two breasts that are significantly different in size. When I was going through chemo everyone kept telling me I would have a beautiful head of hair when I was done. This is not true. I am very thin on top and around the crown of the my face. My eyelashes didn't come back to there full potential along with my eyebrows. I also have back pain along with sciatica pain. I am a very nervous person now. You wouldn't be able to tell if you met me. But I feel like my insides are running on full tilt always. Can't sleep well, very stressed at night. At the age of 40 my world came tumbling down in 2004. Chemo has taken me into full blown menopause. Hot flashes where terrible. Oncologist put me on Catapres 0.2 take one at bed time this helps tremendously. Not so many hot flashes, I might have 1 or 2 a day very little ones. Catapres also helps me sleep for about 2 hours at night. I think about re-occuring cancer alot. I don't think I could do the chemo again. It has caused so much damage to my body. But it still haunts me because of the heredity factor. So I stress about this alot. I have a puffy face, my looks have changed I look older and harder. So all you laides out there or men hang on tight there is a light at the end of the tunnel but you have to keep fighting after you get to the light. Don't get me wrong I am glad I am alive but sometimes my faith is tested and I struggle with the idea of a higher being. Take care out there and may life be alot easier for all of you. If anyone would like to know anything else or they have exprienced the same thing and need to talk about it. Let it out, it helps.
Breast Cancer Survivor

United States

#48 Sep 27, 2007
Sue, I'm really sorry you have had such a time of it. I'm confused. Did you say the docs removed your lumps, along with the breast tissue, and the lumps were not cancerous? Or are you saying that you initially had the lumps removed and when you had a later mastectomy, there was no cancerous tissue remaining?

As for your recon, have you looked into DIEP? There are docs out there who can fix you and your insurance has to cover. You don't have to look like that. I had DIEP and my breasts are so normal looking.

www.diepbreastreconstruction.org

I can't say enough about it. I try to spread the word anywhere I can.

I certainly wish you the best.

Where is the cure???
www.truefacesofbreastcancer.org
Sue

Three Lakes, WI

#49 Sep 28, 2007
When I had my first biopsy-they removed both of my lumps in my breast. They were cancerous. Then doctors adviced me to have a masectomy. The results of the breast tissue were negative after masectomy. There was no cancer in any of my breast tissue or any of my 29 lymphnodes. So I wish I could go back in time and not do the masectomy along with the removal of my lymphnodes. The DIEP. I have had abnioplasty-major tummy tuck - cant do it. The reason my breasts are so uneven is because my healthy breast is much fuller/wider. The reduction on my healthy breast that my plastic surgeon performed on me is terrible. It was so bad that she took the original implant after the removal of my expander on my masectomy side because she placed a too small of an implant and placed that inplant that was too small in my healthy breast to try to correct her mistake. This implant that is in my healthy breast is in wrong. It is literally tacked sideways where your cleavage would be. It is positioned incorrectly, she performed this procedure to try to correct her mistake. Like I said before I have a nipple which is closer to my armpit and not centered correctly. You see I am so tired of fighting to try to correct my body. This plastic surgeon after seeing where she placed my nipple wanted to tattoo an aerola, I said no. She said you wouldnt even notice that the nipple wasn't in the right place. I'm afraid to see someone else. I have had so many surgeries. I'm tired.
Breast Cancer Survivor

United States

#50 Sep 28, 2007
Oh my. I can understand you being so tired of having surgery. One day, you may feel a little more like having the corrections done, though. You are still so very young, yet. They also have flap surgeries where they take the fat and skin from the upper butt area (GAP flap) or the thigh area (TUG)...so there are still options if you feel up to it. I would never go back to that PS, though. I'm wishing you the very best.

Where is the cure???
www.truefacesofbreastcancer.org
KaM

Littleton, CO

#51 Sep 29, 2007
I'm interested in gdpawel's comments. I've had hearing loss as a result of the taxol and herceptin. I would like to give the information regarding the taxol and hearing loss to my oncologist. But, I need to know the source.
Thank you!
KaM
Don Kelly

Shelby, NC

#52 Oct 12, 2007
DENISE wrote:
Any one else relate to this
Denise I went through massive amounts osf chemo and raditation and my nerves and joints are killing me all i every get from the Doctors is that it is the side effects.It seems like any little thing gets on my nerves BAD.I`m usally ok in the am but as the day goes on and i am on my feet alot my joints feel like someone is hitting them with a hammer.
You can e-mail me anytime @[email protected]
Breast Cancer Survivor

United States

#53 Oct 12, 2007
Don, how long ago did you have your chemo? I had the same problem. The pain in my joints, from the chemo, got a LOT better after one year. Of course, I now have all over body stiffness, which is awful, but that hammering pain in your joints should get better over time. Try supplementing with MicroLactin and MSM. They should help. Best to you.

Where is the cure???
www.truefacesofbreastcancer.org
Christine

Ottawa, Canada

#54 Oct 16, 2007
I started my chemo and radiation at the age of 7 and completed at the age of 10. Im 23 not and experiancing pains in my major joints (mostly my hips) and was told my my Oncologist that its Common for a childhood cancer survivor to experiace such pains and that i may require a replacement surgery by the age of 25. I was just wondering if anyone knew what other long term side effects there were and what to expect in my future
Evelyn

Deland, FL

#55 Oct 29, 2007
Hi all, I have been off chemo for 1 year (after more than a year on it). At present, thank the lord, I am cancer free. However, chemobrain, muscle and joint pain are doing a number on me. I am on seroqual 300 mg to sleep, cymbalta 50 mg for depression ,ativan for anxiety and hydrocodone for muscle and joint pain- oh and neurontin for neropothy! After more than 35 years of a successful career as an administrative assistant, I cannot work anymore. The thing that most bothers me is that after going through so much to fight the cancer battle (and winning), I am now unable to work because of all the "after chemo syndrome". I have read your stories, and I find some peace in knowing that I am not along! Is there anyone who can tell me if this "syndrome" goes away as the years go by, and if so how many do we have to endure before we feel better? May God Bless You all.

Mike

Lexington, KY

#56 Nov 9, 2007
Side effects can be greatly reduced if not eliminated with Mangosteen. This is a phenominal product. More hard fact science than you could probebly read. The Xanthones in the mangosteen not only attack cancer cells with a vengence and kill them but Xanthones have been proven to be the most powerful pain reliver and anti-inflamtory ever! Eductae yourself www.InformationOnMangosteen.info the more you read, the more you'll be in awe!
Mike

Lexington, KY

#57 Nov 9, 2007
You really need to know about Mangosteen and Xanthones. Hard fact science shows amazing proof against cancer cells and it also reduces if not eliminates side effects from chemo. Learn all you can www.InformationOnMangosteen.info When you understand what this juice is, you won't be able to get it in your body fast enough. Trust me, it works wonders.
Breast Cancer Survivor

United States

#58 Nov 9, 2007
Mike, I bought and tried Mangosteen. I didn't find that it worked any wonders. It's just expensive. There wasn't any difference at all.

Where is the cure???
www.truefacesofbreastcancer.org
Mike

Lexington, KY

#59 Nov 10, 2007
Let me ask you this. What kind did you use? If you just went to Cosco and bought a bottle, it doesn't surprise me. It does make a difference as to the kind of Mangosteen. You have to be POSSITIVE it's the WHOLE mangosteen in the product not an EXTRACT. Many of the products list purified water and the main ingredient. Xango is the only product that absolutely uses the entire fruit. Xango has the patent on the manufacturing process. One thing I might ad. Our bodies don¬ít get in the condition it is overnight. In other words, we don't wake up one morning and have cancer. It takes years. Things are going on in our bodies you're not aware of. So using a bottle or two over a week or so may not give the results you're looking for. We all want instant gratification. If you have cancer, you need to be on the 21-day cancer challenge. Let me ad this. One of the top most respected cancer surgeons in the US and the doctor that introduced robotic surgery to the US. Dr Tootla has over 1100 of his personal patients using Xango Juice. If anyone would like more information go to www.InformationOnMangosteen.info educate yourself. There is proven hard fact science to back it up. There is a link that will take you to PubMed where you can read much of the research papers. GO to the website www.InformationOnMangosteen.info request a free CD or DVD. I'll send you a CD package. You cannot dispute facts. You'll also find Xango on the American Cancer Societies website as well as Sloan Kettering. There is no dispute, it works, maybe just not overnight, some people see results in a week, others in a couple months. I encourage people to give it 90 days. Thanks for your time. My email address is [email protected] if you would like to email me with questions.
Breast Cancer Survivor

United States

#60 Nov 10, 2007
Let ME ask YOU this...do you sell it or are you a distrubutor for it?

Where is the cure???
www.truefacesofbreastcancer.org

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