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patski

Newport Beach, CA

#284 Jan 18, 2013
Charlotte Schmidt wrote:
<quoted text>
Not to me, because I'm alive and I didn't have to be.
I am happy that it worked out well for you. I know there are people who make it through chemo without lasting problems. I was fine until after my second round and then everything went off the tracks. I don't know if I would have still agreed to chemo if I had seen the articles about some Drs being chemo happy, and some Drs being too alarmist about Stage 1 breast cancer.
I do know that for me the problems during and after have been bad. And they are not improving. I don't know if given the opportunity if I would trade where I am now for 3 years of relatively pain free living - but I do know that quality of life has some meaning for me.

Since: Feb 10

Clearwater, FL

#285 Jan 23, 2013
Anona, I need a sleep aid too. It's as if my brain learned to be permanently insomniac. But it could be so much worse.
Miss 2012

Oklahoma City, OK

#286 Mar 5, 2013
I had my last chemo 6-27-12 I'm in remission and I have joint pain from time to time but I notice heart palpitations. I have insomnia and weight gain as well
Miss 2012

Oklahoma City, OK

#287 Mar 5, 2013
Gail Perry wrote:
Anona, I need a sleep aid too. It's as if my brain learned to be permanently insomniac. But it could be so much worse.
my doctor put me on restarol it seems to work but I try my best to fall asleep on my own and stay asleep ( it DON'T work) my weight gain is comming from not being able to stay sleep I'm eating in the middle of the night atless 5 days a week or more.
Angie

Durban, South Africa

#288 Mar 7, 2013
I came across this site purely by chance and am so relieved that I am not alone. I have just been through a years worth of IMAP Chemo for stage 4 Follicular Lymphoma (non-hodgkins) and I swear at some points I honestly thought I was loosing my mind. I had to stop work at age 40!!! No one understood and I got into such a rut (the horror stories I could tell). I am currently in remisson going on 4 months now am just starting to feel normal (whatever that is) again, have gone back to work and can honestly say that only Jesus got me through this. Unless you have gone through chemo you will never understand. I wish all of you a positive outcome pray for the easing of your side-effects. Remember, if you made it this far there is very little that can take you down. I have found a inner strength and feel as though I have been given a 2nd chance to be me but better.
Take care and God bless you all.

Since: Feb 10

Clearwater, FL

#289 Mar 8, 2013
Angie wrote:
I came across this site purely by chance and am so relieved that I am not alone. I have just been through a years worth of IMAP Chemo for stage 4 Follicular Lymphoma (non-hodgkins) and I swear at some points I honestly thought I was loosing my mind. I had to stop work at age 40!!! No one understood and I got into such a rut (the horror stories I could tell). I am currently in remisson going on 4 months now am just starting to feel normal (whatever that is) again, have gone back to work and can honestly say that only Jesus got me through this. Unless you have gone through chemo you will never understand. I wish all of you a positive outcome pray for the easing of your side-effects. Remember, if you made it this far there is very little that can take you down. I have found a inner strength and feel as though I have been given a 2nd chance to be me but better.
Take care and God bless you all.
I am sorry for your ordeal, but I just want to tell others who may be facing this to not borrow trouble. It depends on all sorts of things, including the actual chemos used. I (sorry) sailed through chemo. It isn't always awful. I had a lot of trouble with a non-chemo treatment, but not the chemo itself.

I would urge people to not under-estimate your friend or loved one's discomfort if it's there, but on the other hand, don't borrow trouble. You may do better than you expect with it.

I hope you stay in remission. You have earned it!
Joy

Dallas, TX

#290 Mar 9, 2013
darlene wrote:
the problem i have is tremors all the the time it looks like parkinsons i had stage three breast removed it has been since 2004 stillforgetful i have a hard time remembering words joint pain still get sick to my stomach and i will always worry about rather it comes back there is no cancer in my family the cancer was only a 8th of a centimeter even the doctor didnt know why it grew so fast
Just saw your posting about having tremors. My daughter had a double mastectomy, 4 rounds of chemo, and 5 months later woke up with tremors (2012). She has had an MRI, and the neurologist has mentioned Parkinson's. how is your health now?
stellaquebella

Oakland, CA

#291 Oct 27, 2013
I went through chemotherapy and radiation in the early 90's as a teen. I STILL have chemo brain and my peripheral neuropathy has gotten worse along with arthritis, etc. Today, I am unable to hold a fork. The pain is too much as is the restless arm and leg syndrome. Most doctors don't seem to care at all. My quality of life is.....frustrating. Post chemo/radiation syndrome is a lonely one.

Since: Mar 12

U.K

#292 Oct 30, 2013
stellaquebella wrote:
I went through chemotherapy and radiation in the early 90's as a teen. I STILL have chemo brain and my peripheral neuropathy has gotten worse along with arthritis, etc. Today, I am unable to hold a fork. The pain is too much as is the restless arm and leg syndrome. Most doctors don't seem to care at all. My quality of life is.....frustrating. Post chemo/radiation syndrome is a lonely one.
i think my chemo brain is about as good as it's going to get, unfortunately. i do find i'm dropping things more and more often too. As for the restless thing, interesting you should say that as you too had radiotherapy. i personally found radiotherapy a walk in the park compared to chemo, but did find afterwards my body felt different and often get the restless arm/leg feeling but all over and especially where i had the treatment - central chest/body; i'm sure this is not a coincidence and it is an after affect of the radiotherapy

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