lol

Paradise, Canada

#203 Jun 28, 2011
so I was told being so very green about chemo and just hearing the taboos of cancer people...yes we are a brotherhood of very special people no doubt...and now that ive started chemo i now understand the bravery aspect other people always seem to refer to..so anyway..i hadnt the foggest notion re:numbness etc..so initially i sucked it up as a one of event untill low and behold at exactly nine days after treatment ..yet again the same thing occured but this time instead of for just two nights of it ive had it for a full week.starting with just my foot "falling asleep to progressivly up to my buttocks rt leg only and also in my baby finger and its immediate neighbour.im terrified because this happened on my second treatment and i dread to think what am i to be like at the end of the sixth..oh and my vision is now doing a little dance of its own cant see suddendlyout of my left eye its like a film over my eye that way distorts my vision ..so now in my nervous state i wonder can you dye from chemo?
Joan

Media, PA

#204 Jul 11, 2011
it is two years since i finished chemo for colon cancer and I still get diarrhea sometimes. I can go two days without any movement and then on the third day I will go four times- three of those times loose bowels. is this from the chemo
Gail Perry

Saint Petersburg, FL

#205 Jul 12, 2011
you need to rule out irritable bowel syndrome and probably some other things. Coincidence happens.
Susie-Q

United States

#206 Jul 19, 2011
yes you can die of chemo. The question with chemo is will it kill the cancer first or you. It is always a close call. And if it doesn't kill you then sometimes you wish you had died because the lingering pain is unbearable, my guess to 70% of patients. Then there is the radiation. Kills the cancer then proliferates it in different places. Radiation causes cancer. Wow. This is our only option in America. Slash and burn. What a shame.
Gail Perry

Saint Petersburg, FL

#207 Jul 19, 2011
Susie-Q wrote:
yes you can die of chemo. The question with chemo is will it kill the cancer first or you. It is always a close call. And if it doesn't kill you then sometimes you wish you had died because the lingering pain is unbearable, my guess to 70% of patients. Then there is the radiation. Kills the cancer then proliferates it in different places. Radiation causes cancer. Wow. This is our only option in America. Slash and burn. What a shame.
People RARELY die from chemo. In fact, chemo was a cake walk for me, but this person has biased and incomplete information. For instance, she completely left out both Tamoxifen and aromatase inhibitors. A new treatment has just been developed (more testing necessary of course) based on ... mushrooms.

I guess I don't understand what I was supposed to do instead of surgery and chemo (I didn't have radiation because I had a complete mastectomy)-- do nothing and be CERTAIN I would die a terrible death? I wasn't supposed to fight for my life???

Or was I supposed to use some unproven "alternative" approach? Thanks, but in the fight of my life I wanted weapons with a track record, things I could research myself.

It's just short of five years now and no sign of a recurrence, and I most certainly did not die from chemotherapy. It was a bump in the road -- a big one, I'll grant you -- but I went on.
Susie-Q

United States

#208 Jul 21, 2011
People most certainly do die of chemo. Two people in my family alone died from their very first dose. And 50% of chemo drugs are carcinogens as well as radiotherapy. And yes radiotherapy causes cancer as well. Don't you think it is funny that we use a carcinogen to eradicate the cancer? Knowing full well that there is a good chance it will bring on another cancer. Check out some other sources for information other than the tried and true in America since by law in America ONLY surgery, chemo and radiation are approved and the only acceptable subject that a doctor is even allowed to suggest under the law.
Gail Perry

Saint Petersburg, FL

#209 Jul 21, 2011
It's simply not true that only chemo, surgery and radiation are approved in this country. Don't look now, but your bias is showing.

I'd have to know a lot more about your relatives who died. Once cancer has spread, the chemo can be much harsher, but since we know the person is going to die it justifies greater risk. Not discounting the gravity of your loss, but if I were in stage IV cancer I might try all sorts of risky things.

Right now, in 2011, it is EXTREMELY rare for anyone to die from chemotherapy used for Stage I, II or III cancer.

And yes, I know that some chemos are themselves carcinogenic. Oncologists tell their patients those things.

Chemo was a cakewalk for me. I did what I had to do to survive, and here I am nearly five years later and almost certainly cancer free.

I chose proven treatments and I'd do it again.
Susie-Q

United States

#210 Jul 21, 2011
Yes Gail perhaps my bias is showing but so is yours. I too chose the tried and true method so I have been there. Then when I finally had some time after I did research. And yes, there are other proven methods that are less invasive, less toxic and less harmful, in fact, harmless. PROVEN. but not here. My own brother who had the time chose the proven less harmful choice. His own doctor from here takes a group out of country to do it because he is not allowed in this country but he has privilege outside. And lo and behold many years later he is well and thriving with no side effects that his peers have and now regret. Yes men are fond of their erections and do not like leakage out of every crack. The other two months his doctor does the approved methods here. Unfortunate for me I am female and had a brain tumor and could not afford the travel. No choice. Big pharma, big money. Each cancer patient is worth a fortune, dead or alive. The infrastructure must be supported or it would collapse. It takes big money to build and maintain those beautiful hospitals that are now individualized to the disease.
Gail Perry

Saint Petersburg, FL

#211 Jul 22, 2011
Yeah, I'm biased. The things you're railing aginst SAVED MY LIFE. They saved my mother's life.
they've saved the lives of other people I know. This "big pharma" paranoia has replaced Kennedy conspiracy assassinations.

I suggest that if you object to companies making profits, you move to Bulgaria. I think it's the only truly Communist country left on the planet.

Unfortunately you do not understand the concept of scientific proof, so you think your alternatives are "proven." You believe that giant corporations are blocking the dissemination to poor suckers like me. Not true.

By the way, one of my friends had Stage IV cancer and used alternatives which may well have contributed to extending her life for ten years -- mushrooms. That is an approach now being carefully researched.

I hope you are doing well, and I completely understand the desire to keep trying things. I know people for whom it has worked, but I know a LOT of people who have been saved by those "evil" pharma companies, and in more than one way.

Here's the thing. It really is possible to talk about the alternatives without getting all paranoid because someone built a hospital. Then you'd have a lot more credibility.

I won't back down. I DON'T back down on these things. You keep talking about alternatives *in this way* and I will continue shooting your view down. Just talk about alternatives that might work and I'll be behind you all the way. I won't sit around and watch you scare women out of looking at a perfectly valid choice (modern medicine). It won't happen. I'm as determined as you are and believe me, I know how to knock down your house of cards about pharma companies.

Finding more, less damaging treatments? Absolutely we need that.
marian

Galway, Ireland

#212 Aug 21, 2011
i had overian cancer in 1998 and had 6 doses of chemotherapy, i was fairly sick with the chemo and expercienced the numbness in hands and feet, it went a month or two after the chemo. in 2010 i was diagnosed with stage 2 bowel cancer, i had operation in september and then followed with 12 doses of chemotherapy, while i didnt lose my hair as before it lightened a lot. thank god im doing fine now but have those muscle aches and feet pain hope it will go soon, as its a nuisance. but its great to be alive as some people dont get much of a chance. the treatments have advanced so much since i was first diagnosed in 1998 the anti sickness drugs are brillant and the port for the chemo is a dream come through as the doctors could not get my veins after the last chemo keep up the research and with gods help some day we will get a cure for this rotten disease.
Gail Perry

Ocoee, FL

#213 Aug 21, 2011
marian wrote:
i had overian cancer in 1998 and had 6 doses of chemotherapy, i was fairly sick with the chemo and expercienced the numbness in hands and feet, it went a month or two after the chemo. in 2010 i was diagnosed with stage 2 bowel cancer, i had operation in september and then followed with 12 doses of chemotherapy, while i didnt lose my hair as before it lightened a lot. thank god im doing fine now but have those muscle aches and feet pain hope it will go soon, as its a nuisance. but its great to be alive as some people dont get much of a chance. the treatments have advanced so much since i was first diagnosed in 1998 the anti sickness drugs are brillant and the port for the chemo is a dream come through as the doctors could not get my veins after the last chemo keep up the research and with gods help some day we will get a cure for this rotten disease.
I think two hundred years from now we will be horrified at what we had and didn't have to fight the various cancers -- just as we are horrified now by how mental illness was treated 200 years ago.

But we can only do the best we can. I think I was very lucky to have cancer in the 21st century.
noreen

Singapore, Singapore

#214 Nov 23, 2011
I went thru 3 lumpectomy for bilateral breast cancer stage 2(one every week for 3 weeks), finished chemo and radiotherapy since August this year. Now I have pains on both side of my joints between shoulder and arm especially when I first get out of bed. Told my doctor but he did not think it was necessary to take any medication for it. I wonder if it will get worse and what causes it.
Bateau

Elizabethtown, NC

#215 Jan 3, 2012
Finished chemo (carboplatin, taxol) for early stage uterine cancer 5/11. Now, still have neuropothy in feet . In last two months, fore arm muscles tender and ache. Had blood work recently to rule out several causes. Came back normal. Achy arms just started 5 months after last chemo. Is this result of chemo? Anyone else have this type of muscle ache?
Bateau

Elizabethtown, NC

#216 Jan 3, 2012
Reading the posts, I do believe my achy arms are a residual of chemo. Neither my oncologist nor my internist made a connection to chemo. Internist commented that the chemo should not be an issue after 5 months. Bull!!
Gail Perry

Saint Petersburg, FL

#217 Jan 3, 2012
I don't think new symptoms start five months after chemo has ended. I've never heard of that.

But beating cancer doesn't mean nothing else will happen. Have you considered fibromyalgia?
annmarie

United States

#218 Jan 4, 2012
Thank god i dont get sick aftre chemo just a few days of weekness
Gail Perry

Saint Petersburg, FL

#219 Jan 4, 2012
annmarie wrote:
Thank god i dont get sick aftre chemo just a few days of weekness
The only problem I had with chemo was that the nurses were locked in on a hemo count of 9 as the "danger" point. Unfortunately I started at 16, so a drop to 9 was HUGE for me. The anemia left me feeling pretty bad. I asked them why, and they said that insurance wouldn't cover treatment unless the count was 9 or under.

I pointed out that I didn't have insurance.

Keep an eye on your red blood cells as well as the white.
Gail Perry

Saint Petersburg, FL

#221 Jan 5, 2012
june wrote:
Had had a mastecomy in may also a reconstruction which didn't work, I had 6 months chemo and tomorrow I finish my radiotherapy but can anyone tell me what happens after that do I get a scan to see if all the cancer has gon ???
My oncologist recommended against it. he said that CT scans use a tremendous amount of radiation, and that a clear scan wasn't a guarantee that it hadn't spread. Among other things, it can hide in the bones. It could be circulating in the blood.

I guess some people would be reassured by it, but it's a lot of radiation if you aren't going to get a 100% answer. Ask your doctor about that. My doctor, instead of ordering a scan, told me what to watch for, and watched me carefully for five years. Now I'm on a once a year visit to the oncologist.

So in my opinion, hat you do is ... get on with your life. Make sure you do some of those things you've always wanted to do, because you've just gotten a second chance.
Theresa

Cape Girardeau, MO

#222 Jan 10, 2012
Margaret wrote:
I had a lumpectomy, then 4 treatments of Taxotere and Cytoxan (ending in April), then a bilateral mastectomy, followed by a Rx for Arimidex. I switched from Arimidex to Tamoxifen after a few months because I wasn't growing hardly any hair, and was quite bald on top. The hair on the top of my head is starting to come in much better now. It's still not good, but at least it's growing in evenly, and not completely bald on top like it was. I am just going to have to wait and see if my hair ever recovers. For now, it's still wig time. I found that the Arimidex made my bones and joints ache, particularly my hands. I was taking Aleve every day. When I switched to Tamoxifen, that stopped.
The Taxotere was very toxic for me during treatment. Or it could have been the Cytoxan - I have no way of knowing. I do know the Taxotere gave me a lot of neuropathy in my feet, which isn't good since I am a Type 1 diabetic and started out with a little neuropathy already. For 6 weeks after my last Taxotere treatment, I had tremendous fatigue in my thighs and could hardly walk. Luckily, that went away, as did the neuropathy in my hands. I still have a lot of tenderness in the soft tissues over my hips. On one of the boards, a doctor described it as myofascial pain over joints, and said it is most likely nerve rather than muscle in origin. I have high hopes for eventual resolution of my myofascial pain, but only give my hair about 50-50.
Margaret
I had "TC" drugs also and in horrible pain and have severe muscle weakness. Last treatment 4 weeks ago. Can anyone PLEASE tell me if their muscle weakness and/or pain went away? I am looking for positive replies. I desperately need to stay positive. Thanks and God Bless everyone going through this.
Gail Perry

Saint Petersburg, FL

#223 Jan 10, 2012
Theresa are you on an AI like Arimidex or Femara, or are you completely free of treatment now? I found that Femara GREATLY exaggerated pain.

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