Cancer's Dirty Little Secret

It's sometimes referred to as cancer's dirty little secret. Lymphedema is a lifelong condition that can strike patients after cancer treatment. Full Story
Turk

Charlottesville, VA

#2 Mar 2, 2011
My grandma had this. She couldn't have blood drawn and blood pressure taken in the affected arm. Jenifer is the only reason I watch the news.
grasshopper

United States

#3 Mar 2, 2011
Cancer has another dirty secret known to the insurance crowd as "catastrophic coverage limits".
Katrina Conrad

Waynesboro, VA

#4 Mar 2, 2011
That is right Turk - no needlesticks, blood pressure or any trauma to arm including bug bites/stings...Also it is more likely to be affected by shingles if you are prone to them. I had a very bad case. I am only in my 40s so it is hard to imagine having to be so careful for the next 40 years!

Insurance doesn't consider lymphedema supplies and therapy as necessary. They think we are all running to get a massage! I would love to trade places with them one day! Until someone famous gets this condition and is vocal about it, not much change will occur in my opinion.
Karen Binney

United States

#6 Mar 3, 2011
Thank you for doing this spot on Lymphedema. I am a mssage therapist who has been certified to work on people with lymphedema. Some of my lymphedema clients are not properly educated about lymphedema prior to or after surgery, or even after diagnosis. Once it develops, it is a lifelong condition that needs to be managed: that can mean receiving some type of lymphatic drainage bodywork regularly and/or compression garments. UVa and Martha Jefferson Hospitals offer acute lymphedema care through their outpatient physical therapy units. Continuing care after the acute treatment is often needed.
Karen Binney

United States

#7 Mar 3, 2011
Yes, insurance only covers the acute care treatment. It does need to be expanded to include supplies and manual therapy, no matter who provided it as long as they are certified,(Right now, lymphatic massage provided by a lymphedema certified massage therapist are not reimbursable by Medicare).

FYI, I am in Charlottesville, not Martinsville as listed by my name.(I don't know how that happened>)
Abby

West Columbia, SC

#8 Mar 3, 2011
Thanks for doing this article on Lymphedema. I also have lymphedema in my arm and truncal lymphedema. I guess I am lucky because my insurance has covered my garments and my physical therapy. Yes it is a pain to do all the massaging and to wear the sleeves but I am at least cancer free for now.
Alif

Rochester, MN

#9 May 8, 2011
Karen and Abby, http://www.livewithyourself.com/ visit this page please. There are some good articles about the solution and ways of treatments are given. Might be helpful.
Wyatt
#10 Sep 23, 2013
I have ordered 2 times from this website PILLSMEDSHOP. COM . I called yesterday the customer care and asked for a discount as i was about to order twice the regular amount.

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