Terra

Kearney, NE

#463 Apr 6, 2013
I started taking topamax a week ago and have lost 9 lb already. I have noticed my toes and heals on my left foot more then my right side tingling and falling asleep more. Guess I didn't see the hair loss part. But it's really helping my mood and only at 100mg's a day.
Shar

New York, NY

#464 Apr 8, 2013
I've been diagnosed with depression and anxiety and my doctor may prescribe me Topamax. I'm a bit scared of the hair and memory loss, but I feel like at this point I've been struggling with it all for almost two decades and it's worth a shot. I'm currently also on Lexapro and Abilify, hopefully this will help. I also hope the weight loss affects me, I've gained so much weight due to all these meds 5'6 -165 pounds. Horrible. God I feel horrible writing this.
Jennifer

Grand Rapids, MI

#465 Apr 8, 2013
I didn't get the depression and anxiety until I started taking topamax! The hair loss took a while for me to notice, but the memory loss was about a month into taking the medication. I had been warned that it might happen by my doctor. I knew all of the possible side effects going in. I just didn't know how awful the anxiety and depression would be. Good luck with the medication!
Lindsay

San Jose, CA

#466 Apr 9, 2013
Erika wrote:
<quoted text>
I lost over 70lbs after being on it about 7 months. But as soon as I stopped using it I'm beginning to gain a little weight back. I ate no sugar and mostly fish. Also I exercised daily now I exercise about 4 times per week. But still seem to be gaining weight. I do not want to be on this medication for the rest of my life.
Erika,
The exact same thing happened to me. I lost about 60lbs when I was on Topamax, ate healthy and worked out, and I went off the meds last year because I want to start having kids and you CAN NOT have that in your system because it has been known to cause complications for the baby. And within the year that I've been off Topamax now, I've gained all 60lbs back. I asked my doctor about the weight gain and he said such high weight loss is rare but that I prolly wouldn't gain it all back, maybe just 5-10 lbs, but it's all back. I've also started taking it again to see if it helped (and I had to put the family thing on hold) and I've been on it again for almost 3 monthes and haven't noticed any weight loss.=/
Lindsay

San Jose, CA

#467 Apr 9, 2013
Pain in NY wrote:
I have been on Topamax for about 10 weeks and have lost about 8 lbs. But counted every calorie. I did not get the med to loose weight although I do need to. I can not excersize because of my disabilites. I take it for my pain and numbness in my arms and neck from surgery. I feel somedays my brain is in fog and my memory is fading very fast, but it does delivery relief: so do I suffer in pain all day or brain fog it's a loose loose situation. I guess if I was taking off the weight and the pain was gone as others it would be a little more encourging but I'm not. It seems I forget more and more things everyday. even my spelling in here I know some things are wrong but that's just the brain fog that goes on all day. My head as others spoke does goe tinlgly and sometime others parts of my body does also.
So my thought is if you're taking it just for weight lose DON'T, make sure the reason your taking it outways what you are really loosing. A mind is a terible thing too loose
Have you tried asking for a lower dose? A side effect of taking TOO MUCH is short term memory loss and haze/ foggy memory or thoughts. Going down to a lower dose (25 or 50) won't have as much effect on weight loss but will still help with migranes and possibly epilepsy. I have epilepsy and take 100 and have had a few issues with forgetfulness but nothing serious.
cbee

Encinitas, CA

#468 Apr 10, 2013
I have been takin 50 mg in the morning and 100 at night for 2 years, I have lost 30 lbs, I weight 120 now. I my hair has fallen out, I have bad skin, it has really been a struggle. I am 5'6, people tell me I am too skinny. But I also work out and eat well. Be very careful because this medication causes you to not absorb a lot of nutrients. You really need to talk to a registered dietician and go on a good multi vitamin, protein and calcium are an issue and that is why hair falls out. I have issues with memory big time.
cbee

Encinitas, CA

#469 Apr 10, 2013
Shar wrote:
I've been diagnosed with depression and anxiety and my doctor may prescribe me Topamax. I'm a bit scared of the hair and memory loss, but I feel like at this point I've been struggling with it all for almost two decades and it's worth a shot. I'm currently also on Lexapro and Abilify, hopefully this will help. I also hope the weight loss affects me, I've gained so much weight due to all these meds 5'6 -165 pounds. Horrible. God I feel horrible writing this.
I really think this will help you- you will lose weight and you just need to be patient. I've been there too. I've learned to deal with the hair loss, and the weight will come off bc of the Topamax, but also once you feel better , you will want to take care of yourself. Just remember that the hair loss is bc you aren't able to absorb nutrients properly any more, this is what I discovered after meeting with a registered dietician, so I was told to eat more lean protein and take a multi vit from trader joes, but you need to meet with one yourself. working out helps with the memory issues :)
Daylel

Cape Town, South Africa

#470 Apr 11, 2013
Rnericu wrote:
I've been on Topamax for 5 weeks and have already lost 22 lbs and feel great!!
If you dont mind me asking what dosage are you taking?
Shar

New York, NY

#471 Apr 11, 2013
cbee wrote:
<quoted text>
I really think this will help you- you will lose weight and you just need to be patient. I've been there too. I've learned to deal with the hair loss, and the weight will come off bc of the Topamax, but also once you feel better , you will want to take care of yourself. Just remember that the hair loss is bc you aren't able to absorb nutrients properly any more, this is what I discovered after meeting with a registered dietician, so I was told to eat more lean protein and take a multi vit from trader joes, but you need to meet with one yourself. working out helps with the memory issues :)
Thanks so much for your kind words, it really brightened up my day. I hope it works =-)
Shar

New York, NY

#472 Apr 11, 2013
Question- what supplements should a person be on if they are taking Topamax? I'll ask my doctor this too, but just wanted to get a feeler =-)
Leandi

South Africa

#473 Apr 12, 2013
Shar wrote:
Question- what supplements should a person be on if they are taking Topamax? I'll ask my doctor this too, but just wanted to get a feeler =-)
I'm drinking quite a few things...
A good multivit - Preggy ones are good, they have heaps of good stuff in. Then omega 3 tabs. Folic acid.
Biotin, Evening Primrose Oil (for hair loss) I read this somewhere.
THEN I'm taking Gingko Biloba for memory and concentration, coz this stuff makes my brain go a little silly :-(
surferCA

Santa Barbara, CA

#475 Apr 12, 2013
agree. being female and fat in this society makes you want to die, and this is not my fault. I did not ask to be female (I wish I was a boy, always have, and i'm sure most females would agree, if they didn't feel 'weird' for doing so, that being male is a LOT EASIER, particularly if they, like me, are not gaga over children or fancy dresses or makeup) and I didn't ask to live in a world where being five foot tall and 98 lbs (as I am) equals "fat" which it DOES, as short=ugly and fat in this world. so I want on Topamax NOW, as I also get terrible migraine headaches and have terrible insomnia. Therefore, it sounds like the perfect drug, as far as other migraine drugs offered to me (Seroquel, imitrex, etc) seem to cause weight gain and haven't worked on my migraines (Seroquel works on insomnia, but makes me feel drugged and awful so I won't take it). So should I ask for Topamax or will that make my doctor suspicious, as I have read it can be considered a "drug of abuse"?
P.S. I have noticed that a lot of females on this board who are commenting on Topamax are short as well. Coincidence, or are we more likely to be migraine sufferers?
melanie willis

Los Angeles, CA

#476 Apr 12, 2013
just me wrote:
Has anyone heard of taking Topamax for weight loss? I completed my treatments in May and am having trouble shedding a few "unwanted" pounds due to the chemo "throwing" me into menopause. My Oncologist suggested this med at 25mg at bedtime. Just wondering if anyone has had any results? Thanks.
I am losing and just got perscribed a week ago, and my gma takes it for weight loss and has always stayed skinney ever since! This stuff makes u forget about food, u almost have to remind yourself to eat sometimes! It works!
Leandi

Johannesburg, South Africa

#477 Apr 12, 2013
surferCA wrote:
agree. being female and fat in this society makes you want to die, and this is not my fault. I did not ask to be female (I wish I was a boy, always have, and i'm sure most females would agree, if they didn't feel 'weird' for doing so, that being male is a LOT EASIER, particularly if they, like me, are not gaga over children or fancy dresses or makeup) and I didn't ask to live in a world where being five foot tall and 98 lbs (as I am) equals "fat" which it DOES, as short=ugly and fat in this world. so I want on Topamax NOW, as I also get terrible migraine headaches and have terrible insomnia. Therefore, it sounds like the perfect drug, as far as other migraine drugs offered to me (Seroquel, imitrex, etc) seem to cause weight gain and haven't worked on my migraines (Seroquel works on insomnia, but makes me feel drugged and awful so I won't take it). So should I ask for Topamax or will that make my doctor suspicious, as I have read it can be considered a "drug of abuse"?
P.S. I have noticed that a lot of females on this board who are commenting on Topamax are short as well. Coincidence, or are we more likely to be migraine sufferers?
I take T for Bipolar... Works well. I've not had massive weight loss yet, but I'm on a low dose. Staying on it too.
As for being a guy... I reckon it probably is easier in some ways, not sure if I'd want to be one though. I love my boobs! LOL. One thing that I would dig is being less emotional and not crying so much!
I think you should tell your doc you read up on the different drugs and you would like to try T. He / she should get why you would much rather take a weight neutral or weight loss drug rather than one that makes you gain weight.
I don't give a flying f... I won't take a drug if it makes me gain weight. Have a big enough battle already!
Good luck! Keep us posted of what your doc says!
Chrissie

Philadelphia, PA

#479 Apr 16, 2013
Ok... all of your comments are kinda freakin me out! I do have a history of migraines and sadly my oldest used Topamax as a preventative along with her migraine medicine. Now.. I was recently dx with RSD which is nerve damage in both of my legs, tennis elbow in both elbows & arthritis in my lower back. Anyway, I have been given Topamax as a pain med to help control my pain. Has anyone used Topamax for any other condition besides migraines?
olga

Brooklyn, NY

#480 Apr 17, 2013
I lost 70pds less then 5 months taking topamax
Jennifer

Grand Rapids, MI

#481 Apr 17, 2013
Chrissie wrote:
Ok... all of your comments are kinda freakin me out! I do have a history of migraines and sadly my oldest used Topamax as a preventative along with her migraine medicine. Now.. I was recently dx with RSD which is nerve damage in both of my legs, tennis elbow in both elbows & arthritis in my lower back. Anyway, I have been given Topamax as a pain med to help control my pain. Has anyone used Topamax for any other condition besides migraines?
I used it for epilepsy for over a year, but it caused side effects that I couldn't tolerate. Just saw my neurologist yesterday, and she said she was glad that I went off the topamax. It's just not for everyone.
Smarty

West Palm Beach, FL

#483 Apr 19, 2013
FREAKED OUT Palm Beach FL wrote:
Is there any other known "non-narcotic" medication that can end migraines like Topamax? I want mine to end, but I don't want to get on topamax. Any feedback would be appreciated.
Becca
Treximet is a miracle migraine pill
Erika

United States

#484 Apr 20, 2013
I have severe migraines and I was just put on 25 mg of topamax and I am supposed to up my dosage each week until 100 mg. I am 15 years old 5'7" and I weigh about 130 pounds, I'm very healthy for my age. I've suffered from severe migraines for about two years and have been to countless neurologists. I was just started on this Thursday and after reading some of these comments I am kind of concerned especially being as young as I am. I am in many different sports and straight A student and I am already having a hard time comprehending things and thinking quickly. Big problem for me. I also am a healthy weight for my age and height I really do not see it being very healthy to be losing weight like most of these comments are saying. I will be talking to my doctor about being put on something else. As a 15 year old i go through alot of stress and do many sports to take my mind off of things. The intensity of my migraines weigh me down more than I ever thought to be possible and I would love for this to be taken care of. Please, if anyone has any suggestions please let me know. Anything would be greatly appreciated.
Thanks

Since: Apr 13

Salt Lake City, UT

#485 Apr 24, 2013
Does anyone know what time of day is the best time (morning and night) to take topamax? I have to take 100 mg 2 times a day. Thanks!

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