Fred

Marcus Hook, PA

#377 Dec 18, 2012
Last week I started taking topamax for seizures I started out with 25mg a night this week the doctor has me do 25mgs in the morning and 25mgs at night and slowly taking me off a different seizure medicine called levetiraceta a generic of keppra 1500mgs in the morning and 1500mgs the the good thing is im not having any more seizures bad thing is I cant stay awake hafe the time
Jennifer

Grand Rapids, MI

#378 Dec 19, 2012
Fred,
In Novemeber of last year (2011)I started taking topamax to replace phenobarbital. I had a grand mal seizure in January, and May. In September of this year, I was taken to the hospital for a panic attack. In November, I had 2 grand mals and several absence seizures. Needless to say, I am in the process of switching back to the phenobarbital. After the topamax, I was in the process of trying Lamictal XR, and found that I was allergic to it.(Rash and bruising side effects.) My neuro wanted me to try Depakote next, but I had to be realistic. I wanted my QUALITY of life back. Keep notes, topamax robbed me of many memories. I found myself repeating things to people, forgetting what I had done the previous day, if I had taken my medication or not, etc. If it's important: WRITE IT DOWN. Talk to your neuro about ANY side effects. Not sure which type of Epilepsy you have, I take the generic form of Keppra along with the phenobarbital to control my seizures. I wish you the best of luck, but urge you to use caution
and keep track of any new symptoms.

Fred wrote:
Last week I started taking topamax for seizures I started out with 25mg a night this week the doctor has me do 25mgs in the morning and 25mgs at night and slowly taking me off a different seizure medicine called levetiraceta a generic of keppra 1500mgs in the morning and 1500mgs the the good thing is im not having any more seizures bad thing is I cant stay awake hafe the time
Dancemama72

San Pedro, CA

#379 Dec 31, 2012
I am currently taking buspr for anxiety mornin and night. Also I was just diagnosed with hashimotos disease. I was put on 50mcg of synthroid in the morning. I then take xanex and sometimes ambien at night. I feel a little less panic felin but still depressed and anxious. Worse part is I'm always hungry and my husband keeps telling me I'm gonna get fat !!! I'm 5'6 and 178 lbs. iWork out 3-5 days a week. I feel so lost at what else I can do. Is there anyway to curb my hunger? Don't need to be a supermodel but I would like to look pretty.
Dania

United States

#380 Dec 31, 2012
Holley wrote:
Hi, I have been on Topamax for 3 yrs. I am 26 yrs old college student. It has been the roughest drug I have ever been on. However at the same time I have lost over 100lbs. on this med. I used to be 220 standing @ 5'0. I now weigh 95; my ideal weight for my hieht. that is what keeps me taking the medication that and I need it for a mood stabilizer as well. Now the bad side of Topamax actually get pretty intense. I developed a skin condition I think that is referred to as Rehniods. Where in mild wheather your hands and feet lose blood circulation,turn white and go numb...then get very painfull.and I now may have permenant nerve damage. Other side effects include severe hairloss, memory loss and brain fog, cognitive incapalitites as well. My over all oppinion of this drug is that it's not worth the easy weightloss, while sacrificing your mind, pain, and hair. It's a horrible comprimise. sweet.run@hotmail.com
hi how much hair did u lose? Do you think if I continue taking topamax I can go bold?? I lost A LOT already thanks
Help

United States

#381 Dec 31, 2012
Has anyone discover the solution to stop the hair falling while on topamax????
Confused

Berlin, WI

#382 Jan 1, 2013
I see everyone pretty much has posted for migraines, I understand completely. I used to get them real bad. But a very low hormone birth control helped with those. But now I've been prescribed them for severe pain, I dnt c many postings for this. I dnt understand why. Makes me nervous.
Confused

Berlin, WI

#383 Jan 1, 2013
And I am already losing hair due to stress(dads extremely sick, back pain and hair loss) so I'm also really worried about the hair loss. I'm already about half as thick as my hair used to be. So it seems like an option A or option B situation. Not as much back pain or major hair loss. But the weight loss seems like not that bad of a trade. But I'm already very self conscious about my hair, as I have told my doctor this. He knew not to put me on anything that hair loss was a factor. Now on top of this, I'm not sure I can trust him completely after reading the side effects and all these posts.
Katherina

Niagara Falls, Canada

#384 Jan 1, 2013
I've been on Topamax for 4 weeks now and I have had severe tingling in my fingers and toes. Comparable to pins and needles. I've had difficulty concentrating as well as memory loss-I've been forgetting small things (such as to put my shoes away at work, to write things on the prep list and I forgot to lock the door) These are very unusual things for me.

I've lost my appetite completely. I had a very strong appetite to begin with and now I am eating only when I am told by my concerned boyfriend. I am drinking plenty of fluids to decrease the risk of a kidney stone. So far I have lost 8lbs.

This drug seems to have a considerable number of side effects, I hope that it will decrease the severity of the migraines..
Shelley

Boynton Beach, FL

#385 Jan 1, 2013
Topomax is my miracle drug. It has kept me migraine free for 2 1/2 years from migraines that would literally debilitate me for 3 days at a time. At first I was on 50 mg twice a day and had weird side effects like my hands felt like they had touched a hot stove and carbonated drinks tasted tinny. Plus, my thought processes were delayed. My neurologist brought the dosage down to 25 mg twice a day and the side effects disappeared. I love the drug, plus I lost 40 lbs!! It curbs your appetite.
Kay

Los Angeles, CA

#386 Jan 2, 2013
Ang wrote:
I was on Topamax in 06 and lost 45 lbs in about 5 mnths - it was def the wonder drug!!! I then got off and kept the weight off for the next 2 yrs until I got preggo with my 3rd son - He was 1 yr old yesterday and I just started back today - I am so excited to begin this journey again!!! It was so easy and so worth it!!!
How was it the second time on the drug? How did you manage to keep the weight off for two years?
shay

United States

#387 Jan 2, 2013
I was on topamax back in 2007 for bipolor I was only on it for four months and during that time I lost about 50 pounds, my moods where in order and I loved it I didnt work out and I ate the same. I wanna get back on it but the things everyone is saying is scaring me. Idk what to do help!!!!!!
kris

United States

#388 Jan 3, 2013
My 7 year old son is suppose to start topiramate 25 mg only. Starting tonight. He has very bad migraines and nosebleeds nothing works. His doctor wants him to try it. Do you think its to much for a kid?
abby

Allen Park, MI

#389 Jan 6, 2013
I had on topamax for sometime for My migraines and had tryed other things and nothing work for me excepted topamax, but i did have the hair loss, the numbness, the weightloss. but it was a great feeling not to wake up or fall asleep w a migraine.. I stopped taking. But my migraines are back so bad im thinking for asking my dr to put me back on it.. Im having 5 to 6 migraines a wk now and just cant take it anymore..
abby

Allen Park, MI

#390 Jan 6, 2013
o and Kris. If he's having that bad of Migraines and you do deside to put him on that just becareful. With him being so young.
sheena t

Loganville, GA

#391 Jan 8, 2013
Correction wrote:
It's LOSE weight people, not LOOSE. Jesus that makes me insane. Where did you people go to school??
That's hilarious, I have been thinking the same thing!
corina

Victorville, CA

#392 Jan 8, 2013
Ok so I just started taking topamax last night so today is my second pill at 25mg, just wondering if anyone eles feels like they can't sleep I'm having a real hard time sleeping and than in the morning I'm real tired any one feel this way?
cass

Woonsocket, RI

#393 Jan 9, 2013
shay wrote:
I was on topamax back in 2007 for bipolor I was only on it for four months and during that time I lost about 50 pounds, my moods where in order and I loved it I didnt work out and I ate the same. I wanna get back on it but the things everyone is saying is scaring me. Idk what to do help!!!!!!
I'm prescribed it for bipolar too but I'm scared but all these side effects my dr. Put me on 200 mg at bedtime. Does it make u feel hungover and what about hair loss....help I'm scared but also curious
Concerned

United States

#394 Jan 11, 2013
I am on 300mg a day started off 100mg a day since July. I have lost weight 55 pounds but I am getting numbness and tingling anyone else?
Lizzstar99

New York, NY

#395 Jan 12, 2013
I started taking Topamx for cluster migraines and early stage MS about three months ago and it has been a miracle drug for me. If had given me my quality of life back. I was hugging my toilet every morning and didn't know if I was going to make it to work. It was a miserable existence. I, too, dealt with all the nasty side effects. The first month was pretty bad. I understand why they call it Dopamax. I felt stupid. I couldn't hold a conversation to save my life. I almost wrecked my car a few times. I got lost driving down the highway in my own town. I felt like I was drunk. I was lucky to have a friend that was a pharmacist to help me through me it. If it weren't for her I'm not sure I would have stayed on it. It was worth it though. What I wasn't prepared for was the weight loss. I'm 5'2 and was 130. Since October I've dropped down to 113. It's left me with virtually no appetite. I have to force myself to eat, which sucks because I really love food and find no enjoyment in it now.

I'm sure I'm going to lose more weight although I don't want to, but I don't want to cut my dosage in fear of my headaches coming back. I'm just thankful the tingling and confusion went away. That was something I couldn't deal with long term!
Lizzstar99

New York, NY

#396 Jan 12, 2013
Concerned wrote:
I am on 300mg a day started off 100mg a day since July. I have lost weight 55 pounds but I am getting numbness and tingling anyone else?
You're on a really high dosage. I take 100mg day. Rarely getting the numbness and tingling anymore. Have you asked your dr about decreasing your dosage?

Tell me when this thread is updated:

Subscribe Now Add to my Tracker

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Breast Cancer Discussions

Title Updated Last By Comments
Veterans Affairs clinic chief praises improved ... (Jan '10) 7 hr Channel Cat 47
YouDocs: Managing your cancer treatment Tue maryjaneprincton 1
I'm scared I might have male breast cancer =(!(... (Oct '06) Dec 16 Embarrassed 864
Varicose Veins: Fact, Fiction, & Cure (Mar '14) Dec 15 Paul Bear 4
Banned DNA test kits hit UK stores Dec 4 Kid_Tomorrow 1
weight loss forum Dec 4 laura adams 1
Angelina Jolie is smoking cigarettes after canc... Dec 3 bappy das 4
More from around the web