Taxotere - side effects - permanent h...
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Mastic, NY

#387 Aug 8, 2013
Hi Lisa: I am very interested in the supplements you were taking to get your hair back as well as for flushing out your system. How could I get in touch with you?

Lisa Dumaine wrote:
I was given Docetaxal in 2010 and finished my treatment in December of that year. I was NEVER told about the potential for permanent hair loss and the irony is that in January of 2011, they found another tumour in my other breast. So, not only did the chemo fail completely, but the medical system CHOSE not to disclose vital information that should have been my right to receive. After 3 years I have a very thin covering of hair all over my head that was hard won ... to say the least. To make a long story short I found a naturopath that does blood contrast work and found out that the chemo was still in my body 1 1/2 years later (sitting on top of my kidneys and liver). I was also extremely anaemic and incapable of properly digesting nutrients. I had to detox and am taking many supplements. It's growing now and although I have a long way to go before I can go hatless again, I have hope. If anyone is interested in hearing how I was able to get my hair back (and hopefully a lot more to come), I would gladly give details.
Lastly, if anyone writing in this blog does not truly understand the heartache and shock of finding out you will never be truly the same again, be kind. This is devastating and this kind of betrayal (and yes, I said betrayal), lasts a lifetime.
Lisa Dumaine

Winnipeg, Canada

#388 Aug 9, 2013
Hi Katlin,
I'd be happy to share all that I have learned and the supplements that I take with you. My email address is [email protected]

Hamilton, Canada

#389 Aug 18, 2013
Gail it appears you are not looking at anything but picking an argument. I also have the information given on taxotere from the drug company from 4 years ago and it doesn't say what you are saying, it states "temporary hairloss" you need to lighten up an grow up we are all survivors and we do not need to read your "dug in" comments.
Lisa Dumaine

Winnipeg, Canada

#390 Aug 21, 2013
First of all - leave Gail alone!!!!

Quite frankly, it's appalling that several of you are trying to goad her into an argument.

Leave the string if you are incensed by her zeal to get answers to these very important issues.

Good for you if you were told. Many were not. Good for you if the hair loss topic is getting "old" for you. For many of us we are still looking for answers. And hey Nursechiz if a medical pamphlet says temporary hair loss and many years later you are still bald ... perhaps you can attempt to wrap your head around the fact that we put our lives in the hands of medical professionals who didn't have the courtesy to provide all of the information that one would need to make a qualified decision.

This is for Gail, Babes, Kaitlyn and others who are actually interested. I have been working with two different practitioners, one has her own clinic called Fluid Isometrics which involves breaking down the fascia to promote proper breathing, body alignment and to bring life back into the cells and prevent disease. It's all about the oxygen. Our hair cells died ... but they can be brought back to life. It is a very specialized form of massage therapy. There is a website that I can provide if anyone is interested.

I mentioned the naturopath who does blood contrast work and she worked with me to rid toxins from my body and to break up the chemo that was still there. No doctor has ever talked about the fact that chemo can stay in the body for longer periods of time. For those "rare" cases where hair does not return, I truly believe this is part of the problem ... but only part.

My body was so sick that I was constantly throwing up and it was sudden - without warning! I did not feel nauseous, but I would awaken in the middle of the night and get sick. Often 3 to 4 times a week.

I wasn't able to digest food properly so it makes sense now that my hair wasn't coming back. I am on a blood type "A" diet now, that is not too hard to maintain - but if I stray too much - I pay the price by being sick. But I've gotten so much better that I am truly grateful for this small breakthrough. I am now taking a number of supplements that include B Complex, Amino acids (arginine and cysteine), biotin, vitamin D, a liquid iron, many herbs to aid in digestion and others to continuously flush my body of toxins.

The iron issue is something that should be looked into more. Have any of you had your iron checked? Although my blood indicated that I had sufficient amounts, my iron saturation level was less than half of what I needed to make use of the iron.

I also found the hair vitamins from "Natural Wellbeing - Hair Essentials" and these ones added to my other vitamin regimen really kicked the hair growth up a notch. I cannot stress enough how valuable those vitamins are - they can be ordered on-line. I also use the shampoo "FAST" and it does help those little hairs that are coming up to grow faster.

I have a lot more hope now. It is possible to regrow hair but be prepared for it to take a long time. I have hair all over my head and more coming in all of the time. The process is as slow as a melting iceburg, but progress is being made.

As for treatment that did NOT work, I spent $4,000 on laser treatment. It did not help. But, I don't need it anyway now that I know there are ways to restore the body.

Ladies, I searched to find others like me who needed to try to find some answers, and some type of peace.

Let's not turn on one another because I believe that we may be the only ones looking for the answers. Being bald won't kill you, even if it makes you question if life is worth living the way we have been left. Since we are all still here, we must be finding the reason to keep going.

I wish this most of all ... let's find the answer ourselves. The oncologists aren't looking nor are the cancer societies.

Lisa Dumaine

Winnipeg, Canada

#391 Aug 21, 2013
Whoa!!!! I have made a terrible mistake - I was under the impression Gail understood that everyone's experience was different.

My apologies Nursechiz.

I was not told. The literature indicated hair loss as temporary.

Gail - real people are hurting here and you've suffered too much as well.

Wouldn't it be better if we tried to find ways to overcome this on our own. And share experiences? Isn't that probably the reason you write in this string?

Hollywood, FL

#394 May 4, 2016
I am a survivor of cancer who used taxotere for breast cancer. I am 66 years old. I was NEVER explained what "cold caps" were, or offerred them I was told my hair would grow back. It did not in the very front; and top of my head. Even a hairpiece is hard to put on; not enough hair to hold it. T am elderly, disabled and half bald! NOT what I think I should be, when I fought so hard to beat cancer!
Thanks for your consideration..

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