Gail Perry

United States

#324 Jun 13, 2011
connie rodeheaver wrote:
Taxotere was one of the chemo drugs I had for my cancer in 2009. I have male pattern baldness. And was also told my hair would come back. I have to deal with the public , with there endless stares and people actually moving away like I have some kind of disease. Wigs drive me crazy. But Im alive and depressed.
I had the same problem, but the culprit turned out to be the AI I was on afterward and not the Taxotere. I'm NOT saying this is Shirley's problem, but it was for me. The latest list of side effects for Aromasin, one of the AI's, is "slow hair growth." They actively kept new hair from growing in and DRAMATICALLY slowed the growth of the hair I had. Like yours, it was limp, and not curly (I always had extremely curly hair).

I have some "male pattern baldness" but it was markedly worse on the AI.

I am now off AI's and although it's been slow, my hair is thicker -- even where it is thin -- and curly again. Since I live in a very humid climate there is no point trying to fight the curl, and by going with it, I now FINALLY have decent looking hair again.
Lisa from South Carolina

Sumter, SC

#325 Jun 25, 2011
I was diagnosed with BC with positive lymph nodes under my arm in 2008.
I am fortunate enough to have full head of hair regrowth from the very beginning after all chemo treatments stopped. I had adjuvant therapy, first AC for four rounds, bilateral mastectomies and then six rounds of taxotere followed by 6 weeks of chest wall radiation hell with wet blisters forming. No hormonal treatment after because I am triple negative.

I initially lost all hair, from head to toe on my entire body; eyelashes, eyebrows, legs and arms and everywhere in between.

It's three years later and I still have no growth of hair on my legs (I'm not complaining!) and just thought it was odd that on my legs hair didn't grow back.

I am truly blessed compared to those with permanent hair loss on their heads. God be with you all!
Gail Perry

Saint Petersburg, FL

#326 Jun 25, 2011
Essentially all my hair fell out

EXCEPT

one long eyelash right in the middle of each upper eyelid. Weird!
ddddan

Orlando, FL

#327 Jul 11, 2011
To Shirley at Fonsorbes, France
Please see http://her2support.org/vbulletin/showthread.p...
another permanent Taxotere hair loss blog
Rochelle Rosen

Nanuet, NY

#328 Aug 22, 2011
I had taxotere in 2002 and have permanent balding! I spoke to my oncologist about this and he said now that I brought it to his attention, he has noticed this in other patients too. When I spoke to Aventis about this they totally denied that it causes permanent hair lose. I then received forms from Aventis asking me not to sue them! I just want my beautifuk hair back! It used to take me 45 minutes to dry my hair. Now it takes 3 minutes! I have been taking Biotin 5000 mg for years, as well as eating a lot of protein. Recently I tried Redken Intraforce which caused my hair to fall out even more. I am devastated. I look like an old bald-headed man! I was considering Bosley hair transplant, but now I don't know if this is a possibility. Help!
Gail Perry

Tampa, FL

#329 Aug 22, 2011
Rochelle Rosen wrote:
I had taxotere in 2002 and have permanent balding! I spoke to my oncologist about this and he said now that I brought it to his attention, he has noticed this in other patients too. When I spoke to Aventis about this they totally denied that it causes permanent hair lose. I then received forms from Aventis asking me not to sue them! I just want my beautifuk hair back! It used to take me 45 minutes to dry my hair. Now it takes 3 minutes! I have been taking Biotin 5000 mg for years, as well as eating a lot of protein. Recently I tried Redken Intraforce which caused my hair to fall out even more. I am devastated. I look like an old bald-headed man! I was considering Bosley hair transplant, but now I don't know if this is a possibility. Help!
Rochelle, are you taking an AI or Tamoxifen? I know (from personal experience) that AI's can keep hair from growing back. Not sure about Tamoxifen.
Rochelle Rosen

Nanuet, NY

#330 Aug 22, 2011
I have been done with Tamoxifen and Arimidex for more than 4 years. The thining just got much worse from the Redken Intraforce.
Phyllis Tumlinson - Texas

Spring Branch, TX

#331 Oct 25, 2011
shirley ledlie wrote:
The thing is we dont really know if the taxotere has worked. You might think its worked and hopefully it has but you dont know for sure.
Anyway, your toe nails dont cost you 40 or 50 euros per month - i have been left with this large financial burden so i want rembursing so that i am not out of pocket.
I started this thread to ask people to ge in touch with me if they have had the same problem not to nit pick.
S o, if any of you has trouble with hair growth afer taxotere please contact me as the number is growing almost daily.
I have been reading some post about taxotere and hair loss. I finished chemo 1 week before Thanksgiving in 2009. I expected hair loss from chemo (I had taxotere, herceptin & carboplatin), but I didn't expect that I wouldn't have a full head of hair almost 2 years later. Before chemo, my hair was very thick, now it is very thin and I have big bald spots. Needless to say, I still wear a wig when going out. I have used Rogain & I don't know if it has helped or not. I would love to have my beautiful hair back, but that doesn't seem to be possible. When having chemo, I had frozen mittens & booties placed on my hands & feet for the duration of the taxotere. I haven't had any problems with neuropathy. I have since seen a TV show where a lady had a "frozen" helmet placed on her head to avoid hair loss. Wonder if that was successful.

Good luck to you. I a thankful to be alive and pray that I never hear the 3 worst words, "It's come back". Thank goodness for cute wigs!

Phyllis
Gail Perry

Saint Petersburg, FL

#332 Oct 26, 2011
Phyllis Tumlinson - Texas wrote:
<quoted text>
I have been reading some post about taxotere and hair loss. I finished chemo 1 week before Thanksgiving in 2009. I expected hair loss from chemo (I had taxotere, herceptin & carboplatin), but I didn't expect that I wouldn't have a full head of hair almost 2 years later. Before chemo, my hair was very thick, now it is very thin and I have big bald spots. Needless to say, I still wear a wig when going out. I have used Rogain & I don't know if it has helped or not. I would love to have my beautiful hair back, but that doesn't seem to be possible. When having chemo, I had frozen mittens & booties placed on my hands & feet for the duration of the taxotere. I haven't had any problems with neuropathy. I have since seen a TV show where a lady had a "frozen" helmet placed on her head to avoid hair loss. Wonder if that was successful.
Good luck to you. I a thankful to be alive and pray that I never hear the 3 worst words, "It's come back". Thank goodness for cute wigs!
Phyllis
Phyllis, here's my question for you -- not to prove anyone "right" or "wrong" but because it seems to have happened to me. I also had Taxotere, and I also had very poor hair growth afterward. HOWEVER, I was also on an AI.

Now they've discovered that AI's profoundly affect hair loss, so the combination of the chemos (not just Taxotere, I had something else before Taxotere that made my hair fall out)... and the AI's BOTH affected my hair.

I finally dropped the AI because I simply could not tolerate the side effects -- even though it is absolutely certain that AI's lower the number of women who hear the words "It's come back." My hair hardly grew at all, and I could *not* find a hairdresser who believed me, so every time I had my very thin hair trimmed they took off MORE than had grown out. It was extremely frustrating.

I also had a bald spot and wore my wig much longer than I expected to, but in my case the real culprit turned out to be the AI.

Taxotere saves lives. AI's save lives. I really don't like that I had to cut the AI's off but I had no choice.
Rochelle Rosen

Brooklyn, NY

#333 Oct 30, 2011
Gail Perry wrote:
<quoted text>
Rochelle, are you taking an AI or Tamoxifen? I know (from personal experience) that AI's can keep hair from growing back. Not sure about Tamoxifen.


What is (AI)?
Rochelle Rosen

Brooklyn, NY

#334 Oct 30, 2011
What is AI?
Liz Anderson

Naples, FL

#335 Oct 30, 2011
Hi Phyllis,

I finished Taxotere and Carboplatin in Oct' 09. Did 33 rounds of Radiation and a year of Herceptin. I had a bilateral mastectomy and three reconstruction surgeries. My body has had more drugs in it than I care to think about. I was hormone negative so am not on any medications now. My mother is Spanish and has a VERY thick head of hair. My hair was thick before and is just as thick if not more than before.

I have read quite a bit of this thread and really wonder why some women have lost and not recovered their hair after Taxotere and some have. Do genetics have anything to do with it? Hormone drugs? or a combination of various things?

I'm so sorry that some of you have little or no hair. One of the things I have tried hard to do since diagnosis is bring cancer full circle by looking somewhat like my old self again. I hope you can find a different way to make this happen and keep moving forward with your lives. If Taxotere is the culprit, I hope something can be done about it.

Take care...Liz
jayne jessop

UK

#336 Jan 6, 2012
well well well i have had taxotere and my hair is growing back (i used the cold cap so it didnt all fall out ) my haiwent a lot thinner but is growing back lovely and thick now but i wouldnt be bothered if it hadnt i am alive and thats all that matters to me
Gail Perry

Saint Petersburg, FL

#337 Jan 6, 2012
jayne jessop wrote:
well well well i have had taxotere and my hair is growing back (i used the cold cap so it didnt all fall out ) my haiwent a lot thinner but is growing back lovely and thick now but i wouldnt be bothered if it hadnt i am alive and thats all that matters to me
I'm with you Jayne. I'm glad to be alive.
Gail Perry

Tampa, FL

#339 Jun 2, 2012
Ruth B wrote:
<quoted text>
It is nice to hear there are other people who had the same chemo and had the same side effect. My chemo was 5 years ago, I still don't have my hair and I gave up. I'm grateful that I'm alive without hair. I guess is there other thing which can reverse it or work to have some growth back?
Ruth, are you on hormone suppressing therapy? It will keep your hair from coming back.
Faith McCallister

Athens, GA

#340 Jun 3, 2012
In 2009 I had Taxotere, Adriamycin, and Cytoxan. I have terrible pain from neuropathy and my head now is almost bald. It was very thick and healthy before the chemo.
No one told me I could possibly lose my hair permanently, nor did they tell me I could have this terrible pain.
We aren't promised the chemo will keep the cancer from coming back either. Believe me, I'd have taken a different approach if only I had been told.
Gail, I think you should stay out of this if you aren't having any problems. Those of us that are having to deal with no hair are devistated. The oncologists need to know how many of us are out here suffering from the medication they are using.
Gail Perry

Tampa, FL

#341 Jun 3, 2012
Excuse me, Faith, but you haven't read all my posts if you think I had no problems. I had the same chemo combination you had. I declined the last session of Taxotere when neuropathy started in my feet. My big toes are still numb five years later and I have CP, so neuropathy would have been very serious for me. I was already clumsy.

I also lost all my hair. I am entirely entitled to relate my experience and I do not appreciate your attempt to silence me. You should know that most people, including me, will react in the opposite.

I WAS told that rarely hair doesn't grow back, and doesn't grow back well. That was the case for me until I ended hormone suppression therapy, so it was an ENTIRELY reasonable contribution to the conversation.

I was also told that neuropathy was a real possibility. I was also told that it was more likely with Taxol, the first drug they were going to use, than Taxane, but that it was possible with both.

I agree with you completely, though. Oncologists need to be more honest about the consequences of these therapies. We're all grown up and we can handle the truth. I was devastated when my hair didn't grow back also. I consider myself quite lucky that in the end it did, and I don't think ANY facts about side effects should either be hidden or downplayed from patients. It's just wrong to do that.

My onc was completely honest about the chemo but not about the hormone suppression treatment. I have had permanent, negative effects from that. So the only real difference between you and me was where we weren't told the whole truth.

I suggest you rag on someone else. I won't take it.
babes

Athens, Greece

#342 Jun 4, 2012
I totally agree with you Gail.
I was devastated when I went through this thread while on Taxotere only to discover that apart from this horrible event there were more to come.
I spent days and nights crying because I didn't know what to expect.
My hair came back eventually and I hope that every single woman facing this nightmare,doesn't have to cope with hair loss as well.
The oncologists are doing their job some of them better than others.They are only human but their relation with the pharmaceutical companies is to be questioned and controlled at last.
All the best to all of us...
Ruth B

Saint Louis, MO

#343 Jun 4, 2012
Gail Perry wrote:
<quoted text>
Ruth, are you on hormone suppressing therapy? It will keep your hair from coming back.
I'm not on any medication!
Mick Hunter

London, UK

#344 Aug 1, 2012
My wife has been told today that her will not grow back after docetaxal. While we are extremely grateful that she is still here, I can't begin to imagine how she must feel at being given this news. She knew what was coming but it's still hit her for six. She was told that her hair would grow back, pure and simple. Only one case had been heard of of hair not regrowing. It's obvious that the problem is much more prevalent than that.

I cannot believe the harrying carried out on here by Gail. It's bordering on inhuman. Don't you think these people have enough problems without you harping away at them? As it's been said before, just start your own thread and spread your message there. I'm saying you don't have a valid point but the way you put it across is all wrong. Have some compassion and accept how your behaviour impacts on others.

Tell me when this thread is updated:

Subscribe Now Add to my Tracker

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Breast Cancer Discussions

Title Updated Last By Comments
Red Bluff post office helps stamp out breast ca... 12 hr Voice of Reality 1
I'm scared I might have male breast cancer =(!(... (Oct '06) 22 hr Gabriel11 862
'God has brought me through' Sep 16 Auntie Theist 39
Breast Cancer Study Sep 15 paddyomalley 8
Former 'GMA' host battles breast cancer Sep 12 Pamcb3 2
Ontario Breast Screening program now at Halton ... Sep 8 other Screening p... 1
topamax & weight loss (Sep '07) Sep 3 Kami 591
•••

Breast Cancer People Search

Addresses and phone numbers for FREE

•••