spinal fusion after effects
Andrea

United States

#81 Dec 18, 2009
Lindsay wrote:
hi i ad a spinal fusion when i was probibly 11. Ever since the surgery i am always in pain. I havent had any medical problems before but after i have been to so many diffrent doctors for so many diffrent problem. Its horrible i wouldnt wish this on anyone!
I also had a full spinal fusion at the age of 14 due to severe crippling scoliosis. I am 48 now and have a hard time doing exercise or working very long. Have a nerve study done with a phsyiatrist. Physiatry is a branch of medicine which aims to enhance and restore functional ability and quality of life to those with physical impairments or disabilities.They will study your nerves in your spine to see if there is pinching of nerves, which cause pain to shoot. They can give steroid injections to relieve that.Do water exercise and light walking each day. Use the hot water in shower as therapy to loosen the muscles and get help with tasks that are too hard on you.
Andrea

United States

#82 Dec 18, 2009
mic wrote:
<quoted text>I had a 3 level fusion in Dec08.. still miserable.. worse than before surgery.. back spasems and pain in my left leg. dr. has me on lyrica & oxycontin... tried me on morphine.. but I couldn't function when taking it, so I don't.... are you doing any better? did they have you in physical therepy?
I also had a full spinal fusion at the age of 14 due to severe crippling scoliosis. I am 48 now and have a hard time doing exercise or working very long. Have a nerve study done with a phsyiatrist. Physiatry is a branch of medicine which aims to enhance and restore functional ability and quality of life to those with physical impairments or disabilities.They will study your nerves in your spine to see if there is pinching of nerves, which cause pain to shoot. They can give steroid injections to relieve that.Do water exercise and light walking each day. Use the hot water in shower as therapy to loosen the muscles and get help with tasks that are too hard on you.

“Country girl”

Since: Sep 09

Lock Haven

#83 Jan 21, 2010
Ive had 2 fusions one in 04 and had a fall and loosened the screws in 05 so it had to be redone, L1-L5. I had a neurosurgeon work on me first to clean out the stenosis and open the area around the nerve roots. Then my orthopedic surgeon put in all the new hardware. I was on oxycontyn for a couple years, I went up to 120 mg a day. During this past summer i was complaing more than I normally do, so I went back to see the surgeon and I had some loose screws on L1 and 2. So he did a procedure called AxiaLif. He inserted a rod from under my tailbone up through L1& 2 and secured with more screws. Now that all was tightened up he wanted me to get off the narcotics to see where my pain my pain was. That was a nightmare. He put me on fentenal 50 patch and to stop the oxy cold turkey. Wrong!! I had the patch on and would take a 40 mg oxy to prevent withdrawal. By the end of 30 days on the patch I was no longer taking oxy. So I went down to a 25 patch and then a 12 patch. There the pain was overriding the patch. So now no more patch and I have 10 mg/ 325 loratab at my disposal. I am 65 and have a heavy aggrevating pain around my lower back that I will probably have for the rest of my life. During the day I will take at least 2 or 3 tabs a day. So I guess i could say my surgeries were successful. The pain I live with is better that not being able to walk, I have function of elimination processes. I had to wear that hard plastic turtle shell for 9 months afterward. To prevent any problems. Perhaps that was the difference. If I can be of help please respond to this post.
Jeff

Annandale, NJ

#84 Jan 24, 2010
several people on hear have mentioned having sharp shooting pain in their low back months after a spinal fusion; I had a L5-S1 fusion about 10 months ago; I too have been having a achy pain in my low back when I sit that gets worse and worse the longer I sit to the point it becomes a throbbing ache after about 1 hr of sitting that spreads to my hips and all the way around to my abdomen and genitals

I also get often on terrible sharp shooting pains into my abdomen and genitals from my low back area while doing almost anything, sitting, driving, laying on the couch, walking, etc

I'm beginning to think its from the hardware in my back. Has anyone had their hardware out and if so did it help your pain?
margaretrose

Lock Haven, PA

#85 Jan 25, 2010
I have never felt pains like you are describing. What I do have is a heavy, nagging ache in my lower back. When I had my surgeries I had a neurosurgeon work on me first in the OR. He opened all the nerve pathways and then my orthopod affixed the hardware. Your symptoms sound like nerve problems. I don't know anything about the hardware coming out. The only thing they removed from me were the bone stimulators from both fusions.
Nelmarie

Cape Town, South Africa

#86 Mar 10, 2010
backpain4life wrote:
I had my L5 S1 fusion nearly 4 years ago and I have never been the same since. I am unable to hold my children. I cannot walk throughout the mall without severe pain and numbness in my toes. I was wondering if anyone else has had these same side effects or any others. I am starting to think it was a botched surgery but I would like feedback to see if this is actually "normal". Thank you
I had L5 L4 fusion 7 years ago. I am in the same situation. I have pain every day of my life. It is at the stage now that even my pelvic area is num. I cannot feel when I need to go to the loo anymore. My children help me to bed every night and I am only 35 years old. I know how you feel.
Ixchel

Tokyo, Japan

#87 Mar 11, 2010
L5-S1 Fusion . I had a spinal fusion 8 years ago 3 years after I fell from a ladder and tried therapy and steroid injections. I was way too young to have fusion though I was desperate. I had sever sciatic and I could not walk. I went to a few Dr. before I decided on surgery, and went with The Back Institute or Texas. I had surgery and was in my brace going to college and was active as soon as they let me out. I was canoeing and hiking 6m after my surgery. Long term I still have hain in my hips/L but cheek but no more sciatica. What I would suggest to anyone with back pain in ACUPUNCTURE!!! I have tried everything and acupuncture combined with other therapies like Shiatsu, Tu-ina, cupping, and INSOLES to correct alignment etc has been wonderful and if I had it before I would have never had surgery. I am now worried about the long term side effects of having the fusion since I am still only 31.
Ixchel

Tokyo, Japan

#88 Mar 11, 2010
Everyone should try acpuncture/oriental medicine if you have some available. I tried Tuina from a Chinese dr and it was wonderful. You have to go back and stick with it for a while but once it is fixed it stays fixed!
margaretrose

Lock Haven, PA

#89 Mar 11, 2010
Nelmarie wrote:
<quoted text>
I had L5 L4 fusion 7 years ago. I am in the same situation. I have pain every day of my life. It is at the stage now that even my pelvic area is num. I cannot feel when I need to go to the loo anymore. My children help me to bed every night and I am only 35 years old. I know how you feel.
When I found out that I needed a second fusion, because of a fall, the surgeon warned me that one of the possible side effects to the surgery was possible incontinence, that like you, I would not feel the need to use the bathroom. That did not happen, but I do have a heavy pain in my lower back. I do take loratabs as needed. I did have a procedure in Sept. to shore up my fusion. I was not growing bone around my fusion cause things were not secure. I now am finally after 5 years growing bone. I don't know what to tell you other than it is caused by an injured nerve. You are so young to be in that shape. Please don't give up and try to find the help you need.
Jeff

Annandale, NJ

#90 Mar 13, 2010
Ixchel wrote:
Everyone should try acpuncture/oriental medicine if you have some available. I tried Tuina from a Chinese dr and it was wonderful. You have to go back and stick with it for a while but once it is fixed it stays fixed!
couldn't agree with you more! the big problem with that is, a lot of insurance companies, such as mine, does not cover ANYTHING with regards to acupuncture or relating to acupuncture and I just cannot afford it out of pocket!!
justagirlonline6 20

Sparta, WI

#91 Mar 13, 2010
Do not get open back surgery. Look up laser surgery. I am in the middle of get back surgery. I cannnot walk more then 10 feet. I cannot feel my left leg. My nerve is being pinch. The pain is so bad I wish someone would cut my leg off. I feel for all of you. I repeat do not have open back surgery. It cannot not be reversed.
Tammy
glad I had a fusion

United States

#92 Apr 30, 2010
backpain4life wrote:
I had my L5 S1 fusion nearly 4 years ago and I have never been the same since. I am unable to hold my children. I cannot walk throughout the mall without severe pain and numbness in my toes. I was wondering if anyone else has had these same side effects or any others. I am starting to think it was a botched surgery but I would like feedback to see if this is actually "normal". Thank you
I had a fusion 360 with a cage on 4-8-10 and I dont hurt at all you might have to go to another dr. I live in kingsland ga and I had my sergery in savannha with dr. roybal you might give him a call he was the best. My sergery was also l5-s1
Ashley

North York, Canada

#93 Jun 4, 2010
I'm 23, had spinal fusion at 18 for scoliosis (was in NO pain)

Now I get pain under my shoulder blade, everything feels out of place there

But the worst part is the headaches and neck aches I get that no one can help with.

And there's NOTHING online about spinal fusions causing headaches :(
Karen

Bellevue, WA

#94 Jun 28, 2010
I had spinal fusion surgery nearly 3 weeks ago. what A nightmare!I went in trying to ward off the 'inevitable; I was faced with the possibility of my right leg being paralized and permanent loss of bladder and bowel control. I sit here today with the very thing I was trying to avoid!I have to go back for the third MRI! they say there's a pocket of fluid that's pressing on my nerves and my body should absorb it.I cannot at this time feel to urinate or have a bowel movement with out medication to do both.I also experienced the worst pain known to man!!!!!For 5 full days I was in sheer agony!!!I wanted to die to get out of that pain .I hope i get better.
Karen

Bellevue, WA

#95 Jun 28, 2010
There wasn't any thing to even begin to even touch the pain!It's been a nightmare!has any one had an exprience such as mine and gotten better?I now have sciatic pain I am still holding out hope.They keep telling me It's just going to take time.HOW LONG?????
Trish

North Hampton, NH

#96 Jun 30, 2010
erin wrote:
<quoted text>
I am 22 years old and I had an anterior/posterior l5 s1 spinal fusion in november. I have been having a lot of trouble in my hip when i sit down for too long. I had a 5 month post op visit and my doctor said that i have too much bone growth posteriorly and it is crowding all of the nerves. I think that what is happening is that the foramen ( which is the space in which your spine and mininges are) is being compromised from the growth. I have 4 screws and 2 rods which they are taking out in july along with some bone. I work in the OR and i think a common problem after these surgeries is nerve damage/irritation. This can take months to years to go away. This is why you get numbness and tingling after the surgery. I think you should go and have a CT scan with contrast to look at the nerves and wether they are being compromised. That is how they decided that i needed a second surgery. The recovery time on a surgery to correct this problem is dramatically less (i was told a couple days in the hospital, no physical therapy and you dont have to wear a back brace). Hope this helps!!
I had L3 L4 fused this past May 25 2010,I had spondylolisis and stenosis. Did not have numbness when I went in for surgery but my whole left foot and calf is numb. I am getting nerve pain down both my legs and cannot sleep at night. Doctor says numbness will take 6 months to a year to go away. I will be seeing him On July 12 to find out about the nerve pain. I am also getting a ct scan as well. I am sorry I had this(yea right)fixed.
Trish

North Hampton, NH

#97 Jun 30, 2010
Is there anyone out there that has had sucessful spinal fusions?????????
barbie

Swartz Creek, MI

#98 Jul 15, 2010
I have been considering a spinal fusion afer years of severe pain worse after a fall. From reading all the comments here I have to wonder if there are any positive results for anyone. I can still change my mind. Shots and PT has not helped. Any help is appreciated.
barbie

Swartz Creek, MI

#99 Jul 15, 2010
Trish wrote:
Is there anyone out there that has had sucessful spinal fusions?????????
Am looking for answers myself if you find any please pass long the info if you could. Thank you
erica

Burwood, Australia

#100 Jul 19, 2010
hi i am booked in for spinal fusion onmy lower bac and they are going thru my stomack or lower abdomin , he said one off th side affects was sexual disfunction , worried , has anyone experienced this and wat are th disfunctions , conserned as am very sexualy active.and or how long did it take to get bac to normal,

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