spinal fusion after effects
RED

Birmingham, UK

#309 Feb 17, 2014
Hi, not posted on any sites like this before, so you have a 'novice' here! I had a discectomy last year (2013) L5S1. Since the surgery, the pain became unbearable, and after being fobbed of with 'its scar tissue' an MRI discovered, Discitis and Osteomyelitis . Near the end of the antibiotic treatment now, and although the pain has eased regarding the infection,(another scan due in a week to clarify the infection has gone) I am still in severe pain in my back, buttock, and occasionally leg. Also movement very difficult, and now if I have to walk more then 5 minutes, I develop a limp. I cannot walk properly, or take any exercise, which does not help. I am on Tramadol, Paracetamol, Morphine and have now been diagnosed with depression. I am absolutely terrified of my Atos assessment when it arrives, as I have read some horror stories regarding this. I really sympathise with you all on here, for whom appear to be in a similar situation. Any advice or even just a reply would be very much appreciated x
RED

Birmingham, UK

#310 Feb 18, 2014
Hi, not posted on any sites like this before, so you have a 'novice' here! I had a discectomy last year (2013) L5S1. Since the surgery, the pain became unbearable, and after being fobbed of with 'its scar tissue' an MRI discovered, Discitis and Osteomyelitis . Near the end of the antibiotic treatment now, and although the pain has eased regarding the infection,(another scan due in a week to clarify the infection has gone) I am still in severe pain in my back, buttock, and occasionally leg. Also movement very difficult, and now if I have to walk more then 5 minutes, I develop a limp. I cannot walk properly, or take any exercise, which does not help. I am on Tramadol, Paracetamol, Morphine and have now been diagnosed with depression. I am absolutely terrified of my Atos assessment when it arrives, as I have read some horror stories regarding this. I really sympathise with you all on here, for whom appear to be in a similar situation. Any advice or even just a reply would be very much appreciated x

redd

United States

#311 Mar 2, 2014
I had surgery L4 L5.April 2013.I have stiffness in my neck.lower back pain still exist.right foot numbness.Also booty cheeks hurt.pain doesn't shoot down left leg know.The pains shifted to the right side know.I hurt every day.worst than be for surgery.I have no Insurance or Income.This was an intergent surgery.My surgeon have recently moved out of State.I'wonder was it worth it.Know I have Bolts &Screws.I can predict the weather.
Anita

Sheffield, UK

#312 Mar 5, 2014
Hi , had my scholiosis surgery almost 4 years ago at 49 yrs old from T3 to L5 because of double curvature of 69 degrees each curve 2 yrs later i had to have another op to correct non fusion on the pelvis the surgery was done to stop it progressing but i was never told of what it could be like afterwards I'm still numb down both sides of the spine groin and hip take medication on a constant basis but just a lately the stabbing pains in my shoulder blades take your breath away , I always expected to have some discomfort and pain but the cramps and pains every day really get to you but trying to explain to your gp is like banging your head against a brick wall , my heart goes out to any of you who are suffering from scholiosis, it can be a debilitating condition physically and mentally hugs to you all
Peg

Wallkill, NY

#313 Mar 5, 2014
I had an anterior spinal fusion of L-5 and S-1 on Dec. 9th of 2013 after after undergoing a laminectomy of L3/l-4 a year pervious. I was fine after the first month and woke up one day with symptoms of a UTI. After seeing a urologist, being scoped, ultrasound, CAT scanned and X-rayed, it determined that I had nerve damage.??? My surgeon says the plates and screws are all in the right place, yet I always have this feeling of something pressing on my bladder. Has anyone had this issue?? HELP!!
RED

Birmingham, UK

#314 Mar 10, 2014
Hi all, well 2nd posting now. As I mentioned before I had a spinal infection from the discectomy. Had scans, and saw the spinal surgeon last week. He sent me straight to xray as the MRI showed inflammation. He said I still have some of the infection, but its 'dorment'.(does this mean it can 'return') He also said that the infection has 'eaten' my disc away! He mentioned a spinal fusion, then said the risks are high as 1, I have already had surgery so there will be scar tissue, which can incase the nerves, so they may not be able to see them and therefore cause damage. 2, because I have had an infection once I am more likely to get it again and that's not good with hardware etc, 3, the disc above is bulging also, and he is very concerned that it won't be able to take the strain. SO I have been sent away for 6-8 weeks to see if my spine will fuse itself. If not then i really don't know what to do!! Has anyone else been in this situation? x
alma

Watertown, CT

#315 Mar 12, 2014
I had surgery December 3rd 2013 I have on the l4 and l5 two rods and 4 screws fusion was doneand I still feel like s*** pain down my leg numbness CAFE AND tingling in my toes lots of weakness on my thighs can sit too long can't stand too long can't get upgoing to sleep is even worse I need sleeping pillshaven't been back to work and I Drive a bus and MCI how is that going to work sometimes I am so miserable and in pain it is driving me crazy but I deal with it but it doesn't make me happyor feel good I can't even walk my dog.Dr will not prescribe heavy medication for me.so I take about four motrin every 8 hours I see that my life has changed .

Since: Feb 14

Covina, CA

#316 Mar 12, 2014
alma wrote:
I had surgery December 3rd 2013 I have on the l4 and l5 two rods and 4 screws fusion was doneand I still feel like s*** pain down my leg numbness CAFE AND tingling in my toes lots of weakness on my thighs can sit too long can't stand too long can't get upgoing to sleep is even worse I need sleeping pillshaven't been back to work and I Drive a bus and MCI how is that going to work sometimes I am so miserable and in pain it is driving me crazy but I deal with it but it doesn't make me happyor feel good I can't even walk my dog.Dr will not prescribe heavy medication for me.so I take about four motrin every 8 hours I see that my life has changed .
Hi Alma, I feel your pain. I had surgery in june 2013, two level fusion with the cages, spinal decompression, discectomy, numbness in right leg, severe pain in back both left and right sides, my spine is now crooked starting at the point where the metal implants begin. I am on morphine, oxycodone, neurontin, soma and ativan, i was in the hospital for 9 days due to some kind of infection, elevated white blood cell count, thought I was going to die, 5 days in intensive care, I will never let them operate on me again. I can't walk more than 100 ft, cant sit more than 30 minutes, have to lay down regularly even with the opiates to relieve the pain. Of course SSDI denied my initial claim saying I could find some kind of other work, I too was a bus driver in Los Angeles and thats never going to happen, i am unemployable due to the massive medications. if you are in extreme pain you should complain and demand something to relieve your pain, its not humane for them to deny you pain medication when you truely need it! I hope things get better for you, God bless and keep us posted! Much love from Jim in Glendale, Ca.
alma

Watertown, CT

#317 Mar 12, 2014
thank you for responding I really thought it was all in my head I've been home for about 6 months now I was in a bus accident I'm a driver of an MCI I got hit by a truck and I had the surgery and I am still uncomfortable and pain down my leg and my lower back the Dr doesn't give me heavy medicine so I take 8 motrin I'm 56 years old so I really don't think that my back or my legs pain is going to get any better I don't have full rotate of motion on my lower back.,I just hate living in pain and I don't know if my job is going to allow me to drive like this even though this is a job related incident It just change my whole life.
i m dyin here

Appleton, WI

#318 Mar 12, 2014
Know any good Atty for Botched neck surgery?
John

Indianapolis, IN

#319 Mar 14, 2014
backpain4life wrote:
I had my L5 S1 fusion nearly 4 years ago and I have never been the same since. I am unable to hold my children. I cannot walk throughout the mall without severe pain and numbness in my toes. I was wondering if anyone else has had these same side effects or any others. I am starting to think it was a botched surgery but I would like feedback to see if this is actually "normal". Thank you
I went in Nov 2013, surgeon said I needed a bone graph at levels 3,4,5. I explained to him I really was against anything but real bone and didn't want any hardware installed. He said it's not all that, let me fix this and you'll be much better. after 6 weeks I was taken to hospital unable to walk, use arm, from neck down. Surgeon was on call on vacation, relayed message, he's OK, throw him out. I was literally refused 2nd opinion, another Dr., and carried out by several police.Then it was begging me back, doing test I didn't need, and surgeon on the 42 day refuse to see me again. I've been in a hospital bed over 120 days, he's office called me in yesterday to straightness out this issues, on a day they don't see patients, so I decided to take a pocket recorder. What was said on this recorder was we done all we can, and I told you your case you may even be so much words that you never walk again. While I was controlling the pain and living productive life until this. Then he went on to say I don't change records, I said I don't want you to change anything, correct the lies in them, then said I tape every call, conversation, and vedeo every visit, and I said well I hope you do, at that time I let him, I said I know I do the same and bent over where he could see my recorder see I had a recorder in my pocket. He went crazy, said it was illegal to tape him, call security, tried to catch me before getting to my car and out of there. You think you got problems, this doctor actually said I may never walk, talk, be normal and he has no interest in doing anything to help, its all me. trying to stall and take my tape. YOU CAN"T MAKE THIS UP !!!!!!!!!! Started ordering call my Lawyer, call security, don't let them leave with that tape. You better know everything about your doctor. John

Since: Feb 14

Covina, CA

#320 Mar 16, 2014
alma wrote:
thank you for responding I really thought it was all in my head I've been home for about 6 months now I was in a bus accident I'm a driver of an MCI I got hit by a truck and I had the surgery and I am still uncomfortable and pain down my leg and my lower back the Dr doesn't give me heavy medicine so I take 8 motrin I'm 56 years old so I really don't think that my back or my legs pain is going to get any better I don't have full rotate of motion on my lower back.,I just hate living in pain and I don't know if my job is going to allow me to drive like this even though this is a job related incident It just change my whole life.
You might want to go see a different doctor, one "outside the workers comp field". I sincerely believe that workers comp doctors are simply there to do as little as possible and get you back to work as quickly as possible, no matter how you feel, hence his refusal to give you adequate pain medications. With your condition and age I would suggest you apply for SSDI, it takes a very long time to get approved, but the sooner you apply the better. If you miraculously heal and can realistically return to driving the bus for 8 hours a day, and I know how grueling that is, well if you can return, you can simply cancel your SSDI request and get on with your life. Talk to a SSDI attorney, it's free to talk to them, but I would definitely go see a different doctor. Sorry if I'm rambling, but my pain management doctor has me on morphine, oxycodone, soma, neurontin and ativan. Even with these medications i still have pain but at least it is tolerable. I wish you the best! Jim
RED

Newcastle Upon Tyne, UK

#321 Mar 19, 2014
I am so sorry you have all had such bad experiences from having spinal fusions, must admit I am now very worried as to my spine 'fusing' naturally or not. Obviously hoping it will. Night time pain is still extremely bad, some night having to double dose the morphine for the pain, but strangely day time pain although still there, is more bearable. Hope things are improving for you all, take care x
amy gimperleg

Wolcott, CT

#322 Apr 7, 2014
so ive had a discectomy oct 2012 on L5 and another on S1 in feb 2013 and after both my right leg never got any better. in nove 2013 i went for fusion of L5 S1 and im still having terrible leg pain as to where i cannot even pick my foot off the ground. did anyone else have anything like this and their leg feels better now? after 4 months i thought i would feel better than i am and all the dr says is to wait...im so frustrated and want my life back!
Juli

Passaic, NJ

#323 Apr 7, 2014
Twaustralia wrote:
<quoted text>
I have stomach pain and migraines as well never related it to my back.! Just thought it was more bad luck. My main numbness comes from my toes but I also get arm numbness tingles ect. I wish someone had told me about these forums before I got my op done. I feel for you and your struggles. It is good to read through here though and see that I am not alone in this.
Sorry I took so long to read your reply... I have a lot going on and I didn't want to keep reading the forum because it just depressed me more. I too wish I knew about these things prior to surgery... Back then (2009), I was so miserable & desperate in pain that research was the last thing in my mind. Now, i research EVERYTHING! I read reviews even for simple purchases just to be safe! Lol! Truth is, I wish I could find a solution or a lawyer to handle Medtronic. Is their medical devices used for these spinal surgeries and it was them bribing doctors to push to perform unecessary procedures. Look it up. I strongly believe they should be held responsible for all of us here suffering years after being botched. It's not about a financial settlement, is about medical expenses. Personally, I can't afford $150 a week for physical therapy and numerous $50 co-pays.... I will never recover without the right resources......

But anyways, a lot of people here have complains of the numbness & tingling. I hate these feelings, in addition to random shock like pains up and down my lower leg and foot, needle pins, and the newest one is a feeling like a small wire is being pulled through my skin or nerves. My neurologist decided its neuropathy. Though the tests say differently, all the complaints fit and the medication (Gabapentin) helps a lot. So in theory, it is neuropathy. Look it up, ask your doctor. Plus, Gabapentin helps a little with the back pain. But the burning of my soles and the leg spasms is the most helpful.

Sorry for the essay here! I really don't write often, so I'm catching up! My best advice is not to let this curse take over and ruin your life. I try to live a normal life, though is costing me my knee caps to be displaced! Doctors will give me any pain meds, from tramadol to OxyContin... Even the Butran patch! But I don't take it for more than 2 months if that.... Because is useless. Is a bandage, and it just slowly kills you..... Live a life with pain, rather than not live at all.

XoXo :)
Lucky one

Stanley, ND

#324 Apr 30, 2014
I had L5 s1 fusion three years ago When I was 39 and it was a total success I am 100% pain free. I truly feel for those who are having problems but some fusions turn out great
Anonymous

Staten Island, NY

#325 May 5, 2014
Hi. Hope you are feeling better since your post. I had L4-L5 surgery about a month ago and have started to move around better. I went out for lunch yesterday for the first time since surgery. Had to return home after about 1.5 hours due to an enormous pressure on my lower back. It feels like an eighty pound bag of cement on my shoulders and the only way to get relief is to lie down. I've been dealing with this for a few years now. I had a discectomy in Jan 2011 which failed two months later, so I can relate to how you are feeling. Just wondering if anyone else who has had a fusion is familiar with the pressure I am feeling in my lower back and if I should expect it to get better.
miss

Saint Louis, MO

#327 May 11, 2014
I'm 23 and had spinal fusion surgery a month ago. And guess where I'm headed. The Emergency Room where I was told to go immediately after calling my surgeons nurse about my left leg that is swollen and bicolored and my right leg which is suffering and has been from sharp pains and lack of circulation since day one. Not to mention the god awful muscle spasms in my right butt cheek and down my right leg everyday all day. I feel everyone's pain here. Hopefully we all find peace in this soon.
emma cawkwell

UK

#328 May 15, 2014
Hi everyone
Omg its shocking how many of you have had a fusion and seem worse off. I am 32 years old and suffered with degenerative disc disease for 12 years plus 2 of my discs disdolved totally so i had bone rubbing on bone. I was on 56 pain killers a day plus morphine patches, oramorph and temgesic morphine tablets. My pain was unbearable and I would be drugged up that much I'd fall asleep stood up. Anyway after all these years I finally found a surgeon willing to fuse my spine. 4 weeks ago I had a multi level fusion plus bone graphs. I'm still unable to pick my daughter up or lift anything but apart from that my original pain and numbness in my legs have gone. I still get pain and tingling in my butt plus my right leg gives way on me but with intense physio it is getting better.
I hope u all either find some way to help ease your pain or better still get a second opinion.
I guess I just wanted to highlight that not all fusions are a failure. All I have seen on here is negative results. I personally try to see it as I'm now no longer on all those pain killers. I'm still on some plus morphine patches but I'm no longer a walking zombie. I've managed to have a child and yes I'm restricted to what I can do but u yourself can only make good out of a bad situation. I wish u all the best of luck and I really do hope u find some release or help from somewhere xxx
sshe

Bedford, UK

#329 Jun 18, 2014
Had a spinal fusion with rods and screws 5 weeks ago from T10 S1. Jus wondering what I have to look forward to in the future. I can't get comfortable in bed and feel like I am lying on a train track. Would love to hear fro anyone that has had this done

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