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Diane

Pueblo, CO

#144 Jul 10, 2014
I have a scs and I have had I since 1994.It doent work and hasn't worked since I have had It. Where I live no doctor wants to even touch Me I have been trying to get taken out for years.I believe it is causing more problems than I should be having. The Dr.' also believe I have MS but can't have an MRI. Does anyone have any suggestions! Please help! I am at the end of my ropes!
Anonymous

Grovetown, GA

#145 Jul 19, 2014
This is an old topic, but for anyone who is interested in a more updated answer, I had a Medtronic stimulator and anyone that has had one placed in them, should know that if you choose to have this put in you that they don't last forever, should you decide to keep them, eventually the battery will wear out and you will have to have it replaced and having it replaced is the same procedure as having it taken out.

As far as the leads go, I cannot attest to the pain involved there, only to what pain was involved in the trial and that did not hurt that I really remember, I did not have leads with my permanent implant, I had a paddle up on my spine, and yes it was painful to have that part removed, as it was wired into me. I had it removed last October and I still have some residual pain from the area it was removed from, this had to be removed by a surgeon verses, of course a pain management doctor, but as far as where the battery/stimulator was concerned, I had no issues from where it was located with pain after it was taken out, but I only had it a year. I am sure those who have had it longer would have issues with more scar tissue around it.

Mine did not relieve the pain I was in and as such, since it was not doing any good and the stimulator itself had shifted, I chose to voluntarily have it removed. My pain management doctor who put it in, removed it without issue.
debinpain

Columbus, OH

#146 Jul 21, 2014
I think i will pass on my scs.I am due to have trial in a few weeks. I am terrified the pain will be worse than it is now.
Steven

Concord, CA

#147 Jul 21, 2014
debinpain wrote:
I think i will pass on my scs.I am due to have trial in a few weeks. I am terrified the pain will be worse than it is now.
It depends on what you need the device doesn't work great for back pain but if you have lost the feeling in your legs it will help. Is it worth the risk I would still have to say no the only people I would really suggest for this device are users with no feeling in their legs. I have seen it work for them and it did give me feeling and use of my left leg for a short period of time. I am going to get an updated MRI and see if there are any new surgery's that can help the pain. I was already told there is nothing they can do to fix the nerve damage in my leg so it is something I have to live with no matter what they do for my back.

Good luck I will let everyone know what I find out after my meeting with the surgeon.
frustrated and in pain

East Liverpool, OH

#148 Jul 22, 2014
So I let the Dr move my battery. Now they can't seem to get a program that takes my pain level down. I developed a large fluid filled mass. And have been getting increasing pain were the leads are. The SCS should be taken off the market. It doesn't work and I'm now on twice the pain meds I was on a year ago. Please tell everyone that they are liars and just out to make cash flow . I have had three surgeries this year over one SCS implant and feel 90 times worst than I did last year!!!!!!!
frustrated and in pain

East Liverpool, OH

#149 Jul 22, 2014
debinpain wrote:
I think i will pass on my scs.I am due to have trial in a few weeks. I am terrified the pain will be worse than it is now.
. Very smart! Look for a surgeon who can fix you not cover the problem. Don't stop fighting till you get the right treatment. SCS is not the answer and boston scientific has hired the best people to talk you into it! I never received much relief. Just a year of hell and pain, I'm sure its not over yet. Good luck!
Pamela

Burke, VA

#150 Jul 24, 2014
I realize I'm posting to an older post, however, I'm needing advice on the removal of my stimulator battery. It's implanted in my right buttock and I can no longer even sit properly. The top right corner is actually beginning to push forward leaving an obvious protrusion under my skin. I haven't turned it on in about 8 months. Has anyone had theirs successfully removed (not the leads) and am I the only one whose battery tried to push through the skin?

Thanks y'all
SCOTT

Palm Beach Gardens, FL

#151 Jul 26, 2014
i am having my ST. JUDES EON MINI REMOVED.Is it mine.In other words can i ask the surgeon to put it in a plastic baggie and give to me after surgery.ANYONE?
Terasita

United States

#152 Jul 30, 2014
I just recently (over the last week) started seeing commercials for a recall for people implanted with St. Jude's EON and EON MINI units. I have a newer St. Jude unit and I am having significant issues.
SCOTT wrote:
i am having my ST. JUDES EON MINI REMOVED.Is it mine.In other words can i ask the surgeon to put it in a plastic baggie and give to me after surgery.ANYONE?
Dennis

Globe, AZ

#153 Aug 3, 2014
I had the SCS placed in Nov 2013 for my spinal and right leg and bottom of foot have had two cushions L5 S1 after 6 adjustments still no relief to bottom of foot Pain Dr say unable to reach,Iam ready to take it out and seek pain med again any suggestions please
Dennis

Globe, AZ

#154 Aug 3, 2014
chris101899 wrote:
Hi, I had a Boston Scientific SCS implanted Jan 2010 and I hate it. Trial worked great, I don't know what the difference is, but this thing is awful. I've had it turned completely off for the last five months because I gave up on it.
My pain mgmt doc wants to remove it but I'd prefer to avoid yet another surgery. Has anyone had one of these removed? I've heard the recovery time is easier and shorter for the removal than the implant. Is that true? I'm starting a new job and won't be able to take much time off.
thanks much!!!
Let me know what answer you get I also want it out and also in AZ
Steven

Concord, CA

#155 Aug 3, 2014
Dennis wrote:
<quoted text>
Let me know what answer you get I also want it out and also in AZ
I had mine removed on a Friday and was back to work on Monday I was still in a little pain but not bad. The removal was much easier that the implant.
Dennis

Globe, AZ

#156 Aug 17, 2014
I ha my SCS placed 11/2013 no relief to right foot after 6 adjustments
Now for 3 months Extreme Headaches Nuerologist what's to do a MRI but as all know we can not,anyone else getting these headaches?
Dennis

Globe, AZ

#157 Aug 17, 2014
For all that have an issue with the SCS has anyone had severe headaches with it
HRR

Alexandria, VA

#159 Aug 22, 2014
I just had my spinal cord stimulators taken out two days ago. I had them originally put in in 2009 and they never worked correctly. The trial was great but that was it. I've had a battery replaced. But the leads were never put in correctly so even have to having that battery replaced it still never worked right. I'm so glad I have it out it was just a pain in the butt since it never worked. I'm recovering really well. Minimal pain.
Anonymous

Cleveland, OH

#161 Aug 27, 2014
Diane wrote:
I have a scs and I have had I since 1994.It doent work and hasn't worked since I have had It. Where I live no doctor wants to even touch Me I have been trying to get taken out for years.I believe it is causing more problems than I should be having. The Dr.' also believe I have MS but can't have an MRI. Does anyone have any suggestions! Please help! I am at the end of my ropes!
Hi Diane, Have you tried the Cleveland Clinic Pain Management Department. They are an awesome team and I know they will take good care of you. I have been under their care for 4 years for pain. Just left from seeing my doctor for the final time before he removes the device. I was in the same boat unable to have an MRI done.
Anonymous

Cleveland, OH

#162 Aug 27, 2014
HRR wrote:
I just had my spinal cord stimulators taken out two days ago. I had them originally put in in 2009 and they never worked correctly. The trial was great but that was it. I've had a battery replaced. But the leads were never put in correctly so even have to having that battery replaced it still never worked right. I'm so glad I have it out it was just a pain in the butt since it never worked. I'm recovering really well. Minimal pain.
Hi HRR, Glad to hear all is well with your recovery. I am scheduled in October to have mine removed. It has been more of a hassle then the relief I was suppose to have. Do you feel that the pain is less now than when had the SCS implanted?
Anonymous

Cleveland, OH

#163 Aug 27, 2014
I had the SCS implanted October 2012. I dont know what the difference is between the trial and the actual implant. I had more relief with the trial. I am glad that it will be removed in October 2014.
Meemom

Philadelphia, PA

#164 Sep 23, 2014
I had the scs implanted Jan.,2014 I hate it and I want it out. I think it made my pain worse.
Avoice

Duncanville, TX

#165 Tuesday Oct 7
I can not even begin the to tell you the agony I'm in. I should of left the dame thing in. I had it removed now my whole body in in pain. I turned it off and felt fine. The Dr removed it all hell broke lose enough said.

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